Fibromyalgia: How to Manage Chronic Pain 

I am 19 and I feel like a crippled old woman with this condition. I’m still struggling to deal with the pain and it has prevented me from doing what I love. I have had this pain since I was 13 and my doctors would tell me it was growing pains, but it didn’t feel right. I only just got diagnosed last year after i went to the hospital multiple times and went to many different doctors to figure it out.

I was diagnosed in June of 2020. Still trying to figure out what works for me. Hugs to everyone that is struggling with this terrible chronic illness.

having have it for 34 years she only touched on all the symptoms, barely touched on them, it can be much worse than she thinks or mentions. The person that actually suffers from something is the true expert.

I have fibromyalgia and unfortunately when im in pain my family thinks it's not serious because im only 31. Im in pain day to day i cry i have trouble sleeping. I really want to direct my family to this video so they can see im not the only one in pain and going through this!

Who else looked a the comments before watching the video.

I have fibromyalgia and it has completely stopped my life. I feel like I'm a very old crippled woman, I'm only 46. I'm in pain daily and the stiffness makes it difficult for me to do things outside the house. Working is extremely difficult but I I have to work. I pray that one day there's a pill or injection to cure this pain completely.

I was just diagnosed with fibromyalgia a year after being diagnosed with Hashimotos disease. I’m glad you touched on this. I just wish there was more that could be done to help those of us living with chimichanga pain...after a while it really wears on you mentally and emotionally.

I've had fibromyalgia since 2005. I always liken it to having a pain switch. I suddenly get pain flare-ups that can last anywhere from a few days to a few weeks and all of a sudden it's like someone flipped the switch and the pain is gone. Regular exercise has greatly decreased my fibromyalgia pain flare-ups.

Every damn time I hear it cant be cured... it brings tears to my eyes...

i was diagnosed with fibro when i was 17, i'll be 23 soon. the severity of pain and the loss of ability to focus are incredibly adept at putting your life on pause. i don't really have much of a life at this point. and the tenderness ... people can't even give me a damn hug without hurting me. people barely touch me and its like they started stoning me.

I've had fibromyalgia for 27 years. Since I was 13 years old. I was undiagnosed for 23 years. I was partly to blame for this because when explaining my symptoms I didn't do a great job. My body was always sensitive and achy but because it was extremely intense in my hands I didn't consider the rest of my body to be in pain. I was chronically tense. My facial muscles, shoulders and even toes were always clenched . My worst years were between 13 and 19. I went for every test possible. Nothing was physically wrong with me. Eventually I learned to ignore the pain unless I had an extreme flair up. I also have digestive problems and fatigue. In 2017 I was also diagnosed with Bipolar II disorder. I was given Lamigtrone which not only helped with my Bipolar but improved my digestion and relaxed my tension. It also improved the pain I felt. Most of the flairups I experience now are when I'm experiencing intense stress and emotional problems. My hands are no longer as bad but My lower back is the problem.

I have had fibromyalgia for 35 years, and I raised 2 children and worked a few hours at their school. It causes anxiety due t the pain I experience everyday. Hoping for a cure, but since I turn 71 this year I who knows. Also have IBS, fatigue, back problems, arthritis, and severe insomnia. I pray for people with chronic pain because they suffer every day.

I'm glad they discussed this topic, particularly the connection between gut bacteria. I was diagnosed with fibromyalgia and lupus. My symptoms have improved by 90% ever since I switched to a plant-based diet.

And a problem was as my medical test were negative my doctors started ignoring me about my concerns. It took me 10 years to get a diagnosis and to start getting treatment but I’m still miserable at this point

getting a fibro diagnosis when i was 22/23 honestly explained alot of odd health issues i had when i was younger, Though a majority of it started when i was 19

I’m only 29 and fibromyalgia symptoms have definitely crippled and depressed me. I can’t even get good pain meds because all the doctors in my town think most everyone abuses drugs which isnt true. I got some sort of virus and it triggered the fibro pain, my whole body’s feels like it’s on fire. Idk what else to do

I’m 17 years old and I suffer from chronic pain. We don’t know what caused it but I’m in constant pain all the time. Any advice to lessen it?

I just got through a 2 month flare up. The fatigue is more devastating than the pain, for me, anyway. As I get older (66) I often wonder if it’s something other than fibromyalgia, but so far, it isn’t. It’s frustrating and depressing.

