This conversation about Finding Purpose Despite the Pain of a rare disease or disability was held at the 2024 Living Rare, Living Stronger NORD Patient and Family Forum on June 8, 2024 in Los Angeles, California.
Panelists included Nikki McIntosh, Founder of Rare Mamas and host of the Rare Mamas Rising podcast; Maddie Jewel, rare patient and MD Candidate at the Wright State University Boonshoft School of Medicine; Christopher Barry, rare community member living with familial adenomatous polyposis (FAP) and desmoid tumors; and Grace Fisher, patient advocate at the Grace Fisher Foundation living with acute flaccid myelitis (AFM).
Learn more at livingrare.org.
6 сен 2024
