Thank you for doing this. It’s difficult to deal with long covid symptoms and be treated like you’re anxious or crazy. You provide a glimpse of hope for people like me.
@@RUNDMC1 important question . My issues are primarily body aches . Is MCAS protocol primarily only applicable to People with respiratory issues ? I’m taking the supplements but for last few days went back to high histamine foods and it’s not affecting me negatively . Having said that , if it’s not a good idea , how long does it take to get bad symptoms again if high histamine Foods are reintroduced. It’s been 3 days and not feeling worse .. any feedback is greatly appreciated!!
long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this
I had long covid, I used copious amounts of vitamin c, pineapple juice, lemon, honey, cinnamon, plus everyday I made a tumeric, milk,and black pepper drink in the morning. I pushed myself everyday, walk until I couldn't walk anymore, rest repeat. I'm now in better shape than I was before I got long covid.
Hey Gez, I know you are hearing it all the time, but your work is essential. You are doing what governments should do - collecting scientific data and making it palatable for all of us. Your way of presenting is objective and trustworthy. I'm also in the club, but after 8 months, I'm using my running shoes again. The brain fog is still persistent, but I'm hopeful. There are some clear minutes daily which wasn't true a few months before. Keep hangin' on, we need you. Thank you.
@Will Gmail Hey Will. Thanks for your question. It was a long journey, I was constantly monitoring my symptoms, stopped running and other sports, gained a few kilograms :) Physically I'm 100%, but the brain fog still persists. Strangely it's worse when I'm passive. I'm about 65-70% of my old self. A few more years to go :) How about you?
This video was EXTREMELY helpful! My post-exercise long-covid symptoms were worsening (fatigue, muscle aches, weakness febrile pains) week after week and I couldn't figure out why. This video made it clear. I was reducing my hi-dose Vitamin C that I had been taking during COVID, and fresh tomatoes just came into season and I was gorging on those every day, twice a day - the absolute opposite of what is recommended here (and I was feeling it!). Going to re-up my Vitamin C, double my Vitamin B dosage (I have MTHFR gene mutation) and add Quercetin. I am already taking the other supplements but right after watching this video I also ran out to my terrace, stripped down, and got 15 mins of sun top and then bottom to increase Vitamin D production. I am so relieved to have found the reason I was getting worse and look forward to improving!!!! I was really scared. THANK YOU!!! Ciao from Italy, L
I successfully improved my post COVID immune response with a water fast. On the second day migraines occurred which disappeared after drinking a small glass of distilled water as mast cells burst consequently. At least in my case the symptoms improved tremendously after water fasting for three days and it had a sustainable effect. I know there are so many different remedies being praised on the internet what makes people sigh and resign, but this is what helped me speeding up the recovery process. I was struck by the coronavirus two times in 2023 and still struggle with the consequences. Maybe this is helpful to at least someone, so I just wanted to share this.
Can you tell me exactly how to conduct a successful three day water fast? I was literally thinking this is something I need to try, just earlier today. 🙏🏼
@@tacocat8608 Don’t eat but drink water instead. My body told me with intense feelings of hunger when to quit. When I felt weak I did push ups because this stabilized my cardiovascular system. You need to drink plenty of water. I drank about 4-5 liters per day. A pinch of salt without additives a few times per day did also help me stabilize. It also helped me with headaches. When they got heavy on day two and three I had a small glass of distilled water to ease the pain. The distilled water destroys mast cells in your blood which build histamine what is responsible for your headaches during the fast. But be careful with the amount you take because distilled water can be dangerous when consumed in large quantity.
@RUN-DMC I had post viral fatigue or ME in the early 90's for 2 years full time, and then relapses, pre internet and i had everything - from shortness of breath to brain fog, diarrhoea, insomnia and crippling exhaustion.Yes and very poor tolerance to exercise. Any exercise would set me back for weeks apart from very gentle walking if i had the energy. Big meals would also set me back for weeks, i would ache all over for days after a big meal. When i finally found a book in a library explaining about post viral, chronic fatigue, i cried with relief just to know I was not alone, but trying to convince a doctor was something else entirely. Also everyone around me thought i was making it up because i always looked so well. I tried exclusion diets, and very strict regimes and whilst they helped the game changer for me was total fasting and acceptance. People talk of acceptance but somehow that really does allow the body to heal.It's like you have to tell your own body ' I know i am ill and very tired, and i accept that, I give in, I will not fight against it, and i will be better in the future' And fasting helps very quickly, well it did for me. One supplement really helped me too, and that was Q10. I would even say that with a very good diet that was the only one i needed. But certainly I did try all sorts of vitamins and supplements. I did not find anti - histamine foods the culprit. Avocado, tomato etc, these things are fine. And white rice was very healing for me. Heavy oils and raw onion was bad for me. But the main thing was to have very little food. To fast. And when eating to eat very slowly and to learn to stop before being full, and then eat more if needed after it was properly digested. And if i felt a bad bout of exhaustion etc coming on - to fully fast. I know its boring but so better than being unwell. I highly recommend when you can (when we are allowed) going to thailand and doing a 7 day fast and having some colonics. I swear this will really help you heal. It's a miracle (well it was for me) Another thing very good for ME or Post Viral - is cold showers and a sauna followed by cold water plunge pool - i think it has been proven to regenerate the immune system (also was good for me)
My doctor told me that quote "my husband and I do not look like people who have mast cell syndrome" and he does nothing for us, thank God for your videos! Since I started treated us, my rashes went away, the chronic fatigue went away, and my flair-ups are a lot less! I really am grateful your sharing this and I've been telling everyone I meet with long covid to look into mast cell syndrome.
@Elizabeth Fondse it was sort of a weird white peeling rash all over my arm. I ended up using milkweed from a plant and it took it away, but I heard it can have a reverse effect for different people. I basically followed her advice, low histamine diet, Quercetin, zinc, vitamin B and vitamin C and I'm on a 0 histamine probiotic and I'm finally healing. 😊 I also did a 2 week cleanse and it worked wonders. For the first time in 13 months, I can drink coffee again!
I don't have LC but my health was ruined by a terrible virus 18 years ago. Very similar symptoms. One single dr decided to try giving me H1 and H2 blockers for Mast Cell. Since then, my fatigue has lifted enough to give me a far greater quality of life. Not perfect but I don't need to sleep every afternoon anymore. My brain fog is less, my skin rashes are gone.
