My heart goes out to all those who have suffered from Covid and all those long haulers, but….. I have to be honest. So few doctors understand autonomic dysfunction. I hope and pray more interest develops in the medical community to shed light on POTS and other adrenal and nervous system disorders. So many people aren’t heard or supported emotionally and physically. It’s real and real miserable. It derails your life for months, even years. Thank you gentlemen for being the frontiers and making a difference!
They know of these conditions the doctors are not trained to deal with these conditions they have no protocol to handle they almost killed me by give me nitroglycerin
Amazing Boon was my cardiologist when I was at my absolute worst with acute LC and POTS last summer. He was the first to raise the idea with me that breathwork and mindset would be an essential part of the path out (encouraging me to read James Nestor and Joe Dispenza). He was brilliant and I am eternally grateful for his holistic approach. Interestingly, I don’t think the POTS meds made much difference to me in the end. Breathwork, Sensate, yoga nidra and brain retraining made all the difference. With a side order of niacin, LDN and HRT. 12 months later and I’m so close to being fully recovered. Am so glad that more people are having the chance to hear direct from Boon. Thank you Gez ✨
This is amazing and helps me not to feel alone. I don’t have “Long Covid” but I do have a form of “long covid” after almost dying from a virus a few years ago. I’ve never been the same. Very mysterious and heartbreaking actually, but interviews like this, and increasing awareness of long covid really helps me to have hope and continue to move forward!
Vanessa - I also got sick in Africa (nearly died) and my autonomic nervous system was severely impacted five years ago - I cobbled together research and learnings on the topic as nobody in the medical establishment or elsewhere were equipped to help. This is golden for me too. Hope you are slowly finding your nervous system health back again. xxx
Thanks for the video and all of the stories in the comments! I don’t feel alone and I have more strength and urge to beat this for the second time! I find myself in all of your stories, so the only thing I wanted to share is that it happened to me after getting 2nd Covid. I beat it in a span of 3-4months. Then there was recovery, and when I finally recovered I got reinfected for the 3rd time and contracted long covid again. I’m still on the run with it but I’m getting better. Please don’t ever loose hope. Find patience and kindness for yourself. We got this
Thank you so much. I have had Long Covic since June of 2020. It has slowly imporroved. I am familiar with the "clunking" and emotional habit of pushing the envelope in order to feel barely acceptable. I drink a small glass of water before I go to sleep, and usually wake up four to five hours later having to urinate with an increased heartbeat. (70-80 BPM). Afterr urinating I have another glass of water. Then I can go back to sleep for 3 hours. My heart rate has slowly been going down; it seems to normalize when I am upright. I have periods now when I don't notice it at all, which feels really great The connection between different types of stress (negative emotions) and my heartbeat is directly connected. I meditate and am learning to "chill" much more than I did before. I have realized that I was raised wtih a Narcissistic parent which created a type of feeling of emotional claustrophobiia and feeling of no way out. I have been releasing those feelings with a very good psychologist and this is helping quite a bit. I take mild but active exercise every other day. (Walking; and dance exercise for 40 minutes). I find the enjoyment of this exercise is beneficial for me. When I do it. I feel much better. I east well and have an occasional glass of wine or a decaf coffee. I don't deny myself but generally I eat my best diet. I try to follow my circadian rythms by going to bed at the time I know is best for me. Basically, this situation is teaching me to be a balanced person. That is a great gift!
Gez, so glad to see you are doing so much better! I came to share that I had long Covid, with seizures, cognitive impairment, recovered, then the 2nd Pfizer returned my symptoms worsened. But I recovered and I am back to normal. Please believe! Get informed and fight!
I find it alarming that people accept this jab! Especially when your body already fought and won this bioweapon. Flower remedies and CranioSacral therapy helps our body recover as well.
Both Pfizer jabs worsened my symptoms but the 2nd was brutal and has without a doubt kept all in all off work and life for 2 years. Very slowly now beginning to find some normal recovery. Amazing information. Thanks.
Marina, so glad you have recovered! Thank you for the encouragement. I have had long Covid for 6 months. Would you mind sharing how long it took to recover? And if you did anything that you think really helped or was it just a matter of time?
I do the "lie on your back, interlace fingers at back of skull and look as far to the left ( eyes only, no head movement) until you yawn, then back to neutral, then look to the right til you yawn"- vagus nerve exercise and it helps getting out of fight or flight. I do yawn a lot when being vertical but these yawns feel different as I think it is due to lack of oxygenated blood flow.
Yawning is a perfect way to get into the parasympathetic system. We should do a yawning video since it is contagious when you see or hear it! :) I use this and also heart coherent breathing (which makes me yawn a lot). Love this new video and also the turn it is taking. There are easy ways to induce yawning. Just start with a 'aaaa' from your throath and after two or three times a yawn will come.
it is really interesting that you mention that since my yawning is seriously messed up. When I have to yawn I cannot get to the point where you feel that ''relief'' that the yawn is over. It is really uncomfortable.
