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My RARE, AGGRESSIVE Lymphoma Story - Michael | The Patient Story 

The Patient Story
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Michael started experiencing major exhaustion and terrible night sweats. After seeing his family pediatrician for blood work, he was referred to a specialist for a bone marrow biopsy. At first, they had no idea what kind of cancer Michael had, but the doctors were preparing him for chemotherapy treatment any way. A few weeks later, Michael was diagnosed with Hepatosplenic T-cell lymphoma, a very rare and aggressive type of non-Hodgkin's lymphoma.
He shares how he underwent a life saving bone marrow transplant, how he's still dealing with graft-versus-host disease (GvHD), and the treatment he is still on.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #rarecancer #bloodcancer #lymsm #exhaustion #nightsweats #nonhodgkinslymphoma #gvhd
The Patient Story:
The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
[Video Chapters]
00:00 Introduction
00:52 My first symptoms
02:43 Undergoing a bone marrow biopsy
03:28 Getting the diagnosis
04:40 My treatment plan
05:15 Undergoing a bone marrow transplant
06:40 Doing radiation and chemotherapy - What helped me with side effects
07:56 I developed graft-versus-host disease
08:58 Living with GvHD
09:30 What treatment I'm on for GvHD
10:13 Survivorship
11:40 My biggest advice
12:16 You should never feel alone!
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The interview has only been edited for clarity. The interview has only been edited for clarity.
How I Found Out I had a RARE Cancer - Michael | Hepatosplenic T-cell Lymphoma | The Patient Story
• My RARE, AGGRESSIVE Ly...

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1 июн 2024

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Комментарии : 112   
@kaia0821
@kaia0821 Месяц назад
I can’t imagine a doctor telling me not to look something up. I’d be on google asap.
@anaferguson5135
@anaferguson5135 Месяц назад
Nothing like a MOM to take care of her child! I hope that you stay in remission and get rid of this cancer. You are very brave! TYFS your story with us.
@19th-Nervous-Breakdown
@19th-Nervous-Breakdown Месяц назад
Exhaustion, night sweats and fever are all symptoms of lymphoma. Good luck to you, young man and, hopefully, you are in a permanent remission. God bless. 🎉
@jodythi1
@jodythi1 Месяц назад
I work in oncology in Miami and I also specialize in leukemia and lymphoma. I’m praying for you!
@SculptExpress-gv8jp
@SculptExpress-gv8jp Месяц назад
My friend had the bone marrow transplant 30 years ago for the same illness and she’s been fine ever since. The recovery was tough, but she slept a lot and ate healthy home made food (soups, salads, meat, fish, fruits..) and it got better🤞. So, now that they have even better treatments, you’ll be fine 🙏🎈❤️
@merryponidjan7753
@merryponidjan7753 Месяц назад
Having a good mom is truly blessing for those who have unfortunate life. Happy for you and your mother. Keep strong 🥰
@luvfunstuff2
@luvfunstuff2 28 дней назад
My nephew survived a grueling battle withblymphoma too. It's been a long journey but he's still progressing. You are an amazing soul, thank you for sharing your journey and the wisdom you've gained. Sending you healing hugs 💝
@mikebel74
@mikebel74 Месяц назад
What a beautiful, powerful soul you are. You have the wisdom of an 85 year old at 20. That’s rare. I’ve battled the beast twice, and I’m 67. At 19, I hadn’t a card in the world. All the best to you and your loved ones. You’re a giant among men. I hope and pray you’ll beat this and love a long, healthy, and fulfilling life. I have a feeling that you will.
@terismedley7467
@terismedley7467 Месяц назад
A diagnosis of a very rare cancer makes everything more difficult. My husband was diagnosed with a rare cancer (at the time he was diagnosed there were 51 known cases in the world). Finding the right oncologist with a rare cancer is a challenge. I can't imaging how we would have navigated this without the tools available on the internet. Blessings to you and your mom!
@lillyrocks82
@lillyrocks82 Месяц назад
Hi! How did he know he had cancer? What were his symptoms? I hope he's doing well. ❤
@terismedley7467
@terismedley7467 Месяц назад
@@lillyrocks82, he noticed a small, painless lump in his neck while shaving two days before we were leaving on vacation. We decided that if it was still here when we returned he'd have it checked. At first they thought it might be lymphoma of some kind but after surgery and pathology he was diagnosed with Follicular Dendritic Cell Sarcoma. Interestingly enough, four years later when he was at a follow up appointment on the FDCS, he was also diagnosed with Chronic Myeloid Leukemia. He's doing well now!
