Follicular Lymphoma: Everything You Need to Know 

How are you now

Which stage

Hi,. I was diagnosed stage 4 & in the bone marrow, Follicular lymphoma aged 42,after chemo, 2 year maintenance I got into remission, this was in 2016. Its very maintainable. Best wishes to your mum. 💟

@@GA-fz2wt just want to update you. she beat it. its all gone. im so happy

@@ChiyaQT Fantastic news to hear! Well done. 💪🤝🙏💚

@@ChiyaQT what were her symptoms?

That's awesome. What was her treatment. I have not been diagnosed but I have multiple swollen lymph nodes in my stomach so they think it could be that. I have a biopsy next week.

How are you doing know

What kind of treatment did you get .

chemotherapy and two years follow up of retuximab.

Hi, great to hear this. Can I ask what stage you were diagnosed at 10 years ago?

@@GA-fz2wt I was at stage 4 at the time. I had eight sessions of chemo and 2 years of rituximab infusion.

@@sheilapatterson4140 oh I had the same treatment regime as you, 5 years ago. Currently receiving donors IV immunoglobulin infusions every 4 weeks for the past 2 years as well, due to immuno surpression, I'm always ill with repeated infections. I'm also Stage 4 Follicular. So it's very encouraging to know. Thanks for your reply. Best wishes to you. 💚

Dịch sang tiếng việt nam

mRNA tech has caused more cancer than it has cured. I'd wait on that one a while!

Biopsy

Good luck. I hope it turns out to be ok. X

Omg same… and similar timeline.

What happened?

Hi Christiann-- thank you for your comment! At your earliest convenience please contact our LRF Helpline at 800-500-9976 or helpline@lymphoma.org. Our trained staff can help to answer any questions you may have regarding lymphoma diagnosis, treatment options and clinical trials.

Recently diagnosed with cvid and Sclerosing mesenteritis after four admonial hernia surgeries.i am now facing Liver biopsy. It’s mind over matter and it doesn’t matter. That being said my need is the thirst for knowledge of these diseases is over whelming. Aniexty is the challenge of the unknown

Same here :( so scared

Hey how big were your lumps if you don’t mind me asking and how quick did they grow?

@@LymphomaResearchFoundation what state do you guys treat, I'm in Minnesota. Thank you.

Hello! Thank you for your message-- LRF is here to help. At your earliest convenience please contact our Helpline at (800) 500-9976 or helpline@lymphoma.org. Our trained professionals are available Mon-Fri to answer any questions you may have about your mothers diagnosis, available treatment options for her and even connect you or your mother with a buddy who has been through a similar situation. All the best, LRF

Hi what are you contact details

I am in Zambia, need to share information for advise

Please get a second opinion, you can't be too carfull.

@@artisansportsman8950 it actually became infected & I needed it drained last week . But the DRs wasn’t really interested in me saying I had this for 3 months. I feel much better but I’ve still a lump . They just brush you off

There have been great discoveries made even in the few months since this video was made. Dr. Evans was right when he mentioned those studies. I recently finished the retuximab treatment, awaiting the results of a scan in December. It all sounds very optimistic.

Any news on CAR-T development? I've been looking into it later before seeing this video but I've not heard them mention Follicular Lymphoma. I've been diagnosed with stage 3-4 but my specialist isn't very keen on Immunotherapy. I'm on the watch and observe for now and was told I should have 15-20 years to live but the internet is telling me 5-7. Where can you find really good info? I'm sort of doing water fasting with lots of turmerics, garlic nearly zero sugar, carbs dite as I refused chemo. Think I made the right decision? All the best to you

Forgot to mention that my side effects are fatigue and gum bleeding. I'm also 30 y.o

@@rami.nguyen hey bud how are things going with you now, I need to get to a doctor for a hard lump on my right side of my neck. Thanks

@@alittleofthislittleathat351 Hi Brian, hope you're well. Things are fine with me ATM, I would admit that I was better before with the fasting and low carb/sugar diet. There's some slow growth and spreading too. I'm guessing you're getting a biopsy out, that's good! good luck man

السلام عليكم كيف حالكم الان

Well damn Beryl. I am here for you. How’s your support team? I’m sorry this is happening and I’m sending well wishes. You got this. Hopefully you’re beginning the process of having both treated.

Thanks I've had the first R chop treatment for the lymphoma

Have them biopsy one. For many times lumps on my neck were investigated as thyroid problems and my dr only looked at blood tests. He did not really know what he was talking about. Finally another doctor insisted I get biopsy of the lump. Non hodgkins lymphoma was found they could treat it. I do not want to scare you , it could be nothing but do not give up until you have a biopsy result. Ideally ask for full biposy, not just needle aspiration. Good luck

Go to biopsy as soon as possible

How are you doing now please, I have very similar simptums. thanks

@@alittleofthislittleathat351 well thank God, I'm still alive....but the lump is still there....it usually changes size :/

Could be Hodgkin’s. If so, you won the “lottery” in that Hodgkin’s has a good outcome.