I had a consultation with Dr Lim this February. It was the best experience with the medical specialist in my life! He was so interested in my situation, conditions and many areas of my life. He has holistic approach to patient. AMAZING doctor! I feel so lucky to meet him. Highly recommend him ❤️👌
Cannot describe to you how reassuring it is to hear a doctor speaking about this after years of suffering with it. Am in a massive virally induced flare rn so even knowing that the simple, holistic approaches and meds I already use will work is just so... comforting. Thank you both ❤
A point on the coherent breathing-it’s very much a personal thing and those of us with severe blood oxygen problems (and lung damage) have to adapt it otherwise. Previous to Covid, I was a yoga person and could easily breathe 10-20secs, but since Covid, anything over 3-4secs invokes a ‘panic response’ as I feel like I am suffocating. Indeed, for the first 6 months or so of Covid, I was panting involuntarily, even when lying down. This is obviously the opposite of what we want to achieve with the parasympathetic-so advise people to find their own ‘sweet spot’, not necessarily 5 secs.
@@berenairstone7202 Sorry to hear it hasn't been more of an improvement, but glad there's been some. I'd be curious to hear more about what you've tried so far, if you'd like to share here or connect via email? Hopefully I can share some insights as well...
Hi Gez, first of all what a great video. I just wanted to say that after really struggling with what I’d feared would be a permanent and life changing illness, having being diagnosed with Pots after covid, I have to a large extent beaten it. My numbers have come down, I’m doing lord and feeling better. I see in the comments some are criticising you on the basis of the language used in this video. Please do not change a thing, you are one of us and it is just as much your right to talk freely about how you find things as it is anyone else’s right to stop watching the video. Lol. I’m not offended by any language you use because I know where you’re coming from. You have a good heart and have been trying to share your experience in order to help others. For me I actually found a few things really helped in my recovery. 1. A positive outlook!!!! 2. Overcoming the fear. 3. OTC H1 blocker, iron, B vitamins, reconditioning through exercise and rest when needed. I believe FOR ME the vits and antihistamines provided scaffolding and allowed me to break the reconditioning cycle so that each week I could do a bit more after 6 months of doing nothing. It is now one week over a year and I’m not far off normal. You WILL get there Gez, your mental outlook is quite correct as is your general approach take your time but keep moving in the same direction. Thank you for everything you did for me when I was at a very low point, desperately searching for a reason as to why this had happened to me and a hope of a way back. You showed me a few pathways, I took the one that made the lost sense to me and it worked for me. Thank you and if I can ever return the favour you have only to ask.
My situation is the same. I have had POTS since January and it's pretty much resolved itself now. Cautious exercise (rowing, recumbent bike and walking) have helped. Or maybe it's just the passage of time, but it's pretty normal now after being fairly bad for months (I still forced myself to work despite bad symptoms). My heart rate would be crazy for 1 to 4 hours after getting to work each day and then would I'd "switch" back to feeling almost totally normal. Now I just feel normal. This is my second POTS flare up. The first time was after walking pneumonia but that only last 6 to 8 weeks. This time it took months to resolve. The first time I thought it was simply anxiety and anxiety treatment made it feel like flipping a switch then I felt better. There is surely a psychological component involved. I also use an Alpha Stim along with meditation and my sleep has gotten much better after a long period of insomnia.
I’ve been struggling with LC and my doctors have 1/10 the information I received in this episode alone. Thank you for giving me practical advice and hope for managing my symptoms!
Wow, this video was worth the long wait, Gez. Pure gold. I wish I had a doctor like Dr Lim. He seems so open minded and willing to take information on board that goes beyond his field. Looking forward to the next installment!
I am a long hauler and got probably 85-90% better, but the shortness of breath is still there, lethargy, inflammation in my sinuses making breathing through my nose is difficult and the flare ups of body aches. Always trying to learn. Thanks for the information.
Thank you for doing all your research and sharing it on your channel! I found you two years ago when my POTS started. Interesting fact not only did I have Covid back in March, but I just found out I have a spinal CSF leak that started possibly 16 years ago after a c-section. I had surgery at the end of May 2020 by July/August 2020 I was bedridden due to another spinal anesthesia. Covid, surgery and the leak likely all are contributing to my POTS and MCAS. Thankfully the medication I’m on gets me through most days. I take multiple high dose allergy meds, Xolair injections for the Mast Cells and Corlanor for the tachycardia. My MCAS was really bad! It’s crazy that your videos about post Covid helped me even though the infection wasn’t the single trigger. I’ve been dealing with symptoms for 16 years and you helped me finally figure out what was wrong even when the doctors couldn’t. Hopefully after my leak is healed and my immune system calms down I will then be able to come off the meds. I just want to get back to running in the mountains 🏔 Thank you so much!!!!
