Good comments so I figure I'll add for posterity .... I am a male diagnosed w/ MS at 55. From NY living in SoCaL for past 12 yrs. I had tingly hands and feet for a year and thought diabetes... Had a bad attack after a flight, when I got home and saw the Dr I got an MRI for ultimate MS diagnosis. After one year... Dr unsure if RR or PP. Time will tell. Taking full med right out of the gate (Rituximab and daily Gabapentin), I get flares but never get back to "baseline". Just gotta fight the fight.~ Meds, Diet, exercise, no stress. I don't have a lot of strength or ability to work hard, cog fog, with a little bit of trbl walking. I watch a lot of Dr Aaron Bolster on YT to learn. My neurologist (younger male) doesn't have a very good bed side manner. I think I have Primary MS but at a yr in it is hard to tell.
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters TY DR CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is beingreferred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…!
I was diagnosed with MS 11 years ago, but because my MS was very mild, I was in denial that I had it. For years, I thought I was misdiagnosed. I took my medications sporadically and, during Covid stopped taking them for about 18 months. Recently, I started feeling numbness in both feet and two fingers on my dominant hand. I rushed to start taking treatment again, but I am nervous that I stayed in denial and relaxed with taking my meds for too long. I am taking prednisone for the numbness, but it isn't working at all. I am hoping the numbness will remit soon, but I will be certain to stay on my meds this time. No more bs denial; I have the disease.
Thank you for this video, I'm 22 I was just diagnosed with relapsing MS three days ago so many things were missed by other blood works and doctors. I had numb and tingles for a month on a constant and this was my second time this year it had happened. I've had server vertigo last year and double vision and carpal tunnel but it was never put together to be diagnosed. 3 days ago I went to the ER and they got blood work done and rushed me to get a CT scan where I was told 30mins later they believed I had MS, then was rushed to see a neurologist next door and he said it would be beneficial to start steroids to battle my MS attack, I'm on my 2nd dose and the numbness has started to go away, ill be getting more blood work done, Xrays and RMI scan soon I am trying to be brave but it's been a lot of information within a day at the hospital it took them 6 hours when it had been going on for already a year and a bit although they've said I've caught it on time.
Hope you get better stay positive and try and do some exercise like swimming or bike riding. Simple non stress exercise. I have chronic tingling and numbness in my feet legs hands and face. It drives me crazy at night. I am going through the tests still to find out what is wrong with me. I try to get out as much as possible. Not getting enough sleep at night it making it hard. Take care and look after yourself x
@Therese Rogers Hi Roger, thank you I've actually gotten all my treatment I'm on some strong medication through IV that I sit 4 hours for haha I'll be getting it twice l year for the rest of my life, it's called Riximyo. It's important that I never get thoeses symptoms again because that means its attackng my nerves again. Crazy thing is they said if I didn't get diagnosed when I did I would of been in a wheel chair in 5 years. I hope you figured out what you have.
I'm so sorry, rrms too 33yo male. It sucks but. Hope you get treatment ASAP, I declined so effing much in the 1yr it took me to begin Tysabri infusions. The second MRI was much worse than the first. It was dripping with lesions lol. Try meet other sufferes, and excersise as much as you can. ❤️
@@ihatemyelinsheaths.7514 I like your username haha, but im sorry to hear that. yeah its been a year now since being diagnosed they caught it just in time, my neurologist said I would have been like a 70% chance I would have been in wheel chair within 5 years if I hadnt come in. But luckily my neurologist was seriously and i'm on Riximyo infusions, I take them twice a year for 4 hours a session. he told me others one not recommended what im taking haha but he knew he had to get me on some stronger stuff right away. since having my treatement I dont have the pains or nunbness/tingles. But my eyes have had some left over damage from my lessions. they counted 34 of them, but in my last visit they found another one, but they arent sure if it poped up in between my last MRI. so only time will tell if my meds are working
@@ihatemyelinsheaths.7514 They actually signed me up for MS research. So im participating in that for 5 years, so I get to be a lab rat lol so they can hopefully add to their data for finding a cure in the future. I am really sorry that your infusions aren’t working as good as they should be and that new lesions are showing up.
