Do you feel like you got "old" all of a sudden? | Signs & symptoms of hyperparathyroidism 

Cried when you said " just feel old all of a sudden" I had felt like I hit a wall.... your simple explanation of the disease is well appreciated. Had my surgery last week and looking forward to feeling better!

Thank you so much. You just broke down what my endocrinologist has been trying to tell me. I have been dealing with all of these symptoms and he is an amazing doctor here in KCMO. He just had not broken everything down the way you just did. The one thing that both of you have reassured me of is that it is CURABLE. I can finally get my life back. The depression was starting to take over and I was just about to give up. Thank you so much…this has really helped me.😢

I have tears in my eyes from your graph. My fatigue and SI, hip and knee pain has changed my life. High PTH levels (4x normal) but normal calcium levels. You have given me hope for my future life after surgery.

Thank you so much. I just found out I have this because I'm vit D deficient and as a result have higher PTH levels. Your headline about feeling old is so me! Watching your explanation has made me feel normal, that I'm not going crazy as I literally have felt this feeling of not feeling up to the task as I used to. Thank you so much for sharing your knowledge in such a clear and kind way.

Almost all the symptoms here apply to me. I've literally been suffering with fatigue and other aches and pains for a long time, and severely the past year. I'm in the process of having many tests. This week is the nuclear scan. I can't wait to feel better. Thanks for confirming that I am not totally crazy, yet! Great video.

The visuals really helped me understand. Thank you! I’m a pre-50 postmenopausal woman with osteopenia, and several years with slightly elevated calcium levels but normal PTH levels. My endocrinologist ordered DNA testing to see if this is “normal” for me or if I need to move forward with surgery.

Oh my. This is the information I have been looking for. Been trying to explain this to my Dr. 55 and been very active and within last 9 months I hit the wall.

What a great and detailed explanation. I have been diagnosed with hyperparathyroidism and have an adenoma. They're still discussing my treatment options

Love the clear and well-documented explanations! Jon A. CNMT

This was a very informative video.Thank you. I had this surgery on Monday. My only problem is a burning throat from the breathing tube. They also had some monitoring device that went off if he got too close to the Laryngeal nerve.

Hi. I have a 3cm parathyroid adenoma and despite taking medication, my blood calcium is 3.05 (European numbers) I am having surgery next week, but they think it’s cancer because the tumor is palpable and visible, plus high PTH and blood calcium started at 3.74 (EU) and was admitted to emergency due to a kidney stone. Got a stent, stayed 1 week in hospital to bring calcium down. Kidney stent taken out 1 month later. But stone broke, but didn't pass yet. Had laser blast, but didn't help much. I am tired, so tired, have muscle bone pain for more than 2-3 years and yes, got that I am old now, all of a sudden. I am 62, not diabetic, otherwise healthy, but my legs, feet, ankles are in pain. Sometimes, it hurts to walk. I do my 10,000 or more daily steps cuz I don't want to atrophy… Can’t wait to get this out!

I have been diagnosed with hyperparathyroidism. I’m due for a consultation in a couple of weeks. My calcium however has never been above 10.0. Since I’ve read more about it I’m thinking that I finally have the answer to my daddy’s problems. At 67 he had an aortic valve replacement. The surgery took shockingly longer than expected by the surgeon because of the amount of calcium deposits in and around the valve. After that he continued to decline. Within a month he lost 25 pounds and was having delusional thoughts and hallucinations. He forgot how to do things. He was peeing constantly and his bladder was bloody and raw according to his urologist. The urologist even said it wasn’t contracting therefore causing urine to constantly be in his bladder. After another month he was placed in a mental hospital and given medication because of the severity of his delusions. He went into a catatonic state and the scans showed some atrophy but not enough to cause his catatonic state. He came home after a couple of weeks but we lost our daddy mentally in the course of two months and he never returned. It was like no one knew what was wrong with him. He was diagnosed with Parkinson’s and then had a shunt placed for NPH. I spent many years trying to figure out what had happened to him. I truly think he had this as well and it saddens me to know he could’ve gotten better. He suffered many years and the last few years were so bad. He eventually passed away from kidney failure. He had had kidney stones throughout his lifetime as well. Please share any feedback on this. I would appreciate if.

Great explanation of hyperparathyroidism. Is it true that it is more common in women than men?

I had to stop working! I’m still after a year without a diagnosis! Elevated PHT but not calcium so no treatment or any treatment!