I was diagnosed with Fibromyalgia last year in 2019.And I stay in Pain 24/24 😢😭everyday and I keep myself busy cause if I stop I will start to think about the pain 😢😭.And I don't keep myself away from my family or the people's that I know.I FEEL FOR EVERYONE'S THAT HAVE THIS 😢😭.I WISH I COULD TELL MY STORY ABOUT HOW I GOT LIKE THIS.I WISH THE BEST FOR ALL OF US THAT IS GOING THUR THIS BECAUSE IT IS NO! PICNIC.GOD BLESS

Having had IBS since I was 13 (I’m now 56) and various other randomly occurring and non-specific aches and pain throughout life, I finally got a Fibro diagnosis in 2014. Suddenly a lot of stuff that had been happening for decades made sense! (Teeth grinding, daily headaches, light and smell sensitivity, the IBS, depression) But still GPs here in the UK don’t seem to know enough about it... I had a pulmonary embolism on Sunday and whilst at the hospital had to explain to various clinicians what fibromyalgia is! I had assumed the early signs of the clot were fibromyalgia pain in my shoulder! Having fibromyalgia has made my life difficult for decades....and now has so nearly taken it! The doctor told me I was lucky and it was a good thing I had got to the hospital when I did!

I was diagnosed it took over 30 years to get there and it is hell. No-one believes me even after a diagnosis. Ive lost freindships. Will there ever be a cure.

I've had Chronic pain that has really only developed since I was hit by a car, about 11 years ago. Over the last 18 months I have had symptoms that have ranged from pins and needles, muscle spasms, to intense back, neck, shoulder and leg pain. Ive experienced sleep disturbances, and of course a massive amount of fatigue. There are slight neurological symptoms also. The thing is nothing seems consistent, it's more than any number of these symptoms could affect me at any one time. As one goes, another symptom takes its place. Sometimes for days, sometimes weeks. Going to the gym seems to help, but theyre all closed so it's difficult.

I've had success in reducing Fibro pain with CBD capsules and tinctures, and recently I've been taking Lifetones Uric Acid Support which helps some in its own right. -- I've had Fibromyalgia 25 years, since a fateful football practice at 13 years old seemed to trigger it.

So how do you heal it?

I have fibromyalgia. It is brutal at its worst. I spent the best part of last year in flare up. I take 4 different medications to help balance me out. The definitely work as when I run out of meds I can guarantee when I wake up the next day to take it extra slow. The soreness of my entire body is constant. I was also on crutches for a long time too. If I was to describe the worst kind of it would be the flu type aches that riddle you, the stiffness in the joints added in the the extra annoyance of a toothache feeling in the lower back and shoulders! Today is a bad day! So it's a bed day... 💪🏼

I'm 15 and I have had horrible fibromialsha pain longer than I can remember I just officially got diagnosed 4 or 5 months back but it's awful I'm always in so much pain I can't even describe it, it's the worst, I just want to not hurt so bad, I just want to be a normal kid. I hope they will eventually find something that helps us live happy and more normal lives.

Omg thank u. I have it and it does cause lower quality of life. Because of chronic constant pains.

I first had wide spread pain after my first child at age 22. Then many years of “remissions “ but full fledge during menopause at 44-47. I’m 56 now and still don’t take medication but it does flair up once in a while and I have what I call flu flairs. Feels like the flu hit me and a semi truck! Luckily those episodes only last hours or one day!! Meditation prayer healthy supplements and healthy eating staying positive and hopeful has helped the most. I too am a nurse so it CAN be hard at times! Heat, epsom salt baths, and magnesium topically also help

I been suffering for years 15 years, as well and I still fight for help to this day. I’ll been in pain so bad I don’t even want to get up to go to a doctor. I’m ready to work an be happy like I normally am. Always am I active till pain brings you down. Also I get these pain under my right rib caused by endometriosis of the gallbladder which is painful as well. Never can I figure out a pattern or what causes my pain. I’m ready for real help and I’m only getting interested by two OBGYN’s. I also been fixed for 14 years and back in July 2019 I was 9 weeks along without tubal ligation. Surgery was emergency ( bilateral tubal ligation without ligation in tub) baby was behind left tub a tear in the right tub baby heartbeats without a sack. I’m saddened by this cause every doctor I’ve seen had said we can’t find nothing wrong with me. Like they brush me off to another doctor. I don’t want to see ten doctors only one! My pain said otherwise and I felt like I was going to die if I didn’t get the care I needed. So I had to drive two hours to be admitted. Once done I continue to have issues and it’s scary some days. I hope someone understands me, I never wish fibromyalgia or lupus on anyone it’s painful 😣

I am undiagnosed but I think this is what I have been living with since I was about 9 years old. It got more frequent in my teenage years. Now the pain I experienced then is just like icing on the cake. I tried getting a diagnosis and I was told it was all in my head. I live in an underdeveloped country and our medical system is very shitty so I did my research and found out about fibromyalgia. All my boxes checked, especially the brain fog which has been a concern to me because as a journalist I need my concentration at work or I would miss something important. I have learnt to live with it and manage my pain which became worse with each pregnancy and child birth.

