Blessings to you!🤍🙏🏾 I had a similar Cancer diagnosis of Multiple Myeloma blood cancer. It’s so amazing how even though each person’s cancer journey is different but similar in some ways! I thank God you are doing well.💪🏾🙏🏾 I myself is 6 years remission!🙌🏾🙏🏾🔥To God, myself, my support system and the Dr’s & Nurses that was responsible for my care! Hang in there with a true relationship with JESUS, you will be fine.😊🤍🙏🏾💐
Bone marrow biopsies are NOT performed on the spine. The iliac crest of your hip bone( in your lower back) is the site used for marrow biopsies. The spine is not involved.
Thank you for sharing your experiences battling a rare blood cancer. Very glad for you that the bone marrow transplant has been successful and you're feeling better. I have Waldenstrom's lymphoma, and have been on oral BTK inhibitor for 6 months. It's reducing the cancer and the goal is remission. Already I have more energy. Take care. K
Hello, I also have primary Myelofibrosis. I had been suffering from my left hip for quite some time and last January I was told that it was not a worn out hip but Myelofibrosis. My spleen was extremely large. It was in my pelvis. I then started with ruxolitinib (Jakavi) 30 mg per day. That was too large a dose. My kidney function deteriorated. Now that it has been adjusted, my kidney function is stable, but my Hb is low. My wife is a foot reflexologist and she gives me a foot massage every week. This helps a lot, the pain in my hip is completely gone and comes back a bit after 6 days. I am currently still at home and the hematologist/oncologist does not allow me to work. At the end of June 2024 I have to go to the hospital again for a physical appointment. My blood is checked every month and the next day the doctor calls me about the results and what should be done. I wish you much strength and many more good years. I'm from the Netherlands.