My last calcium was 10.4, PTH 103, DEXA shows osteoporosis and I am currently passing a 2mm left side kidney stone. This is my 2nd time goung through this nightmare of a disease. I had a 4cm parathyroid adenoma and a right hemithyriodectomy removed in 2011. I also ended up with left lyrengeal nerve damage and admitted in ICU. A second ooeratuon has me feeling very uneasy. However, going through all the signs and symptoms and other issues isn't very heartwarming either. Thus is my 1st kidney stone. Oh my goodness...I just wanted to die😂. I will be 63 next month.

That’s exactly how I felt for a year

who do I go see about this, as soon as 60 came around, everything went wrong, I broke my hip and femur, I cant sleep, I ache all over, Im tired all the time. I went to see an endocrinologist who wanted to put me on osteoporosis meds as I have esteopenia,they said my thyroid was normal without asking me any questions. Im waiting on a second opinion. ?

Thank you. Excellent video.

I sent you an email. I am being bounced around from Specialist to specialist with no answers I have every symptom hair loss nausea, heartburn, headaches, but my calcium keeps fluctuating. I am ready to give up! I can get out of bed due to the fatigue and heart palpitations. Over the last month Calcium 10.4 PTH 40, 2 weeks later 9.9 calcium PTH 50 vitamin D 17. 4 days ago Calcium 10.1 PTH 70 Vitamin D 40 (due to injection doctor said that was my issue.) Chloride is 112. I go back to the cardiologist on Monday to review my heart monitor results and a referral for a skeleton doctor for more tests. Thank you for the amazing videos.

I swear! For years now I have joked with clients that no one ever told me that you don't grow old, you go to bed one night and wake up old! It just happens! ... Little did I realize that is actually a symptom of hyperparathyroidism. I'm not there yet but my calcium is high so they're checking pth. Even if that's not the problem, I may never joke about waking up old again. It's not a joke.

Watched twice. It took nearly 5 years to be diagnosed with Hyperparathyroidism. Bone pain was often dismissed although I did get my arm xrayed to rule out break or fracture. Fatigue I thought was because I was working hard whilst coping with bone pain. Confusion I put down to general weariness, not sleeping well. One year before my diagnosis I had a blood test that showed high blood calcium, I was given a letter by my doctor to have one week off work and to rest. There were obvious signs and complaints and still the diagnosis took so long

I’ve had several slow healing fractures, one non union clavicle fracture, frequent urination/incontinence for 3 years or more, osteopenic, suddenly looked and felt older, irritable, poor memory, unable to find words…my blood calcium is 10.8 upon my annual physical this year….my dr wants to repeat it, but this seems very likely

Thank you!

I somehow became lactose intolerant a couple years ago, so recently I looked at my diet and realized there is no way I'm getting enough calcium in my diet causing my parathyroid to over compensate. The suddenly feeling old title and all of the symptoms are spot on, even in the order he listed them in. Hopefully calcium supplement will help and going to doctor for deficiency blood panel.

Secondary Hyperthyroidism with primary hyperthyroidism symptoms-phosphate normal. High intact pth 105 calcium 9.1 ckd3b

This is ME!!!!

Can you, please , explain hyperparathyroidism and kidney stone relation in your video. PTH 82, normal blood calcium level 9.6,normal ionised calcium , elevated calcium in 24 hour urine test, repeated kidney stone, always left kidney. Started on thiazide now. Having parathyroid scan in 2 weeks.

Are there any hair symptoms with hyperparathyroid?

My sons calcium is 10.9 and he has all the symptoms. Doctor isnt concerned for the elevated calcium. We've been to many specialists no one has mentioned hyperparathyroid.

Thank you for this video! I was just diagnosed with hyperparathyroidism and had a CT scan, ultrasound, and a Nuclear Medicine scan however none of them show anything wrong with the parathyroids! I was suggested exploratory surgery which worries me. Do you suggest any other tests?

Exactly how i feel 😪

How to treat at 1st step

Hello Doc. I have low pth and normal calcium levels. You have any idea what s going one ?

My grandma total ca. =14 ionized ca=8mg/dl And PTH i=830 pg/ml Other investigations normal Patient now in icu for 1 day What do you think the diagnosis might be doctor Please help we are so worried😢

I had my surgery 7 weeks ago two adenomas removed and left half of my thyroid due to a follicular adenoma( why so many adenomas I have one in my breast for 20:years also). My levels are all back to normal . So does that mean I’m cured and don’t have to hyperparathyroid disease anymore?

