Etanercept for Stroke Recovery: Fact or Fiction? 

You are sooo correct! Thanks for speaking out.

So sad that some people think it's great to benefit from others' suffering.

@@hikari8858 well said

​@@kelseymathias3881 Yes well thats big Pharma for you . They make no money if you are healthy. They are evil and care nothing for health . only illness .

Indeed Why not see if this drug works Seems sensible

"Placebo effect" is like "instinct" - terms the scientific community uses when they're too embarrassed to say "we don't understand this at all".

Placebo effect is real & it’s proof that our bodies can cure themselves. But it seems to be used as an excuse here.

@@fredziffle5219 No, I don't buy that. Again, it's used as a replacement for "what is going on, we have no idea". It's not some mystical "effect" - it's healing going on that doesn't fit into Western ideas. Just because our doctors have no clue what's happening doesn't mean something ISN'T happening, or that the mind is just "talking itself into" healing. We have way too much of a tendency to leap to magical thinking whenever our limited view of the universe can't cope with whatever's going on.

I don't care if Sugar Water does the trick, I need my Daughter to be able to walk again. Not one mention of any patient being harmed by this injection. At the worst it has no effect so how bad is that? My brother was a high level manager in a hospital for over 30 years. They told him that they wanted to keep all disease chronic but treatable in the United States. They don't want a stroke recovery. That doesn't make money. Keeping everybody sick does.

This invoking of the Dreaded Placebo Effect is like a deus ex machina at the end of a Greek Tragedy, a frankly incredible plot device that doesn't really "solve" the issues raised in the body of the play. When did the placebo effect become a conversation stopper, especially when it is only mentioned, with the right amount of genuflection, as though that's Enough Said. I am not convinced that the Double Blind Study or the medical establishment have stopped a certain, probably large amount of medical predation on us poor peasants in the Great American Unwashed. John Benson, MD Physiologist Gilbert Ling and others have formulated calm, scathing critiques of the soft ugly underbelly of the vaunted Peer Review System.

Good luck! Glad you were able to get the shot.

Thank you so much for letting us all know! Great hearing from someone who has actually gone through the procedure. You are very encouraging!

@@lanfordmims5080 thanks for this. I did it cause I nothing to lose and I'm already like this and I went in faith 🙏

@@debbieescobar6267 thanks for this I went with faith and I believe in power of God

@@SelenaGomaz2011 what did the Dr charge if you don’t mind me asking, also was the total cost for one shot or two?

But you don’t see the ones that don’t work.

@@ericrupert2687 the doctor who performance this treatment said it clearly : 1 in 5 have some type of improvement

@@giovannamoro8564 where did you see that? It was my understanding that 85% of people treated had “some” improvement. I don’t remember where I got that idea though.

@@ericrupert2687 in the " 60 minutes documentary".

In 60 minutes he said 1/5 DONT have response, which means 80% DO!

Everything in I'd risk and all medicine that we take have risk to why not to take a risk in this shot, I did it and walking better and before and after it I'm taking therapy to get much better improved

I wonder how is Linda Lumbra doing in 2022? She received treatment for her stroke in 2014.

@@SelenaGomaz2011 best wishes!

After vaccines scam science all scientists should just shut up . The general scientific community has no credibility anymore

If it is that effective the FDA would approve it or at least request the drug company do the proper trials. If it truly has promise, this could make billions of dollars and someone would invest the resources. It's been more than a decade since these miracles happened

Did you get injected with entarcept? How did it go?

I saw the 60 min video as well. The saddest part of all of this is that the "powers that be" wouldn't allow this study unless able to bury ut; profit is far too important to them. The frustration and pain countless have been and go through is unimaginable, but I'm grateful for those who (especially nurses and animal rescuers) give of themselvesfor others.....thank you!!!! I hope you fur baby is doing better; you're both in my prayers....

