Her Doctor's Diagnosis Was VERY Wrong 

I mean, they all just need their hysteria treatments, right?? I'm just waiting for pain management for gynecological procedures to become a thing...

Thank you for being one the doctors that point this out and see it for what it is. I've found that it's pretty much a guarantee you will get that treatment in many scenarios if anxiety is actually listed in your medical records. I once went into the hospital because I was having severe chest pain that would not go away even though I took three baby aspirin and lay down to rest in the hopes it would pass. When I got there, it was extremely busy, so they shoved me on a cot in a hallway and practically ignored me. They never hooked up an IV to check enzymes. I never even saw a doctor. There was literally nothing. A couple hours later, a nurse comes by and says, "It's just anxiety, you can go now," and practically shoved me out the door even though I told her there was still pain. I wasn't knowledgeable enough then to advocate for myself properly, but I have no doubt I would not have made it through the night if it my husband didn't have nitroglycerin tablets on hand for his own heart condition. It's sad that our healthcare system is like this.

I think it's outrageous that we still get "hysterectomies" instead of uterectomies.

Can confirm based on my experience! I was diagnosed with anxiety and sports induced asthma, but later found out I have a heart condition! With the meds I’ve been on, I feel so much better!

its a lifelong problem too - from a young age girls are more likely to be diagnosed with 'emotional' mental health conditions (depression, anxiety, bipolar disorder even) rather than diagnosed with what they're actually having issues with (ADHD and Autism are two big ones that come to mind, but physical health issues also have this happen too, even from elementary school age).

I don't think it matters that much if the doctors are men or women, it matters more that the original studies were done on men. Men and women often have different symptoms and if doctors are taught how to diagnose the symptoms according to how they present in men, lots of women will get misdiagnosed. I feel like this will probably happen even more now with trans people and cross sex hormones thrown into the mix.

​@@commenter5901And women respond to pain differently than men.

Same. Diagnosed with Lupus after 12 years of being made fun of and told to go to the gym. So hard to lose weight with fatigue.

@@commenter5901 doesnt matter if doctors are men or women, vut I think it was said because ppl like to believe only male doctors do this which isnt true. I heard of quite a few unhinged female doctors.

@@commenter5901 original studies? hahahhahaha

Crikey!

They used to remove uteruses to cure "hysteria" which is why they call it a hysterectomy.

my pcp just told me I can't have any gynecological issues impacting my nervous system, I keep having *very* weird syncope events that happen in a prone position, not even POTS-like, they come associated with intense pelvic & low abdominal pressure fun fact: images of my cousin's endometriosis were featured in a medical journal bc it was so bizarre, she knows this, but she's the gatekeeper & i'm now too sick to go chasing 2nd opinions also im def losing weight at all my visits, mysteriously send flowers to my funeral, yall

I can believe this - my ovarian tumour pressed on my leg blood vessel causing gripping pain and it was that pain which got me to the doctor demanding answers, then the previously dismissed IBS symptoms turned out to be endometrial OC and the blood clots had by then spread to the lungs as pulmonary embolisms….

@@user-xx1tm5fe9uor, the other way round 😁 uterus is Latin and hystera is Greek. Medicine loves to mix Latin and Greek.

what?! I can't believe people are working in the health care department to question their own patients' own mental state and their health history. I hope you're doing better. ♥️

I see you. So sorry.

@@alexisshields6623 Sadly there is no true cure for PTSD or my other diagnoses (autism, depression, generalized anxiety, ADHD,. and more), but I have a friend group that supports me, medical staff that I trust with my life, as well as medication that personally helps me immensely. My life is FAR from perfect, but I am hoping to start talking about my experiences and my life on my channel to try to normalize speaking about mental health and make it less taboo as most of the population has some sort of struggle.

@@ColorJoyLynnHThere is no need to be sorry! My experiences as much as they sucked, helped build me as a person, and I am more than happy to share my story if it means educating others and encouraging others to get help. Not all doctors are trash, and sometimes it means continuing to fight to get the care you feel most beneficial for yourself.