@@latestlindsey5620 YOOOO Congrats! I still drink coffee even though I can tell its a trigger for me. I really need to stop or at least get my health back in order first lol
This was so validating to hear… everything I’ve been experiencing was stayed so eloquently & simply. Makes me feel relief that I am not “crazy” or whatever.
I followed this regime and I feel so much better! THANK YOU! After my first night time Benadryl, I felt 75% better. After a week, I feel 90% better with my energy! Before, I was so exhausted, I went from the bed to the couch for over 2 years. Gez, you and your research saved my life! Forever grateful, Kim. Update 9/16/22: After learning that benadryl is super bad for your brain, I switched to Allegra, unfortunately it only helps about 60%. At this point anything is still appreciated, but I went back to bed / couch, unless I need to struggle along in a task. I have added in Nasalcrom nose spray & Alaway eye drops, as they are mast cell stabilizers. Desperately trying to get back into life.
Hey KRG, I'm a systemic mastocytosis patient. We have this same problem for years. What is prescribed is TWO antihistamines for us. Whats called an H1 and an H2. It takes time to figure out the right combination for you. I'm currently taking Famotindine 20mg every 12 hours and Xyzal 5mg every 12 hours as needed. NSAIDS are triggers for many of us, so I stay away from them, but many also take a baby aspirin with this combination. Hope that helps. Benadryl is reserved as a "rescue med" only for a really bad flare up or before any invasive procedures like surgery. I hope that helps
Taking allerga above suggested dosage by manufacturer can cause tachycardia, sleep deprevation, and heart palpitations. I had patients using toxic dosages.
@@pattijesinoski1958 i take up to 12 times the recommended dose of antihistamines. This is my prescription from doctors because I have a very rare incurable disease called systemic mastocytosis. It causes the same cytokine storms that covid has only I get them constantly. I have zero issues. I get blood work every 3 months plus a dexa and PET scan to be sure. Zyrtec or Xyzal plus Pepcid up to 4 times a day. No side effects at all.
Gez - this entire series is totally amazing and has helped me get back onto my feet after suffering for over 6 months with long-COVID, including getting blown-off by several doctors. Can I send you some money or something? I mean - this work is absolutely fantastic! Please keep up the great work - you are truly serving humanity and you work is greatly appreciated!
@@GlamandFabQueenTV I did the vitamin stack for NAD+ deficiency. It's in one of Gez's videos. For me, the nicotinic acid was the key. I've actually been increasing the dosage of that lately, as it truly helps with my fatigue after physical activity.
I have had ME/CFS for 14 years. I’m aware of the similarity between Long Covid and ME and when I heard Dr Peers talking about MCAS the symptoms were almost exactly those I suffer from. Thank you for your work and for this very useful video. I’ll be following the recommendations and reporting back.
Hi @Jane Albinson - did you follow this and has any worked? I've been diagnosed with ME since 2012 but had it years before. Has anything worked for you? I'm so fed up of the fatigue. I'm currently trying nega dosing B1 (Elliot overton yt and Dr Eric Berg.) To see if that's a piece of the puzzle. Hope you're doing ok
There is no single perfect post infection strategy Humans are a not homogenous cluster so there are subgroups and outliars . Even if an approach works for most it may not work for a quarter to half of the population. Tailoring is required. Rules of thumb to not work on all ten digits as only two of them are thumbs
@@sleepsmartsmashstress740 You are your own laboratory. At birth no one came with an owner's manual. However, we do learn through the shared experiences with each other. In undertaking a healing journey, a great deal of therapeutic insight can be gained through the personal testimonies of others that have sorted out things that worked for them.I value greatly the efforts of others in bringing health to those around them.
I'm so tired of feeling terrible. So grateful to hear what some of the triggers are for long covid as well as what vitamins can address my symptoms. It's exhausting to not feel good all the time. Thanks for your information and expertise.
I had covid in October with few symptoms and was nothing more than a bad cold, then I got worse with headaches, heart palpatation, body twitches, chest pain, fatigue ,anxiety and depression.I had a severe headache for 3 months after which led to me having a brain MRI but everything was normal, it does get better, im 5 months down the line and am a lot better but still got a bit more to go👍🏻
Did you follow a low histamine diet or what did you do that helped you get better? I am suffering with daily headaches everyday for going on 3 months now and am thinking of starting a LH diet.
I know exactly how your feeling I’ve been going through the same exact symptoms including internal tremors. My headaches have improved and I no longer have palpitations. We will get through this!
In some ways, this is good news in that it may provide a way forward, but I have to say, my heart sank when that list of supplements/over the counter meds came up. The problem is, many, if not most, people with a chronic illness end up on low incomes. All those supplements & antihistamines are therefore not an affordable option.
Piping Rock are an online company in US who do the cheapest best quality for your money. I use to use other more expensive UK based companies until l discovered this . Look at their prices, cheaper than others.
@@alicequayle4625 most doctors would not be willing to prescribe them. Because insurance would make it more difficult to get them in the first place. Doctors would only prescribe them if you have tested you need them. And there you probably will fail too. Because their tests are also ecpensive. So the doctor would not test you. Because again the insurance does not want to pay it. The medical system together with insurance companies and pharma and share holders and investesters are complicated issues. People do not understand this topics yet.
first treat anxiety/depression / calming vagus nerve and limbic system. the other stuff is just fluff. if all i could get was RX meds - then singulair or xolair and ativan or klonopin would be my go to. LDN and ketotifen (and or cromonlyn) are nice to haves. luteolin and anti histamines (try to get them RX so insurance pays instead of otc out of pocket) - but doing anything you can to calm your nervous system / mental health is the most effective part of all of this. and it's not for forever. once it clicks, your body takes over and heals. it doesn't get rid of igE allergies, but most of the sensitivities caused by stress = gone. (in my experience)
Unbelievable. I never heard of long COVID. I just went to the doctor today and he said I have it, with all the symptoms I have. This video is excellent. Thank you. I already do the diet and vitamins but I eat alot of Avacados and bananas so I will stop them and do the rest of the protocol. The best health to all who have this and hoping you will be well sooner than you think. ❤️
My son is a year long Covid sufferer. He’s on a strict low histamine diet and doing supplements. He is still struggling …. He’s found the answers trial and error after his MD just brushed him off as anxiety problem.
kaylabrison anxiety is the normal reaction to the postcov syndrome and its bunch of symptoms. A medic who diagnoses PCS as a manifestation of anxiety should be obliged to restitue his medical diplome and go back to the medical faculty to renew his / her medical diplome.
