Hope for Punya (A Rare Condition and Searching for Answers) 

Maybe you can interview me four old when he's a lil older

Hi

Bless u & ur beautiful heart. It's ppl like u that bring more hope2 those in such hopeless circumstances. Thx4 being so loving, patient, & helpful. U move many mountains!!! 💜🙏☺

Спасибо за вашу работу! Смотрю каждое видео!

One of my favorite animals is the crab 🦀 and I love the younger sister, she have a very loving heart and she cares a lot about her sister Punya.

Exactly what I was thinking. Such a loving home with genuine and emotionally supportive family members.

Inspite of having one child that is disabled they still try to live a normal life

Amd the father gets absolutely no credit except for when he praises women,how shocking

@inspecteur gadjet oh i make perfect sense. Keep pretending.

@inspecteur gadjet you off your meds?

Punya couldnt have a better more positive sister ♡

What a sparkly-eyed little treasure!

Yeah. Little sis rules, I hope i get a daughter like that!

How traumatic to see your daughter or sis have a seizure and not be able to soothe her.

She’s adorable

Yes, she is!!! Super amazing.

Thank you for commenting! Love this

Wow! Really?! I’d love to help care for Punya and her sister. The whole family! What a great experience that must’ve been.

I really felt the dedication and love through the video but its very heart warming to have confirmation of how truly lovely this family is :) That's so sweet that you helped them. Caregivers of all kinds have the biggest hearts in this world. ♥

So nice to hear that. I can totally feel that from here. 💕

now lets not wish that on the poor sweet girl, tired law student. lolol

There’s a holy GOD in Heaven, Who created you and I for His glory, but our sins have separated us from Him. the wages of sin is DEATH, but the FREE Gift of GOD is eternal life in CHRIST the LORD. in love, CHRIST died for our sins and was raised to life for our justification. repent, stop living in sin, and believe in the Gospel.

@@inactiveuser555shutup

So strange...I felt the same thing.

There are tons of people in this world who back you buddy. Mental illness is real whether people want to believe it or not. I got you homie, 100%

I also had mental illness ... ANd I have found the best cure ..for me is to cut off from internet , the movies,songs,youtube ..everything which are on internet .. go to park , with or without friends .. Actually we watch so much youtube ,listen to songs ,movies ..we don;t realize that they all just put strain on our mind and body ... you can try this ... try this for like 1 month or even just a week ..I know it will be hard to cutoff from songs,movies,youtube, internet .. but belive me its totally worth it .. I do this often .. ON weekends Saturday and Sunday ..I always take break from internet ... Try this , its hard ..but totally worth it .. I bet u .. I am not saying u to retire from internet ..when u feel like yeah now I feel good after week or month ..come back on internet .. AS I have to for work ...

I’m so sorry that your challenges are not accepted by your family. I hope that you are able to be surrounded by loving, understanding, supportive friends in your community. I realize it may be a cultural thing, but I believe that we are all deserving of love and compassion… and a sprinkling of joy mixed in!

I have social anxiety and my family didnt believe. I had to tell them but still they don't know what I go through

❤️💛

Yesss and I see Punya listening and getting happy when Sister is saying nice and happy things about her too. 🥰

Very beautiful.. I noticed that too. He really tries to empathize. The entire family eminates love and what family should be. Got all choked up watching as I do so often on SBSK. A good part of the internet.

Tons of love to your sweetie xoxo

Why can't she wear the dresses now? You don't have to walk to wear a pretty dress

@@Thebeezzkneezz. dresses are difficult to crawl in.. and when laying/sitting, they ride up. It's about comfort

@@r.coffman1431 dresses are the most comfy what are you talking about. 0 restrictions and when they crawl it won't fall off like pants do Dresses don't ride up... they literally go down with gravity. It dosnt get bunched and ride up like jeans do if your dresses are riding up they must be magic

she seemed extremely aware and logical.. it was kinda of shocking. as a white guy ive got to admit, indian families seem very close and caring/family type of people. her father is a very caring man and its amazing she has them. i love indian culture and their appreciation for eachother.

@@Curtis.Carpenter I thought so too, they seem to have a lot of love for each other. And they did a great job raising their girls

She’s extremely intelligent.

He does this with all families and love it!

yes, he does such an nice job of including everyone. i really love that.

Jesus loves you 😊😊 Jesus loves you all, He can remove your emptiness and pain if you let Him. He loves you with a love you didn’t know existed. Give Him a chance, please. He loves you. Do not end your life, please stay. You are so precious, wanted and loved. If you don’t want your life - give it to Jesus. All these lies and torments you hear - flip it and it is the truth! Listen to “Voice of God” and “As you find me” on youtube. Also please listen to: Dan Mohler, Kenneth Hagin, Todd White and Kathryn Kullmann. I hope to see you in heaven one day

@@jesussavedme6260 Amen

Ananya. Her name is Ananya, not "Punya's sister"

Yessss! SBSK work is EPIC! It’s already changed the world forever 🥰

I couldn't agree more.

You are loved and respected here!!! :)

D, I am really sorry it is rare. That is not good. Our family have some fabulous Indian friends and acquaintances - all so polite and eloquent, and full of joy, like this lovely family. May you always have the respect you deserve and stay safe and well.

I love the Indian culture. I find them very polite and respectful with amazing sense of humor. The children are very polite and respectful and that comes from great parenting.

