Functional Neurological Disorders 

thank you for creating this video!!

That's so much easier said than done. I have this from abuse. No doctor thinks it's real, I can barely leave my house, I don't have the money for any of these things to fix it- especially when the doctors won't help me.

Cognitive behavioral therapy didn’t help. Physical therapy increased my symptoms. And the only medicine that was suggested is antidepressants. I don’t know why they say FND is treatable and can go away. I’ve had it for years and know others who also suffer everyday. I feel hopeless and the daily struggle is very hard to handle.

My symptoms didn't tick all the boxes for relevant conditions and so no treatment medication was suitable for me.

V well defined 👍

While I completely agree that functional doesn’t mean hardware or structural problem, I can’t agree that blood tests are normal. First of all CANDO study showed us that FND might be caused due to chronic low grade inflammation. In terms of inflammation, have you investigated the NLRP3 inflammasome pathway Secondly, there is usually a sudden onset. Most of sudden onsets happen post viral infection. That has to be immune mediated. Back in the days people were treated immediately with pulse corticosteroids and IVIG with 90% resolutions. Nowadays they are referred to physio and psychotherapy due to FND diagnosis. Thirdly, the blood tests are coming fine because not everything is tested. Have you considered trying TH1/TH2 ratios. Checking for autoimmunity, etc. CRP and similar markers will not spike high enough for things that happen on cellular level. Fourthly, why aren’t you parsing different areas of the brain and comparing volumes with healthy controls. There doesn’t need to be a damage to have a structural change. Overreacting immune system is keeping some people in fight or flight loop. Believing the diagnosis sometimes isn’t enough to break the loop and open the path to healing. I’m also curious, if Parkinson’s didn’t have its own name or diagnosis, would it be put in FND bucket as well. I mean it’s diagnosed based on clinical representation and tests are fine. Okay today we also have datscan, but without it, would it be another FND diagnosis?

🥺🙏🏼

I have fnd but the drs weren't believing me it is very disabling I can't hardly leave the flat I keep getting told its a software problem my symptoms seem to be getting worse I have nerves that are brick hard and stiff I take it that's part of the condition I got this due to trauma