I remember you talking about pieces of the puzzle! Really interesting, useful info as ever. Something about POTS cropped up for me while talking with the post covid clinician. So far it’s all been about breath work with therapeutic rest and sensory meditation, but I relayed over some of my blood pressure and heart rate readings done over time, going from lying down to standing up over 8 minutes, and she said I might have some kind of Dysautanomia like POTS. Had to go back and review your earlier posts on this. Like you last winter, I had a go at getting back some of my old joys in life by swimming out back with the boys going surfing. This involves squishing my old body into a tight fitting wetsuit and prone swimming on my surfboard board in cold water. This is something I could do without repercussions for half an hour, unlike standing hitting a tennis ball these days. In other words I was successfully exercising wearing a compression body suit doing reclined physical activity in a cold environment, and it made me feel good. I feel like I have a good shaped piece of puzzle here even if it’s pattern isn’t an exact match to all that’s going on.
Very affirming video.. I just had covid and after I thought I had recovered I started having ( what I call) sleep panic attacks. The scariest feelings of panic for lack of air... It felt like I was suffocating. I became very hyper during these episodes. I discovered sitting up to sleep, deep breathing and ice packs were the only thing that would calm the panic and recenter my breathing! I went to the hospital only to be prescribed anti-anxiety meds. I never took them. Walking dailey helped. I realized I had to tell my sns to chill! I don't know why this happened for 2 weeks, but yes breathing deeply saved my life. Today is the first day I haven't had this state of panic. I think my pns has started stepping back in. I tried telling my doctors that there was something wrong other than a panic attack! Glad to know I'm not crazy! Please speak on this more. Thank you!
Have you been tested for sleep apnea? I've had night terrors for years, turns out I have mild sleep apnea. Covid made it horrible but now it's controlled with a dental device a sleep dentist made for me.
Wonderful video. Thank-you both so much. 🙏 I am a vaccine injured dysautonomia / POTS person and as a long term meditator I am very excited to hear the doctor's take on mindfulness, compassion, being in the present etc. Excellent work!
The vaccine almost killed me, shooting pain in legs, messed up nervous system, hallucinations! Paranoia! Heartbeat all Over the place, getting there now, 8 months later!
University of Maryland Baltimore is conducting a global online study of mRNA vac injuries in conjunction with React19. People with vac injury are encouraged to participate.
Great info! My 'clunk' happens within a minute. I'll be doing ok, then it hits me and my eyes want to close. I know right then my day is ruined. I will try the breathing and the muscle tightening. I will try anything at this point. It's been over 2 years of misery. Thank you for helping others and I really hope you fully recover soon.
Your day isn’t ruined. Every day is a good day. A blessing. You’re alive. You’re one of the lucky ones who got an infection and survived. It’s a miracle we even exist on this planet to experience long covid…! Please stay positive. Work hard on your mindset. Look for the little things in your life to enjoy and celebrate. It’s part of the route out of this thing. For what it is worth (from some random on the internet!!) I’m realising working healthy psychology is just as important as everything else we’re told to do. I hope this helps and you have a speedy recovery to normality. Stay strong 💪🏼 stay positive 🙏🏼!!! You’re blessed!
@@georgeboothroyd2866 Thank you George! I completely understand what you are saying. Everyday I am grateful for the many things I am blessed with in this life. We are lucky in so many ways. This is actually a cool experience, being on this planet as a human, at this time. I have started taking antihistamines and my life force has returned! I just hope & pray it remains. You are a kind soul. I wish you great health and happiness.
@@kim.in.nature.hi Kim. I read the message you posted 2 years ago during one of Gez videos. What kind of antihistamines are you taking for your long COVID recovery? Thanks.
Two year with LC now finding help online from others that it’s Nero dr always seem scared to talk about so this is refreshing to watch I live in hope I’ll be fully recovered
This gentleman has a wonderful and sympathetic manner, and it seems that his compassion and empathy would go a long way toward reassuring and encouraging a patient, which to me is absolutely essential in treatment. Best of luck on your book, Gez!
What has helped me the most is meditation and healthy eating. I know these things are hyped up all the time, but your body needs protein and vitamins to make repairs, and your brain needs ways to relax and recalibrate. Also exercise, but don't do any more than you can tolerate. For me at first it was just one or two mile slow walks. Now I'm up to a normal workout routine, but anytime I've tried to go back to my old intensity (I was a casual endurance athlete) I've had a flareup of symptoms for days afterwards.
Dear Gez, yet again what an incredible informative episode. It's mindblowing how you can stay so focused and dedicated to understanding the physiology of long Covid. I have been following your channel for over two years now and have actually recovered from long Covid after about 19 months. I was supposed to ride the Liege-Bastogne-Liege cycling classic of 255 km in april 2020, then came Covid as we all know. I actually finished the same course two years later with the same entree ticket. One of the best days of my life. Your journey the last two years was very recognisable to me, I walked a similar path and had a similar starting point. As a ski fanatic, my Covid infection was caught on the slopes in Austria March 2020. I can't thank you enough, because you were a major support to my recovery. Y Aided by pacing, breathwork (i used the Wim Hoff method), vitamin supplements and a histamine low diet with antihistamines. May your recovery continue and I hope you will further research this devistating syndrome in the future. Cheers.