@renatevolckel3312
@renatevolckel3312 Месяц назад
Gesundheit und Glück wünsche ich ijnen
@user-fb8uw1ui5x
@user-fb8uw1ui5x Месяц назад
Michael, I was diagnosed with Grade 2 uterine Cancer and I had a hysterectomy with a Bso and did radiotherapy instead of chemo. Now I'm on a mission to help others. God speed 🙏❤️🙏❤️..
@katarzynabaginska8379
@katarzynabaginska8379 Месяц назад
Michael, what a strong, brave, smart and wonderful guy you are🫶Sending lots of positive vibes to you and your family❤
@minnesotagal507
@minnesotagal507 Месяц назад
Good for you, I am a survivor too at 67 .
@NickUncommon
@NickUncommon Месяц назад
Mosg lmportant quote "Its not easy, going through cancer, its not just going to be over" Most outsiders (the ones who do not live with a cancer diagnosis) think, they can compare it with a bad cold, which leaves nothing behind unless post viral malaise, if you are unlucky. A body dealing with cancer and the treatments is no walk in the park, that leaves you with just a memory.
@stellacontreras7740
@stellacontreras7740 Месяц назад
Prayer, I lost my mother, and two sisters to cancer. A one older sister is a lung cancer survivor . I'm doing good right now At 67 years old. But Cancer is always in back of my mind. Great mother ❤️ young man. Prayer for strength from our Lord.
@stephmartin1148
@stephmartin1148 Месяц назад
Oh bless you and the loss of your mother and sisters to cancer!! ❤️ Prayers you stay healthy!!
@-MaryPoppins-
@-MaryPoppins- Месяц назад
And may it stay back there!!❤️
@SanzL1
@SanzL1 Месяц назад
Your mom is a real cheerleader! Bless her heart. . . and bless yours! This is a trial of trials. I hope and pray that one day all of this will be better.
@fawnlengyel1725
@fawnlengyel1725 25 дней назад
You are a strong young man. You have been through so much! It's beautiful to see how strong an advocate your mother is for you. May you have a life of good health from here, my fellow survivor.
@donnae9566
@donnae9566 Месяц назад
Your mum absolutely ADORES you. It's clear for the world to see. You absolutely have to stay well.
@sarahA289
@sarahA289 Месяц назад
Prayers for you. I am the mother of 2 boys. They are now 23 and 25. We have had our own struggles as well. I can relate to the bond that you and your mother share. Take care.
@user-ef4df8xp8p
@user-ef4df8xp8p 14 дней назад
A handsome, sweet and smart guy.....Stay strong.
@anastazijamuller5278
@anastazijamuller5278 Месяц назад
Sie sind wirklich ein starker junger Mann und haben eine wunderbare Mutter. Beiden wünsche ich von ganzem Herzen alles Gute.
@crystalclink
@crystalclink Месяц назад
What a wonderful and well spoken young man and awesome mother!
@ny_njtrailrunnert926
@ny_njtrailrunnert926 Месяц назад
You hit on some very important topics that are not discussed a lot in the cancer space, such as the PTSD, and physical changes. I could not imagine how difficult this must be for you at times. Sending big healing vibes your way, keep up the amazing work of spreading awareness.
@kkormanik
@kkormanik 19 дней назад
My husband was diagnosed in July 2020 with Large B cell lymphoma. It was a rough hall with his chemotherapy 4 days non stop IV’s in and out of the hospital for 4 months lots of hip biopsies, blood transfusion, platelets transfusions because they could never stay up everything that needed replaced was. Lots of trips to the hospital in between to Shadyside hospital in Pittsburgh and the Hillman Cancer research clinic which was supported by Mario Lemieux wing when he had his blood cancer. My husband suffered a relapse after exactly 3 years in remission. Had his appendix removed and are watching his lymph nodes in his lungs. Had 3 months of Chemotherapy again and deemed in remission again in January 2024. You are right exercise is key and lots of prayers. He has bad neuropathy in his hands, feet and legs but he’s alive. God be with you in your cancer. journey and
@doodleacademy
@doodleacademy Месяц назад
What a strong, brave, and delightful young man you are Michael. Thank you for sharing your story. Blessings to you and your angel of a mom 🙏
@rogermoore2293
@rogermoore2293 Месяц назад
Wishing you the very best of luck from England Michael, you're an inspirational young man. Thinking of you and your mum and sending you love.
