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Endo Appointment & Insulin Pump Talk | Type I Tuesday

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In this video we went to Henry's endocrinology appointment and tried out the Omni Pod demo. I will be talking more about our thoughts on the pump. Andy and I don't 100% agree on it but he's come around and is willing to try it if Henry is up for it. I'm in the process of researching the omnipod. Tell me below your thoughts on the Omnipod! Type 1 Diabetes Journey Playlist: Watch from Day 1! • Life with Type I Diabe...
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26 авг 2024

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Комментарии : 90

@mel11789 8 лет назад

I've always said how mature Henry is for his age! Best of luck with the Omni Pod!

@LovesChristOnly 8 лет назад

My son has dexcom and OmniPod. He has been on OmniPod for 3 years... He's 6 now. We love love love OmniPod. It has given us so much freedom. As with anything new it takes getting use to it but man, once we did we love it! Good luck on whatever y'all decide but we love it.

@gracehooks4300 5 лет назад

Henry is a smart and brave kid all of your kids are

@SharingOurLife 8 лет назад

I love this series!!! We have a friends that have a little boy, with T1D. My husband and his father actually have a paintball team called T1D, and they raise money for the cause. But watching this helps me to be able to talk with the mom some. Thanks for sharing! They are staying the weekend in 3 weeks.

@dreamflight6000 8 лет назад

+Sharing Our Life oh wow!! I want to hear about him! You'll have to find out if he's on a pump. That's so cool they raise money for diabetes! I wish we had friends with a type 1. They sound nice. ❤

@maxthebull66 8 лет назад

We love the omni pod! If the pump fails right after we put it on we just take as much insulin out of that pod to use in the new pod. If a pod fails within a certain amount of time omni pod will replace that pod. When our son was younger we put a band on his arm to help it stay on. We also use unisolve to help remove the pod. I hope some of this was helpful!

@julielyon8592 8 лет назад

My son is Henri and last week he has tried an omni pod he's 11 and thinks it's great and gives more freedom

@makate315 8 лет назад

I have been following Henry's T1D journey for several years. I have had t1d since I was 17 and first had the Medtronic pump, it was a difficult experience and sounds similar to Henry's experience with the Ping. I switched to the Omnipod in August and it has been an amazing change. If you have any questions, feel few to ask. I love your videos!

@dreamflight6000 8 лет назад

+makate315 I've been hearing so many people say they either love the omnipod or hate it. Do you think we'd know in 45 days? We can return it within 45 days.

@makate315 8 лет назад

+dreamflight6000 yes! I think 45 days is plenty of time. That's 15 pods and I say you would know by the 8th pod if it will work for you :)

@AislinSidhe 8 лет назад

I ADORE my Omnipod. I have been using it since 2008, and I would not go back to a tubed pump. I was really hoping that Dexcom and Omnipod would have a partnership by now, but hopefully that's in the works for the future. Good luck with your trial!

@kathrynwilson1844 6 лет назад

Thank u for the videos my 7 yr old daughter was diagnosed with type 1 diabetes when she was 4 n this is all so useful good job

@emiliabrooklyn1476 8 лет назад

As a 15 year old girl who has had Type One Diabetes for almost 3 years, I was given a Omni Pod trial and to begin with i truly hated it. It felt far to big and got in the way of a few things. Although we decided in the end to get one. It was honestly one of the best decisions i have made! I loved my pump but i'm very active and it would get in the way of sports. I also love swimming and the pump of course got it the way, so when i got the omni pod i was able to swim and still be able to give myself insulin if needed. With skintac i found it stays on more securley and doesn't start to peel around the edges. :) I'm now used to it and i truly lobe them!

@dreamflight6000 8 лет назад

+Emilia Brooklyn So good to hear! Thank you say much for sharing!!

@emiliabrooklyn1476 8 лет назад

+dreamflight6000 You're very welcome, and I'm glad to hear Henry is doing well. :)

@margauxsharpe1043 8 лет назад

I've had the omnipod for two weeks and I went from being 300 ALL the time to being in the 100s! It doesn't hurt, and is very convenient especially for parents to be able to bolus for their kids when their kids are off being kids. I HIGHLY recommend it!

@kksvlogs5154 8 лет назад

Omnipod is awesome! It is waterproof! It's amazing that it is tubeless because he's a little kid, and little kids love to play. The PDM is also a blood glucose meter! It's so cool, and if you aren't able to use the PDM as a meter, you can enter it in manually. You can do basal increases and decreases, and the increase helps if he starts to spike in the morning or at any time. Decrease is great for activity.