Hi Jesse - I wish I heard more recovery stories like yours. Fantastic you’re able to go back to exercise, and it gives hope to everyone else out there! Thanks so much for taking the time to write :)
This makes so much sense to me, it's always baffled me how I sometimes (perhaps for a few hours) feel literally normal and its as though something has 'switched'. I also really notice how when I'm having a dip, the back of my neck is super sore - maybe pressure on the vagus nerve? Great video as always Gez :)
@@bencunningham1548 I thought i was a little while back but had quite the dip - I'm now hovering around the 80-90% mark, I can train gym, yoga and some judo which I'm grateful for but still feeling a bit foggy and fatigued but we're getting there!
My daughter is so sick. She is a senior in high school. Smart. Beautiful. Trying so hard to make it through what has happened in the world. Now dysautinomia, too??!! She was strong and active despite being thin. Now she can't stand up or lay down without triggering very low blood pressure, racing heart, gastrointestinal pain... I just can't seem to find the right people to help her. Just sitting here in a parking lot crying.
@@Max-dd6epThank you for caring. We are working with Dr Vaughn. Slightly better but having too many side effects to microclot meds. Still really rough. Racing heart and depression, muscle pain, weakness, and fatigue.
@@Max-dd6ep One last thing.... To people I don't know and who I will never see, so this us just me pouring heart out.... This is so, so hard.... some days my heart I so broken for her, for us, for the world. I just so want it to stop, go away, be all better. It is becoming never ending... tears.... Ok, I am done. Just needed to say it and cry. Now I will go on and keep trying to find a way back to health for her.
In the middle of the night I felt as if I was going to wet the bed. It was a different feeling....as a nurse I knew the virus screwed things up. It also has affected my pancreas and blood sugar levels.😳👀😳 No clotshot. LC has also compromised my immune system......take things slow. I tried yoga and it helps!
I feeling this might be useful for those of us with fibromyalgia, chronic fatigue, and C-PTSD. I also suspect that training the nervous system like this might help prevent flare-ups (not cure) of some auto-immune diseases
Being denied the opportunity to openly question the narrative leading to social isolation, free floating anxiety, self doubt, and insomnia also is not helpful. Thank-you for the video!!!
I don’t have LC but I am \/ injured with parasympathetic excess and sympathetic withdrawal. I have also been testing my stamina but I appreciate the breathing advice. It’s excellent advice that I didn’t realize would help. Thank you 🙏🏻
Same here. Experienced anxiety, nocturnal anxiety attacks, depression and extreme fatigue after the v. Ice baths, Wim Hof’s breathing, celery juice, medical medium’s heavy metal detox smoothies, kefir and adding 5000 iu of Vidal in d (with k2), zinc, magnesium and vitamin B complex made me recover. I experienced it for about 8 or 9 months.
Two legends unite for an excellent video! Thanks Gez and thanks to Dr Lim. Had the pleasure of consulting with him and he was empathetic and open minded.
Hi Gez, thanks for this great information. I got long covid in Dec. 2021 and had a clunk 2 months later in Feb. and have been bedridden ever since. I've been waiting for the day it will switch back and I will be able to be up out of bed. I live in North Dakota in the U.S. it is very difficult to get help from doctors, most of them still think this is all in our heads. I'm on Metoprolol at night, nothing during the day and I spend my entire day trying to keep my heart from pounding so hard. I've tried to do slow floor excersies for POTS and always relapse. I took the advice from your video where everyone said rest more than you think you should and now I have up to a week or so of no relapses so thank you for that video as well. My situation is very severe and it seems like nothing short of a miracle will help me now. I have done the things Dr. Lim suggested and have seen improvements. Just sad, exhausted and hoping for my miracle. I'm looking forward to you next 2 videos. Stay safe and I'm glad you are able to do things. Take care.
So sorry to hear this Beth :( Unfortunately the only advice is to STILL keep doing less than you think you should. And as and when you improve, pace furiously (!) as soon as you include any activity. It won’t take a miracle - just extraordinary patience (and hopefully support from those around you).
@Beth you are not alone! I’ve been in a similar situation since February. As soon as I think I feel better I experience relapse. Doctors want me to do bunch of tests but I can’t even get there..
@@vanjacalantropo I completely understand Lola C. I have 1 doctor left to go to. A cardiologist next Friday. All other doctors found nothing. Labs all clear. Im in perfect health. Except for all the symptoms I'm experiencing that the doctors can't see. I've canceled dentist appointments twice becuz I know better than to go becuz unfortunately, a relapse is a guarantee. Take care, rest well, be safe.
@Beth at least you can make it to the appointments.. my labs and tests also all clear so far but they want me to do a stress test cpet on a bike.. i don’t understand how they think this makes sense when going out for me is so difficult..