How would treating follicular lymphoma as a metabolic disease act as a treatment might I ask? Follicular lymphoma is caused by a gene translocation ( t(14;18) to be exact)and as a result, you have overexpression of the bcl-2 gene. This gene prevents natural cell death of B cells (cells that are located in the follicle which is a part of a lymph node). All unhealthy cells should die naturally and when you don't have this natural cell death, you see a malignant (cancerous) increase in size of the lymph nodes. Eventually, the lymph nodes are so saturated with these cells they are no longer functioning properly as immune system protection sites. Based on your comment, there just is no way that diet is going to change a gene mutation.

Look up Johanna Budwig. She was a scientist with a PhD in physics and later when she was around 50 years old she went back to school and got her MD license. She healed thousands of cancer patients over a 50-year period with a 90% cure rate. Her therapies included certain organic foods, mixtures of cottage cheese and flax oil, exercise for those who were able to, massage with specific oils, small portions of each day spent out in the sun, and other natural and organic methods. She went to the hospitals and often took the sickest cancer patients, stage 4, and maintained her 90% cure rate. She was nominated seven times for the Nobel Peace Prize but was pressured each time to include chemo and radiation with her natural therapies. She refused and thus never received the Nobel Peace Prize. She was the first one to speak out about the dangers of trans fats. The food companies and pharmaceutical companies took her to court 30 times and she won every case. There's another doctor Gerson that I've heard also had great success with natural therapies. Look up the Gerson Therapy. There are people all over the Internet and RU-vid who are telling their stories about how they conquered cancer with completely natural methods. They are not selling anything. They don't own companies that are trying to sell natural anti-cancer methods. They're just trying to get the word out to help other cancer patients learn that there are natural alternatives. Doctors earn thousands of dollars in kickbacks for each single chemotherapy treatment that they give every cancer patient of theirs. I read an example where a doctor might pay a pharmaceutical company $5,000 for a single chemo treatment, then they'll turn around and charge the customer $12,000 for that single treatment! I've just been diagnosed with follicular b-cell lymphoma so I'm still learning about Dr. Budwig. God bless Dr. Evens for searching for non-toxic treatments for cancer patients.

Vicki so sorry to hear about your diagnosis. I have a family member with follicular b-cell lymphoma and they have completed their treatment with rituximab and chemo and are now in remission. I hope the best for you and will keep you in my prayers.

@@vwdances , I did try this but burst into permanent several cysts in neck, groin, and abdomen after awhile. Someone said that Lyme patients should avoid any kind of oil treatment so I was concerned about the flax. Did improve extremely dry hair and nails, but I think I'm too far gone for any other treatment. Was never diagnosed but did get a few broken spinal and rib bones for no reason, lost 100 lb in few weeks, have thyroid nodules, pituitary adenoma, having problems with eyes after getting a frozen face on both sides, deformed bones all over, massive night sweatsm shirt fevers, and so on. They think it's metastatic breast cancer but I didn't have a biopsy for many years so am not sure because no MRI detected that before. Synovial cyst in spine recently exploded. Both red and white platelets have been dropping for ages now and have high calcium. Am on antibiotics now for all the cysts plus a really sore throat and ear fir a few weeks. I think that whatever it is, is going to the brain now not just because of frozen face and sore ear but also because of sore throat, worse eye focussing and a bit of memory deterioration, (but only forgetting names). Have Lyme and Epstein Barr. Back and ribs break repeatedly on same spot or else I badly damage muscles or disk slips from the compressed spine. Made extremely loud grinding and popping noise a few months ago. Low oxygen, fast heart rate, massive exposure to radiation and agents orange, white and purple in Canada. Will be eligible for an MRI early next year but only of head. Sounds like myeloma to me. Large lump under arm too but have had that for years and some days it is small and not detectable. Cysts all now turning hard. Family member had mycosis fungoides. Heart quivers sometimes lately but am not allowed EKG because I had one last year but no doctor will tell me if I have a bad heart or not. Have asked a half a dozen times. Too many health problems over the years which were just classified as immune system disorder for a few years. Not sure why they think this is metastatic cancer without a biopsy. Am esoecially afraid of biopsy now because they might have to do 25 different spots and after so much overradiation from accidents in medical tests already I don't want CT or Pet scan for sure so that's likely why they won't refer to specialists. There is nothing they can do. Sure wish DNA tests could tell. Unfortunately, no one has confidence in chemo because the poisons and extra radiation heal only temporarily and then come back with a vicious fury after a few months or years so those things seem to kill many more people than they save. This disease is just too complicated and would be too painful, expensive and harmful to diagnose.

Dosnt work ...Stop these nonsense don't play with people lives.

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