Exactly, just having a diagnosis gives you some control back over your life, you can explain it to others and employers, you can manage expectations and find out what works for you to make your life easier or just to manage your symptoms, and also get to know how long this is going to last and how it will affect you

ALWAYS. The us health care system is terrible

@@unprocessed_lifefree health care here😅

@@OhBabyLemeWisperInYoEar It's not even that good, waiting times are astronomical, healthcare professionals are underpaid and people are often disregarded if their condition isn't immediately life-threatening. Don't even get me started on mental health care 😭

Of course this comes with its own pitfalls... too many stories about what happens to patients who get the reputation of being "difficult"

I'm the patient who so thoroughly researches her symptoms that I accurately diagnosed my own diseased gall bladder. My doctor got it wrong.

I am so sorry for your years of unnecessary pain.

15 yrs for me too. Wasn't until I was thin I received correct diagnosis. When I was overweight, docs blamed everything on that.

​@@ChubbyUnicorn this is so sad, i'm so sorry for you!

I'm currently living with some undiagnosed problem and my doctor told me years ago that some people just always feel sick and in pain and there's nothing you can do about it. I have days where I can barely open my eyes or get out of bed, I have sores in my mouth all the time, everything hurts, almost all food bothers my stomach, I'm a healthy weight but I had a hysterectomy when I was 31 so I'm post menopausal (just turned 40). But I've been having these problems and unable to hold down a job for almost 15 years now and my doctor (who is a woman) just brushes it off and never gives me any advice other than to eat healthy, get good sleep, do daily exercise, etc. Is it really normal for some people to feel like this when nothing is wrong with them?

​@@commenter5901no it isnt. But people like me(and you by sound of things) get dismissed. Ive lost 60 lbs. No less pain. I quit the doctor about 8 years ago.

It’s so sad. The number of threads in RU-vid comments, not just this channel, of women who’ve been told their periods are “normal” (because of course debilitating pain and two week long periods are “normal”) and went decades before being diagnosed with endometriosis is depressing.

My neighbor's husband found out he had pancreatic cancer so his wife called an office to make an appointment for him and the first thing she was asked was what insurance did he have.

@@AndeH7 There is one optometrist in my rural town. You can't even make an appointment if you don't have insurance.

You are definitely not the only one, and furthermore, it's that disregard for the health of POC that makes people avoid going to the doctor until things get desperate. It's not an exaggeration. The modern medical system is terrible.

I thank God for living in a country with free national health service. Access to universal and generally free health services is guaranteed in our Constitution. I don't understand the reluctance of the United States to adopt a state-owned national health service instead of relying on a monopoly on private health services. We also have and use health insurance here, but they are optional. free public service is assured. and I live in a much smaller and poorer country than the USA

I really wish we could take the taxes that the ultra-rich get out of paying and reinvest in family medicine practitioners setting up practices. People need to connect to doctors that see them frequently and know the community.

Literally

Your not wrong.

ikr

I thought this was Sambucha's comment section

He used to be our Doc, while he was a resident. And this is so true. He realizes how being low income affects your health and health decisions.

So sickening!!! I’m glad she finally got treated!!!

That's pretty surprising, nowadays it's kinda the opposite for me where every doctor I see wants me to do a sleep study because of my weight even though I sleep and breathe just fine because it's such a big industry. Those sleep centers make a lot of money and get a lot of unnecessary referrals now.

Thank you Dr. Mike

There was an article on Huffington Post not long ago about a doctor who nearly died at the Eleventh Hour because other doctors disregarded his symptoms and the obvious treatments for them. Unfreakingbelievable. And during the thick of the Covid crisis, there was a doctor who was hospitalized with the virus. Her medical team completely disregarded her knowledge and self-assessments . . . and she *died*. Not only was she female, she was a woman of color. Absolutely horrific.

ppl these days are so sick im convinced ppl are these line of work arent treating these ppl purposely

I got treated in a similar way with pernicious anemia but my doctors were so convinced that they were right...that I was a mental patient...that once I started the B12 shots and got better, they were still telling me I had a psychosomatic condition and went so far as to say the B12 was a placebo. I feel like I'm living in some sort of medical Twilight Zone. Either that or I have a knack for finding all the idiot doctors.

Please get tested for celiac

Oh my god, If you had a gastric bypass, the first line of checkups always must be Vitamins and Minerals. Fix the imbalance and then check again. Funny how the doctors don't know. I have a gastric sleeve and always test non-deficient... bypass does include deficiency always.

I have hypermobility that is thought to be from Ehlers Danlos syndrome. I've been told I'm accident prone, clumsy and impatient since I was a little girl... Tried to explain to my family. Was told I was exaggerating and being dramatic. I don't tell my family anything now, their opinion, advice or "support" is unhelpful and I refuse to listen any longer.