@greeneyedcat717
@greeneyedcat717 Месяц назад
Your honesty about your cancer journey and survivorship is truly inspiring and there are life lessons there for all of us, no matter our situation. You and your mum are a force for good. Thank you for sharing your story Michael.
@TaciaDC
@TaciaDC Месяц назад
Thank you Michael for sharing your story, and thank you to this page for featuring Michael’s journey with T cell lymphoma. My father (66 y/o next month) is currently being treated for peripheral T cell lymphoma. Sending prayers & healing energy your way ❤
@Ceerads
@Ceerads Месяц назад
Thank you so much for this intelligent, informative, caring video that will help so many. I’m so sorry you went through and continue to go through such an ordeal, especially at your age. What you said about how it is once one has had a cancer is so true: physical after-effects of treatments; PTSD; always aware in the back of one’s mind that it can recur or a new primary can develop. I’m a long-time breast cancer survivor much older than your mom, and everything you said here rings true to my experience. I wish you and your mother all the best. P.S. Seeing how you ate your pizza slice, I knew you aren’t a New Yorker or from New Jersey! We fold. 😂
@renataloren2384
@renataloren2384 Месяц назад
Thank you, Michael for sharing your story. Sounds like you really went through some hard times but it looks like you have a good support system. I’m glad you’re cancer free for the past three years and I pray that you will be cancer for the rest of your life. Your still a handsome man and I wish you so much happiness and love in your life! God Bless you always!! 🙏🏻🙏🏻🙏🏻💖💖❤️❤️
@pil-it7306
@pil-it7306 Месяц назад
Keep fighting brother. You are very lucky because your mom imwas with you in your cancer journey. God is with us always ❤
@sallymccoy6286
@sallymccoy6286 Месяц назад
What a brave young man you are. Thank you for sharing your cancer journey with us. Especially, with the young fighters as yourself. You give hope and strength to both patients. Drs and parents with your heart and encouragement I hope your cured or at least in remission at this post date of 4/22/24
@user-hx6nt9ju2i
@user-hx6nt9ju2i 24 дня назад
I have seen a lot of videos from doctors here on RU-vid explaining how to starve Cancer.I wish you all the best God bless you
@splash6427
@splash6427 Месяц назад
🙏 ❤️ 🙏 For You Always & Forever
@Gengingen
@Gengingen Месяц назад
You are not only brave but full of great character. God bless you with continued good health & cheer.
@MartinKerr-uq8yg
@MartinKerr-uq8yg Месяц назад
Thanks for sharing your story. You rock 👍🏻😃
@denisesalles7248
@denisesalles7248 Месяц назад
Damn you've been through a LOT. Much respect to you and your Mom as you navigate this challenge.
@tatianaschoenfield9819
@tatianaschoenfield9819 Месяц назад
Congratulations on your successful fight with this cancer. It was a tough road. I wish you health and well-being for your life. Regarding the nausea, a family member started eating only spicy Indian and Chinese foods, which helped during chemotherapy.
@michellethaler1832
@michellethaler1832 Месяц назад
Your team - mom and you - are the one of the most incredible units out there on the internet. I wish you and mom the best of the best. You are amazing.
@elainesagoes6089
@elainesagoes6089 Месяц назад
Stay strong
@cheryllieberman9339
@cheryllieberman9339 Месяц назад
Wow. Youve been through a lot for someone so young. My heart goes out to you ❤❤❤
@sailboatrn7372
@sailboatrn7372 Месяц назад
Thanks for sharing your story!!
@user-dx4io5yg4l
@user-dx4io5yg4l Месяц назад
Your amazing for sharing your story❤❤❤
@joycepayne3505
@joycepayne3505 Месяц назад
My goodness young man. Sending hugs and prayers for healing
@sandradalessandro2935
@sandradalessandro2935 Месяц назад
You. Are just amazing. But so is your mom. God. Bless you both!!! ♥️♥️♥️♥️♥️
@Jones2816
@Jones2816 Месяц назад
I have followed Michael on Instagram since the beginning. You have such a big voice for others going through the same thing.