What’s up Evan - So I just recently nearly passed from Covid Delta 2 SARS 2, or whatever they want to call it. Anyways, I am now in recovery phase, but some things I’m dealing with are Confusion, Irritability, Anger, getting worked up easily and my hands / head / body will start sort of shaking, maybe like nervousness, etc. How long did the fog last? I call it Covid Confusion / Feeling Lethargic.. I’ve never been sick before, so this has all been a culture shock for me.. Thanks, Brother
This video may well have changed my life. As soon as I saw it my partner and I started to follow the advice. We are both long-haulers (since March/April) and both have mild asthma, bad allergies, and he has rheumatoid arthritis. He developed covid toes/fingers which were diagnosed by our doctor as eczema and successfully treated with a topical cream. We are changing our diet and buying the supplements. I can't begin to tell you now important this video was for us. I think even if it's not a perfect cure, it will improve our health. Of all the media sources on L-H Covid, you are the single one who's helped us. Please keep posting - I look for a new video from you every day.
Hi Dede, gosh I’m so pleased to hear it’s helped but do wait on improvement in symptoms before you offer me any credit! And if you subscribe you don’t have to look every day 😊 Best of luck with your recovery.
I was suffering from long Covid. Going on a low histamine diet with vitamin D, C and Zinc supplements worked wonders for me. I felt better every single day until after a week all my symptoms were completely gone. Thank you!
@@andrewjones3826 my primary meal every day has consisted of eggs and broccoli cooked in olive oil with an orange on the side. I’ve started eating some chicken breast and apples as well. I’ve been experimenting with other foods to mixed results. Peanut butter and tomato soup are off limits, but pizza surprisingly seemed okay. Alcohol is off limits. One of my worst nights during long covid was when I got home after drinking five beers. At the time I had no idea why I felt so horrible. Before I went on a strict antihistamine diet I was eating a banana every morning along with tomatoes, avocados, spinach, whole wheat, and sliced chicken breast unaware that they were high in histamine or that histamine could affect my body the way it did. Something else to note is that I had an allergic reaction to the J&J vaccine as well. The side effects were very similar to what I experienced from long covid and lasted about five months.
@@ryancparker glad for you. I'm only 4 weeks in but I know I'm not shifting it. Been on low Hist diet for 3 days and the vit stack. Feeling better I think but still have moment I feel like death for an hour. I too was pounding down the spinach and avos, plus bread. Hopefully in time I'll feel normal
Thank you! Thank you! Thank you! I have a chronic mast cell activation syndrome from the first dose of AZ "vaccine" which I lined up for seven weeks ago. Brain fog, fatigue, lightheadedness, headache, eye pain, swelling and itchiness, nausea, neck stiffness and pain, and tingling in my face, tingling in my arms to fingers.
The symptoms you explain are so similar to the ones I have had for the last 10 years after recovering from alcohol induced pancreatitis,it's unreal.The fatigue,itching,brain fog,stomach,rapid pulse,.....I was diagnosed with Fibromyalgia but have always thought it much more to it than that.Thank you so much for this video.
Dr. Frid in NY claims that fibromyalgia is actually a symptom of something larger. I believe her. I have it, and I didn’t get it until I got breast implants, which are so toxic inside the body, I got sicker and sicker with autoimmune diseases, mold toxicity (saline), and infections. I lost so much, I’ll never recover my family, friends, relationships, money, etc. 🥲
Hi, hope you're well now. Alcohol really depletes B1 thiamine - which causes fibro symptoms. If you still need help check out Elliot overton on RU-vid he talks all about high doses of B1 also Dr Eric Berg has a few good videos on it. Wish you well
For the past few months, I have been experiencing fatigue, lightheadedness, tinnitus, and lately, heart arrhythmias, and palpitations. It got to the point where after working out I felt like I was having a heart attack, but with no pain just extremely hard to breathe and very rapid heart rate so I rushed to the hospital twice, and they could find no problems with my heart . I was sent to a cardiologist for observation over the course of a month and they also could find no heart problems so I was dumbfounded until I found out about POTS/long Covid, histamine intolerance. This is what I needed today. Thank you so much for doing your research. I realize this is from three years ago, but it is relevant to me today as I got Covid in December 2023 and I have all the symptoms of MCAS, histamine intolerance, Long Covid. Incidentally, Dr. Sanjay Gupta Has videos on this as well and he’s using a saline IV solution to help clear out histamines in people with POTS.
Thank you for this ibfo!! Altho, if your MCAS has salicylate triggers, watch the quercetin. And im so grateful for this information. I've been watching long covid triggering mast cell issues and since covid, I'm now ragingly reactive to salicylates. And my quercetin was giving me raging nerve pain. You are an ANGEL!!!
I´m salicylate sensitive, plus I´m diagnosed with histamine intolerance by my allergy doctor. I have had covid for 8 months now and my main symptom right now is vertigo. I walk like a penguin. When my covid started, I had a huge histamine release with itchy rash on the inside of my arms and on my back. Recently, I bought the enzyme DAO, diamine oxidase (made of kidneys from pigs), and I noticed an improvement after only one day! After five days the itchy rash was gone! Then I tested what happened without DAO and the itchy rash came back. And then I started to take three pills DAO per day again and the itchy rash disappeared again. Now I´m trying to find cheaper replacements for DAO.
Hi, I know this was years ago, but what did you use instead of quercetin? Or did you just follow the rest of the protocol and leave out quercetin? I also suspect salicylate intolerance. Thank you!