@@dotcassilles1488 those hurts can last a long time, but give them grace....they didn't know either.

Same with my mom.

Same with my mom, but with fibromyalgia instead. (She developed it in the early '90s.)

Same for me - except I'm still in process of going through the diagnostic phase for lupus.

@@diy_nailsby_heidi_r3889 sending all the good energy to you so you can get the medical system to figure it out and provide you proper care. ❤️

wtf is going with women who have this very specific issue having to go through this bs and for over a decade in some cases ?

Yep

Yep

It's not just america that has this issue australia does as well, I keep on getting nausea and they tell me its just my period :D My mum calls me a hypochondriac and it seems the doctors have too and just think that im overreacting.

@@sttump8110 In Latvia doctors are really bad at diagnosing Lyme disease they usually wait tell a tale sign of red spot but it's only in 40% percent. My grandmother had hallucinations etc so she went to psychiatric and she described some heavy drugs for her it made things just worse! Later I banned grandmother for using those drugs than asked grandma what she is eating and what other drugs or supplements she is using - turns out she was using wormwood and at that moment it was clear for me but why didn't doctor asked thoes questions just write prescription for heavy drugs for patients with real mental problems .....

I can vouch for the fact that there are docs like him. I suspected I had endometriosis for years, but even at the age of 29-30, not overweight, etc, no doctor would take me seriously (all male) until I finally found one who listened to me. He was my doctor for over 30 years after that. I did have it, and ended up having a total hysterectomy at 32. Who knows if I could've avoided that if they had listened years earlier. My doc recently retired. He would actually ask me, "So how is everything else going?" at my yearly visits. I see mainly a woman PA now, and she is almost as good. Glad to see young docs with a great attitude as well, Dr. Mike. To fellow patients, don't give up. If your doc isn't responsive as Dr. Mike has laid out, keep looking until you find one. Never feel awkward or demanding to mention what is happening. Practitioners need that info even tho they're busy. If you are compromised due to health, it is a good idea to bring an advocate/friend/partner with you, especially to procedures. I work in healthcare.

What is the condition?

@@thelegioncollective called familial mediterranean fever :)

Bless you! There will be kids whose lives you change just by being interested in them & believing things they tell you.

I also had bad symptoms as a child that children shouldn't have. I was diagnosed at 19 with an autoimmune disorder but wasn't aware until recently at 31.

@@PyroWolfofEarth Wait, what? How did they not tell you? I'm sorry you had to deal with that.

Same.. I'm so sorry. Our profession needs alot of re-education.

@@eli4delmar As a non-professional, I've found it useful to say "Uh, well *this* doctor said such and such, and it worked", such as when I refused Darvocet when offered for what had previously been diagnosed as ulnar nerve entrapment. I responded with "Don't opiates not work well on nerve pain? I was prescribed braces in the past, they just don't fit anymore." Got my wrist braces, and apparently a whole not of "not drug seeking" cred. Even if I didn't dispute ulnar vs the PCP's diagnosis of carpal tunnel -- both are fixed by braces as the first step, and the braces aren't different. Or, when I was starting with a new PCP to work with fibromyalgia, I'd mentioned tizanidine worked well. He started to write it at the dosage for acute musculoskeletal trauma. I said "Um, is that really the best idea? I'm afraid it'll have me knocked out. The time it was prescribed to me the doctor went by a titration schedule." He Googled "tizanidine titration" and found what I was talking about, and agreed that seemed like a way to best reduce side effects if someone was trying to use tizanidine to address over-spasticity of muscles (plus, well, I really DIDN'T want to be laid out daily by the meds.) But I've spoken with others who can't "dance around" topics like I've learned to do. And it's sad that I've already learned before I was 50 that I'd better reference how another doctor managed the conditions rather than express my own research or knowledge.

This is exactly why I don't want to go back into healthcare.

I’m sorry but how a person that knows what they’re talking about and has the same history as their current doctor doesn’t believe you?

@@eli4delmar It's like, the medical community has itself to blame for a lot of the distrust towards medical professionals. Needs to police itself better.

THANKYOU for working in autoimmunity. It's a nightmare and we need all the help we can get ❤

Okay I might be dumb but what does being overweight have to do with screaming?!😂 These doctors blaming everything on weight is killing me!!