I’m 38 and high parathyroid level for almost about 2 yrs and I’m trying to have a second baby , is that something can effect a pregnancy ? Have seen dr.s never got a straight answer :/

May vitamin D supplementation without calcium supplementation cause more harm than good by absorption of calcium from bone? Though it is learnt that indiscriminate use of OTC medication containing both calcium and Vitamin D is the third most common cause of hypercalcemia.

What serum levels should you expect to see and what test should be run?

Yank out the gland and no other symptoms arise?

Yes

I have more or less all the symptoms but lab tests showed only PTH high …meaning ? Tsh and t3 ok but low t4 . Is it better ndt or sinthetic thyroid medicine. I don’t have whole thyroid and have been on medication for 6 years .Im getting sicker and sicker 😩

Hey doc. My mom told me she has this high Pth levels and somewhat normal calcium level which were high last time around abut seemed to be in the normal range now. However her pth is still high as per her doctor. She also mentioned doctor pitting some nodules on her thyroid but they also had to look at her parathyroid glands since pth is high. She does seem tired and and says little when I talk to her. She does seem to suffer from some of the symptoms you listed. How serious is this illness? Is it life treating? I am worried about her

I am CKD HD patient i was diagnose with tertiary hyperparathyroidism 😢how to avoid this kind of disease? And is it true that its better to have a surgery w/c parathyroidectomy?

Is hyper thyroidism and parathyroid same?

Me 100% 😢

WOOOOOOOOOOOW! THAT'S WHAT AT REAL DOCTOR IS LIKE!!!! DAAAAMN!! MY DOCTORS IN INDIA ARE FRIGGING IDIOTS!! I'M GETTING MY PTH TEST DONE TOMORROW!! I HAVE ALL OF THESE SYMPTOMS EXCEPT FREQUENT NIGHT URINATION AND KIDNEY STONES!!

Thank you so much this is amazing . What if you have Hashimotos and reactive hyperglycaemia and hypercalceamia am so unwell with all symptoms of above my calcium is around 2.67mmol other 5.00pmol feel like I can’t get help from drs they say mild hypercalceamia . And my too is >1300 . Am in uk and endocrinologist are not good . Please can you tell me difference between Pth and pthrp (parathyroid related peptide) which is 6.5pmol 😢❤

Bam

I have high pth but normal calcium. So how does that happen? Tumor?

All four of my parathyroid were bad so I have a new one in my forearm. When will it start working?

I had the surgery a month ago. I don't feel different but I think it's extremely important to have it done!

Yes this happened to me. 1.5 yrs ago overnite. Super inflammation all over that just seemed to spread from joint to joint, area to area. Kind of unreal. Some of the things I have found help me most with inflammation (I'm very sensitive to most all pharmaceuticals so will leave those as a last resort) are bovine bone and marrow, calcium citrate and glycine. All give me magnificent relief in addition to improving my sleep and health. I've recently added diatomaceous earth which is silica (supposed to be a mineral which helps us) and it also gets rid of parasites and heavy metals. I have only felt better from the silica as well. Also taking a lot of D3 and magnesium. I recently started bovine brain, hoping that helps with my memory and neurological protection. I haven't been noticeably irritable so much, more like super lethargic and depressed. No zest for life. My energy is improving gradually with the above supplements. 😊

Of course I landed in the 20% presenting with kidney stones! LOL My parathyroidectomy is next week. I am hoping to have increased energy, concentration, and NO kidney stones afterward! I'm glad to learn more about this condition. Once I was diagnosed so many things made sense. Thanks for the great video.

Thank you. I've been hospitalized twice since 2019, misdiagnosed. I knew something was wrong but couldn't explain it. I finally insisted on bloodtest and was diagnosed this week. There is anger in having felt shame and thinking I was defective, only to learn it was something out of my control. Thank you for the hope.

Thank you for sharing. Your video is very helpful. My endocrinologist tested me a few months ago and I was diagnosed with hyperparathyroidism. I had a nuclear scan and CT scan completed. I will have surgery in one week. I have all of the symptoms in your graph. I'm staying hopeful that after my surgery my life will be back to normal.

