Gangliosidosis (GM-1) Parents discuss grief, loss of dreams and day to day logistics. 

"I was drowning in grief but trying to avoid it." • Gangliosidosis (GM-1) ...
A father talks about how the hardest part for him was acknowledging the grief. For the mother, it was the loss of her dreams for her son and the new day-to-day logistics. If your child has GM-1 or another pediatric life threatening illness, these parents may help you find your way. Visit www.courageousparentsnetwork.org for more videos.