How do you know she is back to her pre-stroke self? Tia

Agree 100%

@@gzman1 SHE and her daughters claim THAT. Se subsequent family interviews.

@@davidresley1848 There are over 120 videos on his website.

Are you talking about the covid vaccines "SCIENCE"? Or the " depression caused by chemical imbalance "SCIENCE" ? AND MANY MANY MORE !

@@giovannamoro8564 Vaccines work. 250,000 anti vax Republicans have died so far.

@@happyliving1922 let me rephrase that for you , 250,000 very ill persons died . Covid doesn't kill healthy people .

@@giovannamoro8564 They would have lived with the vaccine.

@@happyliving1922 can you prove it?

I agree.. my son is going for this treatment and with no other options and Dr's that all either want to prescribe tons of meds to only see thier love ones like a zombie /drugged day in and day out ... this Dr would probably consider this stroke treatment if she were in many of our situation.. smh..

@@RICKDLF1 My doctors have said there is nothing they can do. They have given me pain meds but they don’t work. What else can be done other than take a chance of this working or suffer the rest of my life without knowing this may have helped or not? I’ll take the chance and get the treatment.

@@RICKDLF1 please post your results from this treatment I want to give it a try, but my wife thinks it’s a sham dueto the drs shady history so I get no support to go. I live in Houston which has great medical hospitals and neurologist plus top medical schools. My question is why haven’ they done a good clinical trial here or any US school or hospital!? Probably because big pharma would dry up their funds. I would really like to hear from those who have had this treatment and has it still been effective years after the treatment. So TSRremodeling please share your results ASAP. I had a hemorrhagic stroke(also known as a brain bleed). I’ve been toTIRR twice without any great results and was released because I wasn’t improving fast or good enough to continue. I’ve now gone from being handicapped to almost being an invalid. If this treatment would give me just 10% improvement I’d be thrilled ! I will continue to pray every day till I hear back from you. God bless and I hope you get fantastic results

@@RICKDLF1 just checking to see if you have been to Florida for the perispinal injection and how did everything go? Looking forward to your reply.

I'm a thalamic stroke survivor and someone who has had the etanercept shot. My pain did come back but it did work. It was like taking meds with no side effects. They were up front with me and said some people get the pain back again. Nothing in life is 100% but you never know unless you try.

Not to mention they’ve started a study in Australia so the people don’t have to travel to the states. He trained the physicians so the study could begin. How is t there moving faster toward approval when study showed over 90% helping to some degree. I’m in the medical field and trust me it is most definitely about money! See what they’ve done toward cancer and Dr Burzynski. Tried to lock the man up then stole his invention. What if there was this type of treatment for dialysis? Can you imagine all the money that would be lost if one or two shots restored function? They’d find someone just like this to repress it just as they did with high dose iv vitamin c for COVID. Do studies using a mere fraction of the strength that works and conclude it doesn’t work and more studies need to be done. Luckily a colleague of mine is director of a major hospital in Florida and when they utilized this protocol no deaths, fewer patients on ventilators and shorter stays in hospital. It’s very sad to have medical professionals push this maritime for big pharma. She is on the wrong side of history

Where can I get info of the clinical trials?

Nonprofit? In a perfect world, certainly, but ours is a fallen world. Consider this, for the past 28-months, hospitals have been reimbursed, by the federal government, to administer Remdesivir to hospitalized COVID-19 patients at a cost of $2,340 for a five day treatment, a drug whose proponents never claimed it saved any lives, a drug that must be monitored for liver and kidney damage according to the FDA. So the obvious question to ask in all of these situations is, cui bono?

In this video, she claimed it was very expensive to produce. I’m with you, though. It’s all about money.

I have watched the videos of this drug being administered to stroke patients and its incredibly positive effects on their ability to walk and to talk again, and I really do not believe that this has anything to do with a placebo effect. With regard to the financing, I have two comments 1) the cost of the injection itself can often be covered at least in part by donations 2) the cost of the journey for people having to travel to the US from Europe or Australia or elsewhere is prohibitive, and I am therefore asking myself why there are no franchised clinics in Europe, Australia etc ??? Comments welcome !!!

