The Daily Life, Living and Legacy of a Huntington's Disease Patient; I am sharing my daily life story living with Huntington's Disease Symptoms. I am documenting some of my personal challenges and triumphs along the way. I am preserving a living legacy for my family and for Huntington's Disease Awareness as well. I am 62 years old and have Huntington's Disease and I have a 41CAG repeat. I am sharing as much as I can now, because my ability to share in the future may become more limited. Please understand that everyone with this disease can have radically different symptoms than I do. I am sharing my family life experiences and symptoms while trying to show a more hopeful view of the Huntington's Disease experience. Also, just because I can do it today doesn't mean I can do it tomorrow, and remember it is never the person it's the disease. Maybe this page will help you understand your Huntington's disease loved ones better and not be so hard on yourself.
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I haven’t used one of those for the phone but I have the standalone DJI gimbal camera, the Pocket 2. It works really well keeping the videos steady. They make quality products.
I can tell you when my dad died of old age, he was so happy. He was not a religious man. He decribed many beautiful things that he was telling me. He told me not to be afraid that fear of death was a waste.
Great video! I wish I would have understood more when I was interacting with my mom in my younger years! We butted heads so much! And now it’s me in her place and I try so hard not to flip my anger switch with my loved ones! I think I will share this video with them!
Do you know what Huntington's disease is? It is a brain disorder, and it changes the chemistry of my brain. Therefore, from day to day, my brain cells can just go away. So, the mind of a Huntington's disease patient is very difficult to understand. That is a simple explanation for a very complex problem.
I rec commend a new audio book called "the untethered soul" by Michael singer. It mentions being at 'peace" with your self and your loved ones. I just read a part of it and thought you and your family should check it out. J.peluso
Are you going to the fDA meeting November 13 all you have to do is go on cure hd the group and apply and say you are going virtually the more people that go the better
I found that same girl you are talking about I told her I pray for her and the baby people were judging her because she wanted to get the baby people are mean and she also had to live in an assistant living home at 26 years old she had problems with balance and falling when she was 33 weeks pregnant her baby wasn't gaining much weight because of her Huntingtons when I looked at her story I thanked god I'm still healthy I'm 29 with a cag of 50 and I have a small thumb twitch I love this video thank you todd
Yes, and they call them a Bulladoor. Our sons dogs and the bulldog is the mother of the black Lab. Our dog is black mouth cur and red nose bull. She is a very smart, protective dog.