Had mild covid in January then in February I got pots symptoms and shortness of breath . And couldn't exercise . I would get short of breath and weird anxiety after trying to exercise even lightly. Fast foward to this may and I decided to take benadryl cause I got shortness of breath after eating food. Took it cause I heard it was good for anxiety and it helped me breathe ALOT better . She's definitely spot on. This is a mast cell issue
My doctor is less than helpful. Decided I had sleep apnea though I have no symptoms for that. I had COVID before the recognition and so, no positive test months later. Testing was rare for some time anyway. Without a positive test, but most of the symptoms, I am treated like a hypochondriac. That attitude certainly doesn’t help my determination to recover.
@@jzinser-mandala9117 I've had blood tests, ecgs and chest xrays, all have come back absolutely clear yet I'm still getting bad headaches, keep going light headed, stomach ache , ribs ache and chest aches and get short or breath easily, along with being constantly tired. GP says theres too many symptoms to diagnose me with anything!
Jon Davies Seems like the doctors are leaving the battlefield on walkover. I guess some other professions will have to take up the slack. A lot of money in this if one would have a protocol for recovery.
I went undiagnosed until my late forties. There are some wonderful supportive groups on Facebook and www.TMS.org (the mastocytosis society) is a wealth of information and lists of doctors who work with us mast cell patients. This is how I finally got help that put me into remission. I still have flares and need to take extra care but I’ve been able to have a mostly normal life.
@@jondavies1593 I too have had rib aches/ chest aches along with shortness of breath etc. My pulminologist diagnosed the rib and sternum pain as costochondritus. It can be triggered by respiratory viruses or harsh coughing. If you look it up on you tube there are stretches that if done consistently should help along with anti- inflammatory supplements like turmeric.
Yes, I had it as well since March, I get extreme fatigue, bit the main issue is I can't catch my breath, I feel chest crushing tightness as if I ran a marathon and I just got moving!!
@@manindermanku8667 I used to do cardio twice a week and weights three times a week. Today I feel far from how I used to be. I have days where I can run with no issues and other days where I can't even go up the stairs without being out of breath. I have started the intake of antihistamines to confirm what they say in the video. It might not work for everyone, but I am no doctor.
Very interesting. Yet another excellently produced educative film on Long Covid, sighting MCAS as the probable major underlying culprit , with very accessible advice on how to manage it via diet and supplements. Hopefully, this advice will be a major breakthrough for many. Thank you so much for doing the research to elucidate this for Long Haulers but also for those of us that have EDS
Hallelujah for this interview!!!!!!!! Finally someone that is saying what I have been thinking all a long with my 5 years of ME/CFS Dr Peers you are a godsend
Thank you so much Tina and RUNDMC. I've been experiencing long covid symptoms for around 7 months and this series as well as this video in particular has given me a lot of hope.
I know for a fact I have long COVID. I've had repeated wet dreams and nightmares every night. I've never had it before in my life. Covid really did me dirty.
Wow. This was really helpful.I have been eating some things I thought were really good for me, but are not. And, no tea for now. Your podcasts have been more helpful than many others..or even my doctor. Thank you!
This was so so helpful. My symptoms had improved until I stopped taking the vitamins and I feel like I’m back to stage one and I couldn’t remember the regimen. Thanks so much for doing all the work you have compiling this resource, I always trust what is here amongst all the endless information. X
This was really helpful! Thank you. I was fortunate to stumble on MCAS as a possibility in late April and strictly followed a low histamine diet (and vitamin/antihistamine routine) for 6 months. As a former tea addict I feel for you :). I went 6 months without a cup of tea, but have finally reintroduced 1 cup a day in November (major victory.) Good luck!
I've had literally every symptom on this list. Some have gone away, some have went and come back. So shortness of breath and fatigue, gastric issues have been the ones that are lingering the last 2 years. I'm taking PPIS for GERD (Post Covid) and antihistamine. I'm also trying a low histamine diet. Sick of it. Agony. Also I'm 35 and was very fit before covid.
Yep same Andy! I was healthy before except for some anxiety issues. Fatigue is brutal. Heavy eyes, muscle issues. It’s awful. Praying for healing for u
I have MCAS from black mold poisoning and Lyme. I was at the best I've been in years, then got Covid. Recovered great, but then MCAS came back with a vengeance. Suicide fuel. Haven't slept in days. Already had severe insomnia. Not even a bar if xan knocks me out after this Covid MCAS.
This has to be some of the most informative information I've come across throughout this entire pandemic. So refreshing to to know that there are still a few people capable of thinking outside of the box and not just regurgitating government propaganda.
Maybe it was coincidental, but I started to feel consistently better after starting to eat more fresh fruit on a daily basis; I had been unwell with long Covid symptoms for 4 months up until that point. All in all it took me six months to get my fitness levels back up to where I was prior to being unwell, that is, from the end of March to the end of September this year. I wish all long Covid sufferers an eventual recovery and soon !!!! Peace.
I am happy for you. Seriously. I had a timeline for building my health back. But, it is not working. I have tried several paths. Right now, it seems, I have to focus on my physical activity level or my cognitive activity level. I am going with the cognitive level for now. However, over winter break I am going to experiment more with my physical activity level.
@@petinapowers2869 I roadwalk every day up to 10 miles a day and this I could not do anywhere near a few months ago when I was unwell; even mild exertion would set me back almost a week every time. So, with regards to physical activity I say take it easy and don't push yourself too hard. Good luck.
It's good to hear, that you are better. For me, It was almost 8 months to get back to running (5km, daily). But the "brain fog" is not lifted. I still feel if I'm away from my life. I just wonder, will it go away?
@@lacisz Lacisz. I am the opposite. My brain fog is less frequent. I can mentally multi-task at times. I am still disorganized though. That is not normal for me. My physical activity is the primary issue. So, perhaps one area recovers first, and the other later? Also, congratulations on your physical recovery!
Thanks for your hard work! I noticed a difference in some of my neuro symptoms following a low-histamine diet so I'm sticking to it. But I'm really worried about the virus lingering in our bodies, in my case this is month 8 and the cough came back. GP has no clue about it. I think it's pretty obvious at this point that we need massive research about viral persistence ASAP.
@@headfullofmusic422 hello! I am feeling much better since I started taking Famotidine (h2 blocker), honestly I am a really lazy and bad cook, I just eat simple things like chicken and steak, potatoes, I can manage to include tomatoe a few times a week. That's pretty much it. Cereals or porridge for breakfast. I also stopped coffee and tea 100%, which was super hard but I feel the difference. I still have some symptoms but I reached a point where I am able to work/clean/have a pseudo normal life.