@pinkieme73 8 лет назад

My daughter currently has the Animas Ping and its been great. However she has a hard time not fooling with the tubing and she figured out how to unlock the pump right away. I have been going back and forth considering the Omnipod for a month now. She wore the demo and we had zero problems with it not coming off. I'm still not sold though. The thing so far that has me worried is if you have a failed pod and its the middle of the night you must remove the pod before putting a new one on. Insulin lost and now I have to work to get this thing off my sleeping child before putting on a new one.I'll definitely look to see what you do going forward.

@lindacharman7398 2 месяца назад

Have a look at overlays they help to keep pod in place. Good luck 👍 .I have had type one for 50 years . The pod is great for youngsters . I live in 🇬🇧 uk .

@KaylaRoss 8 лет назад

We are new to this and my husband isn't wearing a pump yet, but could be in our future so I've been trying to learn about what is out there. I was impressed when I saw the pod because of the flexibility it looked like it would give. Hopefully they can make improvements to those issues and it can become a really great option for very active diabetics. Look forward to your review.

@elizabethbabcock1320 8 лет назад

My best friend has been on omni pod and it works fantastically for her it's easy to use and issues with pods aren't very frequent.

@MariLiisDuglas120 8 лет назад

I don't know much about the omnipod... However, I have had the medtronic pumps for years now and absolutely LOVE it. I actually enjoy the fact that I can take the pump off etc and it has made life so much easier, so in general, I really recommend getting a pump, be it an Omnipod or not :)

@dreamflight6000 8 лет назад

+MariLiisDuglas120 thank you so much for sharing!

@carmeldobbins9338 8 лет назад

I have the omnipod and I love it. It has its problems but it has made managing diabetes way easier than taking injections.

@makate315 8 лет назад

I wanted to add that in the 8 months I have been on the Omnipod, I have only had 1 pod go wrong and they have great customer service and replaced it!

@dreamflight6000 8 лет назад

+makate315 wow! Great to hear!!

@Dollieshands 8 лет назад

how exciting! I hope this works for you guys. I'd be interested to see how it goes and see it in real life xx

@makingbabytaylor 8 лет назад

he is such a good sport!

@SharpLife4 8 лет назад

You can also dilute the insulin so you can give more than a unit or half a unit do he doesn't need to eat. Also if on novorapid and lantus he won't need to wait 3 hours to eat again or eat on schedule. You eat when you want.

@skookie1191809 8 лет назад

If the omni pod doesn't work out, I hope it does, there are other pumps out there. I personally have the Animas One touch ping which is fantastic. You don't lose any insulin and the glucometer pairs with the pump. The only downside is that the pump is connected to the infusion set by tubing. It also has the most fine tuned insulin delivery system (0.05 units).

@LittleMissiHeartM 8 лет назад

Hope you guys like the omnipod! I would definitely give it a try! No experience here with it but I have heard some people love it and some people don't. Never know till you try! The concept is cool but for some reason our endos only recommend Medtronic 640g and another pump by Roche which I believe isn't available in the States.

@sgiggly86 8 лет назад

We're starting our 5 yr old on the omni pod next week! I'm nervous but excited as well. I'm hopefull it will be so much better than shots.

@dreamflight6000 8 лет назад

+ShannonMV Oh wow! Please keep me posted!! I hope it goes well and you guys love it!

@LovesChristOnly 8 лет назад

We very rarely have had an occlusion. It has happened but not often at all. I say all diabetes supplies comes with some negative to it but for us the pros by far outweighs the cons. I don't like the arm for my son but we love the belly and thighs

@SharpLife4 8 лет назад

With the pen he could also dial the right dose of insulin with communicating with you

@shannonmeeks9488 8 лет назад

I love my omni pod and use skin tac and when it's time to change the pod put baby oil on the adhesive and let it soak and it will come off really easy

@dreamflight6000 8 лет назад

+shannon meeks Our skintac is suppose to be delivered Wednesday. I'm at hoping it keeps his sites on.

@shannonmeeks9488 8 лет назад

It is wonderful I love skin tac

@diabeticdork7159 7 лет назад

Here in Canada the PDM costs (correct me if I'm wrong) about 6,750ish but insurance covers it all if u have certain qualifications.💉❌😊

@rachell1869 8 лет назад

I have the omni pod I've had it for 3 years now I'm 17 and I love it, it's very convenient for traveling and when I first got it I got it for when I would go on away games for volleyball and for me it doesn't fall off depending on where it it I put it on my upper abdomen and lower and it stays all 3 days just fine, I use to put it on my lower back and it would get peeled off when I go into chairs sometimes so I only put it their if I know a situation like that won't happen, you get very used to after about a week and it is just so nice I love mine so much and would definitely recommend it. any other questions you have I could tell you!

@dreamflight6000 8 лет назад

+Rachel L Thank you so so much for sharing!!!

@rachell1869 8 лет назад

you're welcome!!