@@tattyg5074nah fr it gets outrageous sometimes, like the pain my mother has since she was a child was blamed on her being overweight (she was obese but she has been a very thin teenager), now she is “normal” weight and the pain is still there

Basically the same thing except longer

Not female but it took me from the time I was a teenage to my 40s to be diagnosed with hypothyroidism and also psoriatic arthritis (have been in a flare for three solid years). Doctors would constantly just tell me it was my weight and to eat less and exercise more. They would look at me like I was lying when I told them I could climb stairs without getting winded, walk across town without having to sit down or get exhausted and that I have to starve myself to lose weight. It wasn't until my late 30s that I found doctors that would listen to me and start running tests and find out what was wrong.

God I've had 10 years and my doctor suspects an autoimmune disease but none of the tests came in positive

8 years for me, no idea how many doctors. Told it was all in my head so many times because I look normal and I still deal with physical pain every day that doctors just don’t feel like figuring out 🫠

Same for my mum. She spent her entire 30s being dismissed and has been on LTD for 20+ years. She was even sent to a psych unit for two weeks by her insurance company because they wanted to prove she was making up her symptoms. And what's worse, she only got diagnosed because she has a degree pharmacy and was able to do the research that got her diagnosed.

idk how it is in the States, but I've been in pain for over four years now because of the runaround and negligence here in Canada, and I would would not consider myself exceptional in that regard, but it might happen in the US, too, I don't know, it seems like the most ridiculous negligence and wait times you can think of, Canadian Healthcare somehow surpasses that level of ridiculous, but again, I don't know what it's like in the US.

Let be honest all heathcare systems have problems/underfunded etc

I live in Canada and I get treated badly by doctors, I can't even imagine having to PAY for it later

​@@zanleuxsit's that except you pay 200 for an advil and 1000 for an IV installation

Yep sure have. I've had medical issues all my life. Never had much of an issue with getting the help I needed

I swear, some doctors would rather tell you it's a mental disorder than to actually do their jobs and inspect. What on earth drives these people to be so arrogant!?

duh... if i suffer such things and have blood in stooll i too would have anxiety >< its 'amazing' how many times doctors misinterpret cause and efect ;/

Blood in stool by itself is worthy of inspection. Anxiety can cause stomach pains, but extreme stomach pains is a stretch.

Wow…. That’s horrible!! Blood in stool should be more than enough evidence for a colonoscopy and cancer screening. Shameful

Blood in stool always requires a colonoscopy. ALWAYS.

Dr. Mike is top shelf.

What about dental? Or we won't go there

@@DrMoDentist Dental too, but as they say, one step at a time. Getting competent doctors is a big step to take in this day and age.

It is very easy to be idealistic and want to do the right thing when you do not have to run a hospital, make a payroll or deal with insurance company payments and I like him

Dr House wishes he could be on Dr Mike's level lol

Sexism, ageism, and racism are real problems in the medical industry, never believe a ridiculous diagnosis, get a better doctor. ❤

Sounds like she travelled 200 years back in time >.> This is why we should get a second opinion...

So, hopefully that neurologist was promptly fired or put on suspension or something, right?

@@vaiapatta8313 the worst is that when you get a second opinion, you might get a similar one and believe it... Depends on the availability of good doctors :(

I had seizures from age 2 until about 20. Of course they were just absences at first and graduated. As a kid I couldn't verbalise what I was feeling like so it wasn't until I could start looking on my own (which was about the time the seizures started getting worse) that I found out what they were.

Sorry you're dealing with all that. Endometriosis has got to be one of the most difficult conditions to have, just because a shocking amount of doctors don't even know it exists, and even if you get a diagnosis, it can be impossible to find a doctor who takes your pain seriously. My sister has it, and trying to get appropriate and compassionate treatment was a nightmare for her, so I'm very familiar with the BS you're dealing with.

I'm 32 and 1 year ago, after experiencing 10 years of problems and pain, I finally got diagnosed with endometriosis. After seeing probably 30 some different doctors for my unexplained pain and suffering I finally found a good doctor. The doctor just before her tried to convince me getting and IUD would solve everything. I saw that doctor 3 times and wanted to talk about nothing else except on my way out of the office to be sure to schedule my IUD placement with her. I was (and still am) having tons of pain in my uterus and everywhere else female related and she wanted to put something inside me that would surely make me sick and even more painful! A year later and my pain and symptoms have only worsened. The same great doctor I saw tested my TSH and it turned out I also am suffering from significant Tertiary hypothyroidism. It turns out hypothyroidism and endometriosis often times go hand and hand with each other. I have had my T4 checked about once yearly for the last 12 years by different doctors because I new I had all the symptoms of hypothyroidism. None of the other doctors even thought to look just beyond a T4 and look at a T3, TSH or anything else. Keep advocating for yourself and educate yourself as much as possible. I know we should be able to trust and fully rely on doctors to help us. The sad truth is many doctors aren't interested in helping you.

