Do You Even Care Anymore? Huntington's Disease Patient Sharing How I was Feeling, Not!

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I am a Huntington's disease patient with a 10 year diagnoses and this page is dedicated to sharing positive lifestyle ideas even while living with Huntington's. Huntington's disease symptoms affects so many different aspects of your life with the brain disease symtoms. This page is dedicated to helping you cope with daily life and all the complications that come along with HD. Huntington's can causes cognitive decline symptoms, disruptive behavior symptoms, and psychological issues all in one disease. HD is a gene defect that is a rare genetic condition that can cause several different life style issues. Along with everything else it can also cause repetitive behavior as well as apathy and emotional issues. I will be sharing from my daily life what is happening with my physical and emotional health assotiated with my healthy living lifestyle choices.

Опубликовано:

15 сен 2024

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Комментарии : 8

@berniestock2104 Месяц назад

So sorry that you are having a difficult time. You are an inspiration to me.

@aussiemomjan4466 Месяц назад

I am with you - I feel like I am going down fast. I just don’t feel like anything. You describe it perfectly. Doing my hair, doing my makeup, cooking with my friends and family.

@gretchentaylor4402 Месяц назад

Same😮 ❤

@Huntingtonsdiseasetodd Месяц назад

Yes, the Disease has a mind of its own. I am glad to hear from you and hope you can keep having soom good days. 🎉😊❤

@KarenBoyle-s4e Месяц назад

Appreciate the perspective you’re giving in this video. I remember having hurt feelings when my mom didn’t want to come over my house and see her grandkids, said it was boring which crushed me (she always used to love spending time with us). It is so hard for loved ones to remember it is the disease in their brain affecting this behavior of apathy, not their hearts.

@Huntingtonsdiseasetodd Месяц назад

Great comment. I will do a video "it's the brain, not the heart." I understand Huntington's so much better now after having it over time. But I forget about how it is to feel for others' feelings, and I expect everyone else understands me. Complicated thought 😕 🙃

@gretchentaylor4402 Месяц назад

I feel the apathy too! Was asked if I wanted to feel better and I said no! At least I’m not ticked off or crying all the time. I prefer the numbness my meds provide!

@Huntingtonsdiseasetodd Месяц назад

It's such a difficult disease, and it definitely plays tricks with your brain. I hope you can find some peace through it all.