@CrazyhecticmommywifelifeSarahR 8 лет назад

I was on the pod for about 1yr and half. I kept going back and forth with it . I had amazing results with it for a few months then i noticed my pods would leak or the canula would bend but mostly the insulin would leak around the outside and i wasnt absorbing insulin right my a1c went from 7s to 9s on it. i loved loved it being off tubes for 8 years but sadly it kept leaking i had to change my pods like 3-4 times a week skin tack works with keeping it on..i wasnt able to wear it on my arms alot cuz it would get sore all the time...some people it works well others can tell you ita issues pods fail alot.. TSLIM is by far my favorite pump

@dreamflight6000 8 лет назад

+Crazyhecticmommywifelife I'm back to thinking we will just stay on shots. I'm hearing too many negative reviews.

@CrazyhecticmommywifelifeSarahR 8 лет назад

heck i even went to shots after the omnipod cuz i was tired of the tubes and tired of the issues with the pod...im back on tslim which is amazing way better than shots but the tubes are annoying i could imagine a kid having to deal with them..i dont do well with lantus or else i would do shots did u see the new device that medtronic came out with it has a thing like a pump site where u put ur needles in it so u never have to actually take a shot

@yeahdudewhat 8 лет назад

I would love to try the omnipod but we just got the dexcom and i love it but our son is not loving it. He doesnt love it being on him all the time. I hope he will adjust to it but i KNOW he wouldnt do well with something else on him. It is a little big as well. So far he doesnt mind injections so guess we'll stick with that for now.

@TheMaceves 8 лет назад

hope this works for him!!!!

@kimberlyanne6853 8 лет назад

difficult decision .. we want our kids to have as much freedom as possible an be able to eat an drink things at birthdays or special events just like the other kids an everything which is why a pump sounds great but at the same time there can be so many issues with the pump im still up in the air if its worth it. my Logan is only 4 so im not in a rush for it yet but when he starts school an stuff i might try it but gosh idk its always a pros an cons list with these things.

@dreamflight6000 8 лет назад

+kimberly wyckmans It's hard. I just don't know what to do. I so badly want to try a pump but shots work so well for him... We have such good control. I don't know. Hard.

@kimberlycasavant7606 8 лет назад

Would you never go back to a regular pump with him? Now that he is older, the tube system of a pump might work better for him than it did when he was younger. It would give him the same freedom that you talked about the omnipod giving him.

@dreamflight6000 8 лет назад

+Kimberly Casavant Funny you say that. I just messaged our nurse to see about just going back on the animas pump. We had the worst time with the company double charging us but I'm looking into seeing if we can get the supplies from a different distributer.

@kimberlycasavant7606 8 лет назад

+dreamflight6000 Yes, Animas can be a major pain to deal with sometimes... My 11-year-old stepson wears an Animas pump. Ordering our supplies each month can be a real pain, but we are glad that he has been able to become a fairly independent diabetic as a result of being on a pump for so long. :-)

@AlyseNicolettaHolder 8 лет назад

my hubs had that issue with the tube occlusion in his tummy with his pump way back when. he's absolutely not taking care of himself though. last a1c was 10 :-/ it's a huge fight with us.

@kathybrisky 8 лет назад

+Alyse Holder Mine was 12. just started insulin pen. Blood sugar went down almost 200 points. Im 61.

@AlyseNicolettaHolder 8 лет назад

+kate weiss were you using the pump or are you newly diagnosed?

@kathybrisky 8 лет назад

Using a pen at night 20 units and 3 metformin, not newly diagnosed but was taking 1 metformin and in denial.Check sugar every morning.

@Sammy-do9uf 8 лет назад

I'm getting my pump tomorrow :D

@edaj1990 8 лет назад

Cool! I stopped using my T:Slim pump last year because I was having issues with the infusion sites and sick of the tubing and stuff to be honest. Now I'm getting tired of injections so I'm going to ask about Omnipod at my appointment tomorrow :) I hope you guys do an update video

@dreamflight6000 8 лет назад

+jademarissa Exciting!!! We haven't gotten it yet. In the process of figuring out what insurance covers. I just need to find out if they cover the freestyle strips. Keep me posted on what you end up doing! 👍

@edaj1990 8 лет назад

+dreamflight6000 I should have my starter kit by the end of the week! Surprisingly the easiest experience I've had with insurance lol. I saw in your other video that Henry will be starting in June. Hopefully it will work well for both of us! :)

@tommy1590555 8 лет назад

I hope it works out for you as it will change his life :)

@vaishaliparmar4358 8 лет назад

hi I have my 4 yrs daughter she was diagnosed when she was 2.5 yrs we heard abt pancreas transplantation surgery is possible for her is there any one do pls pls rly n what abt pump now she takes 4 time injection per day so much painful for her pls suggest pls

@SharpLife4 8 лет назад

I was debating this one too. I had medronic which I like. But Perfer the pens. Does he have a pen instead of syringes.... I love the pens

@dreamflight6000 8 лет назад

+Sharp Family We can't get the pen to work right. It leaks out and he goes high. I think we need to just try again.

