Five Of The Rarest Diseases In the World | Surgeon Dr Chris Raynor Explains

Dr. Chris Raynor | Not Your Everyday Ortho

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In this explainer video, orthopedic surgeon Dr Chris Raynor discusses five of the rarest human diseases, their causes, treatments, and the difficulties they create for those who suffer from them. #rarediseases #interestingfacts #unusualthings
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Опубликовано:

15 окт 2024

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Комментарии : 277

@ChrisRaynorMD 5 месяцев назад

What is the rarest disease that you have ever heard of? Do you know of anyone with a rare disease?

@bretling 5 месяцев назад

Lupus. It's never lupus.

@kamikazeplays6818 5 месяцев назад

Well i grew up with people with it but true.t@@bretling

@scale0097 5 месяцев назад

No, only common once, they are sad enough.

@noblelies 5 месяцев назад

Congenital echolalic tracheal-esphagael fistula and atresia with stenosis comorbid to trisomy 21.

@kamikazeplays6818 5 месяцев назад

@@bretling i have it in my family

@benmcreynolds8581 4 месяца назад

That disease that slowly locks you up with in your own body due to hardening and build up of scar tissue... Is Terrifying.. My heart goes out to all that push thru chronic disorders and still find ways to enjoy and appreciate life. You all are the strongest people on this planet. It's The ones who somehow still find ways to be compassionate kind hearted individuals who are the greatest role models to all the rest of humanity ❤️

@nategd313 4 месяца назад

I saw a video about it years ago. Seeing the skeleton of the one man who donated his body after passing away is both heartbreaking and terrifying. I can’t even wrap my head around it.

@tenabarnes3269 4 месяца назад

Scleroderma is the disease that locks your body up, within itself until physical movement becomes impossible.

@Nello187 4 месяца назад

An additional detail about FOP is that as the disease progresses, caregivers try to put them in a seated position as it makes feeding them, avodiing aspiration, sleeping and other daily life functions easier for the patient.

@YrcfYtdcg 4 месяца назад

Is a osterophsocliaysi

@janeharris5568 4 месяца назад

It’s bone extra growth

@mangosteen4230 4 месяца назад

I really like that you also cover the mental and emotional impact of these conditions. Can't remember if you've always done it or if it's a new change, but it's a great one. Mechanisms of disease are always important, but imo there's something huge missing if the human side of human disease is ignored.

@butcherbaker4258 5 месяцев назад

I have nothing but the utmost respect for the doc. His social skills not only improve his ability to explain very complex medical things in a way that people with no medical knowledge could easily understand is very similar to the way that Neil Tyson DeGrasse is able to break down and explain mathematics physics etc so that people who have no grasp of the subject can easily comprehend what ever topic is the subject of the conversation. Keep up the good work doc God bless you your family and all the people that are the most important to you. 🇺🇲 One of the finest examples of a true American in my eyes. Thank you all the way from JBER Air Force base Anchorage Alaska.

@naturegirl2110 5 месяцев назад

Love this episode. Please do more. Spreading the word helps others to be less judgemental of all our differences 😊

@rektrainmeme5808 5 месяцев назад

These diseases are horrifying and somehow these people are some of the most inspirational and positive humans on the earth!!! Heartwarming. Thanks for the video doc ;)!

@thegamingwarlord6073 4 месяца назад

I had a friend who died just last week of F.O.P. He was only 23. Absolutely terrible disease. We miss you, C.S.

@gohawks3571 4 месяца назад

Oh no, I'm so sorry 💔😞

@morticiaheisenberg9679 4 месяца назад

Condolences 😢💔

@ImpmanPDX 4 месяца назад

Haha seeing a young Simon Whistler on this channel was a trip. That must be like 15 years old!

@blarghmcblarghson1903 4 месяца назад

Was listening to the video, heard the name drop, but only vaguely recognized the voice because of the difference in mic quality and how different his tone was back then. Also total lack of 20 minute tangent!

@hippiefreak66 4 месяца назад

Simon is EVERYWHERE.....he's probably here in the comments section.

