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Epilepsy Warrior | Adele Hauwai | TEDxRuakura 

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Epilepsy effects the lives of tens of millions of people around the globe, yet it remains a mystery to most people, almost a taboo subject.
In this frank talk Adele describes the impact epilepsy has had on her life as a child, an adult and a mother. She shares her journey through despair to triumph with the help of a radical solution. Adele Hauwai is of Ngati-Maniapoto, Ngati-Kahungunu, and Tuhoe descent. She is a Co-Founder of
SeeCom, Talk Medicine, and is a board member of Healing Innovation Hub. Beyond experiencing traumatic brain injuries and also abuse as a child (causing epilepsy and many other challenges), she's always learnt to use her heart as her brain. She has university degrees in Special Education and Business. Her passions include learning, helping others, entrepreneurship, & sign language. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

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7 сен 2024

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Комментарии : 39   
@kathrynerling9304
@kathrynerling9304 6 месяцев назад
From one epileptic to another THANK YOU FOR YOUR BRAVERY!! ❤
@lestertaulbee9266
@lestertaulbee9266 3 года назад
Your speech made me cry like a baby. I've been battling this demon for over 20 years. I've had 2 right temporal lobectomy surgeries, I have a VNS implant, take 3 different meds every day and still have seizures, just not as often as I was at one time. I would have up to 11 per day at 1 point. It's been a battle but they're more controlled now. Thank you for your great testimony. God bless you.
@chanabayla1823
@chanabayla1823 3 года назад
As an epileptic myself and a volunteer for the epilepsy foundation..thank you..
@Theboy1798
@Theboy1798 2 года назад
I absolutely love your story Adele!! I started having seizures in 2018 and I felt like my life was over. But today with support of my friends and family, and medication, I am seizure free. Next step is to get my drivers license.
@epilepsyqueensland5097
@epilepsyqueensland5097 3 года назад
Well done Adele. Thank you for your bravery in sharing your story. It's so important to raise awareness of epilepsy.
@tonydelariva7163
@tonydelariva7163 2 года назад
Thank you so much for your inspiring video. You have truly given me hope. I'm 63 and I've had uncontrolled seizures off and on, mostly uncontrolled, all my life. On 8/31 I meet with a specialist to discuss another surgery, this time Deep Brain stimulation. I hope and pray my outcome is as successful as yours. And may you continue to have a seizure-free life.
@treytwey5366
@treytwey5366 3 года назад
Thanks so much for this video. Glad I found it when I did. 3:20 definitely understood where those emotions about stress and just about how being on stage being is very stressful. I'm a software developer and it's definitely frustrating when you have those days where you can't finish work. You can't focus on anything, cause you're having those Auras. They can really take it out of you. Cried like a baby cause we're just trying to make cool work, but I have to take a step back and realize even though I want to push myself, I still have limitations. Work has always been understanding when I can't continue work, but doesn't mean I don't want to push myself to make cool things
@tonydelariva7163
@tonydelariva7163 2 года назад
I'm 63 now, and retired. But I can truly relate to your story. All my working life, my seizures have interfered with work; having seizures at work, losing good jobs because of szs., having bosses follow me into the restroom in case I had a sz., etc. What I could have accomplished were it not for constantly battling the seizures.
@dfpkeogh
@dfpkeogh 2 года назад
I think that all of us who have epilepsy very much appreciate her speech. I'm 56 and and first had surgery in 1981. It returned : ( and could not be controlled with meds so back to the surgery table in 2007. Seizure free. I do think that one element of the condition that is not addressed is the psychological and emotional impact. In particular the impact on younger people and what happens emotionally on being diagnosed. I was 15. A very difficult time.
@littlesarahautism9787
@littlesarahautism9787 2 года назад