D, how sad that we live in such a hateful society. In my life, I treat everybody the way that I want to be treated.

It breaks my heart that this is rare for you 😢 The friends I’ve made from India are truly some of the most selfless, thoughtful, intelligent, kind and interesting people I’ve ever known. Your home country is BEAUTIFUL and AMAZING- from the colors to the music to the clothing to the culture to the food…. Definitely worthy of praise and celebration

@Special Books by Special Kids wow Hope you guys reconnected thru this

Young kids are like that. I have a friend who says that her 7yo brother calls her “old”. There’s an age gap and she’s in her 20s.

Thank you for your input, I will keep your words in my mind so I can help acknowledge the siblings as well.

❤️

very south asian

Yes!!! They really inspired me, such a wealth of unconditional love and deep connection between them all ❤️

You're right.. it's not difficult to communicate with a child. It's always comfortable around children.

Some years ago, I was in a depressed mood, I was passing a bridge and that guy, I never saw before, just put his best smile and asked me if all was ok. I thank him because it made my day, his smile was so communicative that I still remember it today

I feel the ignorance is common among Asian families

Thank you for doing what you can. 💓

She can never receive the same attention ,she is not disabled

@@SRBOMBONICA86 do you mean society will not hand her the same attention? She can have as much attention as anyone disabled or not, it's how those around her provide it to her that changes not her worth. 💛💜

@@mindlessthenie no ,I just mean sadly she will always be put second in her family

@@SRBOMBONICA86 I understand what you're saying now. Yes, you are sadly correct about this.

@@SRBOMBONICA86 kinda true

It oozes love and respect. Wish the world treated and treasured disabled people the way this You Tuber does videos❤

💚✌

What about her sister? 😊

of course she is too a 🙂cute little angel....I just mentioned Punya because of the meaning of that name...

@@mashameddiaries1111 what's meaning of her sister's name? 😊

@@Ana-si7lz her name is Ananya right?? Actually It's not a word from my language, Sinhala...Hindi and Sinhala have so many similar words like Punya but Ananya is not there in our language...so I'm not familiar with it. I wish I could know the meaning of that name too.

I have temporal lobe epilepsy too and I don't remember mine either. I remember the moments right before and right after, I can sort of feel myself starting to have a seizure and then im gone. im grateful for that, in a way it's almost scarier for the people around to witness it than it is for me. I think its more common to not remember them, luckily. it's tough when she has no way of communicating whether or not that's the case

Oils some helps stops them sounds like she has autism

@@rachaelnelson3810 No, this is often confused with autism. That is not what she has.

wait who's smart and cute? punya or her adorable little sister?

I can’t think of any situation in which a child would be mature for their age that isn’t caused by a stressful situation. It’s a very bittersweet thing. Because as you said they have a better understanding but it’s also unfortunate that they’re not able to fully live as a kid, as a kid their age. So yes while it is good in a lot of ways it’s important to remember it is a result of stress and necessity. Luckily Ananya seems to have a good support system so she will probably have a healthier way of handling it.

That was especially profound. What a wonderful daughter. I used to work for an agency that provided respite care through the county for parents of disabled children like Punya. I really hope they have access to such a thing. I've had a 18 year old sit on my lap like Punya does. It's the most heartwarming thing even if they are heavy and you can't see anything around them and feel squished. Lol. I felt so special when that happened. ❤❤❤

I thought that was really sweet that she can see that her parents needs to take care and be happy as well.

Right, so thoughtful and kind.

Yes, and a pretty helmet to protect her head.

She has a helmet and a wheelchair. You can't see it in the video. The family works so hard to keep her mobile. I respect that because I was kind of lazy and went with the chair. Punya walks much better than my daughter. She also used to bike up and down the halls.

@@rianneashleigh808 Thank you for telling me. I was concerned as they mentioned quite a few times that she was hurting her head when she fell.

@@rianneashleigh808 oh I totally didn't notice! I assumed they probably had already thought of it but you never know.

@@rianneashleigh808 I know you’re ‘half-joking’ when you say “lazy,” and I have similar sentiments about some of my decisions in self-advocacy - ultimately I have had to remind myself that, then and now, I am doing the best I can with resources and circumstances handed me by my life. I hope you and your daughter are doing well.

Praying for you and your daughter. I hope she gets better. Take care of yourself! Sending my love, respect and hope for a better future!

@M T Thank you, I really appreciate that 🧡

@@Arampe Thank you so much. I really appreciate that. I'm trying but its hard because of her condition to care about anything other then her right now. I'm hoping for a a miracle at this point. Thank you again I appreciate your kind words.

We will pray for a miracle for your daughter with you. God bless you! 🙏❤

🙏

Oh I feel so sad reading that. I hope you have some good friends and colleagues (co-workers) now who do encourage you. I think we all need encouragement. You can't change your growing-up years but if you can find an opportunity - at some point - to encourage others then it may also help you. I found my first few years at school really hard and - since becoming a parent - I now work part-time in a school, and use my experience to encourage children to be confident and be the best they can be.

Hope she's doing well!

Send your cousin our love!

Mine went away at 19 years old

Amen ❤😇

Amen 🙏🏻

I don't think so

Thanks sis 💕💕🥰🥰you toooooooo💓

Thank you so much