It’s interesting, in some ways I have stiffened up and in others I’m more bendy than ever. My shoulders and wrists have stiffened some - I used to be SO bendy in my shoulders especially - but I can easily touch my hands flat to the floor with straight legs now, and I couldn’t do that when I was younger. For reference, I’m 31.
I was never as bendy as you. I don't think my hips are bendy. I am definitely less bendy at age 48. Though I still have bendy hands (in some ways), knees and ankles. I can do prayer hands behind my back still.
I’m 62. Just recently diagnosed with HEDS. I can still bend at the waist and touch the floor with no stretching. I can still do all of the things you demonstrated without stretching. In fact I never stretch. I find my stability is better if I aim for stiff, old people joints. 🤣
Thanks for sharing the interesting video with which I can identify myself. I’ve always known I am hyper mobile with lose ligaments. At 62, I still score full Brighton score although my elbows are not as scary looking as before. My knees are hyper extended but among all attributes, the knees are the most normal ones. I don’t have any of the Ehlers-Danlos syndrome but just the hyper mobility. It is good and bad for me. In ballet, the hyper extension looks pretty but at the same time, i am also naturally weaker due to the instability. At late 30’s I started ballet (zero exercise as a child) and could do a full split without practice. I wowed a lot of people. But I wish I were stronger than being hyper mobile. By the way, being flexible and hyper mobile are not the same in the physical therapy world. My PT advises me to stretch the muscles but not the ligaments.
Thank you for your videos and HELLO from Germany! 💜 I‘m 44 now and my body is the same like yours: all of these moves, I can do also. My first diagnosis for hEDS was 2018 (with 39 years!) and this year I went to a further diagnosis in Cologne where my hEDS-specialist is. 2018 it was just a clinical diagnosis, but now it is a safe diagosis (thanks to all the new studies!). Sad, but true: my 8years old child got the hEDS diagnosis this year too… That‘s also why I found your channel. Hope to give her a better life WITH the knowing of being an hEDS-human and to safe her from all of the pains (and bullying) I had had by NOT knowing! 🙏🏼
I’m still pretty bendy for 52 I can still butterfly stretch flat to the floor , do prayer hands behind my back etc but I have to be more careful as things pop out of place more easily and although my elbows still both overextend they are pretty painful and stiff now
I enjoy your videos. I'm 48 and can still do all of these PE stretches. I have so many joint issues now. I appreciate your video on the explanation that EDS is not progressive, but I truly feel like it is as I am becoming so much worse as time goes by. Thanks for all of your content!
Thank you! I'm glad you're enjoying them! My joints are definitely worse as well, I somehow managed to injure my good shoulder today by simply wiping 2 windows. 🙃
I always thought that doing these stretches in school and later in yoga class were silly and a waste of time. I didn’t understand what they were for because I didn’t feel anything.😂😂😂😂
I used to be able to do most of these and felt no stretch. Now nearly 50 and have started losing some of my flexibility in the last few years. Hamstring stretches and arms behind my back are still relatively easy most days but I have noticed my knees, hips, and fingers stiffening up, especially in the last year. Those three areas were my most hypermobile and most apt to dislocate when I was young. I do feel that, while I may feel stiffer, I am more prone to injury and dislocation. My comorbidity symptoms have also increased significantly in the last few years. It is also odd how something can be so stiff that I can barely move one minute and super bendy 5 minutes later.
Can't risk trying some of these - mostly ones requiring hip stability. But I can still do a lot of these considering I'm a sofa loafing 39 year old layabout. There is not a spot on my back I cannot reach as long as I'm not wearing restrictive clothes. I'm on my quest to get a diagnosis to finally put the pieces together. Waiting on a call from the Rheumetologist 🙏
Hi , I have had MVP back in early 2015 but by the end of 2015 and since then it is not detected on 2D echo, can I still mark for "MVP" in feature A of criterion 2 ? And also how do we evaluate for mild skin hyperextensibility and for usually soft skin?? It's very subjective . I've been told by many that my skin is soft but i don't know if it meets the criterion! Kindly guide. Your videos are wonderful!! Thank you.
I would think that if you've had an MVP detected at any point it time, that it would count towards the criteria. The skin though, you're right, it's very subjective. When my geneticist was evaluating me, she said the same thing, that's it's subjective and hard to measure, but that since she's felt/examined thousands of peoples' skin, she has developed a feel for what's unusual.