Everytime I watch your videos, first thing I do is give them a thumbs up and like the video but then I walk around my house questioning why I put up with my stupid neurologist. All 3 of mine have never addressed those 5 mentioned areas!! THANKYOU FOR EDUCATING ALL OF US IN AUSTRALIA. I’m sending this link to them now! 🇦🇺 😍🙏😉💗
I´m 24. Doctors have told me for 6 years that I´m "fine and there´s nothing wrong with you" I did my research and figured that I might have MS....guess what... I do. I finally put my foot down and "demanded" for them to take me seriously. They really hated that I had the answer already ready lol
I am 24, I was diagnosed with MS in 2019, but before that and for 6 years doctors have told me that I am fine and there's nothing wrong with me...I have done my research in 2017 and guessed that I might have that ms, but still wasn't officially diagnosed until august 2019
Are you both in the UK? I'm currently going through this. I've had flare ups for the past 2yrs . I was diagnosed with ME/CFS and my symptoms have become worse with each flare up, I've now been told I have FND after nothing showed up in a CT scan. Does anyone know if FND has flare ups to?
Thank you you really opened up my eyes to what I missing I do have multiple sclerosis and it’s not been taken care of because I Continuously need to start my journey over and over and over again like now I’m living in Wisconsin and I don’t know which way to go what’s up or down and it’s driving me crazy thanks for your information is very eye-opening and now I know what I Gotta do somewhat it’s a start but thank you very much and God bless you take care yourself
I have PPMS I'm 51 and in a wheelchair and can't use my left arm and losing my vision I'm on Mayzent and I like it better than Ocravis Infusion. What do you recommend
I have primary progressive ms but I feel like my doctor would tell me if I had a cold it he would tell me it's ms the pain I feel some days are easy than others I'm lost
Very Informative, I learned a lot , I have PPMS and I was hoping that you would have mention that one medication out there to treat it, you never said.
I haven't watched the video yet. Even once I do, my memory is poorly. Did they not mention a medication you were hoping to learn about and don't know about or were you just hoping they would mention it? JIC you want to know the med, I looked it up. It's Ocrevus.
Yes! I noticed she didn’t mention it also but I have MS and take Ocrevus. I Suspect I also have the PPMS type but it’s never been confirmed just a possibility.
The Dr. found several lesions in my periventrical region. The radiologist said possible MS differential diagnosis. I have many ms symptoms. I dont know what to do. My Neurologist doesnt do anything at all. Not even explaining the MRI's ect. What do i do now?😢😢😢😢
This woman is so giving the wrong impression about rrms . I had it for 20+ yrs before I became spms . Not once did I return to baseline after a relapse . Most people ( especially over time and repeated relapses) don’t go back to baseline . They are left with some disability or problem which never goes back to normal . This is why over time your disability worsens and problems increase . Like bladder weakness , worsening mobility , lack of finger dexterity and cognition problems . This woman over and over repeats how you go back to being a normal person between relapses which for nearly all ms’ers just isn’t true and gives an untrue picture to people newly diagnosed .
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters TY DR CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is beingreferred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…!
I’m almost certain I have RRMS. Everything is congruent with that specific type of MS. When I told my doctor my symptoms and mentioned that I think it could be RRMS he seemed to agree. I’m going for an MRI (don’t know when). I’m nervous but at least I’ll get an answer.
My body does not go to a "baseline" after an attack. Disability increases after successive attacks. Dr says "So long you might have SPMS, but that does not affect your treatment"
Thank you, overall the video was positive and very informative. Regarding symptoms, know that God will not give you something you cannot handle. But, we are all tested. This worldly life is temporary. We need to use the time you we are given to prepare for the Hereafter. Thank you.
I've been taking vitamin D-3 and vitamin B-12. just read up on the Flax oil, does seem good ill have to add that, and also I'll bring that up with my neurologist and see what he says about the effectiveness, thanks for comment
Actually talked to my neurologist and said it wouldn't do much actually.. he said vitamin D3 Is better but he's going to be putting me on a long term plan for proper medication
