Dave deBronkart: Meet e-Patient Dave 

what a beautiful human being. to have survived all that and come out with so much joy and knowlege... and the rap towards the end was icing on the cake!! :D

Honestly I started to tear up. Very touching talk. "My doctor never told me that, I had to hear it from phish" My doctor never told me about fibromyalgia, even though my mother has it, and we share many of the same symptoms. I feel like he wasting years of my time, and to him I was probably just some kid that came to complain to me every once an a while.

Patient is not a third person word. Many of us have indeed been in a hospital bed before, myself included. I do agree that it does not feel good when people talk about those who have been in the hospital for various reasons and they have no sympathy for what they say. In a way it makes me feel embarrassed about going to the hospital so much because I now know the things others say about patients in a hospital or doctor's office. To hear that there are actually people out there who care about the patient's opinion feels good. One of Dave’s colleges says that, one of the most underutilized resources are the patients, which is very true. Working patient with patient can get you very much information, more than many think. Some patients could bring up questions that you never thought to ask, or even have the answer to questions you have thought would never be answered. No one knows yourself as well as you do, saying that you can answer a lot more questions than you think, if you actually just take a seat and put some thought into what you want to know. Allow more than just doctors to help you, learn to help yourself. Using others research, especially the latest or newest research, can help you learn a lot about yourself and you can even help others who don’t have the proper connections to do the same for themselves.

Two thumbs way up, Dave!

Patients have a lot of time to learn and research on their particular health issue, doctors don't have this luxury. This is why patients can often find better treatments for rare or uncommon issues.

I think the whole idea of patients using other patients to pool info is great! Taking charge of your health seems to be a trend in the past few years, and I have watched other Tedx Talks and other videos that seem to have the same overall message. As patients, we should network with other patients who have similar questions/issues/health problems etc. and get advice through them while building a community of support. I have seen a lot of online communities and support groups already for various things health-related, but how much better would it be if all of healthcare was linked to patients world-wide to share information with? As patients, I agree, we are underutilized and I think a big part of that reason is because people have yet to get on board with the whole idea of managing their OWN health with the help of the doctor. Like Dave mentioned, 70-80% of healthcare is how we take care of ourselves, so why not use our resources (other patients) and team up to better our own health and help others learn ways to better theirs.

This guy is so passionate it just eminates outward. We need more people who care this much! Awesome talk!

How could it be that this man referenced Wikipedia in this presentation.....

awesome and very needed message

Just... awesome. Good work Dave.

This idea is a great way to reduce health care costs.

moving talk

OK, maybe that is what its like the States, but I dont believe its like that here in the UK. You are touching on the fact that culture currently dictates the behaviour. You have a different health system, you put the whole onus on the doctor, and if he is wrong he must pay a price. My original point though remains, Doctors have the ability, the desire, and the resources at their hands to be a far more exploratory, open minded, creative. We all have pressures, it is human instinct to overcome

Brilliant!

my god, amazing !

Yes

impressive

Very cool!

15:13 Green Lanter approves this message :)

I hope to meet you at #spm2017 on Wed! I’ve been participating in my son’s medical care since he was 3 weeks old. He was give 12 months to live. Now he is a sophomore in college and a Kappa Sig!

A look at the teleprompter: 01:21

15:14 Is that a guy with a Green Lantern t-shirt?!

Green Lantern @15:16 lol

Does this stuff work for melanoma also?

simply f*cking brilliant!!!!!

omdz, there are spare seats in the audience??? at a TED talk? .... :(

anyone else see the green lantern nerd in the audience

In Europe we have now something of a "Unicard", but it doesn't have any actual information, just numbers. I think it's time we have something (chip-card?) with our vital data: not just health, but history, school, jobs, workshops, curriculum, associative sports, etc, and that WE can access or share too.

Someone needs to remix that rap

Give me my damn data

@KemaTheAtheist Regulated like what? You can books hailing "homeopathy" and therelike in any library.

Quite weird situation it is. You are The only person, who knows how You feel, but you can't diagnose the condition. On the other hand we have a trained professional, who can diagnose, but has no clue of how you feel. So what's the point in hiding information from a patient (and why the heck you call it ethics???)

Made my eyes sweat

....I usually never ever do this but....SECOND!

@SEThatered We've had to hide medical information from my grandmother, coz she makes medical decisions based on how stroppy she's feeling at the time. If we didn't do this to/for her, she'd be dead. So i can understand why doctors feel the need to do this.

@gagzy1989 It's to create the illusion that even YOU can get a seat.

Rockstar

muito bom, fuiiiiii

@gagzy1989 Hahaha! In that case, I'll start trying :D

You Are god

@YawnGod i bet he cheered when they "FIRED" the radiologist. "God i love firing ppl"

@gagzy1989 i know right, i want one :(

FORGET ABOUT GOD, YOU WILL SAVE YOURSELF

:))

@oicub2 well the landing module is a bit smaller than earth. it's like showing a car on earth in the picture shot on the moon. there is no earthbound telescope that good.

Don't worry Mr. deBronkart, 15:12 Green Lantern's already on the job!

@KemaTheAtheist Ah OK, well you can get that too on the Internet, I still fail to see how to see how the Internet is a worse communication medium for scientific medical stuff when you can find BS also in books.

actually, this old man is real inspiration, that you can be a great person even if you're old or whatever. to be unstoppable

What an AMAZING person!!!! =D he was so fun to listen to, very entertaining and informative! =D

they need a place to gather good data. like a peer reviewed site

Dr. House would be so pissed with this TED talk.

I really, really, really, really, really like this guy!

Hes the Hans Rosling of Patients

Great talk Dave!! #LetPatientsHelp

@KemaTheAtheist The Bible. ;-)

15:10 Green Lantern also likes this

This guy is officially awesome.

FIRST!!!! IWINALL!!!!

BEST VIDEO EVER.

Nice Chap! :)

Third?

@LhyphenFour, Rubbish. Doctors are employed to seek the cures, preventions, and treatments that are available. That is their single most important role, above even administering it, they must find it first.

I had to skip over the grandpa rap.