@daiakunin 4 месяца назад

Years ago I recall seeing a news story about people with an ultra rare condition that makes them allergic to water. I think the odds of this condition were something like 1 in a billion. Thanks for the great video covering complex, rare medical conditions.

@torgranael 4 месяца назад

I'd heard of some woman living in rural Arizona because it's the only place in the US with low enough humidity to not be constantly breaking out in hives. Didn't realise there were other cases too.

@zeinab9222 4 месяца назад

i knew someone in california with this allergy

@Nello187 4 месяца назад

Aquagenic Urticaria

@GlennsFastReviews 4 месяца назад

I often heard about cases of harlequin icthyosis in the news when I lived in Indonesia. Just seeing the condition of the babies tears me apart, so I can only imagine how parents must feel, especially if they are poor or in an area where whatever medical experts exist don't know about it.

@aq5426 4 месяца назад

WhistleBoi and Dr. Chris--the tag-team that I didn't know I needed.

@Cortesan2u 4 месяца назад

I appreciate the mention of other reputable medical websites, there is so much misinformation online so it's refreshing to see something honest.

@Mary-le1mh 4 месяца назад

I have a friend who has ichthyosis, but she didn't develop symptoms until her late teens. She said that it's passed down from mother to daughter, and her daughter started developing symptoms when she was about 19.

@xollst 4 месяца назад

i did a quick search for you on psoriasis and would like you to cover it a bit more in depth, but if not that's ok :) thank you for what you do!

@rachel107511 4 месяца назад

Dr Chris always makes such good content. He briefly mentioned eds. I'd love an in depth video on that. It'd pair well with the adhd video as there's comorbidity there.

@kinexkid 4 месяца назад

Ive got Ehlers Danlos Syndrome. It's pretty much an invisible disease to others, but causes me constant pain every day

@karenshadle365 4 месяца назад

Same. Because we look so normal, nobody really understands.

@kinexkid 4 месяца назад

@karenshadle365 there's always hope and ways to cope! I just got my third semiannual bi-lateral nerve ablation on my L4 through S1 two days ago, and mostly pain-free mobility has returned again for another 4-5 months, and then i can have another done in 6 months. It's a mental battle just as much as a physical one, so don't give up and know that there's always something to look forward to

@karenshadle365 4 месяца назад

@@kinexkid Thank you so much for your encouraging words. But please know that EDS affects so many systems in the body. These include the digestive systems, the bones and joints, muscles& tendons and ligaments, the neurological system , the spinal system and basically everything made of collagen. One type of intervention like you had cannot possibly fix all the other things that EDS causes. My sis gets nerve ablations every six months and it helps a lot with the nerve pain she has. And I'm so very glad it helps you! But it does nothing to alleviate the other EDS problems. It's a very complex disorder. Ablations only help with nerve pain, and our pain originates from many other places than nerves. But thank you for your encouragement and kind words. I'm so glad that ablation has helped relieved your pain . 😊

@karenshadle365 4 месяца назад

I sometimes wonder if our disorder made us look abnormal or even hideous that we might receive more attention and research from the medical research groups. Wonky idea, but because we look young & healthy NOBODY attends to our disorders.

@katemoseley5522 4 месяца назад

Same here 🦓

@bjs301 4 месяца назад

You're very unfair speaking about chiropractic. It takes at least a month of marketing classes to become really competent.

@thedavisthreat2955 4 месяца назад

You obviously missed the overview

@gifflube2783 4 месяца назад

@@thedavisthreat2955 u obviously missed the joke

@MaryYund-q4x 4 месяца назад

They fix their patients so well the first time. They like to have them come back over and over to relive the experience

@fistfullofglass 4 месяца назад

I took an empty, large gauge wire spool off a job site once and never needed to visit a chiropractor again.

