Home-bound with Stabbing Pain -Sebrod's Hyperacusis Story 

Man, seven years...omg... Mine is 2 years also, pain also almost 24/7 even in silence. Did you improve? Can you drive, go to holidays or at least restaurants?

I'm at 12

Sorry to hear that, i feel for him also because he is younger than us. How long do you have it?

@@tauicsicsics year and half. It's a nightmare. I think mine is jaw related so I'm exploring myotherapy now. I also have severe ringing in both ears.

@@vicvic1892 yep, mine also, i have TMJ for 10 years, then exposed to loud noise and it was over. Homebound, pain almost non stop, my own voice hurts...

@@tauicsicsics I still have hope that this shit will eventually sort itself out. I'm also housebound. My voice hurts at times as well. I suffer from severe anxiety and my doc insists it will subside when I tackle my issues. In the meantime my anxiety has escalated. Not sure how I developed this. Was wearing earbuds loud for a while. ENT says no. MRI brain scan clear, ears clear. It's an absolute torturous condition that noone understands only those suffering. It has destroyed my soul. Too scared to live at the moment. Hope we improve as time goes by. Best wishes

@@vicvic1892 fully agree, this disease takes everything from us. It's a deadly combination between excruciating pain, isolation, lack of holidays or social life. Where there is life, there is no noise, we cannot escape from it. I learned to live with it, but this is not living.

Hi, you should have your son reach out to Treblehealth and speak with an audiologist. They helped with my treatment for hyperacusis. I’m not cured but the treatment has helped a lot. I’m only reaching out because I know a lot of what you read on the internet says there is not treatment for this. They also are a RU-vid channel.

@@Stockies If you're talking about TRT, I know it's good for loudness hyperacusis, but how bout pain hyoeracusis? Can it do more harm than good? I'm stuck on that one.

@@dianecelento4974 yes, it can cause a setback - happened to me, but that only happens when to try to do too much. It’s a very slow process, and some days are better than others. Just find protocol that works for you.

Setbacks are part of the recovery. They will happen .If you just hide from normal environmental sound...you won't improve ...ever. Did you recover from hyperacusis?

@@lastcall170 lastcall170 : Completely FALSE. Setbacks are dangerous, less setback I have, better I feel. You don't know anything about the REAL pain hyperacusis. The REAL one. Expose to "normal" sound when you are a real "pain hyperacusis" case is the WORST advice EVER you can make. But this is yes a common medical advice, THE ONE that destroys my ears at the beginning of the illness.

@@lucbrugere2219 How are your ears now? You said the bad advice that destroyed your ears at the beginning of the illness. Have your ears recovered since then?

@@dianecelento4974 Diane, it depends on what you want me to tell you. I'm an extreme "pain" case, I live with it for more than 12 years now, 24h/24 7d/7 at home. I'm working (I'm an engineer), earning my living, I just have a complete different life than a normal person. I'm sure I will never recover completely from that illness, I will never have a normal life again. NEVER. I know that, I just live with it. What I can tell you is SILENCE allows me to recover a little, ALWAYS. Setbacks, on the contrary, deteriorate my condition, sometimes permanently. ALWAYS. Take care of you Diane.

Man I am so sorry. This ear shit is murdering me.

Damn sorry to hear that :/ How long did you have hyperacusis for and how are you doing now?

Was yours from a loud sound injury?

I have been whispering for 5 months nows I understand exactly what you mean. Sometimes people cannot understand and choose to distance themselves. People treat pets better than they treat people with extreme Tinnitus and Hyperacusis that's severe. If they only knew

@@poneroneqb2066 For real. Hell sometimes my mom is loud purposely when I say something. I don’t get what’s so hard just being respectful. It truly sucks the way it’s treated by people.

Sound therapy is a option to help with this. It will take months and you won’t be back to normal, but you will be able to have a normal life gain. I reached out to Treblehealth for my treatment, but you may be able to find sound therapy somewhere else too. They also have a RU-vid channel.