Well they only do 1 treatment a day.

They did create a nonprofit because of the number of people helped. Sadly It’s in Austrailia and they’re trying to create one in New Zealand and Austria. Now why can’t we? The US only generates 25% of the World’s gdp annually. We have some of the best medical care on the planet but access to that care is null. At the very least this should be available to any and all veterans.

bad for business

Dishonesty? Greed?

@@ChristianBang34 Yep. Akin.

fear ..fear for their money , they dont give a sht about the suffering

The love of money is the root of all evil ?💰

Can you tell me more? I am researching for a friend.

Is that the practice of Dr Tobanic?

@@nicolaxoxo1 yes. I am sure they are complete unbiased.

Vioxx was killing people with heart attacks

Does anyone know if there is another clinical trial of perispinal entanercept going to take place I’m aware of the 1st taking place at Griffith University in Australia, I have been hoping one would soon take place in the USA.

@@ericrupert2687 I took vioxx for years. YOURS is a generalization and MOSTLY inaccurate.

Does anyone knows where we can has this injection other than USA because visa is not easy to get.

You are correct

Correct - it isn’t injected into the spinal fluid.

When someone can present something so cold as this lady, is sure that she never had a close family, friend fighting with all these stroke challenges.And how caregivers suffer seeing their husband/wife in these conditions.

Exactly. Also, I don't believe for one second this is a "placebo effect". Akin.

Correct. There is far more money in treating/managing a condition than in curing it. If I was unlucky enough to suffer a stroke I would be on a plane to the Florida clinic in a heartbeat.

Thank you for your affirmations here. I am scheduled for a treatment in less than 3 weeks. I am SO hopeful it will work for me.

@@amym4999 let us know Amy, my step mother had a stroke and is looking into this

@@gzman1 had my first treatment Monday. Almost instantaneously felt less pins and needles and pain. The side effects are not completely gone, but lessened. I have to remind myself this is a “treatment” and not an instant cure. Needs a little time. I can see why a second dose would be better - that is scheduled for next week. Stay tuned! Feel VERY fortunate and grateful to live close and get this procedure done. Hope more people can experience relief.

@@amym4999 please let us know how your treatment worked! God Bless you Did you have any positive results at all ?

I wonder if it’s available in Cuba. Even considering its faults, Cuba has a fantastic medical and med research system. I haven’t looked into it, but medical tourism, and certainly for this drug and procedure, would certainly be a boost to their economy.

Trust me, I know this drug is a miracle. Akin.

Maybe with the new law allowing compassionate use they can try this medicine for strokes.

If I could have significant improvement of my deficits poststroke or lose all that time locked in a study where I didn't get the treatment it's a no brainer for me. I only want the real medicine and enjoy my life.

more than likely they want years of study so they can increase the cost of the drug even though drug is already out there they just want to use it for something completely different use

Watch the Berzenski movies and see why the Big Pharma Corporations suppress effective cancer cures. They want to preserve a $300 Billion Oncology business.

I have found several small studies from 2021 that disagree with this assessment.

Hi did you get the injection by Dr Tobanic (sp?) ? Where is his clinic and what is the cost. My beloved mother had a massive stroke. She physically was fine but lost most of her speech, reading, and writing. Since the stroke traditional medicine says most progress occurs in first 3-6 months. I disagree, but what improvements she has experienced aren’t enough. It’s SO FRUSTRATING for her to understand everything but not be able to communicate. People, even medical personnel, assume she is stupid! It has ruined her quality of life. I would be willing to pay for the treatment. 4 of 5 saw good results! Way better than most drug results!!