@SobrietyandSolace 4 месяца назад

@@MaryYund-q4xA good Chiro will tell you to pair PT with it in order to strengthen areas of the body to avoid adjustments just reverting back to how things were. I have bad kyphosis and sometimes NEED traction to unkink my spine however I know I need to constantly work on my posture and building muscular strength to support myself non such a way that I don’t hunch and cause a subluxation. I don’t think anyone should have routine adjustments for no reason and think there is a high risk of spinal cord injury, excess wear and tear on joints etc but sometimes if you’re literally stuck and desperate, you just need an occasional reset… Physical therapist also refuses to relocate subluxations

@jaystreet46 4 месяца назад

I can’t believe you put Simon whistler in your video! He is awesome

@cherylcalogero3330 4 месяца назад

Dr Chris, I love your channel! Your videos are educational and fun to watch. I've learned so much from you...thanks for your hard work! per you're very easy on the eyes too..an added benefit! 😉❤😉

@reedshue3283 4 месяца назад

Thank you for all of your amazing and well-done videos. My students and I always learn from them and appreciate your hard work making these.

@joelbrown2782 5 месяцев назад

Out of Curiosity, people suffering from Alkaptonuria that have to regulate their diet, when they avoid foods like meat and fish mentioned in the video, would they also need to take supplements from the nutrients which they are missing from those foods?

@probablythedm1669 4 месяца назад

Sounds like a normal vegetarian diet, so the usual alternatives to animal protines such as beans, nuts, whole grain, and dairy should suffice. I mean, I eat mostly vegan simply for taste and ease of cooking and I don't need any supplements. 🤷‍♂️

@lukasr1166 28 дней назад

@@probablythedm1669 Vegan diets have no way of getting vitamines you get from meat without supplements.

@movingloz 4 месяца назад

Wow. Really great video. Thanks 🙏 for the awareness.

@mampenza 5 месяцев назад

Love the video, your videos really makes me want to go deep into health and doctorate as a black mam from Otaly keep up the good work

@AvgJoeHobbyShow 4 месяца назад

Woo, as an EDSer nice to hear EDS mentioned!

@hikingpainter 4 месяца назад

thank you for entertainment that is worth while, ive learned alot from your channel. you rock doc

@ChrisRaynorMD 4 месяца назад

Very welcome.

@Streak09 4 месяца назад

@@ChrisRaynorMDcan you do Tony Jaa the protector Bone Breaking reaction he's Breaking these henchmen limbs at the end

@BlackDragonStudio 4 месяца назад

As a person who has three really rare diseases I really want to thank you for discussing this topic. I have CRPS, GP6DD (46,XX

@pengwing638 4 месяца назад

what amazing bunch of people living life to it fullest

@rubenalvarez6830 4 месяца назад

Dr. Chris, fascinating video keep up the good work!!

@bislabreath 5 месяцев назад

Ehlers-Danlos friend heeere! It was nice to hear!

@KeaganZ2737 4 месяца назад

Same! Only I don't exactly agree with that most types are rare. Sadly, we are underdiagnosed, and doctors still think it's made up. Or believe some wild myths. I was told by a gynaecologist that people with EDS can't get surgery because we bleed to death .... like bitch it says in my chart I've had 15 surgeries in the last 12 years!

@abstuli1490 4 месяца назад

The most common type of EDS hEDS is probably very common and very underdiagnosed. A Swedish study of 234 ME/CFS patients meeting the Canadian Consensus Criteria found that 49% of patients had hypermobility and 20% met the criteria for hEDS. hEDS is linked to Mast cell activation Disorder (MCAD) such as Mast cell activation syndrome (MCAS), Hereditary Alpha Tryptasemia Syndrome (HATS) and Systemic mastocytosis (SM).

@thetacticalpuertorican 4 месяца назад

Thanl you for bringing rare diseases to the front line with this video. My daughter just recently passed away from a very rare genetic disease called Neimann-Pick type C. Both parents must carry the gene. It is a type of childhood dementia.

@Merriwen 4 месяца назад

I have a few rare diseases... I have Tuberous Sclerosis as well as Addisons Disease. Thank you for disseminating information about these issues.

@Steffox1312 4 месяца назад

Shocking (but great) video. Most of us complain about our lives and then you see these people and... BAM, perspectives hit hard. I won't complain on anything from now on. I wish these people joy and happiness cause it looks really hard... Oh and congratulations to all medicine members helping people. You all do a great job!

