MOG Antibody Disease Treatments Explained | Understanding Types of Treatment

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Welcome to in-depth discussion of MOG Antibody Disease treatments! In this video, we'll provide a comprehensive overview of acute, preventative, and investigational treatments aimed at managing this rare neurological condition.
Discover the various acute treatments designed to address flare-ups and acute symptoms associated with MOG Antibody Disease. From high-dose corticosteroids to intravenous immunoglobulin therapy, we explore the strategies utilized to alleviate acute attacks and promote recovery. Moreover, we delve into preventative treatments aimed at reducing the frequency and severity of relapses in individuals with MOG Antibody Disease. Learn about the role of long-term immunosuppressants, such as azathioprine and mycophenolate mofetil, in maintaining disease stability and preventing future exacerbations.
Excitingly, we also discuss investigational treatments on the horizon for MOG Antibody Disease. We explore the cutting-edge interventions being studied in clinical trials.
Whether you're a patient seeking insights into treatment options or a healthcare professional interested in the latest advancements, this video aims to provide valuable information and clarity. Join us as we navigate the diverse landscape of MOG Antibody Disease treatments, offering hope and empowerment to those affected by this complex condition.
References - mymyelitis.com/mog-antibody-d...
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If you would like to know more about Scott’s Story and how he was diagnosed with MOG Antibody Disease then watch the Scott's Story playlist here - • Scott's Story - MOG An...
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DISCLAIMER - The information on this channel is for informational purposes only. We ask you not to rely on this information and consult an appropriate healthcare professional before making any changes to your lifestyle, medication/treatments and physical exercise/programmes.
We advise you to always seek medical advice from qualified healthcare professionals ahead of using any information on this channel and the contents of this channel should never be used as medical advice. Do not disregard any qualified medical advice ahead of the information provided on this channel.
The contributors to this channel do not have experience in practising in either medication or healthcare and none of the information provided should be regarded as medical advice.
The information provided here is often found from a variety of sources and the legitimacy and/or accuracy of these sources cannot be guaranteed. These sources could also become unreliable or outdated as new information about the conditions is found or circumstances change due to the nature of this field. We urge you to take this into consideration when reading the information presented on this channel. ============================================================

Опубликовано:

3 авг 2024

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Комментарии : 28

@MrJonjon765 5 месяцев назад

Thank you for your videos. They have been a great help as I travel through this journey. I have been MOG positive for 3 years and am still on low dose oral steroids. I am also on Ocrevus for MS

@MyMyelitis 5 месяцев назад

I'm glad you find the videos helpful, it encourages me to keep making them! I'm not very familiar with MS treatments but I hope they are keeping you relapse free

@bridiellewellyn8469 5 месяцев назад

Mogad since 2010 and take Azathioprine, then high dose steroids during relapses. was antibody free for a couple of years then positive again. Was told this was highly unusual. still suffer daily but I’m alive and can enjoy life

@MyMyelitis 4 месяца назад

Thank you for sharing. I’ve heard of people going from negative to positive but I’m not sure if it has an impact on relapses or symptoms

@jfjejkejf 5 месяцев назад

Thank you for your work

@MyMyelitis 5 месяцев назад

Thank you for the kind comment! I’m glad you find it useful

@sophi9358 5 месяцев назад

Excellent video! Very informative. Thankfully I was fortunate enough not to have to go past prednisolone, but it's interesting to see how the treatments progress. Hope all is still clear with you. Thanks for the vid!

@MyMyelitis 5 месяцев назад

Thank you Sophi. You actually caught this video before it was supposed to go live! That’s great to hear, I’m also doing well on no treatment so I hope it continues

@sharonhardgrave6272 5 месяцев назад

Thank you for the amazing explanations of all the treatments. My daughter is using mycophenolate which makes her feel pretty sick. She is a performer in theatre and comedy, she keeps going forward and tries to not give in to her feeling so sick. One thing I am unsure about is, with Rozanolixizumab and Satralizumab are they to help you have no relapses without taking out your immune system, the way mycophenolate dose, or are you supposed to take them together which means you will always have a compromised immune system. I hope this makes sense. ❤

@MyMyelitis 5 месяцев назад

Rozanolixizumab and Satralizumab have a 'calming' effect on the immune system rather than weaking it like other treatments. The aim of the Rozanolixizumab trail is to see whether the treatment can prevent relapse without the use of other treatments but the Satralizumab one allows other treatments to be used alongside it. I'm not sure whether the intention is for Satralizumab to be used alongside other treatments or if it is to safeguard patients in the trial, especially if they are taking a placebo instead of the treatment. Hope that makes sense