The fun thing about “radiating pain” is that normally I can’t pinpoint the spot of pain but I feel it in a whole area/section. After I take a certain painkiller or a thc product I can still feel the pain in the whole area but I can at least pin point the root point where all that pain is coming from. Another way I can show how much pain I’m in, is that certain areas in my neck and back get so tight, if I crack that area it sounds like someone popping bubble wrap. That’s about the only way I can physically let someone know how much pain I’m in. It’s quantifiable, how many pops, how loud they are, and what kind of pops they are. But sometimes it’s so tight that those spots won’t pop, so I need to stretch or have that area massaged before anything will pop.

You know I wish I could find good doctors that would listen to me and understand that I am in so much pain and need help

Been diagnosed, was then discharged, and i have no help with ig

How are you all dealing with the constant exhaustion and pain while at work, while dealing with yhe depression that comes with it

To everyone reading this: --check your vitamin levels and get a complete CBC. My b12 and D were off the charts low. Raising them hasn't helped my energy or symptoms. --Rule out M.S. with a brain AND full spine MRI. --check for Lyme. Mine was negative but if it isn't tested at the right time (early), it may not show up. --See a rheumatologist to rule out autoimmune conditions. My inflammation was very high but it did not reveal autoimmune conditions. You can be positive for a condition and it may not show up for 5 more years, FYI. --See your PCP, neurologist, rheumatologist and more. I even saw an ENT due to the dizziness. --If no diagnosis, see a university level rheumatologist. They are master doctors and she was the only Dr who knew what it was. A different ENT later confirmed it (I did not tell them the other Dr's diagnosis). Others later confirmed it. ------> Everyone please look up "central sensitivity syndrome" or CSS. It's the umbrella parent term for a condition I got diagnosed with once they suspected fibro. When my fibro presented I couldn't walk 5 feet and went to the ER with vertigo for the first time, weak leg/arm muscles, numb lips/fingers/toes. Over a year later and 17 doctors later, yes 17, I was diagnosed with CSS including fibro. CSS encompasses fibro (I have severe fibro), Interstitial cystitis of the bladder (I have severe IC), chronic fatigue syndrome (I have that), TMJ dysfunction (I have that too), Irritable bowel syndrome (I think I have it), chronic headache/migraine (I have), pelvic pain (I have), poor sleep (I have), anxiety/depression (I have), fibro fog/poor memory/concentration (I have), widespread pain and sensitivity (I have including sensitive teeth), PTSD (I have that), restless leg (I have that), Multiple chemical sensitivity (I have that), etc. It probably sounds like I'm exaggerating to have all this. I swear on a stack of Bibles or whatever you want me to swear on, I have it all. I'm 37 and often have to use a cane, park close with placard, and pace my energy, physical, and THINKING expenditures. I have to space out tiring events. I cannot walk far but I can use a recumbent bike. I can only talk on the phone for 10-15 mins or I get exhausted. I cannot work and no, I don't get disability money. CSS is horrific. I thought just having severe IC was painful enough with the severe urinary burning and inflammation. With my SEVERE IC I can only eat about 30 single ingredient foods! CSS is the devil. When I get sick, my CSS/fibro flares up. I NEVER feel well and always am in pain. Even with cymbalta and other meds. I tried CBT with a therapist, it only helped slightly to deal with it. I found a massage therapist and told her how delicate I am with severe fibro. She adapted how to massage me. It really helps but you need to communicate and have a therapist who listens and is gentle. I have a 1 hr session once a month. It helps more than anything else. Including warm/hot baths with dead sea salts. Reducing stress. Pacing/Spacing out physical and mental tasks. Simplify your life. Reduce what you do. Find shortcuts. Hire out services if you can.