What is endometriosis

@@jadyn8702 It's a condition where the inner lining of the uterus that regenerates every month to prepare for a potential baby also grows on the outside of it as well. It causes liesions, nodules, lumps, and the like growing where it isn't meant to. That's why it is so painful.

I felt your pain and frustration with the healthcare industry downplaying womens heath/endometriosis. I also have endo, or rather, was previously diagnosed but upon doing an external ultrasound, found nothing. I hear this is common amongst younger patients such as myself, and the lesions may not be “big enough” to be picked up unless done with a laparoscopy (which was completely shunned out by my OBGYN). I guess we have to just “wait” until it becomes so enlarged that we can actually feel a fit validated. By that time, the endo has spread to other parts of the body. But for us who are suffering, how much more invalidation, lack of support, and misdiagnoses can we take? The pain is often unbearable. Womens health is so mis/under represented everywhere. Endo is so debilitating everyday, yet, we learn to live with it. It shouldn’t be that way.

I went to the doctor because I was suffocating. It came out that my heart rate wouldn't drop under 120 BPM and the doctor told me it was because I wasn't married and that I just needed a husband 🥲 It's been two years since and doctors still haven't found what's giving me tachycardia, because they just dismiss me as being to young to have health problems (23yo atm) 🥲

@@bojanamilovanovic7326 Hard to diagnose, but if your heart rate does that right after you sit or stand up, it might be POTS.

@@lifeteen2 i even told that to one of the doctors it could be a possibility, but he just ignored me. I have been to about 10 different doctors so far and the only thing wrong with me are my adrenal gland hormones, but my latest doctor says that those adrenal gland hormones couldn't be causing this exact problems that I have and that those are two separate issues that I have to deal with 😐

​@@bojanamilovanovic7326My previous doctor's partner diagnosed me with POTS, documented it in my chart, and my doctor refused to acknowledge it. Kept insisting I had to be on BP meds, even though they were making my BP go so low that I was fainting at work.

Took me years to find a doctor who tested my D3 levels. I was dangerously low. 5 weeks ago I was in an accident and the ER totally missed the fractured wrist on my x-rays. I did file a complaint. There is no excuse for missing broken bones.

And need to learn from

And need to learn from

Yup...which is why I wasn't diagnosed with a rare hormone disorder until I was 27 years old. (Which I diagnosed myself then was confirmed by The Doctors TV show.) Wasn't diagnosed with celiac disease until I was 34 and microscopic colitis until I was 36. We shouldn't have to beg a doctor to try to diagnose our problems vs treating symptoms.

@@BrandonWestfall I was in a similar boat. It's so sad how hard we have to advocate for ourselves.

The problem is that medical “experts” blame women’s weight or being women all the time and refuse to listen to us when we try and push back against them and practically SCREAM that they are wrong.

So often it's the other way - Hodgkin's being misdiagnosed because you look young and healthy. In this case it was unconscionable that a doctor told you that you had it, no matter the suspicion, without doing a surgical biopsy. The lymph node swelling in Hodgkin's is itself mostly an inflammatory response to the cancer cells and you cannot tell the difference without pathological evidence.

OMG! I can't imagine what your parents felt when the doctor blurted out 'yeah, she has cancer' especially after the passing of your uncle still fresh. My deepest sympathy.

Yeah, but he is part of the extremely small percent of doctors that actually try to do something for their patients. The vast majority of them are lazy idiots who are just there to fill out their time sheet. All they want to do is say, "next". and shove you out the door.

Been the "good patient" myself in the past. Now I'm the "annoying" patient and make lists of questions, demand certain tests and let them know I'm not messing around. Got my health back by being my own advocate.

I'm so sorry you went through this ❤ I also learned I have to stand up for myself after being misdiagnosed for 2 autoimmune diseases, taking years of finding the right doctors. We have to advocate for ourselves but I also started off as one of those good patients.

“Pull myself towards myself”? wtaf does that mean?!

