God bless you and your journey to good health. My 17 year old Son was diagnosed with this in July, it is stage 4 and has spread to all his organs. A very large mass fused his intestines together. He is very blessed to even still be alive. I believe the prayers from everyone are the reason he is still here. His surgeon said he will go down in medical journals .
I'm sorry for your son. How was he diagnosed? What were his symptoms? I'm struggling with long bones pain. I have an autoimmune disease and immediately the doctors say that the it's due to the disease. But I suspect that's not because of the same disease. The bone pain is horrendous..