@carriedudley8593 4 месяца назад

Yes, my mum always used to say there's plenty of people far worse off than you. I inherited a kidney problem, I went on dialysis in my 20s and got a transplant in my 30s. I consider myself to be very lucky! 19 years and counting!

@Weezarvil 4 месяца назад

Thanks for another awesome video Doctor!

@deborahwedickcooper2751 4 месяца назад

Superb video!

@xscaliersolid1194 5 месяцев назад

Regarding the case of the man who ingested a homemade colloidal silver concoction, there's a condition caused by the ingestion of silver that presents very similarly to metheglobinemia - silver cyanosis. It might be just a subcategory of methemoglobinemia, but my understanding is that silver cyanosis can be cured simply by having the patient stop ingesting silver, after which the condition clears completely within a few weeks. Just an interesting anecdote for those interested.

@ImpmanPDX 4 месяца назад

I worked at a natural foods supermarket and there was an older lady (probably born in the late 40s or 50s) who was just fully, fully blue. We always thought that she was just downing colloidal silver all the time, but maybe we were all wrong!

@KoshTimeStepper 4 месяца назад

It may happen to people who are around powdered silver getting into their food and inhaling fine particles of it during long periods of time. I could be very wrong. I hear its also perminent blue skin but again, I may be well off the mark.

@Zelmel 4 месяца назад

Yeah, and that specific guy is one of the most common examples used for it because he was on that TV program decades ago. Luckily it seems like colloidal silver quack medicine things aren't very common these days.

@bonkers270 4 месяца назад

Love your content. I watch nearly every episode. I always love the ones with Dr. Thumb. Lol

@pagaporvista569 4 месяца назад

I went to school with child with progeria. I followed Kaylee on Facebook. Hope treatment options are found for all of these conditions.

@jackdorsey4850 5 месяцев назад

Nice Job Doctor

@robm6726 5 месяцев назад

For some of these genetic congenital diseases, i am looking forward to CRISPR based advances to remove the disease before birth in an accessable manner

@karenshadle365 4 месяца назад

Wow, he mentioned Ehlers Danlos right off the start! It's becoming better known, yaay. From a Zebra.

@Rusty-METAL-J 4 месяца назад

If Ms. Crean is up for it, a new television series could be made about her. It could be called, "The 6 Million Dollar Woman," OR, "The Bionic Woman."

@heidilofton6153 4 месяца назад

Rubinstein Taybi type one and type two. Last I heard they were studying to see if there's a type three. My son has type two. Can find more info at Cincinnati Children's Hospital in Ohio

@benmcreynolds8581 4 месяца назад

This should be a perfect example of why It could be so beneficial if we supported research around CRISPR. We can learn so much about our genetic material. Can find which things do what. Can learn how to improve the ways our bodies function. Help treat health issues, diseases. Help our bodies ability to heal, improve passed down family genetic diseases, the list goes on.. What matters most, is if we can approach this new branch of science with genuine curiosity and motivation. This type of science could have amazing impacts in the medical field and our understanding of biology as a whole. Could greatly improve people's quality of life. Could improve how we Treat health conditions. I really hope we drop the paranoia scare tactics that are holding us back from progression.. It's going to take a whole bunch of improvements to the structure of our system and the regulations that are currently blocking a lot of possible progress. We are dealing with the same kind of bureaucratic regulations blocking things in the energy grid department. We've had a lot of advancements in modern nuclear energy options and other alternative energy sources BUT bureaucracy is getting in the way of a lot of progress and adaptation..

@nalinea18 3 месяца назад

The first time I heard of harlequin ichtyosis was as a possible issue with having a baby while taking Accutane. It definitely set me straight on following the rules of doubling up on birth control and taking a pregnancy test twice a month etc.

@bekkatheman 4 месяца назад

I have Subcortial Band Heterotopia, which means they neurons in the grey matter did not form correctly and a band develops in the brain, usually between lobes. Usually manifests as seizures, learning disbilities, and in males mostly death inutero or after birth.

