A Cambridge family says Pharmac has has robbed their daughter a chance at life.
14 year old Stella has Spinal Muscular Atrophy type 2 - a disease where few who have it ever reach adulthood.
The drug that could halt her deteriorating condition in its track is funded in 49 other countries around the world but not in New Zealand.
Her parents say a future for their daughter is out of reach and it's a sad time to be a New Zealander.
25 май 2019