@amybusch9253
@amybusch9253 Месяц назад
Thank you for sharing your story and detailing your good fortune with finding a donor with stem cells to ensure your future excellent health. Many people will learn from your experience! ❤
@junedolson1642
@junedolson1642 Месяц назад
I'm so happy that you are on remission & you have your wonderful loving mom.
@stevengower
@stevengower Месяц назад
If a doctor says don’t Google it or look it up that means you do go look it up lol
@jackzfun
@jackzfun 16 дней назад
What an amazing and inspiring story. Thank you...
@paulinearnold1801
@paulinearnold1801 Месяц назад
Good on you. Well done. You’re right, it’s never really over. You’ve definitely made me feel better as i sometimes feel bad that i don’t feel more upbeat since my cancer experience. You’re a wise young man. Wish you all the best
@Ceerads
@Ceerads Месяц назад
We should feel what we feel: upbeat, downbeat - whatever. I, too, am a cancer survivor. As Michael said, cancer leaves a deep mark, physically, emotionally, and mentally. Be well.
@nancykistner7167
@nancykistner7167 Месяц назад
Thank you for sharing. You are so wise and helping others is a gift you are giving. ❤❤❤
@PC-dc1kv
@PC-dc1kv Месяц назад
You are a very wise young man. You have acquired more wisdom and grace in your few years than many people have in a lifetime. I can see the love and understanding in the eyes of your mom and you. God bless you and your family as you are a blessing to many. ❤
@seanscott685
@seanscott685 Месяц назад
Strength and healing to you Michael 😊
@LS-lq1pc
@LS-lq1pc Месяц назад
May God have you in His grace!
@dianareddell1496
@dianareddell1496 Месяц назад
That’s such a great story. Thank you for sharing it and spreading hope and strength to others battling cancer. ❤ 🙏 for your continued success and happiness.
@Kbe986
@Kbe986 Месяц назад
Michael and mom! That is so cute!
@susanmonty791
@susanmonty791 Месяц назад
You can feel and look good and still have cancer. That was my story
@gingin1050
@gingin1050 Месяц назад
😢. Smart child❤
@GinaHolmes
@GinaHolmes Месяц назад
God bless you. Love your honesty.
@sueu6263
@sueu6263 Месяц назад
Keep the positive vibe💕 Wishing you the best , I’m going through my own cancer journey 💕
@Ceerads
@Ceerads Месяц назад
As a sister cancer survivor, I wish you all the best.
@DCFunBud
@DCFunBud Месяц назад
You mom seems so nice.
@ilovesketching1
@ilovesketching1 Месяц назад
You are a trooper your amazing your strong your brave NOOO YOUR A WARRIOR!!!! May the Lord extend his healing hand on you and draw you unto him self.
@HopeKrakowski-hu8wh
@HopeKrakowski-hu8wh Месяц назад
You are beautiful!🥰 & your mom too! Thank you! 🙏🥰🕊
@user-fb8uw1ui5x
@user-fb8uw1ui5x Месяц назад
I'm praying for you Micheal 🙏❤️🙏❤️...
@user-pu5ys9he1z
@user-pu5ys9he1z Месяц назад
God Bless prayers always 🙏🏻❤️
@kcirtap8120
@kcirtap8120 Месяц назад
Thank you for this post …you are wonderful!
@ruthgoff3540
@ruthgoff3540 Месяц назад
God bless you. You've been through a tremendous amount of stuff for someone so young. ♥️
@nancydavieau
@nancydavieau Месяц назад
God Bless you Michael - you’ve been thru so much - - take care
@wendycampobasso4351
@wendycampobasso4351 Месяц назад
What a wise young man! God bless your heart! ❤️
@gypsyspirit5615
@gypsyspirit5615 Месяц назад
What an inspirational young man you are Michael. I will pray for you and keep watching your content. Bless your mum for being by your side throughout this entire journey - I have 3 adult children whom are my whole world, and would do exactly the same. You are looking very handsome and well especially after everything you’ve been through. Thank you for sharing your story to educate and support other families going through this. I wish you blessings of health & happiness. ❤ Love from Australia.
