Grace's Story | Nephrotic Syndrome | UPMC Children's Hospital of Pittsburgh

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At 9 years old Grace Colbert was struggling to put on her dance leotard when her mother noticed that her young daughter was extremely swollen. That episode resulted in a diagnosis of a rare condition called steroid resistant nephrotic syndrome. Watch the video to learn more about Grace's journey. Learn more about the CRDT: www.chp.edu/ou...

Опубликовано:

8 сен 2024

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Комментарии : 25

@tishannb3663 5 месяцев назад

My son is 17 and this came out of the blue.

@DaveGII-id6dk 2 года назад

I had nephrotic syndrome and "outgrew" it at 24 even though I had puberty years before. Don't lose faith. When it's time it's time

@arjumandakbar4119 11 месяцев назад

How long did it take?

@DaveGII-id6dk 11 месяцев назад

@@arjumandakbar4119 I was 21

@DaveGII-id6dk 11 месяцев назад

21 years

@arjumandakbar4119 11 месяцев назад

I'm struggling with the disease, haven't spoke to a single person with the same condition. Can you share your contact detail to discuss a few things with you?

@DaveGII-id6dk 10 месяцев назад

@@arjumandakbar4119 I'm more than happy to speak with you here.

@Jaisee14 5 лет назад

What a beautiful girl.

@AnnaHovanec 7 лет назад

I never would have known because your so beautiful and this was a beautiful video! 💞💞💞

@paulfiniak5123 5 лет назад

My son is 4years old and he's being relapsing every month he's being ending up in the hospital every month is such I feel so bad he's gotta go tru this

@DaveGII-id6dk 3 месяца назад

I was hospitalized twice for it...age 4 and 6...just know the care is much better today than it was 30 years ago when I had it.

@ravipandey3200 3 месяца назад

@@DaveGII-id6dkAt what age did you outgrew from this disease?

@DaveGII-id6dk 3 месяца назад

@@ravipandey3200 19

@thetalayfamily7552 9 часов назад

Hi! How did you know that your nephrotic syndrome was caused by a chicken pox? My son was diagnosed with nephrotic syndrome by January first week and before that, he had a chicken pox around 3rd week of December.