Panelists discussed how to achieve Heath Equity for the Whole Rare Disease Community at the 2024 Living Rare, Living Stronger NORD Patient and Family Forum in Los Angeles, California on June 8, 2024.
Speakers include Viridiana Murillo, Pediatric Genetic and Rare Disease Scientist at Científica Latina; Georgene (Gina) Glass, Executive Director of Dreamsickle Kids; Rigo Garcia, Executive Director of the Hemophilia Foundation of Southern California; and Magnolia Wang, Founder and Lead Advocate at STAC3.org and Clinical Research Coordinator at CHOP Genetics in Philadelphia.
Learn more at livingrare.org.
15 окт 2024