@@nicolaxoxo1 Dr Tobinick at Boca Raton in Florida USA

​@nicolaxoxo1 My apologies I just saw this message ... if u haven't found out the info ... Dr Tobinick is located in Boca Raton Florida ... he has videos on RU-vid as well. Best of luck 👍 🙏 And the injection was painless (my opinion) Helped with pain & other areas of the body ... will go back when I am able ... it is costly $$ more than $8000 I don't know now what it is but so many people who need it can benefit from it ... insurance doesn't cover it ... wish it was affordable for everyone which I don't understand 🤔 ...

Agree. I am NOT a multimillionaire, but if my father wants the treatment, I will gladly pay for him to try. I can't take money with me.

So sorry for your loss and I agree completely with getting the shot. A small chance at recovery is better than no chance at all. Living this way is not living!

Very, very well said

It's a stated 4 out of 5 chance of positive treatment, not 1 out of 5!

Yes!

It does work. Even controlling inflammation in your body that’s off the chart is a plus. Inflammation can cause a host of other ailments.

@@amym4999 I know it most definitely work for stroke recovery. I just hate the price got to be so high..... Akin.

That’s why they call all these drug companies big pharma. They only care about getting richer. It should not cost so much. They rather keep people on disability so we depend on the government. Our crooked government

Yeah, that's the drawback. However, given my stroke, I'll go to Florida just as soon as I get the money💵💵💵💵💵👍🏼👍🏼👍🏼👍🏼👍🏼!!!!! Akin.

After how many vaccines did this stroke happen ? young children do not have strokes they are brought on by vaccines.

A proper study has to show a ton of things, such as: effectiveness, side effects, "may cause"..., warnings, ... plus age range groups for each one of these must be tested. Then, another age & sex duplicate group will get the placebo. As much data must be gathered from the results as possible because unfortunately, we live in a very litigious society.

me too

Only certain sized proteins can cross?? Wondering

I didn't like that innuendo either. If there is a reason to doubt that the drug enters the brain, she should explain why.

He doesn’t inject into the spine or the cerebral spinal fluid.

It’s a perispinal injection technique. I have researched this for over 5 years after seeing the 60 minutes report. They cleared my daughters dad for this but sadly his family think it’s a gimmick and would not help me when I came up with half the money and forwarded the paperwork to them. Look at trials at Griffith University in Australia. How the heck are they moving faster for their citizens and a doctor here invented and trined them to do the procedure? All participants had some degree of effectiveness. Many with TBI injuries and a mother of a son with such injury was pivotal in using her life savings to get the trial approved by starting g a non profit to help others. That’s not just a placebo affect. It doesn’t return all to 100% pre-stroke but even being pain free or having some degree of independence is worth it for many. I’m sorry to hear about the person that wasn’t helped. It’s unfortunate and would make me a non believer as well had I not poured over the actual medical information on nih.

@@ericrupert2687 he does you nitwit

Yeah, you had to catch yourself to make sure you're not lying. Akin.

FDA doesn’t have the patients best interest It has the best interest for the pharmaceutical companies

Nope. Sure doesn't. Akin.

That's exactly what I was thinking too. They 've had more of a decade to research on it .....clowns

Exactly!!!!

@@giovannamoro8564 My point, exactly. Akin.

Now what is your condition? Are you Okay or Same condition before Taking Etanercept?

Yes care to share..

Same here, but I would say dramatic improvement of my AS within a few days of my first shot. Changed my life after 20 of excruciating pain. Still pain free now. I also started on Enbrel in 1998.

YOU probably, as I did , took YOUR Enbrel orally. THIS is a VERY DIFFERENT administration of the drug which circumvents the BLOOD BRAIN Barrier and counteracts the detrimental effects of TUMOR NECROSIS FACTOR IMMEDIATELY triggering the reversal of stroke damaged brain cells.

@@davidresley1848 Enbrel is not an oral medication.

NAC what does this do?

