I've got POTS too. this TEDtalk is so important for those without invisible illnesses to help them understand those who look "normal" but are suffering on the inside.
I am extremely glad you made this talk. I have a chronic disability that is dismissed everyday by the healthy or normal population. Or they downplay my symptoms and say they go through it too. When they have no idea. People who aren’t around me all the time wouldn’t know that I am disabled. I have a service dog. I get asked all the time oh are you training her for someone else? No she’s mine. Why do I have to explain myself and my personal information to someone who I don’t even know? Just a frustrating world right now.
Wow this is uncanny. This is almost exactly what I went through in the past month and a half with my POTS; going to the ER, seeing tons of doctors, the fatigue, the pain. When I go back to school in a month, I'll have to use a wheelchair. It's comforting to see someone else like me.
Wow, awesome talk! You even made me cry, because you voiced so many of the struggles I have been facing for years with my disability. Thank you so much!
I had an "invisible illness" for 8 years (ulcerative colitis) and I did feel the shame and embarrassment mentioned in this video. Everyone needs to really listen to this message.
Thank you for this wonderful talk. You did not mince your words, and I think you were very clear in helping all of us understand that the disability community is large and diverse. I have electromagnetic hypersensitivity -- an invisible disability that because of our cultures rampant use of wireless technology -- drastically limits my freedom to leave the confined of my EMF-shielded room. This condition is widely not believed in or recognized by my doctors who keep trying to diagnose it as something else. I resonated with everything you said in one way or another. Thanks for sharing your truth so eloquently. I learned a lot and I value your message.
I have POTS also I have had it since I was 15 but was not diagnosed until recently I am now 48. I was constantly told by doctors that I was having anxiety attacks. I am so glad you spoke up about this because there are so many people including doctor's who have no idea of this.