@x.y.7385 4 месяца назад

Curious what are the earliest documented cases of these rare genetic anomalies? Were they always around? Noticed that they became more prevalent in certain areas of the world? Also, do any animals have as many genetic anomalies as humans ?

@thatloserwhoplays 4 месяца назад

I thought this was going to be about dr. Stone the way the timing fit with me starting that series😂

@annepoitrineau5650 4 месяца назад

Inspirational people. Thank you for letting us know they exist. They must feel so lonely.

@blackwidowspider9852 4 месяца назад

Doc I like the video and you're the best

@IRdatank 4 месяца назад

This content is fantastic.

@OrbitalRoc 4 месяца назад

Any chance, can you do a video about scleroderma and Raynaud’s as I have both.

@abstuli1490 4 месяца назад

Ehlers-Danlos syndrome (EDS) exists in many variants, some of which are very rare. Prevalence when looking at all variants of EDS is around 1 in 5,000, with hEDS being the most common. hEDS is common among those with ME/CFS. A Swedish study of 234 ME/CFS patients meeting the Canadian Consensus Criteria found that 49% of patients had hypermobility and 20% met the criteria for hEDS. hEDS is linked to Mast cell activation Disorder (MCAD) such as Mast cell activation syndrome (MCAS), Hereditary Alpha Tryptasemia Syndrome (HATS) and Systemic mastocytosis (SM).

@roivosemraiva 4 месяца назад

GOOD SHOW!!! Adversity makes the human spirit Strong. Iknow it WELL! I have endured Albinism , a Mild genetically linked , where the Skin has no Color. Imagine the surprise on how my Latino family!! They reacted with FUN !! We treated it with laughter... Good Work, Doctor...

@karenshadle365 4 месяца назад

Adversity and unrelieved pain can also beat a person to a pulp, unable to function . Sounds like your disorder wasn't excruciatingly painful.

@filetofishish 4 месяца назад

I have CRPS complex regional pain syndrome you should really do something on this. As it is a rare disease and there are about a quarter million documented cases

@nancykropf3809 4 месяца назад

I don't have any of these diseases that make them to look different, but I have a disease that occurs 1 in a million. It is called papillary craniopharyngloma. It causes non malignant brain tumors that reoccur. In three years I've had two major brain surgeries. Mine loves my optic nerves, which they cannot remove completely without possibly doing permanent vision loss. Concentration problems, balance issues and, I have problems with my pituitary gland, adrenal gland, thyroid, and my hypothalamus. It has very much limited my life andy future. There really are very view treatments. I have never found anyone else with it, though it is a childhood version and an adult onset version. I feel lucky to have a disease that is fairly easy.

@marktyler3381 4 месяца назад

Thank you doc

@lyndalabine2875 4 месяца назад

My friend has Susac’s syndrome…..it presented with her losing her speech and she had hearing problems….I saw an MRI of her brain and it had spots all over …very scary….500 people world wide have it….she is in remission but she still has some problems with speech (she runs everything together..)….but she is 80% better….we live in fear of relapse….

@86holt 4 месяца назад

My nephew has Argininosuccinic aciduria (ASA). 1 out of every 70,000 babies born in the United States

@JamesCanavan-wl5ev 4 месяца назад

Unique diseases are very interesting.

@phanteh 4 месяца назад

What's with the bassline? I have a (balanced) sub and it sounds completely over-the-top (2:30)

@Eldejot 4 месяца назад

confirming, that was beyond distracting and outright annoying.

@Masterlitchuk 4 месяца назад

Imagine having more than one rare condition I only have 2 so far my medical team are telling me there may be a third lurking undiagnosed currently somewhere in my cells what fun! So you can either curl up and feel sorry or get on and try and find a way of coping with the awful symptoms and adversity. Humour is very important I believe especially a dark sense of humour that finds the funny in the darkest of situations it helps just to laugh in the face of it sometimes. Oh boy has this got me into trouble when people on the outside of my conditions just can't understand and chose to take offense. they can't seem to grasp you are not insulting the world or that you're fighting yourself, your invisible pain and limitations they can't see. Thanks for the fantastic video and yes I can throw another A at you Aphantasia is a rare brain damage I was born with and it's diagnosed as Panspenia but I am told that is not quite correct... As I don't fully fit under this disease umbrella don't you just love being different? So that label will do until they hand me another there are a couple of others that are extremely difficult for a dyslexic and brain-damaged person to write damn you English medical terms ;) I have been a fan for a long time thank you for your education on this to the layperson and your sense of wonder as it comes across the screen.