Wow , now I know why I have been yawning so much even when I am not tired including the eye watering . Great stuff today. I have always had slight problems with my sinuses but they were severely damaged by Covid in March 2020 and I have had countless infections. Also as someone with asthma nasal breathing is very difficult. Lots of great points today. Might go back onto the antihistamines
Countless infections since march 2020 here as well also get weird pains in the bone fo my nose and sinus headaches and earaches, neck pain, back pain, nerve pain, pain in legs, rapid heart beat and internal tremors.
Gez, I call these "brain orgasms". After working for an hour or so, I lie down on my back, close my eyes and focus on breathing. In a few minutes, I'd start feeling extremely pleasurable sensations in my forehead. In a few more minutes, I'd feel an intense pressure in between my eyebrows (just above nose) for a few seconds. Once it's over, I'd feel as refreshed as I had a deep sleep. It's amazing.
@@RUNDMC1 It is the single most thing that has helped me in this recovery. As long as I keep practising it at regular intervals, I do not crash. If I forget doing this for a few days, I end up crashing bad.
22:37 "the mindset affects the autonomic alot more than we think" this is an important point for me, I need to remember this!! If you interview Dr. Lim again in the future, perhaps get him to elaborate on this more, it's fascinating!
This makes so much sense. I actually ran a 5k a few weeks after Covid and that was the cliff that started me off. I also randomly yawn when stressed such as in interviews and my wedding day, maybe unrelated but this might give me some justification, other than being generally a bit odd.
Wow what a great talk. I’m in the camp Of the racing heart. When it first started and was the worst anytime I ate anything my heart rate would go up like crazy, as well as at night and in the morning. 1 year in and the heart rate after eating is back to normal. Still wake up a few days with a racing heart but it’s getting better. Another odd thing is I’ve been super cold all the time and also not sweating. All of a sudden when the heart started getting better after eating I’ve starting sweating again and am also not cold all the time.
@@tanyawieczorek6603 smaller more frequent meals, no gluten, no spicy food. Try and calm down your auto immune response, with more of water, salt, yoga, humming, and resetting your vagus tone.
To my knowledge I haven’t had COVID, always tested negative but now being tested for all this, started after I had my jab last autumn. I had glandular fever over 40 years ago, he just mentioned it, just wondering if we shouldn’t have had the vaccine.
A fabulous clip and advice. I've been waiting with over 2 years of Long Covid to learn about this from a doctor that really knows his stuff. My respiratory physio has described some of this but this clip really helped a lot. I definitely had problems occasionally before LC with anxiety. This video is so helpful. I feel heard and seen.
Excellent video, very informative. One thing- I do find it frustrating that he is recommending very similar principles to the Lightning Process and yet the lp is getting discredited by those who don't know about ANS disfunction in ME/LC. But great , anyway!
This is amazing info. I have had unexplained dyspnea for over a month now that came out of nowhere - with no relief in sight. i am very terrified. Im 43 single mom of 3 in relatively (what i thought ) good health. I am seeing cardiologist. Tests seem ok - except high ldl, and im having high blood pressure. I have had anxiety my whole life. All I hear is it is anxiety, but it came when i wasnt under stress and hasn't left. I just miss my old life. I only think about breathing all day long and i feel like im suffocating in my own body. I miss my life before this started. you don't appreciate something easy like being able to breathe normal - until YOU CANT. Something is off but I don't know what. Decreased sense of smell and taste as well. no positive covid test today- but Ive had it twice most recently being beginning of this year. Had bronchitis symptoms for 3 months after. i need relief, this at least gives me somewhere to start. This is ruining my life. I can not get a full deep breath but every 10-15 times i try and the air runs out quick. Then my body tries to yawn but it wont finish or i wont have a satisfying yawn. Its scary and I* am scared. I feel like im suffocating and i panic.