WOW. I am the person with the MCAS before the COVID. I got COVID in March, was super sick, got a bit better, then worse again. Repeat x 2. Started finally feeling better, until 2-3 weeks ago, started low grade fever with worsening of cough. Cannot express how fatigued I am. I have Fibro, MCAS, Eh-Los Danlos, Hashimoto's etc... Yeah, having the MCAS helped, because I was already on meds. Harder, because all my symptoms were to the Nth degree. I identified with everything she said- totally hit the spot. Would like to add Mangosteen power is a Mast cell stabilizer, and so is marijuana. I use both daily. I am getting better, just the 2 step forward, 1 back is, well, adding to fatigue. It will get better. Slow and sure. Just wanted to let you know I hear you- and I needed to hear you. thank you all- JAFO
Thank you for your post, including the marijuana bit. I have access to it, but didn’t know if it would help. I’m willing to try, along with the other protocols. I’ve been to the point of giving up, but this channel has given me hope.
This is brilliant as always Gez, thank you! One thing that wasn't so clear in regards to MCAS - is it a lifelong management? I know the partial answer was that once the mast cells are replaced in 6 months they can be less sensitive, but wasn't quite clear if that means they would no longer need to be managed..
I believe vitamins C and D, zinc, melatonin has help me a bit. However, it was after I received electrolytes via IV fluid, did my extreme fatigue became more manageable. The dizziness lingered for a bit but I never stopped taking my vitamins, melatonin, drink a lot of fluids, and eat more fruits. Now, I am alot better eventhough sometimes I still feel a little unwell. Thank you for the info.
@@jeanettevalencia1975 15days before the IV. I am still fatigue, though not at bad as when I was positive for covid. I wouldn't call it severe since I wasn't hospitalized
Thanks again, Gez. Great video. Three months with Long Covid (and have asthma since childhood). Fatigue is the main thing. Hits me at about 4pm every day and the legs have that feeling you get when you've got lactic acid built up after a series of uphill sprints. Tina is right - I go for a walk, and the next day I am wiped. Anyway, I will give this three/four step plan a go. You need a rack for your nice marathon medals! Can't wait to be back up training for one ...
Thanks Barry - Tina is right, you have to really reduce the amount you’re trying to do. And yes those running medals are a mess, I ought to sort them out!
@@captmorgan2063 Thanks for asking. Still fatigued with sore muscles and the ankle and hip joints are sore each evening. Got ultrasounds (to check heart), X-ray (lungs) and bloods twice, nothing showing. Going to long covid clinic next week. Paying, coz you'd need a detective to find any long covid services in the public side. Regarding work, I have v understanding staff, so they are taking work off me :-) and have a lot of good projects going on with great people, so lots to distract me. Wiped every evening so bed at 9ish.. (not that I sleep). Am running - but no marathon in 2021 (real or virtual). Hopeful! And aware there are others who are a lot worse, so not complaining!
@@BarryOGrady hate to hear that but keep the positive attitude I'm going through the same thing I am 9 months post covid still can't work out and dealing with mcast histamine like issues
@@captmorgan2063 You able to get help? As per Gez's suggestion to me, I took it real handy and upped my running v v gradually. Now and then I crash for a few days by overdoing it, though. Yeah, stay positive. I have continued on the Vit D and C and then a generic every-vitamin tablet each day.
Interesting!! Great tips, too! Chilis and red onions allegedly help stabilize mast cells. (Interestingly, they are loaded with quercetin). Regarding the low histamine diet, I think the low-histamine plant diet rocks. A problem with meat, fish, eggs, and dairy is that they allegedly increase TMAO via the gut flora. TMAO reportedly increases inflammation, which calls to question the validity of the low-histamine cookbooks that promote animals products. (If you got bit by a lone star tick, meat can potentially give you anaphylactic shock !) If you have Type 2 diabetes or are prone to Type 1 diabetes, better follow PCRM guidelines! Despite all this, I do take the listed supplements (D3, zinc, etc.) and drink mineralized water (not sparkling) to keep kidney pH up. (COVID flourishes rapidly at pH 6...).
Please make the PeopleWith app available outside of the UK. Nobody is collecting data about longhaulers here!! And we need those data, not a youtube video.
In the US there is covid.joinzoe.com/us It is a study of people self-reporting their COVID symptoms daily via the app. Unfortunately, it doesn’t have the features of the PW app but it collects important data. I report every day. Cheers.
I've been using the app called "Bearable" to track my own symptoms, medications, foods and mood. It's been VERY helpful to me, even if it doesn't feed back to a broader database with other users.
So that explains why Famotine -taking covid patients had better out come than PPI-taking covid patients who developed severe covid:. The mass cells were somewhat inhibited producing histamine by Famotines' competition for H2 receptor sites.
I take it (I've had long Covid since March). It does nothing whatsoever. I'm going to stop, it's not worth the money. Tbh, a lot of the MCAS symptoms don't sound familiar at all. Oh, I take cetirizine as well, was already taking it before I got ill. It helps a bit with the rashes but that's it.
I'm an MCAS/Ehlers-Danlos patient. My MCAS is FORTUNATELY well managed now, but it took a long time and lots of suffering to get the treatment right. Thank you to my great immunologist, biweekly Dupixent injections, quercetin, vitamins C&D, H1 & H2 blockers, famotidine, and taking precautions before eating/drinking that might trigger my mast cells.
Thank you so much for this video. 7 months in and am miserable. I’ve lost so much weight because of the mcas symptoms. Hoping to recover and get my life back
Thank you Gez I’m a long hauler in Australia - treating myself watching and reading as much as I can You both have given me hope There’s absolutely no long covid understanding or MCAS here even at the clinics - the UK and northern hemisphere countries are so far ahead !!! Many thanks Merryn
be careful who you tell your symptoms to in Australia... These MTHFR' Doctors wouldnt know what a MTHFR was if it hit them in the head! ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-rFkVEBRfdys.html - getting taken to Psyche ward ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-6DmBaPeGdio.html - Dont go telling your crazy symptoms to just anybody
The trifecta! I too have the trifecta and am here for this man's work. Both SO and I got Covid-19 and it's been fascinating to see the way it's been affecting us differently. He's experiencing dysautonomia for the first time, and mine is WILDLY out of control, as is my mast cell. I often wake up with parts of my face swollen, which is shocking to see in the mirror. SO notices the chest tightness right before he leaves for work (he was bedridden for 3 months, and it's 6 months he's upright since then. He can work, but that's all the energy he has, and back to bed until work again). I suspect his chest pain right before work is due to the stress of trying to get ready for work, rushing to try not to be late, etc, and the stress of it causes a mast cell reaction.