@VoidHalo 4 месяца назад

I've heard of "statue people" which are victims of heroin that was tainted with MPP+ in the 80's. MPP+ immediately destroys dopamine producing cells in the substantia nigra, leading to instant, severe and permanent parkinsonism that left many of the victims like living statues from just a single dose.. Completely unable to move, unless they were on powerful dopamine agonist drugs. Which also have severe side effects like hallucinations and psychosis. One upshot is researchers were able to use this newly discovered drug to induce parksinsonism in research animals so they could do groundbreaking research on the disease.

@gray7433 4 месяца назад

Yay! Simon! Everyone's favorite fact boi!

@skrayraja 4 месяца назад

These poor people are most unfortunate

@A50S2D 4 месяца назад

Epidermolysis bullosa, a friend's son has this and is the "California baby" mentioned in the Wikipedia article on the disease.

@RezonShinryu 4 месяца назад

hey Dr Raynor, just want to say I gave your video a like for the mention of CF. Having watched what it did to my elder brother growing up, and knowing I carry the gene that causes it, seeing it mentioned, even in passing, shows me that people still acknowledge that it exists, depsite how few people I've met who know what it is.

@NothingPicksLocks 4 месяца назад

Sorry dude but it's Ni-ti-si-no-ne not Ni-ti-ni-so-ne. Nitisinone not nitinosone. I hate to be that guy but I guess I'm that guy. Still absolutely love you videos!

@ChrisRaynorMD 4 месяца назад

You can be that guy. I was having trouble with that word for sure. It is like me screaming when I hear people call Fenta-nyl, Fenta-nol. 😬

@stax6092 4 месяца назад

Interesting.

@mechaman7818 4 месяца назад

19:29 There's a Canadian horror movie called "Hemoglobin". The script for it was written by Dan O'Bannon, the homie who wrote the screenplay for Alien. He worked on a bunch great movies.

@georgieyoung-y7u 4 месяца назад

YOOO ORTHO ummm how treat sygnap?? pls reply bcuz someone,s child has type one sygnap and you can watch the video "what happended to my face" ane i promised that i would help soo pls help me help him

@margodphd 3 месяца назад

If you mean SYNGAP1, there's plenty resources on the internet, including Google Scholar and PUBMED which are free. It's quite odd to ask an orthopedic doctor,a public figure, to help especially if you are the one who offered - which isn't your job either.

@paulacoyle5685 4 месяца назад

Just fyi there’s something weird and crackly with your audio at times - sounds even weirder when sped up slightly - noticed right at the beginning in the first 2:50 hopefully it quits after that

@AluniGaming 4 месяца назад

I may not be the rarest of the rare and many have it far worse than myself, but I'd love to explain about myself because as we are all Rare in our own ways, it seems like everywhere I turn, I'm told I have something considered Rare. I am 33 with have Ehlers Danlos Syndrome and I am RH-, a AB- blood type. I am also Left Handed but am Ambidextrous. I have Diverticulosis/Diverticulitis, POTS, AFIB, Inappropriate Sinus Tachycardia, MANY urinary issues including already a Bladder Pacemaker, and Moderate to Severe OA in almost every joint. My laundry list goes on but this is just a few thing about myself. Apparently I am also a MRSA carrier which I'm forced to have Antibiotics before Surgery, and have Hiperativa Suppurativa and MCAS. I am allergic to just about everything, including the sun after 10+ minutes, and I am allergic to just about any Adhesive. I am a Zebra/Spoonie. However, I consider myself grateful to those that might have the conditions on this list and I'm sorry they have had to fight these conditions just to live.

@jbaldy1327 4 месяца назад

The indomitable human spirit will always be my favorite thing to watch.