​@@AnnieLanhamI go in with a list, and get told to listen first, the questions are likely to be answered by his spiehl!

That's a very real thing. It's called White Coat Syndrome.

My wife and I dealt with a few such doctors. Mostly in regards to her. Four words fixed the problem. "Doctor, you are fired". Then, found one who didn't have a chip on the shoulder, as we couldn't trust the judgement of the one that we fired. A doctor-patient relationship is a partnership in regards to your health.

I dealt with a jerk female ob/gyn with my last child. I ended up changing her for another dr in the practice at a different building a month before I was due. The staff was all shocked and surprised, I told them outright, she's a jerk.

Some people should never be patient-facing doctors. There are other medical fields where there is no patient interaction, and perhaps they should pursue those routes. Medical examiner (coroner), other pathologies, research, etc. I put up with pissy BS from two particular doctors for longer than was necessary, because I'm "a good patient," and "doctors know best," and "who am I to say". I finally told one of them that he was in the wrong profession as I turned on my heel and walked out. I've been very happy with my doctors since then. I told my favorite PCP that he should teach other doctors how to interact with patients, he was that good (alas, I have moved out of state since then, or he'd still be my PCP).

@@SputnikDeb much the same with my old PCP, back when we were still in Louisiana. I had initially looked him up on several physician rating sites, specifically searching for patients complaining that he refused to prescribe antibiotics for what obviously were viral infections. The only complaint I had about him was a propensity to be quick on the draw in prescribing opioids and opiates. Eminently useful drugs in their place, but seriously overprescribed in some areas - that area in particular. And a class of medication I loathe taking, as I always get a massive MAST cell dump, flooding me with histamine. But, useful when I blew a lumbar disc and nerves were being compressed. Although, I did tell him up front that the muscle relaxer he prescribed wasn't going to get filled, as it worked by being a CNS depressant, which is one of the things opioids do by nature. He agreed. I suspect that it was just something patients in the area automatically expect. I only needed the spasms to stop awakening me in the middle of the night until things healed up enough to exercise and see if things resolved. You'd be astonished as to how many people herniate a disc and heal without a problem later. Now, nearly a decade later, in my 60's, it only gives me significant trouble when the barometer goes haywire.

Dr House would be proud

Dr. Mike didn't listen to misogynistic bullshit. Regardless of the life he saved or delayed its death, it still doesn't brush over how much we have failed her. She's going to die of lupus because of the misogynistic doctor.

@@essie-j8420 any time someone’s mentions lupus I think of House! lol

It's never lupus.... except when it is.

4 years for me, I have SLE. I even had 1 doctor tell me that i just had a low pain tolerance..... unbelieveable.

8 years for me to be diagnosed with MS, doctor told me my issue was my weight. (Walking like i was drunk was my weight)

@@bayrichards3835 😟

@@bayrichards3835 I've lost trust into doctors in my country and slowly regaining it back... I've been overweight ever since I was a child, despite not eating too much (even caloriewise - although I've always been one to feel hungry for a while and sometimes eat more, I could also feel full for half a day after an apple), and the amount of things which were attributed to my weight is atrocious. Chronic headaches, which multiple child neurologists couldn't diagnose for 5 years, and the first neurologist that my mom took me to even before them after I fell and they suspected a concussion immediately told her I had to go on a diet of cabbages, beets, carrots and nothing else (a freaking 5-year-old growing off of 3 vegetables?????) Because... I was a future mom (28 now, no plans of kids), the others also suggested that if I lost weight they'd go away and prescribed medication after medication with little to no relief). Constant colds (still no idea why they happened like every 2-3 weeks or literally every other week) were also attributed to that. Coordination disorder (not sure if I had it written as a separate diagnosis, but I couldn't do all of the tests with enough accuracy). Literally the weight stigma + misogyny (literally every encouragement to take care of yourself was because you're a future mother, not because you need to be healthy to live a good life) made it hard to get so many diagnoses and I'm still not aware of all of them I feel you so much there, a lot of doctors would attribute anything to weight/being a woman who hasn't had kids (having kids was literally the solution to painful periods I heard, as well as many other girls)/being a woman who's had too many kids (even said to a woman with 1-2 kids, although in that case it's usually like "you've had kids, whatdoyouwant")/being post menopause

@@atriyakoller136well that’s normal. It happens all around the world with rare diseases.

