Learning that your baby has a rare, complex condition is life altering. In this episode we meet three families whose young children have all been diagnosed with CDKL5 - a condition that causes epilepsy and limits their ability to walk, talk and eat. There are just 10 children in the country with CDKL5, making the community small but supportive. These three families have all taken their own unique approaches in navigating daily life - from physiotherapy to diet, education and medication. / attitudepictures
21 май 2021