@bojan353
@bojan353 Месяц назад
this was powerful. thank you for sharing.
@gretchen2428
@gretchen2428 Месяц назад
God bless you 🙏 ❤️
@jillcoe4695
@jillcoe4695 Месяц назад
Excellent attitude. Prayers and hugs to you and your family.
@TON-os4ev
@TON-os4ev Месяц назад
Your family has been through a lot ❤
@davisholman8149
@davisholman8149 Месяц назад
Your strong athletic body is what saved you. Those muscles can come back when your body is totally ready! You are still a handsome, well spoken young man - best wishes that the cutting edge treatment you are receiving gives that wonderful body every bit of help it needs. Thank you for sharing.✌🏾😎🌵Scottsdale, Arizona
@brooks6348
@brooks6348 Месяц назад
Thanks for sharing. You have taken something terrible and handled it with grace. By sharing your struggles you are giving hope to others. Best wishes for future healing!
@emmainjapan
@emmainjapan Месяц назад
Bless you -- may you thrive.
@LLS710
@LLS710 Месяц назад
This was good.
@lisaruple9880
@lisaruple9880 Месяц назад
I am praying for you!!!
@tracyk9174
@tracyk9174 Месяц назад
Sending you love and strength . Wishing you all the best . And thanking for sharing your experience to help others . God bless you and your wonderful family❤️
@lesliemorris5695
@lesliemorris5695 Месяц назад
Prayers for you!!! You are blessed to have a mom like yours!!!
@debishaw9355
@debishaw9355 Месяц назад
God Bless you! You are an inspiration!
@lisalisams
@lisalisams 11 дней назад
I too was just diagnosed with a very rare aggresive cancer. They say less than 1% of people get it. I think its called primary splenic diffuse large b cell lymphoma non hodgkins w/ bulky disease in all the large tumors that have taken over nearly my entire spleen . Chemo starting next week 😢
@paulnegro8383
@paulnegro8383 Месяц назад
Be careful! A friend of mine was cleared and rang the bell. 3 months later they found cancer in his lungs and he dies two weeks later during the night unexpectedly from a clot.
@-MaryPoppins-
@-MaryPoppins- Месяц назад
That’s terrible. But cancer patients don’t need anymore negativity. They know the statistics.
@FlaGrown1955
@FlaGrown1955 Месяц назад
My son got myocardits, and he has PTS and needs therapy. He thinks every little thing on his body is going to give him myocardits again or he has cancer.
@DCFunBud
@DCFunBud Месяц назад
3:32. Was the diagnosis "Apollo splenic T cell lyphoma" or Hepatosplenic T-cell lymphoma? Never mind. I read the caption.
@judymastrogiacomo9204
@judymastrogiacomo9204 Месяц назад
🙏🏻🕊
@catherinealexandrian9927
@catherinealexandrian9927 Месяц назад
❤❤❤❤
@Blountbabe54
@Blountbabe54 Месяц назад
Wow! I am amazed at your maturity and wisdom at such a young age! Thank you for your openness and candor. Your platform is important, so maybe that is the lesson you have been given. I pray that you continue to get stronger, healthier, and kick cancer's butt!!! And, you've been blessed with an awesome mother!!
@barbaraminto6709
@barbaraminto6709 Месяц назад
❤ UK ❤
@billieforrest678
@billieforrest678 Месяц назад
❤❤
@deniseb2571
@deniseb2571 Месяц назад
🙏
@ericahalmai8490
@ericahalmai8490 Месяц назад
Did you get the vax? How many ..😰👿. I wish you all the best for your & your mum, you will get through this 🇦🇺🍀🙏🌈
@leo0986
@leo0986 Месяц назад
Can someone share his YT channel please?
@michelles9897
@michelles9897 Месяц назад
🤍
@Starfish2145
@Starfish2145 Месяц назад
Why on earth would a young healthy man get this? Doesn’t seem right
@ruffledfeathers8716
@ruffledfeathers8716 Месяц назад
There's a lot of yound people getting stage 4 cancers these days. The doctor's are baffled 🤔
@tigerspiritjourney
@tigerspiritjourney Месяц назад
How many covid jabs did you get?
@ruffledfeathers8716
@ruffledfeathers8716 Месяц назад
It only takes one shot of MRNA to reprogram your body sadly 😢
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