I dont get flare ups my pain is daily with an occasional less painful day. I don't have tender points just overall body aches. So far there really is no help, you can take meds and then go thru life feeling groggy when your brain is already half dead. Meloxicam has been the closest thing to help for me but its not working well anymore. Might as well crawl in a hole.

I have so many symptoms But mainly its like the flu aches with areas akin to a sprained muscle On a bad day its like iv fallen down the stairs and have bruises all over . Nothing has worked so far. Its ruining my life!

Invisible hell in every aspect

Fibromyalgia is a damn if u do and damn if u don't!!!!! With my exp. that's how I feel! Bottom line peoples situations are different than others ! You're screwed !!!!!

I have just been diagnosed at 23 and my mum was also diagnosed years ago struggling today one to terms with the chronic pain, debilitating fatigue and brain fog which makes it so difficult to work at times. I just want to know if anyone has found anything that works or eases symptoms? X

I’m in pain too👍👍🌺🌺

I’m 18 and struggle with chronic pain and fatigue every day makes working horrible I can’t find anything I can do without being in tons of pain

Why is it that diet is never mentioned??? A lot of my pains stopped or decreased when I changed my diet. I was diagnosed with endometriosis and fibromyalgia. When I was on a strict endometriosis diet it helped with a lot of my fibro symptoms.

I’m 28 I’ve had it since 15 and now I’m on a mer called deluxetine it’s of chronic pain and depression it also gives me a good push of energy with in the hour with out it I’m always sleepy Afro pain it’s okay it’s better then feeling the normal pain my pain is usually a7. Outta ten all day everyday it’s something hurting more then the other parts that are ALSO hurting.

I just got diagnosed. And the only treatment they are willing to give me is a gym memberahip...WHAT ABOUT THE PAIN NOW?! My fibromyalgia was triggered by lamotrigine, which was given for bipolar... which I don't have (they removed that potential diagnosis).

Anyone experienced bruising with fibromyalgia?

Get told to exersise.... I work hard in a warehouse environment where i choose to not use the lifting tools, so i get exersise i the get told to exersise less, sooo bloody frustrating

One size doesn't fit all and i'm done with doctors treating it that way. I had just as bad of symptoms while i was in the best shape of my life so if 1 more freaking doctor tells me to exercise without giving me something for pain so i can exercise, while also trying to give me 10 different meds that don't work compared to 2 that do, imma start turning to street drugs. There's no such thing as a good doctor in today's world. And FYI to my fellow sufferers, you can thank the addicts for telling doctors they have fibromyalgia just to get drugs. Also, it's the doctors and nurses abusing pills while we get the blame so thank them for your needless suffering as well

Diagnosed at 20 in 2017, idk what a normal life will be because of it, its fucking fantastic

I was diagnosed with fibro today😫 I been in pain for monthsss

We are finding Many Fibromyalgia pstients have High upper palates or teetä pulled When they had braces When they were young

Ive had fibromyalgia for 24 years it's the worst thing.

l herd a strong vitamin B1 (fat soluble one ) has good effects on helping .

I think I have all those symptoms they had described. I constantly ask my doctors what can I do do with these sore muscles aches and they don't help me or see about any treatments for it. I thought it would be sciatica pains, fibroids or pelvic inflammatory pains , cause they seem to be similar as far as muscle pain. I take Aleve 8 hours muscle tablets when the pain is intolerant. They work but it seem that you have to stay on schedule within the 8 hours in taking them, or my body will flare up. It do mess you you emotionally as well as physically. I wish I just don't have to suffer like this and be pain free one day...

I'm based in the UK and enduring a lot of stress. I think I have been misdiagnosed with Fibromyalgia as it only mentions widespread pain but not the other linked symptoms. I am sat here victimised abused depressed fatigued trapped isolated diseased failed ugly suicidal angry lost and no medical professionals here are helping and I am sat here unable to function in a house with no social support and a very violent one eyed 60 year old mother . I have no friends, I am unemployed, I have no advantaged, any one please help me

I have Sjögren’s syndrome and fibro. I mostly stay in bed. I have completely cut everyone out of my life. I literally have zero energy unless i am on steroids and they have horrific side affects. I have pain everyday it never goes away and i chronically feel sick kinda like when you’re coming down with the flu. I had covid ( from my husband who got it at work) for about 6 weeks and was in a coma state 98% of the time and i continue to have co vid symptoms. I would LOVE to be outside walking enjoying the world but taking a shower exhaust me.

i OVER YOU MY POSITIVE ENERGY TODAY:) If you here it means you are in pain and feeling very muchly emotional. I am 49, have the body of a bit 20 year old and a face of a youngen, yet i have been in pain for some 26 years. My prayers for each person challenged..