@SharpLife4 8 лет назад

hmm yes that is weird. I have the echo pen and I leave the needle tip on all the time cause I'm cheap and reuse needs but yes some insulin comes out at times but as long as a prime the pen each time before I dose it works perfect. So each time I use it I keep dialing 0.5 unit until I see insulin come out of the needle then I know its primed

@riverelise2 8 лет назад

We have pump class for our 3 year old on Monday for her animas vibe. I am super nervous because of the tubing. We are so used to shots but she is getting so many a day. Any advice on what I should ask or be looking for?

@dreamflight6000 8 лет назад

+riverelise2 They'll teach you everything. Our pump classes were SO detailed! I was overwhelmed and my husband really was the one who ended up teaching me.

@riverelise2 8 лет назад

+dreamflight6000 I made sure I got a one on one with the best animas tech here and in the office of our endo. I am nervous to start and want to learn as best I can and told them I learn best in that kind of environment. I hope that works

@vaishaliparmar4358 8 лет назад

@CarriePilling 8 лет назад

That is the complaint our endo has with the omnipod, the falling off. He doesn't prescribe it at all.

@dreamflight6000 8 лет назад

+Carrie Pilling Thank you for sharing. I'm not sure what we'll do.

@CarriePilling 8 лет назад

+dreamflight6000 At least there is a grace period for trying it out if you decide to get it. Evan has been on the Medtronic pump and sensors for 3 yrs now and we are changing to Animas pump and Dexcom. I'm hearing great things about that combo and it sounds like you love the Dexcom. Medtronic sensors are not as accurate anymore and we get a lot of 'errors'. I forgot, does Henry have the G5? Seems like I remember you saying he uses an iPod at school. So did you have to purchase the receiver separate? Or did it come with the G5? Thank you Amy!

@dreamflight6000 8 лет назад

+Carrie Pilling We love the Dexcom! We returned the G5. We are sticking with the G4. The receiver comes with it. The iPod stays in his backpack so we can see his number on our phones. You'll love it!

@LittleMissiHeartM 8 лет назад

+Carrie Pilling Have you thought of waiting till the new Medtronic pump/cgm comes out in the states? We have it here in Europe and absolutely love it for our 4 year old. It suspends before lows and will start itself again after the blood sugar has come back up. Not sure when it will come out in the states though...I hear the FDA is slow with such things. I use the Medtronic pump myself (also type I) and have had amazing accuracy with the CGM---sometimes it depends on how you calibrate it (never calibrate with arrows) and how often you calibrate it (only 2-3 times a day). Once we started following this advice the sensors have been pretty much spot on all the time.

@CarriePilling 8 лет назад

+dreamflight6000 Amy did you make a video about the G4 vs. G5? I'm curious why you decided to stay with the G4. Thank you!

@i_am_diabetic7907 8 лет назад

I pi it down it's better for me

@dawnfitzpatrick652 Год назад

Very expensive some folk can’t afford that

@dreamflight6000 Год назад

If you have a job with insurance, insurance companies pay for it and you pay a percentage based on your insurance plan. And if you are very low income, Medicaid pays for it 100% I believe.

@marshmellow7210 7 лет назад

Mam is dis pump good??

@dreamflight6000 7 лет назад

+Denisha evvy It's the BEST ever!

@GuerinGrad09 8 лет назад

You might try placing the Omni Pod on it on his back or side instead of his arm because that part of your body doesn't move nearly as frequently as say your arm or your leg. I forget what its called, but they make a sticky spray that could hold it to his skin better. Tega-derm (spelling ?) might help too. I've had a Medtronic Pump for 5.5 years (diabetes since I was 5 yrs old) and I love it. It does have a tube though. There is a glucose sensor (a new one) that you can get too. I'm sorry your struggling with this. I have had diabetes now for 20 years so I have been through the ups and downs. Hang in there.

@anjadiabetes5907 8 лет назад

you need skintag when you want to go swimming with the omnipod

@rcross7979 8 лет назад

Good thing it's just a demo cause it's expired haha

@dreamflight6000 8 лет назад

+rcross7979 LOL! No way?! I didn't even notice that! Funny

@rcross7979 8 лет назад

+dreamflight6000 I'm a nurse so my eye is drawn to that part of the label. You are an amazing mom with all the health issues your family has had. And your boys are just the sweetest!

@vaishaliparmar4358 8 лет назад