@@garywalling4341 google Top 9 Benefits of NAC (N-Acetyl Cysteine)

Yeah , you're right ! It happened during pandemic 's lockdowns , it went unnoticed

@@giovannamoro8564 some of us did notice.

DR. ED TOBINIK’S METHOD IS NO FAKE MEDICINE! IT ISN’T A HOAX, AND ON THE CONTRARY!!! THE AUSTRALIAN GOVERNMENT DID A ROBUST AND VIGOROUS TESTING AND THEY APPROVED USING DR. TOBINIK’S LIKE OUR FDA OVER HERE; ONLY IN AMERICA, THE AMERICAN INSTITUTE OF NEUROLOGY DOCTORS CLAIMED DR. TOBINIK IS SELLING SNAKE OIL, IN HIS ATTEMPT TO DEFRAUD PATIENTS WHY??? MONEY!!! MONEY!!! MONEY!! THE ROOT OF ALL EVIL🤣🤣🤣 FROM THE AMERICAN ASSOCIATION OF NEUROLOGICAL SCIENCES, PERSPECTIVE, THE MILLIONS OF DOLLARS RECEIVED BY THEM FOR STROKE RESEARCH WOULD CEASE, AND THEIR YEARLY PAYMENTS RECEIVED WOULD DWINDLE AND DRY UP!!! SO, THEIR POSITION IS THE STROKE PATIENTS AND THOSE AFFLICTED BY IT MUST GO TO HELL; IN OTHER WORDS, THEY CARED LESS! ARE THESE DOCTORS WHO HAVE TAKEN AN OATH TO HELP HUMANITY, OR A BUNCH OF DEMONS IN EHITE SUITS PRETENDING TO BE DOCTORS AND PHYSICIANS?😀😀😀 THEY ARE IN IT, JUST FOR THE MONEY, AND DON’T CARE A RAT’S ASS RE:THE PLIGHT AND WELLBEING OF STROKE AFFLICTED PERSONS! WHY ELSEE WOULD THEY NOT CHOOSE TO INVESTIGATE, CONDUCT A THOROUGH RESEARCH, VISIT BOCA RATON, FLORIDA AT DR ED TOBINIK’S MEDICAL PRACTICE, SCRUTINIZE EVERY BIT OF PATIENT DATA, RUN TESTS AND MAKE PROPER DETERMINATION BY TALKING TO SOME OF THE TREATED PATIENTS LIKE THEIR AUSTRALIAN COUNTERPARTS DID??? THE LURE OF $$MILLIONS POURING IN ANNUALLY FROM DONORS AND THE GOVERNMENT FOR STROKE RESEARCH IS TOO OVER-POWERING AND TANTALIZING! THUS THEY ARBITRARILY DISMISSED IT AS FAKE MEDICINE AND AMPLE TREATMENT… THE BREAKTHROUGH IS TOO GOOD TO BE TRUE, BUT IT WORKS!!! MAY GOD HAVE MERCY ON THESE WAYWARD DOCTORS GRASPING FOR MONEY, AND DENYING STROKE PATIENTS A CURE. AS OF THIS WRITING, NO INSURANCE IS ACCEPTED BY DR TOBINIK’S CLINIC. THE COST IS $6,000 PER PATIENT!!! THE MATTER IS BEFORE CONGRESS AND HOPEFULLY THEY’LL ACT ACCORDINGLY AS AUSTRALIA HAS DONE, AND FIND A WAY TO MAKE DR. TOBINIK’S BREAKTHROUGH FOR STROKE TREATMENT AFFORDABLE FOR ALL AMERICAN STROKE AFFLICTED PATIENTS!!! RESPECTFULLY…

Exactly . She didn't learn yet

That's the same question I asked. I've come to the conclusion this is not placebo. Akin.

Did u get a chance to do the tx yet?

@@nataliepapolis July 11 is my appt.

