In this latest lecture of the I CARE FOR YOUR BRAIN with Dr. Sullivan, board-certified neuropsychologist Dr. Karen D. Sullivan discusses some of the latest research on essential tremor. Learn more at www.icfyb.com
I was originally turned off by the huge Facebook logo on the thumbnail. But this is the best video on this. I wish my neurologists were as wonderful as this lady
Thank you thank you thank you thank you thank you I am so glad I found you that’s an understatement as I’m trying to navigate my way through everything connected with essential tremor. It was a fabulous lecture and I’m so grateful to you I wish I could write you
My son has a anoxic injury from a 15 minute hypoxic cardiac arrest and has ET. Cannot cut food and wondered if adaptive or weighted utensils are more helpful. Also so much help from you. Thank you. Everything you have mentioned he has challenges with. Diagnosed with LAS myoclonus and ST memory, less than one minute and unable to write. He has always been and still is motivated but neurologists now say to me...since its anoxic and 2 years post cardiac arrest nothing else can help memory, word loss and essential tremors. So I have become his historian and secretary! Thank you for taking your time to help us.
I think it’s cute in other videos where she talks about writing checks too! No seriously Dr. Sullivan is one of the greatest resources I’ve had in navigating these mysterious symptoms that I’ve seen crop up only the last year. Thank you SO much!
I was diagnosed with ET and taking gabapentin. I didn't know how it affected me. .if there was an adverse effect I see Med to have it.I realized this after catching a small part of your talk.Looking into it I saw that brain fog had truly made my life miserable! I am going to discuss getting off this with my Dr. ASAP. Thank you.
I have "essential tremor". Yeah, I can't get a decent doctor about it. Thank you for this info. I can totally relate to ALL of what you are saying, depression and everything! Not a drinker. Can't deal with Gabapentin.
Thank you so much. I'm educating myself and my granddaughter. We're having very frank discussions. I have had ET virtually my entire life. She also had relatively early onset, but milder tremors. Both my sister and I had mood symptoms where mood to go to Flashpoint in a second with no time to think it through. Propranolol gave us both breathing time, the ability to make a thoughtful decision. Adrenaline no longer was in complete control. I don't know if others have that same reaction. I'd like to know about that. Thank you again for caring. So many professionals dont.
Thank you! Please keep posting more info on ET, it helps. I love the last bit on nutrition. Have you seen the research on the Keto diet and it's positive effects on PD. Could this help us with ET? Thank you again!
I have had ET my whole life, and although I never had luck with the standard medication or even gamma knife brain surgery I was pretty good at hiding my struggle with tremors. I hated complaining or people feeling sorry for me, but now I am 35 and back at my parents dependent on them and with no idea what I will do when they die. It feels as though I succeeded in making my friends and even close family believe that my tremors are a "benign", but now I realize I really need help and for these people to realize how serious this is and that I am not just lazy.
@@usamashahzad6029 life is a struggle, I have figured out techniques like many of us have to cope with the tremors and also I have constructed mechanisms to help steady my hand while doing things like soldering.
You are heaven sent ❣️I feel as though you’re the only person n the world that gets everything I’m going through 🙏🏼🙏🏼🙏🏼thank you for your existence ❣️❣️❣️💯🙏🏼💯🤓
Help! I watched a long video ( I’ve watched most of your videos) and this one was quite long and it discussed many of the “other” tremors not just hand, voice but internal tremors etc. I CAN’T FIND IT AGAIN. I recall you saying this is going to be a long one and if memory (which is as you know affected) serves me it was about 57 min long. Thought I saved it but can’t find it. I actually broke down and cried half way through because I felt like “finally someone get’s it! I could even see a change in him as he watched it. I have just finished all the testing for DBS candidacy and (story of my luck) the day before the committee was to meet the pandemic caused all elective surgeries would be canceled so the committee did not meet. Your video did have so much impact on me that I actually called the neuropsychologist that did my evaluation (5 hours) and asked for a brief follow-up appointment to discuss his report/findings. Anyway,if any of this is sounding familiar I would appreciate the name or link to that video. I want to watch it again and forward to a few people as well. Thanks for all you do! Cheryl Garrett/aka Bubby
Hi Dr. Sullivan...it is 2022 now, anything new? How are the new treatments after 4 years? Any hope and good news? I truly love you the way you talk from your heart you are so caring and loving and conscientious Dr.....I am a 66 years old with ET for many many years....but just found out couple of years ago that I had ET...before I didn't know why I was shaking...it is very hard to live like this and you know better than me....couple of years ago my doctor put me on medication but didn't help me...is there anything you can help me with I am so desperate sometimes that I don't even want to live anymore....please if anyone can help me I am begging you all...love you all and God be with you all......tony from New Jersey....thanks
Okay, your video and the info you give is so awesome BUT, I have a rubral tremor. I have PMS…progressive multiple sclerosis… I’ve had DBS which has lessened but not rid the tremor. what more do you have for me, here?
Thank you so much for this helpful information about ET and the other symptomatic things of it! It helps me a lot to understand the disease! Lovely greetings from Sarah and stay blessed and happy and healthy in these times right now and take care of you 🙋♀💖👌👍🤗
My essential tremor, which I have had constantly for years, was bad enough that my handwriting became that of a very old person. For other purposes, I began taking resveratrol and coincident to taking it my tremor reducesd significantly. When I don't take it for a few days the tremor seems to return.
Thank you SO MUCH for a great talk about ET which I have. What do you do if you are adopted and you don’t know first line relatives? Plus I’m 61 so they’re most likely deceased by now.
Finally someone is understanding what we are going threw I won't go to a nerolgist or physcoligst for Thay just send you to mental health frustrated with Dr
You talk about the "highly soluble compound" collecting in the brain -- fat soluble? Because otherwise a "highly soluble compound" (water soluble) should pass in the urine.
Does ET have an emotional component? When I am dealing with an emotionally charged situation it often seems exaggerated and includes tremors beyond what I usually experience. (I have not been diagnosed with emotional dysregulation or any related disorder.)
I am not a doctor (yet), but as someone who is diagnosed with ET I can reassure you that there definitely is an emotional component to this. Whenever I experience anything slightly emotional, my body gets out of control big time and it affects my entire body including my voice. I highly recommend seeing a doctor for this though. I am still moved by my doctor's reaction, and now I'm trying out meds. :) all the best to you!
I can say as someone who has ET (as well as my brother and father), when we were at my father's funeral, sitting next to each other and of course very emotional, my brother and I had the worst shaking we've ever experienced! We also have CMT (Charcot Marie Tooth) disorder which is an inherited peripheral neuropathy caused my mutations in the genes involved in the myelin sheath around nerves. Wonder if anyone else w ET here also has CMT?
I have little doubt you are well qualified to present the information. I enjoyed your sharing the latest research. Sorry for those who love and sell meat that there are negative health relationships to harmene and cooked chicken and beef that are so dramatic. I am an independant person and the vegetarian diet were all being told to follow in 2018 may indeed be the best advice we have at this time but I like fried chicken and steak. :( too. I can imagine how difficult this news is to the beef and chicken lobby. I did not miss out that you said the longer we cook the meats the greater the amount of Harmain.
A. Not everyone has ET so eating meat for them is just fine. No need to bash the farmers B eliminated meat doesn,t help all with ET. C watching this vegan craze and their diet is horrific...terrible. Needs tb done very carefully. Eating lots of refined flour products, high sugar etc is awful.
Iam 25 years-old .i have been suffering by Essential Tremor . Your have given good explanation of ET. Could you cure ET ??? Is there no medicine for ET?!