My little is 5 years old she is has autism and is nonverbal She had her first Seizure :( :( thank God it happened at home. As a Mom you beat yourself up like crazy trying to figure out what did you do wrong and what can you do right to fix it when in reality you're not in control but you really wish you were so you can make your child better. This video made me cry Thank you for sharing I learn so much and have a much better understanding ..
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
I've been hospitalized so much that A/E staff knows me so good they say you again Brian
@haydoslifeadventures8583
@haydoslifeadventures8583 3 года назад
Excellent speech Adele. Thank you for epilepsy out there into the community and sharing your story, Kapai !!
@kathrynerling9304
@kathrynerling9304 6 месяцев назад
I needed to hear this story as someone who is trying to get pregnant on epilepsy meds. Everything you said was SPOT ON about the pure teeror and fear we do feel bringing a child into this world.
@mikebasil4832
@mikebasil4832 2 года назад
Thank you, Adele, for opening our minds and our hearts to so much importance about epilepsy.
@stephenyuresti1405
@stephenyuresti1405 Год назад
Thank you for sharing your Story. your, my hero and warrior
@angelineo7424
@angelineo7424 8 месяцев назад
Well done! Indeed, let us walk by faith and not by sight.
@lindaibarra384
@lindaibarra384 Год назад
MY SON DIED IN THE SHOWER 🚿 HE HAD A SEIZURE 😢😢HE HAD EPILEPSY 😢😢 I SAW HIS FACE WITH EVERY SINGLE INJURIES AFTER FALLING ANYWHERE . HE HAD GRAND MAL SEIZURES I MISS HIM EVERY DAY HIS BIRTHDAY IS ON 4 6 2023 THURSDAY ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
@juliana290877
@juliana290877 3 года назад
Wonderful speech!
@nickycotton6137
@nickycotton6137 7 месяцев назад
This was so well done/explained. Thanks... My own have been 99.9% Nocturnal or Absent! That wandering about @ night is so disturbing after the Nocturnal ones.
@washingtonsmythe2
@washingtonsmythe2 3 года назад
Excellent speech.
@the1andonlykk320
@the1andonlykk320 2 года назад
I have temporal lobe epilepsy, went undiagnosed for 27 years and my profession is welding which I had to step away from because I was sick on a Daily basis
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
I see why people believe one is taken over by spirit because one has no control of what is happening and one has to be mentally strong
@CreatorChetna_
@CreatorChetna_ Год назад
From the age of 10 till now 23 age i am fighting with epilepsy .. 😢
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
Not being able to get up one can just look,i have watched my foot shake and move to My hand and then to my head is not easy to experience and you can only watch it
@robzee5038
@robzee5038 2 года назад
Amen ! Thank you for sharing ❤️
@davidgallegos6925
@davidgallegos6925 Год назад
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. Ever since I've kept track of humidity and atmospheric pressure my amount of seizures has decreased. Get a dehumidifier and try it out. Sensitivity towards high humidity and low atmospheric pressure cause it. Thats why countries with high humidity such as UK and Pakistan have the highest amount of Epilepsy.
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
Living with epilepsy is very hard
@brianschroeter2105
@brianschroeter2105 4 месяца назад
On the 17th of las t month I had seizures in my room I was found under my sheet choking and gurgling in my sleep underneath the sheet and sweating
@jedheart8059
@jedheart8059 Год назад
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
I've had most of my seizures in my sleep i wonder why
@moanahapeta3656
@moanahapeta3656 3 года назад
Mean korero cousin!
@brianschroeter2105
@brianschroeter2105 4 месяца назад
Can epilepsy cause one to hallucinate during sleep.?I just woke you a few minutes ago shouting for help from my brother, we have no current in the house and in my room is very hot but I have to cover up in my sheet because of mosquitoes in my room.i want to know if it is seizures related
@brianschroeter2105
@brianschroeter2105 4 месяца назад
Can going to sleep late affect my sleep?
@brianschroeter2105
@brianschroeter2105 6 месяцев назад
Does marijuana negatively effect my seizures
@anamikapandey6151
@anamikapandey6151 Год назад
Can anyone write her speech because of her accent I am able to understand
@divyanshuji6879
@divyanshuji6879 Год назад
Use subtitles
@universerebel3638
@universerebel3638 Год назад
Obesity doesn't help
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