@sharonhardgrave6272 5 месяцев назад

Thank you so much Scott, I really appreciate your help. ❤

@akimceke4659 5 месяцев назад

I was diagnosed with mog encephalitis on 15th January 2022 during that time my body was weak , it was my roommate who helped me to get in the taxi , my left arm and left leg was paining the time we went to the hospital and i spent two weeks in the hospital , after those two weeks the results came out were fine , the doctor told me i can go home and continue taking my medicine but i must come back after 3 months to do all the medicial check up again MRI test scan on the brain everything So until now two years have passed but i still have side effects of the disease , when it is cold my head hurt and my left leg feel cold compare to the right leg but when the weather it is hot i don't feel anything, when it is cold my body is so weak so i wear jacket to cover myself and i want to know if there is any advice you can share with me Thank you for your support

@MyMyelitis 5 месяцев назад

Thanks for your comment, I'm sorry to hear you're still having issues. Weather and temperature can have an effect on symptoms so you may want to wear more clothing when going out in the cold. There might be some ways you can adapt your environment which might help your symptoms. I had some issues with temperature sensitivity after my episode but thankfully it has recovered. I would recommend joinng some MOGAD support groups and asking for advice there. I'm sure you would get some good advice there!

@raghuram.nraghu8549 4 месяца назад

Hii Bro, It's been 9 months MOG positive. I'm taking Tocilizumab injection as advised by doctor. Still It is very slow recovery but my bladder is not at all improved and I'm suffering to do motion 😢. Low strength in boby. Feeling very bad about it.

@MyMyelitis 3 месяца назад

Sorry to hear that Raguhuram. It’s good that recovery is happening but it can be slow. All I can suggest is to keep doing light exercise and stretching. Have you tried self catheterisation for the bladder issues?

@raghuram.nraghu8549 3 месяца назад

Yes I tried self catheterization but it was paining so i left using that.

@marilynquintana8540 3 месяца назад

Hi My Name Is Marilyn I Have The Condition I Living Puerto Rico There Not That Here I Need To Know more You Help Me

@MyMyelitis 3 месяца назад

Hi Marilyn, what treatment options do you have available in Puerto Rico?

@edithreyboneria7722 4 месяца назад

Hello hope you answer my question this sick what is the cause or where they get i'm a filipina from philippines my nephew was in hospital until now did not diagnosis his sick.but doctor written is Mogad.please reply he was in hospital march 3 2024.thank you for the help😢

@MyMyelitis 3 месяца назад

I’m sorry to hear about your nephew. We do not know the cause of MOGAD. Some people have something happen shortly before their episode but that may be a trigger rather than a cause of MOGAD

@bluestang198950 5 месяцев назад

I wish somebody could give me an answer if the damage that tm on and mogad caused ..over a year now and i still have pain and burning from waist down and im always fatigued ..bladder issues aswell ..is this for life ?? Thnx

@MyMyelitis 5 месяцев назад

From what I’ve heard recovery is quite dependent on how quickly you were given the correct acute treatment. But some recovery can still happen long after your episode. I’m still noticing small improvements every few months myself so I wouldn’t lose all hope. Does medication or therapy help with your symptoms?

@bluestang198950 5 месяцев назад

Physio helps for a day or two then everything comes back again not sure what meds are doing for me ..dr keeps changing meds on me looking for something that helps ...guess i should just be happy that i can walk

@MyMyelitis 5 месяцев назад

Is physio helps are you able to do some of the exercises yourself each day? I think exercise and stretching helped my recovery a lot but I’m not sure if it’s been proven to aid recovery

@dixithsingh6905 5 месяцев назад

Does IVIG works? Is there any complications?

@MyMyelitis 5 месяцев назад

Yes IVIG is a promising treatment for MOGAD. Some side effects for IVIG are headaches, nausea, chills and fever. Some ways to reduce/stop these side effects are staying hydrated, giving the IVIG more slowly or spreading the dose across multiple days

@simranjaswal5214 5 месяцев назад

Hi my mother was diagnosed for mogad ( optic neuritis ) recently although she was weakly positive for mog and she was advised for Tab. Wysolone 40mg Tab. Azoran 25 mg Tab. Pantop 40mg Calcium + vitamin d3 tab. But when i am specifically searching for these tablets, they are prescribed for Rheumatoid Arthritis. Is this treatment okay according to my mother's condition? Please reply

@MyMyelitis 5 месяцев назад

Hi Simran, I’m sorry to hear about your mother. I’m not familiar with any of those treatments being used to treat MOGAD. You may want to check with her neurologist that the treatment is correct and they haven’t mixed up the diagnosis