@@josephinethornton3823 if you're mast cells are going out of whack you might not be on the right protocol and if you're not on a protocol you must be you have to find the right doctor to get you on the right protocol everybody is different so different protocols for different people it's all about trial and error in the beginning . If you don't have a Mast Cell Doctor please get one and the pots need to be taken care of by a cardiologist first and then a neurologist afterward if everything is okay with cardiology.
I became better by cutting wheat , coffee , spinach , I take multivitamins with minerals , vit D , zinc Spring is my favourite season The worst symptoms were anxiety , palpitations, mood swings , tinnitus , arthritis, GI problems . When I am under its spell , I fast , then I feel much better . I had long covid , same symptoms but more debilitating . I think now I had these symptoms all my life , and managed them by fasting , or cutting food I felt affected me badly , supplements. Thank you for this eye opening video
This was amazing 👏 thank you so much for all your videos and research. I had Covid in March & was on treatment for Lyme disease just prior to contracting it. This information is gold to me xx
Hi fellow Lymie!!! I hope you are recovering well from both...but, seeing how you are on a site for long haulers...seems like you are having overlapping issues too...Have you noticed how much the symptoms overlap? I'm new to the site and am exciting about learn too : )
@@truthtriumphant5503 Hi Debra, the symptoms definitely overlap like fatigue and joint and muscle pains but the lung pain and breathlessness are unique for me to Covid after effects. I'm 9 months post Covid & post Lyme treatment. Still struggling a lot some days but definitely improving. Wishing you healing & health x
@@aoifel77 ...I don't know what route you are taking in getting the Lyme into remission. But, some of the things that have really helped me are bi-weekly coffee enemas (to get the built-up toxins out that cause a lot of the pain and to increase the glutathione levels 700%)...I use ozone insufflation afterward. Have been doing them for over 4 years now...and it really does help. Hubby and I also use a Rife machine and infrared sauna...along with a boatload of vitamins/minerals. One thing that helped when I was bedridden with fatigue was Meyer's cocktail IVs...I had to use a roller walker if I went more than from the bed to the couch. Since so many of the symptoms seem to overlap...and like with Lyme...so many people have different symptoms that can be caused by so many different personal issues in the body. This COVID long haulers is going to be very difficult to treat in a modern medical environment. Hubby and I were sick for 1 month with a fever with COVID and two more months of severe fatigue...I'm sure if we had not been detoxing with the Lyme...it would have killed us. I hope you get to feeling much better and thank you for replying : ). How long were you sick with Lyme before being diagnosed?
@@truthtriumphant5503 oh wow thanks so much for all the information. I've not tried most of those things but have read about them and would love too. I did antibiotics for 5 months, then herbals.. I take a ton of supplements and sea swim, do Yoga & breath work, Salt baths, CBD oil, I honestly think Lyme is under control with me now bar a few flare ups. The Covid long haulers symptoms are hard though and much like Lyme very hard to get help from traditional doctors. I'm on Instagram if you use it might be easier to chat. My ig is Efaphotography11 xxx
@@aoifel77 You are welcome...I use to be on a lot of Lyme groups when I was really sick and unable to function. My experience with traditional doctors is not good and because of that ...I no longer trust a pill or an ill : ). The symptoms of COVID are probably like Lyme and has multiply issues going on than just a virus. The virus is just showing where the problems are. For me to get better I had to have all of my amalgams and root canals removed...when I did the MS/Alzheimers/dementia symptoms went away. When I started the coffee enemas ...the Fibro pain went away...when I started high dose vitamins (like with the Meyers Cocktail) ...my energy got a lot better. You are probably young by your pic and not as toxic as a 66 year old...that makes a difference. I am sure we would have died from COVID had we not been dealing with Lyme for all of these years...correcting what was causing our immune system to falter. It concerns me for those with COVID long haulers ...if they rely on traditional medicine..they probably will never truly get better. See, I think the makers of Lyme and COVID are the same..bioweapon has too many things in common. Did you ever go down that rabbit hole? If not check out Plum Island. Stay well..and check out www.drjaydavidson.com He was my Lyme doctor and has a lot of good videos/articles that are very interesting and helpful.
Wonderful information, thank you! Great questions, so good to be starting to hear some answers from practioners who have actually been trying to find treatments. We know they are out there and having successes... we need to hear their results and their voices! Love all your videos! Top go-to channel for fresh thinking during all these days.
With MCAS you need to work on damping down the sympathetic nervous system. Low dose naltrexone and intensive breathing exercises, together with gentle exercise like Qi Gong, can work wonders. Cobalamin is essential because it is a key regulator of the immune system and directly impacts on mast cells.
Thanks to your info and the long covid FB group, where I learned about it, I managed to move from lying flat on my back for whole day to functioning almost normaly within months. I am able to do long walks again :-). Another thing that worked for me was fasting. I used to fast 2 days a week before Covid and as soon as I switched to low histamine diet and started to feel better, my body kinda required it again. What I find interesting is that in the days when I fast, I can push myself physicaly without negative effects the next day. This is how I was building my stamina: normal days taking things very easy, fasting days exercising more (within limits, after spending 2,5 months in bed, even a brisk walk is an exercise). Perhaps this may help with your running.. BIG THANKS for your tremendous work!
Really appreciate your personal drive & commitment to supporting long Covid recovery. Living with this bizarre menu for 8 months now. Rest & pace aid basic functions. Does anyone know of a blood test - private or otherwise - to support the mast theory. Great work & admire you dealing with fatigue but delivering your much needed videos.
My daughter is an elite athlete with long COVID symptoms. She can't get back to her normal workouts and is having all sorts of issues. She has been on niacin 2 weeks and is seeing a lot of improvement.