This IS fascinating - thanks for sharing, Gez - and so appreciating Dr. Lim's commitment, sensitivity and knowledge. Maybe you're going to get to it in the later videos, Gez - but here's a related Q. So, my main lingering symptoms (after 2 plus years, initial infection March 2020, same time as you) feel subjectively to be cardiovascular: still a high-ish heart rate, still can get some heart pain - but thankfully, the palpitations are rare, and I never waking in the night with racing or off-kilter heart rhythm anymore. I can live a good quality of life. But mostly, I have abandoned the higher exertion exercise I enjoyed pre-Covid (light jogging, HI workouts, dancing...) - and taken on lower exertion activities, like walking, gentle biking, stretching. However, the other day I played tennis in warm weather - and while I didn't go bananas, I think it pushed my heart rate higher than I have experienced for months. I wondered whether the sensations while playing were unfamiliar due to lack of conditioning or still some response due to long-Covid and ongoing changes in my physiology - but the next few days made me think the latter: I experienced a definite higher-than usual heart rate that night, and I've had more heart pain. [To be fair, my anxiety levels are up because my kids have Covid and I'm in the house (well ventilated, with a mask) but I feel concerned about reinfection...Please send all the good vibes on that front]. Anyway, so here's the Q: if it is the case that gently pushing my envelope sets off that over-reactive threshold (setting off some pain and increasing my heart rate - not to concerning levels, just higher than your average resting HR) - is that ok? Are there any dangers here? Is there benefit, such that I could gently 'work at' some kind of increasing exertion tolerance? Or am I better to think of this as a new 'permanent baseline' and I really will do best to keep my exertion low and work at those breathing and other strategies that KEEP soothing this vagus system and helping me stay in parasympathetic. And I guess, even on a personal note - does your recovery vision and dream include the ability to resume old athletics or more that your quality of life thrives best and works with very much a 'new normal?' Hope this is clear, and sorry if your next videos are about to already cover this! Sending more recovery good energy your way, and thanks, as always, for your ongoing efforts and dedication. Take care, Nicola
Hi Nicola - great question! I think the trick is to try and increase your activity level whilst NOT incurring the subsequent weirdness you experienced post tennis. So halve that time you played tennis for, and work up from there. Your reaction to the exertion sounds dysautonomic, but we still don’t know what those post exertional drivers are that switch on the dysautonomic response. I would dearly LOVE to go back to competitive running, football and everything else, but I’m at peace now with the idea that I won’t. My current goal is just to be able to jog a 5k again. Half an hour will do, don’t need to go sub 18 minutes again or anything 🤣
I worked through covid and believe I was one of the first to have it before we heard of it. I felt like something was attacking my nervous system. Excessive mucus and extremely low energy. Arthritis-like bone aching. Was never offered a test. Late into this, our son daughter-in-law and grandchild who around this constantly all tested positive and stayed away for 2 weeks. Believe we've all had this virus in one form or another repeatedly.
Thank you Gez once again for finding the right persons with knowledge about what is going on within our bodies. So many "lightbulbs" were lit during this session 😊.
17:00 and forward, Dr. Boon describes his protocol. The first point of which is an increased fluid intake. His argument is that this is supposed to increase the low blood pressure. He also states that he tries to ignore all the other pathophysiological processes for his own diagnosis. I think this is a fallacy as we can see with this particular example. Just speaking based on my personal research on CFS/ME, it is associated with hyper filtration and polydipsia (excessive thirst). This can be triggered metabolically and/or (dys-)autonomically via the central nervous system. The mechanism of hyper filtration isn't necessarily helpful because the kidneys will filter good and bad metabolites, irrespective of their desired concentrations. Kidney activity, in turn, also affects the activity of the adrenal glands, which can be overresponsive, leading to excessive hormone levels, or eventually exhaust their metabolic precursors. It can also lead to a loss of electrolytes. And this is where the second point comes to play. Water, in itself, will not even help against low blood pressure if the body doesn't have the electrolytes to hold it. Salt alone, however, might be potentially counterproductive without potassium, due to another issue in the pathophysiology of CFS/ME, which is a dysregulation of sodium, calcium and potassium pumps. The approach also ignores the underlying cause of the low blood pressure, as I understand it, namely the autonomic regulation of blood vessel tension. An increased blood volume won't fix this issue. For that, the blood volume would have to be low in the first place, which might be the case or not. In my view and based on my experience, it's more helpful to use vasoconstrictors such as Butcher's Broom to partially compensate for the underlying issues in the vascular system, or one of the drugs Dr. Broon lists for more severe cases, which unfortunately, most doctors won't prescribe regardless. Protocols are always difficult if they only look at one mechanism of a condition and ignore potential interactions with other mechanisms. It's not meant to degrade any of this work. I think Dr. Broon is beyond what most other doctors are willing to invest or have achieved. It's not a lack of competency that would be available. It's a systemic issue in the medical system that prevents any meaningful progress unless there's coincidentally a single drug for a specific mechanism that fixes most of the problems, so it gets approved and recommended in a one size fits all manner. We've seen the same issue during the pandemic, only promoting vaccines as the only solution whilst ignoring all other holistic, dietary, and repurposed pharmaceutical approaches.
This was great, I swear my progress is by doing everything he said over the past year. I rely on compression and salts and if I havent had salts by 2pm I'm clunked. I love the clunk retraining reference bit like the rewiring really but to pace it up rather than down. Great stage to be at pacing up not pacing down. I cant believe I spent a year unable to get past hbr of 65 without symptoms. I loved hearing endorsement of ongoing breathwork and mindfulness its a daily thing for me now and at last its not necessary before and after everything I want to do. Thanks Gez for keeping momentum with this it's really important that we all learn how to improve. 🙂👍
In twelve years I’ve yet to find a doctor who will even discuss these issues. It’s immediate stonewalling and gaslighting and being told it’s all in your head and that you should see a psychiatrist for anxiety meds. I’ve lost hope in doctors
Greetings from California! Great to have you back! I've been following you since the Fall of 2020 after being diagnosed with LC. So grateful for your research and hard work.
Since that vids I now can switch to parasympathetic mode very easily. This is insane to control our body so well. During breath work I feel at a certain point tears production, then I yawn and bam ! The switch happens. This is crazy cool 👍 Very useful for long Covid symptoms management.
