Disability Not Invisibility: My experience With Chronic Illness. | Vicky Potter | TEDxFSU 

I've got POTS too. this TEDtalk is so important for those without invisible illnesses to help them understand those who look "normal" but are suffering on the inside.

As someone with chronic illnesses and chronic pain I applaud 👏🏼 you for this video if only more people understood!

I am extremely glad you made this talk. I have a chronic disability that is dismissed everyday by the healthy or normal population. Or they downplay my symptoms and say they go through it too. When they have no idea. People who aren’t around me all the time wouldn’t know that I am disabled. I have a service dog. I get asked all the time oh are you training her for someone else? No she’s mine. Why do I have to explain myself and my personal information to someone who I don’t even know? Just a frustrating world right now.

Wow this is uncanny. This is almost exactly what I went through in the past month and a half with my POTS; going to the ER, seeing tons of doctors, the fatigue, the pain. When I go back to school in a month, I'll have to use a wheelchair. It's comforting to see someone else like me.

Wow, awesome talk! You even made me cry, because you voiced so many of the struggles I have been facing for years with my disability. Thank you so much!

"I didn't believe you could wake up one day, and be sick for the rest of your life." Great presentation! Thank you!

You summed up exactly how it is to live with POTS. Thank you.

I just nodded all the way through this. Great and so true. I am In the UK with chronic pain but still undergoing more tests for more diagnosis. Xx

Thank you so very, very much for your talk. I suffer with several chronic illnesses and can relate so much. Thank you! 💕

I had an "invisible illness" for 8 years (ulcerative colitis) and I did feel the shame and embarrassment mentioned in this video. Everyone needs to really listen to this message.

Thank you for this - you changed my life

I have POTS too. Thanks for telling your story. I'm struggling to get treatment because no cardiologist will treat me.

Thank you for this wonderful talk. You did not mince your words, and I think you were very clear in helping all of us understand that the disability community is large and diverse. I have electromagnetic hypersensitivity -- an invisible disability that because of our cultures rampant use of wireless technology -- drastically limits my freedom to leave the confined of my EMF-shielded room. This condition is widely not believed in or recognized by my doctors who keep trying to diagnose it as something else. I resonated with everything you said in one way or another. Thanks for sharing your truth so eloquently. I learned a lot and I value your message.

Damn girl that was fierce! Rock on sista!!!

Perfectly said! Probably the best I’ve heard. Thank you for speaking the pure truth!! ❤️

I wish that this was labeled as dysautonomia/pots ...I had to search hard to find a ted talk on this. (I have pots)

Definitely needs to be shared more 💜 I really needed to hear this today

Bravo, excellent talk and right on point

So true!! Thank you for sharing

I have POTS also I have had it since I was 15 but was not diagnosed until recently I am now 48. I was constantly told by doctors that I was having anxiety attacks. I am so glad you spoke up about this because there are so many people including doctor's who have no idea of this.

The conspiracy theorists in the comments are the reason people are scared to go out in their wheelchairs when they need one

Thank you Vicky 🙌😘

I got this due to my lyme-disease infection.

Agree with everything.

Check vitamin b12 (active b12 MMA) levels and vitamin D3 and iron profile.

total recovery from chronic conditions? Many anecdotes on Raelan Agle's RU-vid channel, worth watching?

POTS is a symptom of something else, get a functional doctor, allopathic doctors will not look for the cause

Lol she can stand for like 3 to 4 min, if I get that much I would never ever complain in life