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E204 - PART 2 A Mother's Love of Advocacy 

Chronically Fit Canada
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A child often sees their parent as a hero. And Molly certainly knew her MOM Rachel was her SUPER HERO. Molly's diagnosis story was shared with us in E198- PART 1 THE MIRACLE OF MOLLY. Molly was diagnosed at age 14 with HYPOPITUITARISM and SECONDARY ADRENALIN INSUFFICIENCY.
It was a long road to reach a diagnosis and the seriousness of this condition for her daughter led Rachel into a grieving process and then fuelled her to fight for change for her daughter.
Hearing horror stories of parents losing their children to ADRENAL CRISIS terrified Rachel. She knew Molly lived on a cliff's edge every day in a world full of roadblocks and ignorance of her condition.
Rachel fought for over a decade to make Molly's world safe but unfortunately in July of 2022, Rachel's worst fears became reality. Molly passed away from an adrenal crisis.
Even if you are a SUPERHERO, you can not save everyone.
Rachel is determined to continue her advocacy work, increase awareness and prevent as many deaths as possible from an adrenal crisis. No family should lose someone to an adrenal crisis.
Listen, share and learn how you can help and be part of saving lives from adrenal crisis.
We are a family and as a family, we can make a difference.
/ rachelpeglersavinglive...
THE PICKLE JAR PODCAST through donations at:www.gofundme.c...
If you would like to share your journey on THE PICKLE JAR please go to www.chronicallyfitcanada.com for more information.
DISCLAIMER: The information from THE PICKLE JAR represents the experiences of the host Jill Battle and the individual experiences of each guest. No information is intended to provide or replace the medical advice of a medical professional. The host or guests are not liable for any negative consequences from any treatment, action, application or preparation, to any person following the information from the podcast.

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5 сен 2024

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Комментарии : 3   
@Djdjdjskskwijsjsjsggstwusj
@Djdjdjskskwijsjsjsggstwusj 4 месяца назад
I was diagnosed 2 years ago at 15 and I've never met anyone else with the condition so this channel is really helpful thank you
@annschroeder2850
@annschroeder2850 4 месяца назад
I have hypopituitarism, too, it is hell!!!. How I got my ER solution was I had to show paperwork because doctor was not going to give it to me. THANK GOD FOR NADF. I need stress dosing to prove to doctor. I just started dexamethasone because HC and Prednisone did not work. I hope and pray this drug works. I am running out of options. The medical people are so damn clueless and they are treating us. I know more about my condition but I still need drugs to function 😪!!!!
@chronicallyfit_withjill
@chronicallyfit_withjill 4 месяца назад
Keep fighting from. Yes NADF is an anazing resource of information ❤️❤️
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