"Fragile" Stigma 

another great video my friend. god bless!

My mom and step-dad expected me to do chores around the house. I'm glad they did that too. I've even moved to a couple different places taking all of my stuff and riding Greyhound.

Very beautiful 🤩

I agree with most of what you said when it comes to strangers. I find it harder to ask for help around people I know really well. I can be stubborn just to prove I can do it. For example, wheeling for long periods of time in terrain I'm not used to being in that I'm sore for a week straight or tired by the time we get there. If I had asked for help for even 5 minutes I could have saved energy to last the entire day and lower risk of injury.

people don't understand near me why some times they see me with crutches and some times in a mobility scooter. and even time i don't use any aids if im just going over the road. i push my pain to the limits of me if i need help i will ask and not until don't be afraid of asking for help just let people know that you know your limits and if u need help u mean u need help. good luck your so young and just learn to manage the pain and do not rely on the pain killers as much as doctor gives em to you dont forget your on these things for life. i am now 53 years old and been handling this for over 30 years good luck girl and good advice x

Hello, im new to your Channel. I am a 47 year old woman with Spina Bifida. I find your videos very interesting and informative. Although i know almost all the info you have mentioned it is very good information for other that are not formiluar with Spina Bifida and all the other things that come with Spina Bifida. I noticed that you have not posted any videos in the last 3 years. Do you plan to make more videos because i would love to see more videos about you and your personal experience.

Hey there

TERRIBLE STIGMA😐😐😐😐😐