I absolutely relate to the 'getting of histamine high foods' . When Long Covid hit me hard for three months from early January 2022 - it was straight after a slightly binge based Christmas period - of increased dairy, meats and alcohol
Looking at the low histamine diet…that's already what I'd been doing for the most part, though I do like my legumes. This could explain why I feel better when I'm taking antihistamines regardless of whether I have active "allergy" symptoms or not.
I got COVID during the Delta wave in 2021. I attribute me catching it to a lapse in the preventive protocol I had put myself on, combined with added stress and a lot of extra shifts. I was taking NAC, Vit D, Vit C, Niacin (every other day) and Turmeric. I ended up in the ICU for 10 days. When released I was on O2 for an additional 3-4 months. I was unable to return to work for 11 months. I’ve dealt with Long COVID since. The tachycardia and the extreme SOB has lessened. I pushed myself with higher elevations while I was out. I still have issues with any exertion. I still have issues with elevations over 7000’, and any exertion over 8000’ is very hard to recover from. I actually keep a few of those oxygen cans in my truck just in case. I’ve found that Turmeric and Glycine have helped. I am going to add back in NAC and vitamin D as well as the rest of my original protocol because I firmly believe something much bigger is coming.
Thank you for this work that you are doing. I find your information more helpful, information, and cutting edge than what is shared via most media platforms.
I got the vaccine and got Pericarditis, and terrible fatigue until this very day. High white blood count, dizziness, shortness of breath, and inflammation in my entire body. It is 2023 May and I am still suffering from all this. I never got the virus, but had the vaccine. It is interesting that most people who get the vaccine think of themselves as not having the virus but I think getting the vaccine is being given the virus through the shot. I know this sound strange but there is encouragement for me knowing it will probably end in one to three years, only two years to go, YIKES. LOL
I’ve always had post viral fatigue after having bad viruses (mono and the flu). Now I have long covid. Rheumatoid Arthritis runs in my family as well so I suppose I’m prone to autoimmune disorders. Maybe that has something to do with why I always get post viral syndrome. Immune system attack. I’m not a doctor but this is all very interesting.
I followed the suggestions and my long covid symptoms lifted 95% across 2+ weeks. I didn't know about low histamine diet and needed very simple due to brain fog, so I just ate fresh cooked beef 2x a day while I studied. Now trying one new food a day. But I feel great!
@@RUNDMC1 surprising benefit - the bedtime tachycardia I've suffered in clusters for years and was quite constant in past 6 months has disappeared suddenly with the low histamine approach! I was told by a doc 30 yrs ago my heart is fine, avoid alcohol (only trigger mentioned) and learn to live with it. May God abundantly bless you for all your effort helping us and bring you total healing! ❤🙏❤
Thank you so much for this very informative video. I’m glad dr Peers mentioned viral persistance as a possibility, but what would she recommend to fight the virus in that case ? Also, people have made a link between mold toxicity and MCAS. I would be interested in her take on that.
I’ve been at my wits end for months after countless Doctors visits and 6+ trips to the E.D when my symptoms spiral out of control. 12+ blood tests 24 hour ECG + Cardio Angiogram and still all the Doctors and my GP have been stumped and telling me this must be Psychological. I’m so happy I’ve come across your video tonight and finally have some answers as this condition has scaring the cr*p out of me - Even more so with the lack of information available! I’m the last week I’ve started taking NAC, prior to that it was B vitamins, Magnesium and ZMA, CQ10 so I was nearly on the right path and was seeing some improvements. Thank you so much for your time and effort in researching this. I’m going to adjust the vitamins and add in some antihistamines and 🤞🏻 the symptoms start to disappear! I’ve heard fasting is great to reset the mitochondria but I’ve been reluctant due to the symptoms I’ve been suffering but it might be worth giving it a go this week. Thanks again!
This totally makes sense. I have long covid and was diagnosed with MCAS about a year after I got covid. Also have had autoimmune diseases and allergies for years although my immunologist says my immune system is very peculiar and based on biopsy results and so on my autoimmune dieases are not tied to my MCAS - he says it is almost like I have two different immune systems.
RUN-DMC, MCAS as a part of the problem makes sense. I brought this up to my PCP (GP) and he just brushed the idea it off. (Honestly, as most of you know, it is exhausting to work and study, much less be your own monitoring device and specialist.) I cook with chilies on a daily basis, but I also eat bananas and citrus on a daily basis. So, maybe they were counteracting each other. On another note, I believe my recent episodes with hypersomnia were triggered by increased activity. The upside is that every time I emerge from one of these episodes I improve cognitively. I am still disorganized though, and out of breath after a block or so of walking.
I've had long covid for over 10 months. I've been on a low histamine diet and the supplements you recommended for a month now and I've had a massive improvement in my symptoms!
@@Dragonfly20233 I take 100mg no-flush Niacin from Holland and Barret. Looking back now at his previous video i think he said he started at a low dose of it 10-20mg. I just started with the 100mg ones and didn't have any issues but I don't know if it's better to start lower.
@@minuteinfo7567 extreme fatigue, brain fog, difficulty concentrating, post exertional malaise, whole body pain particularly in lower arms and legs, swollen hands and wrists, muscle cramps, chest pain and chest tightness, breathlessness, dizziness, tinnitus, insomnia, headaches, heart palpitations, migraines. I had covid exactly a year ago and I've only started to feel better since following the low histamine diet starting about two months ago and taking the supplements recommended in this video. I've recently been prescribed an inhaler which has helped too. The low histamine diet allowed me to feel well enough to start doing daily stretching exercises and box breathing exercises and now I've moved on to doing daily yoga. Finally feel like I'm healing
I’ve had fibromyalgia for 15 years, in speaking to my sister who Has Long Covid, a Loud bell went off in my head. When she made it to the rheumatologist BINGO, She developed fibromyalgia. My point being if you HAVE a crappy chronic illness that runs in your family, (Also 2 1st cousins, total 5 of us with it) Covid tends to stress your body enough for it to surface.