Do you know what the exact cause or cause leading up to your pain hyperacusis?

@@leofrasionio5290 I think it could’ve been being next to my baby nephew almost everyday when he would cry, but I’m not sure. (Sorry I never saw this comment)

I would love to hear more about your success story. Can you make a video on this site? Do you have pain hyperacusis (noxicusis) or loudness hyperacusis? Sometimes it's so hard to tell. Did you get your severe hyperacusis from an acoustic trauma? I'm glad your're doing well. I'm going to an audiologist next week. So far two other specialists I've gone to have been no help.

​@dianecelento4974 I had hyperacusis from 2009 to 2014. It started off as 2 weeks of Loud tinnitus from sound exposure trauma. My life was listening to loud music with ear buds and playing loud video games with headphones non stop for 6 months. The hyperacusis was both pain and hearing everything way too loud.I made a list of what caused me pain. MOST Sounds perceived amplified by 10 times as well Running water in shower, sink and in pipes as well. Air passing through ventilation systems ... Refrigerator ... Voices...especially female or very low voices The S consonant stabbed my ears far worse. Automobiles Television and radio Squealing brakes Birds Silverware pots and pans Crushing plastic bags sounded like a crackling fire Fluorescent lights Gas pipe lines Shopping carriages sqeaking wheels Etc...Etc..Etc... What worked Relaxation techniques...very soft sound therapies that I created for myself...I also used soft rain sound while sleeping. If I used anything too loud ...my tinnitus would spike. I also had a very bad case of misophonoa which led me to hate every mouth sound including chewing food..gum snapping..lip smacking . I would get furious and or sick from these sounds. Thankfully within 5 years I beat all of this . I sadly had no support from my own spouse with this. It angered me to think that she now had control over me. I said NO to this and took huge steps in sound exposure even if it caused me pain and relapses. There was no way this would beat me. Today...I'm enjoying life without pain and suffering. I find it hard to move on and forgive those who offered no support at home and at work. I almost lost job and marriage. God was my strength but the f8ght was all mine. Best of Luck or faith if you have it. It's easy to let this destroy you. I kept enjoying long walks and good food. I collected Invicta watches and spent most time alone. It was rewarding in a weird way because it taught me the value of caring and loving ones selve above all to heal.

Hi Vlad, can you please let me know what you can do at the moment? Can you go to restaurants, walk on the streets etc? Did you have any pain, any sound distortion ?

Do you have noxicusis (pain hyperacusis)

Ya and it cost a few grand and only he can do it...also it doesn't work for everyone

This is though process no surgery can help out without thought process could be change .

Highly experimental and expensive

Venire does not cure hyper-acusis

@@bmarlomanI don’t think any device can

@@bmarlomando you have problems with sleep?

No. I sleep ok. I am undergoing hyper acusis therapy with an Audiologist in Beverly Hills. At the 7 week timeline. I used to wear my custom earplugs 25 db a lot. I have cut back...had some setbacks of course. But I was not pushed into purchasing the Lenire device until I get the hyper acusis testing at a tolerable level.

@@bmarloman At my case I understand tinitus and hyperacusis as an outcome of a mixed condition. I do not have any diagnosed heart issues but in my sleep or whenever I let go, my heart does pulpitations that are felt to my head. The more intense the more the tinnitus and hyperacusis the next day. At the absense of these heart related symptoms both T and hyperacousis vanish. Strange

Do you have tinnitus also? How much was Treblehealth helpful what treatment did they use and how much was it?

@@blancacasillas8226 Yes, I have tinnitus too but it does not affect my life. Hyperacusis is my main issue. They used sound therapy to help me get used to sound again. I think they specialize in tinnitus, so you should reach out to them to see what they can do for you. I bought the sound generators they offer, and it was a bit pricey, but it was worth it for me when I could hear the results. Watch success stories on RU-vid to get other ideas for treatment.