If you have Parkinson's and experience freezing, this video advises you how to improve control of your freezing using specific maneuvers. It helps problem solve situational freezing using strategies which are covered step by step.
Excellent video on freezing,but a lot to remember! Hurrying is a big no no for those with this problem. So is distractions. It appears that our brain cannot maintain focus if we are doing too many things at once. This is something we took for granted before getting Parkinson’s. It’s important to keep track of our steps especially when out walking and stopping when we need to get our bearings. Thank you for this helpful video. Good work!
I freeze a lot and I have also osteoarthritis and scoliosis at first I thought this had Parkinson's but the neurologist has said that I don't ! But that my freezing is due to the spurs on the last digits of my spine causing me to freeze so I don't really know do you think it's possibly Parkinson's Or can'. freezing happen because of other things associations with my spine , scoliosis osteoarthritis and I also have osteoporosis .doyou think it's possible I actually have Parkinson's
@@annlucy9829 Did your neurologist order a CAT scan or MRI ? Is that how he figured out there was a problem with your spine? Usually Parkinson’s starts with a hand tremor but a small number of people don’t get the tremor.
Not everyone with Parkinson’s experiences freezing so there is a possibility you may never experience it. But like you said, you’ll know what to do… just in case.
Great video! My father is off Carbidopa - Levidopa because was giving him horrible REM Sleep Disorder type Active nightmares.. They diminished almost to none off Carbidopa/ Levidopa.. But now he has less get up and go..
I tested positive for Parkinson's on a DAT scan but my neurologist says I do not have regular Parkinson's so I am on no medication. My father recently died of multisystem atrophy. I have his symptoms. I have a very progressive ataxia & walk with a walker. I have freezing particularly going out of a doorway. It is very frightening when it happens. I do best to move side ways to get moving. Thank you for posting on freezing. I use to work as an RN in long term care for many years & would see people freezing but did not know the term for it. Good tip on the sneakers & walker.
There is a device I. Italy and Switzerland and also France called gondola and this device attracted to the feet and send a certain impulses to the brain for few minutes and lmprove walking for the Patient for several days. Do you know anything about it it has been in Italy for long time please let us know. Thank you
I do not have any experience with this device. However, looking at studies regarding the Gondola, it seems to demonstrate positive improvements with walking. As with any device that helps with walking, it's best to get an individualized evaluation by a physical therapist who specializes in movement disorders/Parkinson's since everyone responds differently to a particular product. It appears that locations for a Gondola evaluation is in Switzerland, Northern Italy, Germany & France. If possible 'try before you buy' and talk to your physical therapist regarding their recommendations specifically for you. There are typically a combination of things people need to work on to improve their freezing so don't despair if this device is not available in your area.
If you are a 'freezer' (someone who already experiences freezing episodes in different situations) then stress may exacerbate or make you more sensitive to freezing only for the time you are stressed or anxious. If you not a freezer then no, stress anxiety alone will not cause you to become a freezer. Sorry for the delay in responding.
@@parkinsonsPT what I mean is anxiety stress PTSD or can you become temporarily paralysed mental alone over stressed conversion I guess what I'm trying to rule out or nuero brain damage disease it happened last week few tikes hasn't happened since took vits and few rest days drank more water , bit was scary
I'm sure it was scary, but your question is beyond my scope of expertise. I would recommend discussing with your health care provider who knows you and can individualize recommendations based on your specific situation.
I am considering a devise called a Nexstride. I was surprised to hear an ad that says freezing is because there is a wiring problem in the brain. Maybe this why my PT has not been able to help with my freezing. Also my neurologist has said that drugs will not help with freezing and work with a PT to develop exercises that will help. Any thoughts from you on the above comments. Len Pedrazzini
Freezing is a difficult symptom to treat and very frustrating for individuals who have it. I have not used the Nexstride but have tried laser devices. Typically they work initially on some individuals. I think because it's something new and they are paying more attention to their walking but then the novelty wears off and it doesn't work as well. The laser is hard to see out doors on a sunny day. I have also separately used a metronome which I found helpful since people who freeze have an arrhythmical walking pattern and the metronome helps improve symmetry of walking which then helps with freezing. With much practice (to improve with anything with walking or transfers you need high repetition to improve muscle memory so you don't have to pay as high degree of attention compared to when you don't practice). When people are 'freezers', paying attention to your feet and slowing down can help significantly. But paying attention 100% of the time, all the time is impossible and fatiguing. This device helps you pay attention but because of the cost, I would definitely look at the refund policy. I like that the device can be attached to any ambulatory device. If you look at some videos I have made regarding walking using attention strategies, see if that help since it's free:). I question the metronome piece of it. See if the rate is adjustable. I have another video about walking to a metronome or music which shows you what you need to do to accurately adjust a metronome. Some people are unable to walk to music but can use a metronome. If those don't work, the attention strategies may help or maybe you need an assist device to reduce freezing. Usually a cane is more distracting but using a walker or rollator can drastically reduce freezing.... for some. It's all trial and error and you will need to experiment what works best for you. Good luck!
im a pd patient and i freeze when my medication wears off, i go to the gym carry heavy loads and sometimes jog , is that ok i do those things? Thanks for your reply.
That’s a hard question to answer since I don’t know you. The question you should ask yourself when you’re doing any of these activities is: ‘am I safe?’ I am a strong advocate for exercise, but only if it’s done in a safe way. Another question to ask yourself is ‘when my medication‘s were off, is it predictable or unpredictable?’ Some individuals are steady when their medication‘s are working and then once they stop working, they’re not steady as in your case because you start freezing. If there’s an element of unpredictability, it adds in other layer of safety concerns. If you have access to a physical therapist who specializes in Parkinson’s, they can give you more sound advice specific to you.
Since your dad has 'off' freezing, 'Off' freezing is more responsive to visual cues. I have worked with lasers in the past and have to say it needs to be assessed on an individual basis since some individuals may not respond sufficiently or have difficulty coordinating. I do not have experience with the laser shoes but just looked at some videos on the lasers you can put on shoes. If the strap on the sole of the shoe is rubbery it may grip more - just a consideration. If he has access to a physical therapist who specializes in Parkinson's, he/she can assess what would be most beneficial for your dad.
Try this sequence and see if it works 1. Avoid rushing 2. Make sure both feet are out 3. Stand up and side step ( big steps) Until you clear the door 4 remain focused on your feet through out 5. Refer to turning video for your turns
Vous pouvez changer la langue en français dans les sous-titres sur youtube si vous cliquez sur l'icône 'CC' sur youtube. C'est un peu délicat mais j'ai essayé et ça a marché.