I caught covid in December and my post covid symptomes started about 1-2 weeks after "recovery". Tachycardia is the worst that comes with a massive headache, hypertension, palpitations and brain fog. I've been taken to ER twice due to my tachycardia. I was running on mild covid with fatigue and light cold symptomes and with almost no fever at all. No caughing, no heart problems. I've been taking mass amount of supplements until very recently. I think I may have overdosed zinc and depleted my copper reserves. These long haul symptomes are very similar to those with copper deficiency. I've just got my copper levels checked but have to wait almost 3 weeks for the result. I stopped taking vitamins and try to eat what my body dictates. I'll see what comes next. I'm so tired of this sh... though I know many of you have been suffering a lot longer... 😔
Same here with excess anxiety driven tachycardia right after eating or after any excercise. When it starts it induces a sudden burning sensation starting in my nose or throat and throughout my chest. Fatigue, insomnia, achy knees, nausea, headaches and occasional burning sensations in my limbs. Quercerin somewhat helped me alleviating the severity. It all started one week after recovering from a mild onset of covid in late January.
@@gaborszabo5561 my cooper seems to be just fine. The doctor put me on bisoprolol but only on the smallest possible dose though it didn't really help. I was about 5 days on the beta blocker when a harsh episode of tachycardia kicked in and lasted for about an hour. A couple of days after I started taking b1 and since then I got so much better. Not saying that I'm healed yet. I didn't take megadoses as suggested on other channels but I'm definitely recovering. I could do the chores, walk faster, got less anxiety. I can sleep better. I only feel a mild racing heart in the mornings and it is not that bad as it was. I'm gradually increasing the dose. I took b1 HCL 100mg twice a day, now I'm taking 400mg-500mg including benfotiamine. They say benfotiamine is more bioavailable but HCL works better for me I guess. I recommend everyone with LC to try B1. I'm really getting better and I think I can slowly get off the beta blocker too because sometimes it lowers my heart rate below 60bpm and makes my feet and hands stone cold.
What an eye opener. I have delt with this for 4 months now. Doctors didn't know what is wrong. I have been miserable, fatigue is so bad , hives, itchy all over. Idk if I have new food allergies, or the lip swelling is involved. They had me on prednisolone, antihistamines for H1, and H2. I am going to try the diet and supplements. I did have HSP as a child , and different food allergies that come and go, bad fall allergies, with severe migraines.
@@RUNDMC1 thank you so much. The last couple days I have taken Zyrtec, pepcid, and ate low histamine foods and taken my vitamins. I feel almost like myself. Still drained, but better. Thank you again for all of these videos !!!! I do have one condition that I don't think other people in your study have. Spinal cord injury, nerve damage. l5-S1 and other complications that go along with that.
Thanks so much! I have exactly the problem,that was described. I feel awful the next day(or days) after even minimal exercise. When I tell about that to doctors,they look at me like I'm crazy and tell me,that I'm making things up.
You need some better doctors! Post exertional malaise is one of the primary symptoms of long covid. Unfortunately you have to manage your activity levels below the point which triggers it. This might be a very low bar.
I would REALLY like to talk to Dr Peers. I'm not even half way through this video and she's hitting everything on my checklist. She even mentioned exercise intolerance. As an elementary student, I'd get a swollen throat filled with mucus and heart beating out of my chest (I was not an obese child). I was the fastest child in my class, for short distances only. The longer the distance, the more intolerable. I was eventually diagnosed with "Asthma", but my doctor said it was really "Exercise Induced Bronchial Spasms". Also, pre-covid, my lips would swell up with odd reactions to normal things, like to COLD (I was eating ice cream and was playing with it as a 3-4 year old, just cupping my lips around it), my lips were noticeably swollen for 2-3 hours afterward - enough for my uncle to make fun of me. I also had lip swelling after playing the "watch your mouth" game where you put a plastic dental appliance in your mouth and try to say words on a card. Same thing, my lips were swollen for hours afterward. I was also hospitalized with Anaphylactic shock for 3 days after a medicine reaction. Just lots and lots of scenarios like that over the years. Once having Covid, my entire system is haywire!!! Doctors here in the NW United States don't know what to do with me. They discharged me from the Cardiac Rehab clinic because they could see that my exercise threshold was declining and they diagnosed me with Post Exertional Malaise. I've also been diagnosed with POTS after experiencing PVCs, racing heartrate, dizziness, loss of balance, etc . . . They also suspect MCAS. I've also been found to have a soft tissue lesion, my hormone cycles are now extremely painful. The muscle and joint pain can be intolerable. But no one knows how to treat this.
@@revelation12_1 I was eventually dismissed with Long Covid and bedridden. I could only talk through gasps. After a month in bed, I began getting up, but pacing and doing only essential things (showers were only 1xper week) otherwise strength gives out completely. I got into a groove and was able to cope with a seated walker and could sit when I felt syncope coming. Now I'm walking a bit without my walker. It's been over a year and 3 months since I had Covid.
He Rundmc thanks again, for solving the puzzle piece by piece. How are you yourself? Are you improving? And will you give the low histamine option a try? Meaning no coffee? Coffee is the only thing right now that makes me feel the person i was before COVID (at least for 10 minutes)
@@RUNDMC1 glad you're feeling better from low histamine. Gonna try this for my long haul girlfriend. Do you react to airborne chemicals too? She does now.. we bought a Klinghart Institute propolis diffuser which has helped with wheezing. Gets rid of the chemicals
maninder manku I’ve stopped drinking tea, and I love it so it’s a sacrifice for me. Try stopping for a couple of days and see if it makes a difference.
as a pharmacist, i am against valium(dependency) and toxic SSRI'S for treatment. Many elderly end up with tons of longterm toxic results of SSRI, including chronic diarrhea leading to dehydration, sleep issues,
I am so grateful to have an appointment with this Dr in Jan.... I have hEDS and MCAS and have gone as far as I can with the NHS (I'm in Scotland) I also caught covid .... please share this far and wide x
Hi, did you get help from her? Is it working for you if so. I'm considering booking an appointment. Does it cost a lot as I can't see any prices. Thanks so much and wishing you well!
@@charlieb9144 I did i had a phone appointment it was worth every penny and i got LoTS of help... it is £340 for first consultation but she is booked months n months ahead so plenty time to save up, u can also pay it up, search Dr Tina Peers, 92 Harley st for her office number.... good luck x
