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Documentary ‘Magnolia’s Hope’ Shows Family’s Struggle With Rett Syndrome | TODAY

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AJ and Jenny Tesler open up about their daughter’s struggle with Rett syndrome and their fight for a cure in the documentary film “Magnolia’s Hope.” Watch as they sit down with NBC’s Richard Engel, whose son, Henry, has also been diagnosed with Rett syndrome.
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#MagnoliasHope #RettSyndrome #TodayShow
Documentary ‘Magnolia’s Hope’ Shows Family’s Struggle With Rett Syndrome | TODAY

Опубликовано:

21 авг 2024

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Комментарии : 54

@vazquezfloreslawncareservi6155 11 месяцев назад

My name is Alejandra, my beautiful daughter was diagnosed with Rhett’s syndrome at the age of 5, was hard, she died when she was 13, and I miss her like crazy, I super happy that their us hope for that Childrens that are fitting with that syndrome!

@visionvixxen 4 месяца назад

🙏🙏🙏

@karensoohoo8848 Год назад

Thank you for sharing. We just received a diagnosis today of Rett syndrome in our 2 year old daughter after a genetic test revealed a mutation on the mecp2 gene.

@rajeshnamburi4718 11 месяцев назад

Same here diagnosed for 2 year girl. Shall we form a watsapp group for all the parents for our children betterment

@kamrankami1982 7 месяцев назад

I am from pakistan and have a daughter having this rett Syndrome mecp2 gene...... Add me to that goup too kindly.....may it help me to take care of my doll

@Desaree1 3 месяца назад

I hope you guys form that group in could be beneficial to your kids and yourself.

@napturalgoddess6602 2 года назад

Blessings to the babies that are suffering

@donnathomson4048 2 года назад

Blessed Mother please help these special children

@user-yv6oq8gh3h 9 месяцев назад

My daughter will be 20 in 3 months and she has Rett syndrome and the first time a Dr told me we have to test for Rett, she was only 6 months old.

@emiliobello2538 2 года назад

Babies are so cute. Hope all babies are born in good health

@drrtydan Год назад

Condolences to the Richards.

@davidbush1852 Год назад

The love and care that both of these parents have for their children with rett is amazing and I hope that this break through opportunity for magnolia and her family will become a reality and for other children who are suffering from this condition but if not they're still beautiful and special just the way they are.

@visionvixxen 4 месяца назад

Bless this angel

@spinderellas6272 Год назад

Hugs mama. My granddaughter has Rett. It is difficult.

@angela-ji1cg 11 месяцев назад

What a name 😮

@katherineyoung6168 2 месяца назад

My 2 year old is being tested for this and I'm absolutely terrified

@DavidTlovesAbby Год назад

God bless every family that has a child going through Rett’s. I believe some children are created with these problems so they can change the people around them in a powerful way.

@cathr08 Год назад

Precious girl

@reneepowers3019 7 месяцев назад

My grandbaby has Rett syndrome and it's heart breaking. It took years for the doctors to finally listen. My daughter kept telling her doctor something is not right. Finally a new doctor came in to the office and she listened and she started texting. Finally some answers but still waiting for Shriners to call. So we are calling daily weekly and sometimes multiple times a week to ask when will we get any news on what to do next. It's been a hard road. I've been looking for ever video I can just to find out what I can. My prayers go out to all our families.

@vladimirrodionov5391 Год назад

Unfortunately Richard's son has not lived to see the cure.

@wanidasinthu Год назад

My daughter has Syndrome Rett too...she 5 year old

@retalessa1991 10 месяцев назад

هل لديكي اطفال بعد ابنتك مصابة بريت. وهل هو مرض وراثي. ارجو مساعدة

@meganfoley3471 Год назад

I’m Confused. Rett’s disorder is only in females correct? This is what I have been learning as a healthcare student.

@arkvsi8142 Год назад

Also in males, but rarely and more severe that they could die pretty soon, to be honest, education nowadays is trash, utter trash, teacher try to make you quit or fail instead of teach you. Im also a health-care student

@Nick--Spears0 5 месяцев назад

It's on the X chromosome

@MatchaCocoaDog 4 месяца назад

Same here. It's "almost exclusively" in females but not impossible in males.

@evielknievel4972 24 дня назад

According to DSM4 299.80 it is a genetically mutated disease. And only has been reported in females.

@adyn1826 3 месяца назад

My mom met a woman who’s sister has Rett syndrome. She told me that her sister only communicates by patting her chest

@ObamAmerican48 7 месяцев назад

Oh Richard, I didn't know this about your Henry 😢

@visionvixxen 4 месяца назад

Why can’t they test for genes in parents before they have children

@subashiniselvaraj5668 2 года назад

Any body help me my daughter 4 years old also suffered with this. Please

@nescymuring6463 Год назад

Hi in the Philipines I have daughter diagnose rett symdrum

@iCamzie92 2 месяца назад

I know I’m late for this but I just want to say Henry is a miracle and blessing! Only the female survive with this syndrome, while the male die in utero. If this syndrome is rare, a male survivor is very very rare! I hope the best for these families and their angels ❤️ 🙏

@Strawberrylve 2 месяца назад

tho alr tgat sm ofc

@IrksomeSquid 6 месяцев назад

This might be morbid but notice how the only families that you see are noticable NOT extraordinarily poor, I don't think poor people can afford keeping them........here.

@dionyoutube 3 года назад

Omg 🥲❤️

@Shruthijanya-ti3ls Год назад

My baby having retsyndrom.. Pls any body help me.

@AlaaAli-qw7pc Год назад

isn't it exclusively in females?

@victorJ2050 Год назад

Almost exclusively. It is rare as it is but very rare in male child.

@beroyan 3 года назад

Why Turkey did genocide in Anatolia and around?

@AhmetYlmaz-ik6mb Год назад

At yalanı

@AhmetYlmaz-ik6mb Год назад

Belge var mı

@tacitamorgan2134 3 года назад

😮😊💗🔃

@hellobot67 3 года назад

first comment ever!

@sj187 Год назад

I wonder if these regressions happened after getting any type of immunization vaccines

@ariannamartello5198 Год назад

People are born with Rett’s, you can actually see the signs since the children were in the womb (they present odd movements sporadically, but they are not addressed because this disease is rare and doctors don’t usually notice them) so no, vaccines do not cause Rett’s. Genetic mutations do.

@CharlestonChica 5 месяцев назад

OMFG. Vaccines don't affect a person's DNA. Rett's is a genetic disorder.

@DannyD-lr5yg 12 дней назад

Look, I’m a believer in vaccine injuries, but Rett syndrome isn’t just simple “regression.” It’s a GENETIC disorder, inherited from the parent(s). It affects certain simple chemical processes in the brain, making it essentially a very tragic form of childhood dementia. It is almost invariably fatal.