Is it common for symptoms to come and go? I think mine might be due to vitamin D deficiency, but need to talk to the doctor, i just had x rays and my bones are indicating this, but my blood calcium was normal. No constipation, in fact just the opposite, a little too easy to go. But yes, i feel like my mom who is in her 80's and I am 49. I am having bone pain, muscle pain, fatigue, insomnia, hypersomnia, headaces, brain fog, constant tingling in the legs, my face and tounge went numb yesterday for an hour. In fact i went to the ER thinking i was having chest pain, and my heart is fine. Even had an ultrasound done to rule out blood clots. But, i had crying fits the whole day, the nurse was concerned that "something else" was going on because i cried at everything. I was actually thinking i was bipolar because of the massive mood swings and inability to sleep. My last doctor, now retired, kept sending me to physical therapy and recommending antidepressants and Tylenol.

My dad had hyperparathyroid and I had graves I had iodine radiation for graves now my vitamin d is low

This was great information. Both my sister's have had this and now I am not doing so well and trying to get my doctor to check this out, but he is being resistant. It is very frustrating for me to feel horrible and not be getting help.

Can it affect your ph levels

Excellent video … thank you.

it sounds so much like diabetes as well, Can you do a video on the symptoms, and signaling of, calcium vs PTH in primaryHPTD?

Bless you Dr

Hello ...I just had 1 large Adenoma removed ...by the way you were spot on with my numbers when you replied Back to me ....iam post 9 weeks my numbers are get no further supplements need vitamin D still a bit low at 39. I did want to ask I noticed my bowel movements have been softer since surgery? My PTH was 197 and now is 51 as of last week. My Question is this transition from the change in PTH level adjusting ? Many thanks 🙏 you are amazing and have gotten me through this ❤️

So I don’t have to have my thyroid and parathyroid removed? My endocrinologist and primary care provider are very vague when explaining things and both said I need surgery instead of giving me the option of hormone therapy and iodine tabs. I just turned 30 on April 18th and I’m worried that if I don’t have my thyroid and parathyroid when I’m older I’ll have issues. I don’t want to be stuck on meds for the rest of my life after having the surgery, there’s gotta be another way.

Thank you. Everything is correct. I feel all the symptoms 😢

I think you may have just cured me! I have frequent urination and constipation but I couldnt understand why me lacking calcium would lead to more urine output. It seemed counter productive but lacking the muscle ability to empty the bladder makes total sense! Also explains why ive been constipated and feeling weak in the gym! Think i still have to optimize magnesium and vitamin D since its all correlated but at least I know the issue! Thank you!!!!

Brilliant , well done, to the point and most appreciated.

I had 3 and 1/2 of my parathyroid’s removed. Felt much better. Now2 yrs later in having the same symptoms. My PTH is very high again ( it was normal after the surgery) there going to do a sonogram to check but the dr I’m seeing now said he wouldn’t recommend removing the last part of that gland even if there is another adenoma. He thinks it would be worse to do that. Yett a friend had it done and she’s so much happier. I’m tired of just being treated with Vit D . There seems to be an old school thinking and a new school . I’m curious what your thoughts are. Especially since I’m having so many what ideas call side affects from it. All the things you mentioned in this video

I used to jog 3-5 miles a day, then overnight everything changed. I couldn’t just go jog. I’m tired.

Can this cause seizures and movement disorders?

Some people have a defective CaSR receptor due to gene defect (EXT1 and 2).

What about 10.4 female 36.

What would cause Calcium to go into urine on the 24 urine test... thanks 😮

I have almost everyone of the symptoms. I'm being treated for high calcium in my urine ,having had prior kidney stones. Nephrologist just keeps pushing pills to control the high calcium. I know there is something causing it,ive asked and was told they dont know why it happens. Im a 50yo male.I need to find a doctor that will actually help me.

Thank you. I have hyperparathyroidism with normal calcium levels, and no adenoma visible after two ultrasounds and twoj nuclear scans over past four years. I have many of the symptoms listed, for four or more years now. All my other Bloodwork was fairly normal except for slightly low thyroid. I feel exhausted and somewhat weak, occasionally dizzy. I also have degenerative disk disease and some neuromuscular damage from spinal nerve root compression. I am frustrated with no apparent solution yet.

is this is a permanent thing/abnormality which keep stuck throughout anybody's life? Kindly guide.

Does ot make a difference when you test calcium? Fasted state , etc .