As a person with Epilepsy, I can’t believe no one knew what happened for 15 years, I got my diagnosis immediately. It’s crazy how different healthcare is in different countries

Me too! It took for me to end up in a medically induced coma twice before I was diagnosed.

Oh my God, that's horrible, I hope you are fine now

I feel your frustration

Grand mal seizures? Or absent seizures?

I hope that you got or will get your diagnosis. And then sue! I am not vindictive at all but just for the principle and for that provider to not do that to someone else. Unfortunately this is one of those professions that holds very much power over someone else’s life.

That’s really crazy and I’m sorry you had to go through so many doctors just to get diagnosed right.

My "growing pains" were brutal, even though I wasn't growing at all with them. It turned out they were caused by Celiac disease. Once I cut out gluten for a few months, I was shocked to discover my "growing pains" stopped.

Definitely not many. My old doctor did that for me. It made me feel amazing because he really cared. He got me in on the same day. It wasn’t cancer. Dr. Mike is amazing.

Good luck on your journey i may just be some random stranger on the internet but I believe in you

@@mynonexistentsleepschedule8330 thanks. I have a lot of people supporting me, and I always like to have more support.

Jessie you can do it! One of my dialysis patients is a CNA and works full time plus some and she is an in center, three day a week patient.

Sounds like medical malpractice. Have you seen an attorney that specializes in medical liability? You could have basis for litigation against these four doctors.

Months later: I hope this is going well for you!!

Look up biofilm smh

I also appreciate your explanation of how stress can increase pain! I have a connective tissue disorder, and I often say that when I'm stressed, my body says "If you don't take a break, I'll MAKE you take a break!"

​@@madalen532how does one get a Dx for connective tissue disorder? I am constantly injuring my joints & body just from simple movements or trying to move anything that requires some effort. I was given a Dx of hyperflexibile & Sjogren's 7 years ago. The joint injuries have gotten worse as I've entered my 50's I bruise terribly too, is that part of connective tissue diseases?. I feel like a fragile china doll. 😢 I'd appreciate your reply but I will also do some research now. I've had enough, it's time to get some answers and hopefully some treatment.

@@madalen532 what kind of doctor gave you your Dx of connective tissue disorder?

@@luvfunstuff2 Ehlers Danlos Syndrome is a connective tissue disorder! So... a rheumatologist I guess?

@@madalen532 That's who my family sees for EDS. Both of my children have it as does my niece. We figure based on how we get injured that I and both of my sisters have it as does my mother, and so did her mother, and her mother's mother.

The U. S. healthcare system is over bloated but we do treat any sniff of chest pain seriously (mostly for fear of being sued and less about actual folks dying of MIs).

The problem is a lot of women do not present with chest pain when they have a heart attack. My grandmother had a massive heart attack, and she presented with nausea, vomiting, and severe fatigue. It was a big enough heart attack to kill her, but she never had any chest pain.

When a patient comes in we take patient's history, do the physical examination, order labs, chest x-ray AND ECG. There is literally no excuse not to take an ecg, whatever the patient's problems are. This is basic 3rd year med student knowledge...

The fact that you can name the case in your country just makes me so depressed. In the US that exact case plays out on a regular basis.

Doesn’t help that women’s heart attack symptoms often present way differently than men’s

😱 how many months of being a nurse??

I'm so sorry for your loss. It must have been devastating to see her deteriorate so quickly.

@@judieloveday1643 Thank you.

That’s horrendous! I don’t usually jump to “sue the doctor for malpractice”, but there should be a complaint filed against this ER doc because he didn’t even do the bare minimum to investigate her pain. I’m sorry for your loss.

Stories like this are why we should not be little quiet good girls when our health is on the line. Listen to your body and find a doctor that listens when you talk.

My condition wasn't as severe, but I've also been to the ER and not even examined and was told to take Ibuprofen for my back pain. Months later, after several more ER visits, I ended up having my gall bladder removed.

Every condition I have would be fixed if I "addressed" my anxiety. Hmm, sure would if I could. Even magic pills don't work magically.

Right, I really wish I had a doctor mike doctor... instead of ones that poke a little and then *laugh* you out of the room.. That specific pain has only gotten worse but I feel silly bringing it up....

@@NK-pr9xy I have no anxiety and they still want to me to fix it. Yes, I had it 5 years ago, but then I cured it by moving to a new house. But surprise surprise all my physical "anxiety" symptoms are still here and just got stronger and more painful.