I have fibromyalgia and it's taken my life I'm tiered of the people that don't have it trying to tell me what I'm feeling like we all have fibromyalgia but we all have it in different ways and I'm also very very very tired doctor is trying to say that my pain medicine does not help me that is addictive you know what it made The Addictive and I have fibromyalgia for life and it's the only way that lets me to get up and do a little list of tasks I'm tired of being medication shamed and looked at for something that I have no control over

Plezse anyone out there, I hurt to the touch, I have pain in my legs My back groan feels like fluid in my lower extermitys. My hands feel like my hands when the touch it feel like i can feel the nervses in my hands. I have been in my stomach at bed time. feels like i am dieing whats happening to me,. Feel like sand in my feet i cant ben mmy legs. I am stuck in an electric wheel chair i am only 44

I've seen videos about people taking cbd oil for the pain and anxiety that goes with fibromyalgia, and its helped them. I wonder if that might work. Has anyone tried cbd oil and did it also work for you?

Well I'm pretty sure y'all just diagnosed me

I feel u same problem hier) :

So basically just keep living your life lol

GODBLESS me too 👍👍👍🇯🇵🇯🇵🇯🇵😍😍❤️❤️🙏🙏

I got this disease. What I have noticed over the years is that it grows if I take alcohol or caffeine. I would notice the pain comes after 2 or days of drinking. Alcohol effects the most.

She didn’t mention food at all! I’ve had mine under control for 11 years because of the way I eat and a couple of other things. No drugs .

The Key to this is to Stay Busy

Yeah the medications for this are useless. Unless you get the combination of physicians willing to use interventional techniques, there’s not much hope here. Especially, when you pushed down the mental health route. GL to others out there

I do that lol

Where did fibromyalsia come from. I had it since early 1970. Most doctors did not believe me. I suffered a d could not get on disability. Had to work and suffer with this. Why all of a sudden did so many people start getting it. It must have came from somewhere. I realize that no matter what I eat, it gets worse, especially sodium. I don't know what else to do. I am looking forward to dying. There is no way to control it.

Aint nothing you can do to control this fibromyalgia I have tried different meds and eating I drink alot of water physical therapy and nothing has help me

I hate this condition

We all need to help eachother because these drs arnt doing anything to help us. Mine litterly said go to a pain clinic! Yeah get me addicted to opiates... no thank you

Having fibromyalgia and fighting a disability insurance company that is trying to prove that your not sick is hell on earth. Check out resolute legal channel to learn about all the sleazy tricks the disability insurance companies use

Its not just pain ffs

Straight up CLICKBAIT. They didn't even talk about how to manage the pain. WEAK.

Medication maybe help but try natural first for example exercise meditation yoga. Swimming very good 👍 also 針 acupuncture maybe try learn ツボ and press yourself maybe help

No there is no MAy! The pain is caused by gut issues, automatimmunity etc . For many years ppl didn’t know the reasons so they called it fibro . Otherwise the illness is those above causing wide spread pain

My uncle had suffered from this problem. He was total upset during this. He went to many hospitals. But the result was not good. Then, Someone told him about planet Ayurveda. He went to Planet Ayurveda & got his treatment started. Now he is fine.

And Don't Get Hooked on the Pain Clinics!!!!!

My mum suffers this and it’s worse she takes CBD oil and it works

Those doctors are killers. No cure but you can manage.

This gives NO real advice on managing pain. Don't bother watching.

I have had this terrible condition for over 15 years now, and it's really stressful that the medical community is barely doing anything about and just keep providing this generic abstract cliches that simply don't work to improve people's lives.. We have to just push advocacy to put more funding and government involvement in furthering more helpful research It's absurd

Nothing works for this condition. It has stolen my life. It is agony. If I didn’t have children I would kill myself. Doctors do not understand and do not believe me when I tell them how much pain I am experiencing. Life is unbearable.

you do not know the cause? NEUROINFLAMMATION: Dr. Jarred Younger, Dr. Miguel Pappolla, Dr. Marco Loggia

What s waste. Of time bl as h blah blah no cure no treat sent just what it is

Waste to watch no help

No useful information on how to manage chronic pain. If you want to waste time please watch.

Fibromyalgia, for people who don’t want to work