Hickman line placement and recovery | Central line for my TPN 

Hi Beth, I came across this video of yours as I'm currently looking into IV lines for feeds, etc. I really appreciate you sharing the knowledge that you have and what the experience was like for you. I have GERD and POTS, etc. However I dont actually have all my diagnoses yet. Im worried as my weight is so low and my body wants to reject everything. I'm finding it SO hard for anyone in the medical field to take me seriously but this has actually made me want to advocate for myself again. Sending love and spoons! 🤲🏻❤🥄🌸

Yes I’m home with my children thank god for the line

❤❤❤your a star I’ve had a line Fitted two months ago and I’ve also got a stoma bag still coming to Tims with it all and until I seen your video I’ve been feeling so alone I think you’re amazing

You are something special Beth. What you have to deal with would probably make a grown man cry. We are here with you through this journey. Stay strong as you have been💪

I hope one day soon, there's an answer to EDS, I see the many struggles faced by those who have this condition. And I praise and I pray that you hold strong and triumph over your endeavors. You are beautiful, and I Believe it's from the inside, out. I don't know you, just see your story and it makes me realize how trivial the things I whine about, thank you for being a ray of light, you inspire me

I’m getting one tomorrow and this truly calmed my nerves so much-thank you!!

When I was a student nurse I used to have a few placements in interventional radiology, so I've watched a few people get lines put in. You are quite right, the pain is horrific! The people I've seen have it done were very uncomfortable to the point where it was hard to watch. I'm glad you managed to get through it because it is one of the most painful procedures to go through, especially without sedation xx

Just watched your latest video. You certainly are brave to have a procedure without sedation. I admire how strong you are being able to live with tubes. I never knew about all this until I watched your videos. Stay safe n I hope you get back home soon. ❤

You’re blooming amazing girl! sending love hope you’re enjoying being at home much love ♥️♥️

You’re a lot braver than me! I bawled like a little baby for both my Hickmans lol

I’m so sorry they didn’t sedate you! I’ve had my Hickman for quite some time and it’s been such a great thing for me. I just had to have the lined exchanged and get seated me for that so I’m not understanding why they didn’t give you anything! I’ll keep you in my thoughts. I’m on TPN for 16 hours a day and I’m on LR fluids I get 2 bags of fluids every day plus I get 50mg off IV Benadryl every 6 hours and I get Entyvio every two months but infusion. I have Chrons severely and I only have just about 2 feet of small intestine ( I have no colon, no rectum, almost half of my stomach was removed and only the two feet of small intestine and my bottom is sewn shut). I have a duel lumen Hickman as am and my lines are both rather long as well. I wish you all the best! I hope things get better for you and that you begin to heal. Stay positive and remember this is very important DO NOT SUBMERGE IN WATER! Taking a bath or shower is ok but do not go swimming nor get into water above your waist for it will cause some severe problems, talk to your physician about this! You look great and I’m looking forward to hearing good things about your recovery.

Ima share u again to my 11k subs they r all supportive of our conditions and I've told them bout u and we wanna help u deserve to have ur story out I'd love to do an interview with u and help get ur story out

Your hair is still so thick despite how your nutrition has been😱 I lost a lot from malnutrition so mines unfortunately very thin compared to how it used to be. It is growing back but I'm so inpatient, I just want to look like the old me again!☹️

Inspirational ❤

Wish I had the confidence to post my stay at salford royal h8,

Girl mine itched too girl it's normal

is the "thing" placed under your skin called port-a-cath ? I had one this morning and they told me my skin was though :) i had this sort of box over my head too and is placed below the collarbone, close neck. You are very inspiring Beth, Thank You.

Do u need gridlock tape for ur line to keep it from being tugged on they r pricey and I had a bunch donated to be ill send u some if u need the and some port pads I have them too u hook to bra and cushions ur port kinda like a tube pad does

I need ur po box to send u bunch stuff I've had sent to me also please start a amazon wishlist so u can post for ppl to get items u need and comfort item

Will you still run your fluids through your j June or is tpn anough fluid to maintain your symptoms and keep you stable?

One little tip I got told was to keep the line out of your clothes to keep it away from your tubes to prevent infection xx

Hi, are you home now?