In this video, Mackenzie Boedicker and Dr. Betsy Mencher (caregiver for her husband) share their experiences and discuss the importance of an early and accurate diagnosis of amyloidosis.
My ex died about 2 years ago after being diagnosed too late. They put her in hospice and 5 days later she was dead. She had many things wrong over the years ,morbidly obese ,diabetes ,blood clots over the years. When I saw the death cert,the amyloid as cause of death shocked me.
My cholesterol was unusually high too, I was put on a statin, that I felt was killing me, like an allergic reaction, interesting. I was just diagnosed about a month ago, I had a kidney biopsy because of oedema. I was diagnosed about 8 months after I started feeling terrible, so far I don’t have myeloma, 30% of people can have both…I also had a bone marrow biopsy. I’m starting treatment this month.