Excellent, excellent interview and answers. On the yawning, funny thing is I actually yawn sometimes after drinking coffee or after exercising. I also wake up with a racing heart often but my doctor never had any answers
My body has gotten so good at dealing out natural opiates, DMT and neurotransmitters I don't notice much of anything anymore I'm permanently baked. I can hurt my self and not notice it till a day later. When I bang my head I don't say ouch anymore. Physical trauma doesn't hurt nearly as much as covid does. It's great for slapstick comedy but very dangerous in real life.
I finally feel understood, I could cry from relieve right now. For three months I have felt so misunderstood, I know absolutely nobody with the long covid symptoms I have. I myself didn't understand what was happening to me. I have good times where everything is fine and then phases where everything is on overdrive (heart, breathing, etc.). It has gotten a little better but it is always so disheartening when I feel like I'm getting better and then I'm feeling really crappy again and it just goes up and down all the time. I'm taking Bisoprolol 1,25mg per day and that has helped with my heart. I have/had an inadequate sinus tachycardia and that medication has calmed my heart quite well. Now when I have bad phases where my nervous system goes into overdrive, my heart usually doesn't go completely crazy. Two weeks ago my doctor told me to start reducing the medication (every one and a half days) after eight weeks of intake. That turned out to be a bad idea and I'm scolding myself for even listening to that doctor. He thinks I don't have long covid, instead all of this just happened because I was stressed after moving. Of course I don't believe that. I had covid a couple of months ago and two weeks after the infection all of the symptoms began. I'm taking my medication on a daily basis again and waiting for a month until I can finally see a cardiologist.
Another great video! Watching interviews with Dr Boon and his colleague Dr Melanie last year really helped me to understand what could be going on with my body + what I could do to help myself. And this interview brought even more clarity! oh all those 5k runs I have attempted just after (probable) acute infection back in March/April 2020...I can finally understand why they may have been a stressor on my ANS that led to what I think was a progressive crash a few months later, due to pushing the body too much for too long.
@@RUNDMC1 I have come to terms I have to put running shoes aside for a bit and have recently resumed some cardio but only on short swims. But I do miss running a lot! Hopefully will be able to get back to it at some point. I'm watching the video on till test now - fascinating! I also had pre-syncope in mine, felt horrendous! But I'm only now understanding the results thanks to your video. Thanks for producing all these videos - so informative! 🙏🏼
Very interesting and informative. I had a look at the patient sheet shown in the video, and now I know I do not have dysautonomia with my Long Covid. Still diaphragmatic breathing and pacing helps me enormously.
Doc they gave me a diuretic in the emergency room that basically almost killed me because it's through my electrolyte balance way out of whack and you need a total balance of electrolytes to stay even alive with this condition
Good lord this is everywhere now... I had a huge improvement when I read about 'forward head posture', from looking at phones or a weak neck, causing restriction of the vagus nerve/jugular viens/brain stem. I went from an 8 or 9 out of 10 on the "omg what is happening to me" scale to a 5 or 6 in one day. Its certainly not gone though. I just hope there's not a more 'controversial' cause because it all seems to have started at the same time as something else we had thrown at us... and im not talking about covid!
It did start exactly when covid was thrown at us... what are you talking about? China was warning about post viral syndromes being common in covid by march 2020. If you're referencing the vaccines please keep your mouth closed and use your brain. The people with the highest chance of developing long covid we're those who caught it before vaccines were available, the majority got the disease before the vaccines had even started production. I was one of them. People like you are responsible for this mess more than anyone. The vaccines are the single tool that has stopped people developing long covid more than anything else, even if it isn't perfect in doing so, and you undermine their ability to save lives by insinuating dangerous lies... why?
Absolutely brilliant interview Gez, makes sense. I'm on a H1 & H2 antihistamine blocker, Ivabradine & Sodium tablets and just started Suzy Bolt's yoga & meditation/breathing etc (just came back from her yoga retreat in Turkey & along with full body Turkish massages, felt great most of the time (didnt have normal household jobs either). Thanks again
Fingers crossed. Like you, I get odd times when I've done too much where the symptoms start again but trying to stop, do the breathing etc. Take care & thanks again
@Amyia_ Marie so much better from regularly doing Suzy Bolts Rest, Repair, Recover online classes and completing her Fern Programme in January/February. Also had hypnotherapy with Sarah Noordewier via zoom & doing regular breath work to calm my autonomic nervous system. Can do more in a day without symptoms returning. On my way to recovery. How are you?