@@SatumainenOlento Physical anxiety symptoms are chronic stress symptoms, and so can be caused by more than _just_ anxiety - _anything_ that results in you becoming frequently stressed activates the same response, even if the emotional aspects of anxiety are not present. Of course, because stress can also be caused by a chronic health condition unrelated to the situation, and as such should be, well, actually _looked into_ instead of brushed off. I hope you can find someone who takes you seriously and actually looks into what's causing your discomfort and pain.

I feel the same, I wish I had a doctor like him. I've had mystery chronic pain / chronic illness for about a decade now at 29 years old. Finally took my health into my own hands and got on a medication that helps manage symptoms, that gave me my life back in many ways. But I still don't know what's wrong with me, don't know if there's damage happening to my body right now from this mystery illness or what's going on. I hope we all find answers.

Fr

we all have someone like him, but not all of us have the money.

Huge facts on this

so true

Sounds similar to when I encouraged a person to be honest about his LSD usage when he needed beyond all things to have both his legs seen by a doctor due to massive infection. He came back & said the doctor focused on his drug use & dwelled on stopping, meanwhile not attending to his legs. Great, he’d be a clean double amputee. 🤬

You could've sued but obviously not anymore since it's been so long

Whoah. I pretty much could have written this exact comment.

Same here

My 9 yr old is on the spectrum, has ADHD and might possibly have EDS. I have hyper mobility syndrome but they believe it could be Ehlers. My daughter has the exact same symptoms as me and it makes me sad. She is very athletic but her hips pop a lot and sometimes she can't walk. We moved from a city that has the biggest medical center (and some of the best care) in the world to an area where medical care is absolutely terrible and specialists are few, far in between. It's frustrating.

I had anxiety, so evertything was because of my GAD. Come to find out nearly two decades later, my anxiety was because of my high heart rate, which was itself a symptom of POTS and hEDS. The healthcare system we have is wild.

What is ehlers-danlos syndrome?

I'm glad you got the diagnosis. My EDS pain started when I was 11. I got the diagnosis when I was 60, after my youngest daughter got the diagnosis. My mom had all the symptoms, too. She was always told that her symptoms were all in her head.

@@juresichj my mom in her 50s getting diagnosed is how we got me seen. The old hospital started to bring in a psych doctor and indirectly imply I was a hypochondriac because they asked questions completely unrelated to my symptoms. They even did that in front of my mom when I was having a bad antibiotics reaction and dry heaving in the office clutching the waste can for dear life

I had chronic migraines for over 30 years, saw neurologists and took specia lmedication. I started B12 injections this year for pernicious anemia and my migraines have vanished. I can't help but wonder why doctors don't suggest a trial of B12 injections to see if it helps people with chronic migraines instead of all the expensive (and often less than effective) pharmaceutical drugs. My B12 level has never been low, so you can't judge whether or not someone would benefit from B12 simply based on bloodwork.

@@KMx108 because they go by the book they don't think outside the box half the time. I never even thought of that honestly although, as a needle phobic the thought of the injection scare me a little bit. I'd have to have someone else do it I couldn't do it on my own.

Seronegative rheumatoid arthritis and psoriatic arthritis here. Finally diagnosed at 19 when I couldn’t walk. Disabled at 28. It sucks so much

That was amazing of Dr. Mike. Getting doctors to make that extra effort is normally very difficult.

I struggle with PCOS too, referring to my obgyn for treatment. In recent years, she has become very dismissive and apathetic towards me regarding my PCOS care. Her schedule is always overloaded and I feel like she’s burnt out (I would be). I’m looking into finding an endocrinologist to transfer my concerns to. Maybe it’s time for a fresh opinion on my case

@@nicolamarkus3177 I had the same issue! My gynecologist who had diagnosed me and helped me for two years one day just told me she didn't know what to do to help me (because I was always in pain and no birth control was helping me it would just aggravate my symptoms) she told me I just wasn't trying hard enough to lose weight, recommended that I try eating once every two days instead, and told me she was referring me somewhere else because she didn't want to help me anymore. Thankfully I found an amazing team but that gynecologist scarred me.

Sending you love, I feel you as an MS patient. I got so angry sometimes which just made things worse. It sucks when the people that you hope will heal you only add to your trauma and the medical system really needs to grow empathy instead of insisting we are the problem. We don't have enough power to be the root of the problem.