Parabéns por ter esta iniciativa! Sou do Brasil, sou Mog + há 2 anos.Tive entre outros. Sintomas Neurite Bilateral(afetou minha visão) .Tenho pesquisado muito e encontrei seu canal.Muito esclarecedor.Obrigada❤
Thankyou so much Scott, you have such a lind and reassuring approach in the way you communicate your knowledge and experiences with us. My daughter has MOG with optic nuritis. We live in Australia and i was excited to see that in Sydney Australia they neurologist have discovered a way to find out if patients have relapsing MOGAD or not. Such an amazing progression. As Dr Greenbourg said he is nearly 100% sure there will be a cure for this disease in the coming years. ❤
Thanks for your kind comments Sharon! I saw that research paper by the Australian doctors too - I’m planning on making a video about it. Hopefully more progress is made this year!
Hello mate, I remember you saying in prior videos u experienced bladder symptoms (what u listed was very similar to me) have these symptoms eased as time has gone by or do them remain very prominent Still.
Hey Nevan. I still have bladder issues but they slowly improve as time goes on. I still suffer from urgency issues but I have a lot more time to find a bathroom. Self catheterisation was great for me to begin with but now I try to limit it e.g before a long journey or when I’m not familiar with the area I’m visiting. How are you managing your bladder symptoms?
Hi Sharon, I haven’t heard about that so I need to look it up. I know a few people who have lupus and MOGAD so it would be interesting to see. Not having to deal with Lupus will probably made dealing with MOGAD easier for them! Thanks for letting me know
It's probably because we are pretty much 24hrs ahead that i heard it before you. I look forward to hearing if you learn anymore about it. ♥️ Forever grateful for your channel.
My son 12 year old had diagnosed MOG antibody disease in 2 years back he is still positive Doctors didn't tell anything when his disease negative. In between this time his eyes weak emotionally weak and many others things happened with him I M from india
@@MyMyelitis thank you for replying. How do you feel since diagnose until now?? One more question- for MOG diagnose do you need to have lesions on the brain or spinal cord? I have a lot of headache, two small lesions, but doctor claims it's not MS. I'm gonna do spinal tap to see what is going on.
I feel a lot better now. Recovery went well although I still have some issues but they still seem to be improving. I don’t think the diagnosis criteria has been confirmed yet but I believe you can have lesions in either the brain or spine. I had some small lesions in my brain as well as bigger ones in my spinal cord but the antibody test also helped the diagnosis. I hope the spinal tap gets you some results