@Diamondartabbey 4 месяца назад

Can you do an episode on nf please

@nbrown5907 5 месяцев назад

Ouch, thanks for the information but ouch these poor people.

@EatTheMarxists 4 месяца назад

I do hate this video because I hate that these wonderful people have to deal with such diseases. Life is not fair, and these folks know that better than most; however, to see their spirits and zest for life is a great privilege.

@TheChuckwagonLite 4 месяца назад

I had avn and had to get both hips replaced

@DIOBONGDAVID 4 месяца назад

Another reason to thank God everyday for Good health👏🏾

@timothybowden3300 4 месяца назад

You think. Why does he aloud these diseases to affect people than?

@do_research 23 дня назад

You just contradicted God. If he is all caring, powerful, and knowing these diseases would not exist. Yeah "thank God for good health" lol. I don't see him helping those infected individuals.

@crazyadam9281 4 месяца назад

I respect their tenacious will to live despite the cards they were dealt.

@moprophotos 4 месяца назад

I like your content, but the background sounds/music is very distracting. Several other You Tube channels suffer from this as well. It's not necessary and distracting.

@TerrieJohnson731 4 месяца назад

Agreed. Why the bump thump?

@spongebork 5 месяцев назад

You might wanna dial back the base a bit, it's quite heavy with the right system and distracts from what you say.

@robynoneill446 4 месяца назад

Look at that OG Today I Found Out clip! Such a young Fact Boy 😂

@ZomBeeNature 4 месяца назад

I didn't know people with Harlequin Ichthyosis ever survived. 😐

@thedarkwolf25 4 месяца назад

I'm simultaneously horrified and deeply saddened, and also thankful for my health

@katemoseley5522 4 месяца назад

I have EDS and all my biggest symptoms are internal and completely invisible.

@catherine_404 4 месяца назад

I hope there would be gene therapy both for somatic cells and germ lines. And the therapy must be approved on international level by WHO before it can be applied, and when approved and done by a state, it must be available nationally for everyone and anyone through a national budget. It's too visceral to be done commercially.

@izbr661 5 месяцев назад

Have you ever heard of the purplish living flesh disease or something similar, yeah me either, deoxydized methane entire body's flesh very common in infants and goes away or hides past infancy also could be instantly fatal in infants without proper medical experts.

@djipminderman4840 4 месяца назад

Woo, heavy stuff

@Razgriz85 4 месяца назад

Surprised you didn't know about the Robin Williams movie Jack, which is a better way to describe the premature aging disease.

@kathleencommerford9664 4 месяца назад

My father’s lungs calcified and he died slowly not being able to breathe. The doctors don’t know what it was or what caused it.

@JenBelogura 4 месяца назад

Omg Simon was so young

@charlenevarada--Stargazer 4 месяца назад

About turning to stone: Alice Lon-Lawrence Welk's first champagne lady did just that.

@aprila4616 4 месяца назад

My bestie has been fighting a very rare kind of skin cancer that turned her rock solid in the very beging

@daneflynn4979 4 месяца назад

Only Duchenes Muscular Dystrophy? There is so many others under the MD umbrella. Over 60 if memory serves. Including my own myotonic dystrophy.

@Avovoom 4 месяца назад

Simon looks so young!

@jlpjlp1953 4 месяца назад

Would have greatly enjoyed this video if the painful background bass thumping were not present. As it is, I got 2:20 into the video and had to stop.

@Dookie69uk 4 месяца назад

The genetic and sporadic form of the prion disease fatal insomnia is pretty rare. An american boy got it at the age of 13y old. The youngest case ever seen to date.

@Sabnok 4 месяца назад

Fact Boy (Simon Whistler) is so young in this video you keep referring to lol

@JamesKonzek-xr5zy 4 месяца назад

The King of France turned into glass! (Well he thought he did)

@diggy-d8w 5 месяцев назад

With all the, "New Diseases/Conditions" coming forth it seems the rarest thing nowadays is a healthy person? Yes, chances are if you are here you've been blessed beyond your wildest dreams but most don't/can't recognize what they have? GB ALL of You!