Diagnosing Myositis, Marianne de Visser, MD 

Wow, this may have been the greatest presentation lecture that Ive watched on RU-vid. Dr. Marianne de Visser, you should be commended for conducting such a great lecture with such patience with your QandA. I am very interested in this subject as I am just in the beginning stages for a diagnoses. Have High titres for SS-A and Anti DSDNa but muscle weakness and muscle loss and fatigue are the most prominent features however my clinicians, at this point, do not seem to be going down the path of the fundamentals as per what is the basis for your lecture. I am hoping at some pt I will get a biopsi or muscle MRi at the least as I am currently on Plaquenil but have only just begun this treatment with no significant improvement however side effects have occured already. Thank you once again Dr Marianne de Visser, MD. Would be so cool to have a coffee with you!

I also have that red upper chest rash. I see it after every hot shower, it does not itch and is not raised. I notice it from sunlight as well on upper chest and neck.

I am 41 yr old woman who has had many strange symptoms including extreme muscle weakness, mainly in my thighs and shoulders also my hands. I feel like I am losing my fine motor skills in my hands (particularly my thumbs). I have had extreme weight loss (5o lbs in 5 months eating well), kidney hemorrhage, numbness, light sensitivity, anemia, low blood pressure, eye irritation and puffiness, difficulty swallowing at times, I can go on forever. My ANA is positive with cytoplasmic pattern, and I just received a Myositis panel awaiting results. My Rhem doesn't think Myositis is likely bc I have normal EMG and CK levels. I feel like its this or Lupus. Any insight from anyone? He is very stern about my CK levels being normal but now I wonder. I am so desperate for answers I feel like I am slowly dying.

I will love to attend one of the meeting

How much increase in dx since job vaccinations for childhood diseases aka MMR??? I felt injured and disabled by MMR and HEPB for jobs😢

I really loved this lecture ,beung a student of rheumatology it has really helped me and would love to have some training in such centres.

Thanks

What are the occurences of myositis ossificans in all myositis patients? is there a link with the cause of arthritis?

Do they tend to disregard to check you for myositis because of your young age? even if you show symptoms and your C3 is positive.

I am searching studies about it in bahasa indonesia but i cant find it yet. Thank you for helping me understood about my desease

And 2021 not curable

Biopcey

Uhhh uhhh uhhh uh uhhh