For 5 years I searched for the cause of my severe headaches, vertigo, brain fog, nausea, fatigue, anxiety, depression, chest discomfort, blurred vision etc., to only be suggested I was crazy. I went through every test possible and all I asked for was to check my spinal pressures. I saw 18 doctors/ professionals.The 19th doctor examined my eyes ordered a lumbar to check my pressure and it was greater than 390. MRA showed a blood clot and stenosis. Eye exam showed no papilledema (after 5 years). I'm thankful it is possible. Please stay strong all of the people suffering with this condition, it is an everyday struggle.
Similar story here, 10+ years, over 85 preventative medications/abortive migraine meds/alternative therapies - and being essentially blamed for not getting better and the latest in the long list of neurologists I saw, recommended a lumbar puncture and I agreed. Fortunately I don’t have papilledema either but we are a rare subset of an even rarer disease. I’m also not overweight nor have I ever had an issue with it, in fact I’ve always had a very slim build- except after being put on all sorts of medication that made me gain weight. I dropped it all when I stopped them. But after that LP and they saw my OP was 32cm, and I felt SO vindicated!! Lol I mean how can you be happy about it but I do think you know what I mean! I especially wish I could go back and show all the doctors who thought I was a drug addict because I kept saying nothing helped. I still have debilitating headaches and the most success I’ve had treating them has been with the new class of migraine meds the CGRP and Botox before that. It’s still a struggle and I can’t work because I get severe symptoms 10-14 days a month and I never know what days I’ll be effected. This has forced me to live off of SSDI at the age of 38 and into a life of poverty even though I have a BS in developmental psychology and a MS in clinical psychology. It’s extremely depressing. I try to have a positive attitude and show my daughter how to be strong when life hands you situations such as this, but it’s not easy and I pray for those who are still trying to figure out what’s wrong with them and all of us who live this battle daily.
