Dr. Howard was my doctor from birth, I have congenital MG, he knows who I am, I’m from NC , and am 42 years old now , he was / is a great doctor and man
@@cxoolio You're going to find that your diet and stress contribute to the severity of your symptoms. Try to stay away from night shades. Bread seems to exacerbate symptoms for me. Try to stay away from trans fats. There are several different treatments but its going to take some time to find the one that works best for you. Once you do find one that makes you feel somewhat "normal" try to your best to get as much exercise as possible. Take it slow. Get good rest. Eventually with some luck your symptoms wont be as noticeable. Stay strong.
Very interesting, Thanks! I am seronegative, and normal SFEMG, but diagnosed clinically, after 40 years of ocular and mild MG. Fro reasons I can't explain at age 60 I became much worse, two near crisis. I hadn't had overt breathing difficulty in 30 years. I initially responded to prednisone and mestinon, but eventually became much worse. I am currently getting IViG monthly and have responded very well, and feel like a have a life again. My undergraduate degree is in molecular bio and post grad DDS. Only practiced for 5 years, before a permanent accommodative spasm and diplopia forced my retirement, 32 yrs ago. At the time medical dogma was 100% sure it was not MG, as they were certain MG did not affect accommodation. Going back to Hopkin Wilmer eye I was told that it is now known that MG can affect accommodation and that they were convinced MG caused my eye problems..so many year ago. Soliris is on my radar now, but it is only approved for seropositive....can't see my insurance picking it up, unless I become refractory.
Was chatting to someone with this for whom eculizumab had stopped working, any idea why this would be? I'm on it for aHUS and docs are saying my blood now looks normal
