Thanks so much for a glimpse into your life.. it is hard to watch you struggle with just the small everyday stuff !! But you keep your spirits up..very inspiring… I love that you are still keeping busy…it’s not easy for us Parkinson’s girls..💕 love your smile at the end of the video..! L
Hello Darlene, I think that the others understand. I listened to the video while answering my comments. Thank you for sharing this with us. 💕NonnaGrace 🐓
I love your talks Darlene! I can only imagine how hard it can be! It is always unfortunate with the side effects of medication; they help you but the side effects can be pretty rough. Stay strong! Sending lots of love- hope your 2024 year is filled with many blessings!
Thank you for sharing, being so honest and explaining what's happening to you during dyskinesa and how it all is Darlene, I've learnt so much and although I'm not looking forward to it of course, it's better to know 😏I froze 3 times on the way from a chair to the ultrasound table, no room for my walker... It would normally take 20 steps, no stopping. I hope I try and stay as independent as you are💓
I wish you the best on your journey here. It is it's a strange thing that parkinson's affects everybody differently. So don't judge yourself from what somebody else is doing. Make sure that you really try to see the benefits that you have compared to other people. But don't dwell on the hurts of others. It makes it much more difficult if you anticipate the bad stuff just appreciate the good.
Oh Darlene...Im so sorry your going through this. You have a lot of courage showing this to others.I have an uncle and cousin with this. Im going to pray for you. This is from a 61 yr old lady from the Black Hills of South Dakota.
Hello Darlene, I appreciate you sharing a glimpse of your day.🙏 I think people need to have a better understanding, and your video has helped me understand even more. I thank you for that. You are a strong woman. I hope that your arm is better. 🙏 Take care and God bless.🙏❤️
Hi Darlene and sweet family! I wish there was a medicine that didn’t cause dyskinesia. The side effects of medication is not good in most cases. I do know that you are a fighter and not a quitter. You have a very strong will and you have a great personality with a sense of humor. I do know about going out in public. After my three strokes I went to Walmart and as I was leaving two gentlemen where stand close to the checkouts and as I was leaving one guy said to the other, what brings you here and the guy said I came to see the show while looking right at me. I said, I’m not a show and I will pray that you never get old or are disabled that people make fun of you. He didn’t say anything else. I can’t help that I’m slower than I used to be. I can still drive and my mind is good, just slower than I used to be. I can’t run anymore and steps are dangerous for me along with snow and ice. Just keep being the best you can be Darlene and that’s a beautiful thing. Have a blessed day everyone!
Sorry to hear you were treated like that and we'll done on confronting the guy with your positive reaction😊I'm pretty sure I wouldn't have been so kind!!
@@-nanabanana that was the first time I had went anywhere since I had gotten home from the hospital. I know I’m slower at walking and I can’t load the belt thing with groceries as fast as I used to. But I wasn’t wanting to be a burden to my daughter or live in a nursing home. I just wanted to pull my big girl drawers up and do the best I could, but didn’t expect to meet such a mean person. It hurt my feelings more than anything and I wasn’t looking for pity. I just wanted to prove to myself I’m still able to do for myself.
I'm not sure what gives with people that think that they have the right to comment in front of others that have a disability. It's just plain rude and the word. The words they use hurt. And I can't believe that people just have no class anymore.
Me again..😇 I have been reading the comments and I want to say that you have such a wonderful following.. such super people that love you and give you encouragement.. they make me feel better too. Thanks dear people ⛄️🎶
I'm so glad that they everybody comments back-and-forth to one another. Because that's what's important to build this community. We all need this support. And I get as much from you as you get for me. That's for sure.
Hi Darlene, Thanks for sharing about dyskinesia. I wish medications had no side effects. We take medication for one ailment and then have side affects to deal with. I sure hope when you get all hooked up to the pump it will help your day to day life. I love how you are positive and keep yourself busy but please take care when trying to do the things as I know your arm hurts. A jigsaw puzzle table sounds fun for you. I love doing puzzles. You will have to share your puzzle with us. Happy New Year and Take Care my friend xoxo
BLESS YOUR HEART!♥️ I always want to jump through the screen & help you! I still have numbness in my arms & hands & across my upper back! I also have numbness in my legs & feet & pain in my thighs when in the bed. So guess what Darlene…my neurologist told me he can’t figure out what is wrong with me & told me to go to the MAYO CLINIC!!! Can you believe that?!😔
Nothing surprises me that a doctor says these days. They're the apathy in the community is not what you expect. You expect your doctors to really care and I suppose we all have those doctors who do. But there's so many more that just don't really care.
@@darlenemylifewithparkinsons My neurosurgeon is going to do another surgery on my neck in February. He is from the Mayo Clinic… I’m now waiting on another Neurologist that specializes in Multiple System Atrophy…what my Dad had…& other neurological disorders….there is a waiting list for him….won’t be able to see him until June or later!UGH! In the meantime…I’m going to start those epidural injections in my lower back sometime this month.
Hi Darlene, My daughter, Casey, has uncontrollable movements,the result of an antidepressant she was on when she was a teenager. The psychiatrist immediately took her off the medicine once the movements started, but it was too late. She is 42 now and still has the uncontrollable movements. It is her arms that jerk wildly, sometimes she claps, sometimes a leg will jerk. If she is tired the movements are more frequent and more severe. Her movements are not as extensive as yours, mostly just her arms. She doesn't do it all the time, stress and being tired seem to make them more frequent. She doesn't have them constantly, but I doubt a day goes by that she doesn't experience them. I wish she, nor you, had these movements.
I know what you mean, you don't wish it on anybody, but it's just our lot in life and you have to just make do with what's the best. Everybody's got ailments, and if we had to pick and choose, we'd probably choose our own elements to have again, we'd probably wouldn't trade them in for anybody else's. So I just make the best of it or try it anyway
Bless your heart, Darlene. My husband had PD. Unfortunate, he lost his battle after 17 yrs. 55 years young. I wish he HAD the dyskenesia that comes along, but he had the rigidity and stiffness. Froze all the time!!! I can't help but wonder if your Sinemet mg is too high?
Welcome, I'm sorry to hear that your husband lost his battle. My sentiment has been a being reduced right now I was up to 18 tablets a day and I'm down to 18 so we are in the process of reducing it. The pump is supposed to help with leveling out the levels that are in my body. So we'll see how that goes.