I started having spasms around my right kidney, before long it also happened around my left. When at my left it went to my left arm and to my left chest. I went to the cardiologist. After making sure it wasn't a heart attack he sent me to a spine clinic. In the mean time I went to my acupuncturist, the needle he put at the base of the right hand of my scull became inflamed, then I had spasms in my neck and head. Chiropractic was next, caused spasms a couple days. Then massage, same thing. I got an MRI and was told its arthritis. I tried to explain food volume and types set it off. Now at least I know the vagus nerve is what seems to connect everything. The spasms were killer, in my head I would go to the mirror and make sure it wasn't a stroke. The spasms last 3to5 minutes. This is the second site I've found that speaks of long vivid and the vagus nerve. Funny about salt, dehydration definitely makes the spasms more severe. Thanks for the info
Finally -- a doctor who knows what he's talking about! One of the best videos on long COVID to date. It's so true that my heart rate increases at night, and mast cell activation syndrome is DEFINITELY a factor, because it helped to get me back on track in just 5 days (1 pill/day). Before the anti-histamines (loratadine), I had really bad reaction every time I did the slightest thing -- even eating. And yes the low heart rate. Very interesting to hear how you pace yourself. Will definitely try the 5 sec breathing reps. Going to research more into the vagus nerve. Question: does probiotics help heal the gut for long haulers?
Thanks again for the great video Gez! It's nice to see doctors like Dr. Lim take an interest in LC and explain POTS to everyone. I have the high BP and not taking beta blockers as had hives. Slowly getting better and yes, my breathing has improved too! Like you, from the first wave; I bounce back and forth. Also as you mentioned in this video, I as well figured I had POTS/MCAS before and Covid sent me through the roof. I want to know more about the CLUNK, as wondered if its an actual feeling as it has happened. Thought my heart broke, literally! Keep the info coming, as well as in the Book. Thanks for ALL you do!! Nadine
Have this since 1992. Such a limited way to live was diagnosed with cfids from a viral. Illness. Recently had covid also. At least now they are starting to realize. Damage to the nervous system
Wow!! This was a really good video. I was disgnosed with POTs Dysautonomia in November 2021. I contracted covid in October 2020....20 months later now 0 I have the ability to stand more and longer now...
If you have any more practical advice like you gave for skiing and cognitive processing for working, I would be really grateful. Sounds stupid but I have never thought to stop and breath, disengage with conversation etc continually during an activity. I have only ever considered removing myself from the situation for rest. I also have that cognitive processing issue after a short period.
Had Covid back in 2020... a few months ago i started feeling like i had covid again.. breathing issues.. sharp pains throughout my body.. pressure in my head.. constantly dizzy.. sharp pains in a lot of place... it's driving me crazy..
Thanks so much for this video. I was diagnosed with POTS after having food poisoning in November and my life has been flipped upside down ever since. The only truly debating symptom is my brain fog. It has not gone away at all since the day I got sick.
@@RUNDMC1 Thank you so much. I'm optimistic, but some days are harder than others. I've been hearing that a procedure called a Stellate Ganglion Block has been helping those with Long Covid recover, would you ever consider doing a video on it? I know there isn't much research out there about it yet but there is one case study.
I wonder if hypnosis will help with this! Totally relaxing and calming changing of mindset! 🤷🏻♀️ I’ve used hypnosis in the past.. I might try that same tape and see!! It actually put me into a different state of relaxation! Great content thank you!!
That’s interesting about the yawning. When I have some trouble breathing or taking a deep breath, usually when I’m having severe LC symptoms. I find myself yawning in order to breathe more efficiently? I will definitely work more on my breathing from now on.
Thanks, Gez, certainly worth the wait! Really interesting and helpful as always! I am looking forward to the book! On another note, would you be able to do a video looking into cardiac complications too, please? I am 8 months into my Long Covid journey and am currently suffering from my second pericarditis already, clearly caused by Long Covid. I was very fit before I caught Covid (cycling with a club, running, skiing, swimming, hiking… ) and the future is unknown. There’s hope that I recover fully but cardiologists keep saying that there are still so many unknowns about what Covid actually can do to the heart. Thanks so much!!
@@RUNDMC1 Thank you very much! Yes, that’s my experience too, sadly. I have been talking to several cardiologists already and they keep saying that there are still so many unknowns. I will not give up hope….
One of the best "expert" interview discussions you have had. I wish Dr. Boom Lim was in my town, you can certainly tell he has taken the time and has the interest to learn from his patients and practice. He also is willing to work outside the box and considers all aspects to take a more holistic approach and is not just a drug pusher. BTW, still waiting to see how Dr. Asad made out with the blood filtering clinic in Germany.
Yawning is a powerful release and also "intake" of new energy (whatever than means)- I have the most intense yawning "attacks" during psychedelics, deep somatic work, vagus nerve exercises.
Has anyone dealt with new onset hypertension due to autonomic dysfunction and managed to reset the system and get the BP down again to be consistently normal?
I have the same problem. I have never tested positive for COVID but a few days after receiving an mRNA vaccine my blood pressure became elevated. A cardiologist ruled out myocarditis. My intraocular pressure & cholesterol have also become elevated post-vaccine. I saw a neurologist & he ordered a MRI which shows a small white area in my brain that is associated with MS, migraines, and degenerative disease in elderly people with high blood pressure (I'm not elderly). I have had elevated BP since first COVID vaccination in September 2021.
metronidazole and ciprofloxacin also causes autonomic nervous dysfunction bcs of low vit b1 and magnesium and vit b 3 ...boost yourself with high dose vitb1 vitb3 magnesium and vit d