@@nataliepapolis I don't know how I will survive Florida in July as I have a very narrow tolerable temp range. Stroke seems to have messed up my thermostat too.😁

Did the treatment work for you?

Mark, have you tried it yet?

@@hombreisla Not yet. I've been trying to work out the logistics. But I am anxious. I will definitely post a review.

@@markbrezzell2923 Did you take it any further?

From my understanding, it will. Akin.

Yes, not everyone gets results ... not even a tingle.

Yes they do. I'm going to Florida as soon as I get some money. Akin.

I am going 10/3!!!

I have a drop foot and I can’t use my hands anymore. After the shot., I move my shoulders and arms freely. Before the shot, I had pain in my shoulders and arms. After the shot, I had speech problems in a third grade level. Before the shot I had speech problems and a first grade level.

@@davidkim7350 did you have just one treatment? Are you scheduled for another? What I saw was a continued improvement after the second shot (now two weeks). Lingering things are still there - some numbness and pain, but it’s greatly lessened in intensity after treatment. Second shot helped more. Just trying to identify the changes - but so hard to notice them all because they are so subtle. But I do notice them.

I will get my second shot November 10.

@@davidkim7350 how is your improvement after second shot

This video is now almost a year old. The Queensland study she mentions at Griffith University is accepting (Australian) people for a larger second trial of the drug. I don't know what it would take to extend the trial to other countries, but the results of the first trials were encouraging and I would hope there would be interest in continuing and elaborating on the study. Rather than complain about how poor the data is, why not support getting good data?

I think the doctor knows that the novelty of his treatment is what keeps his business afloat. If he were to do an observational study, and the results proved to be promising, other clinics and hospitals would begin treating stroke patients with entanercept. People would no longer fly to HIS clinic in Florida if the treatment became widely available.

We’ll stated, thank you

@@cumguzzler7445 Imagine if you were a Nuerologist and someone threatened to find a cure for stroke. You would say anything to shut them down!

​@@cumguzzler7445 yes, you just always consider financial incentives as bias.

I couldn’t find her, but if you look up “Institute of Neurological Recovery”, you can find many updates on other patients.

@@jackieruiz3645 Thank you

@@jackieruiz3645 I sent an email to INR last week inquiring about Linda, but haven't received a replay. It occurs to me that because of HIPAA, they might not be able to release any updates. At any rate, I hope she continues to be well and happy.

@@kelseymathias3881 That makes perfect sense. Thanks for trying.

That is insanely expensive.

@@Mila_Brearey yup

Shamefull that this is the way of modern medicine. Karma is a bitch wait and see greedy doctors

Seems it might be less expensive to fly to Oz to get the shot....just a thought.

Because pharmaceutical companies buy our politicians to vote for higher costs.

But will the tablet pass the brain blood barrier?

@@moonshinemagic1771 yes

It's funny how the drug reaction is fast in other conditions but it's thought that it can't work this fast in his work.

Far too much liability involved to guess how he’s injecting the medication. He has trained physicians however and they have made comments on RU-vid as to its effectiveness. Yes it is expensive bc it is not covered. Last I called in early 2022 it was $1000 prior to arriving but they did inform me that loved one was a good candidate rather than waste our time. Submitted info post COVID so perhaps this is why we had to upload information instead of going there first.

I almost died from covid. My doctored allowed my grown childern to visit me in ICU to say goodbye to me before he was going to put me on a ventilator. My children smuggled ivermectin into my ICU room and within 6 hrs I was turning around. Ivermectin saved my life.

@@lorraineolsen2377 You've got some great kids ! Glad you're still here with us !

She should be. Its a drug for horses

@@DanygenieHair While it was first marketed for veterinary use, Ivermectin was approved in 1987 to treat parasitic diseases in humans. It has been used extensively in campaigns to eliminate river blindness in which hundreds of millions of people took it.

Took Ivermectin and was completely cured in 3 days. My Brother uses the liquid and rubbs it on his skin.