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Hello my name is Anna and my dad has Dementia but the Dr told us that theirs no way of knowing what stage he’s in. And I dnt believe that but my dad is not wanting to walk anymore bc he can’t and the Dr said is because he’s diabetic my dad said he’s leg feel hot and then cold is that because of the Dementia ? I really hope you can help me understand why Tnk you much
my dad died 18 months ago of dementia .. my sister is at end phase. of dementia .. not talking; not walking not wanting to eat although she did want water today. she has the " just in case" box now. she has alredy been in a care home for 3 years; thanks for the video
i so scare , can guide me... my father is now randomly will accuse me of stole his gold n latest was 2 fake rings appear n he said i uses it to exchange his real ring but after a few hrs he totally forgot about that . Nw he can still walk, know his way bk hm but eat only 2 meals a day and sleep about 5 times a day. Is it early stage of dementia? i just assume only as he stay with me. Just this week i ran out of my hse as he refuse to let me out to work... and start to scold vulgarities etc. what should i do, he wont follow me to hospital etc. ?
@@ngwei2255you must seek help and not carry this burden all by yourself. Isn't there anybody to help you? Other family members? If not get social services involved.
The first symptom I noticed was my wife (struggling with dementia) hurriedly gorging her food....which ultimately led to aspiration... "down the wrong pipe"... months later in hospice her right lung was found to be contaminated by at least one particle of food...which was removed mechanically. It was all down hill from there. Ultimately she passed without pain and suffering.
Thank you so much for helping me understand the death of my favorite aunt! This made a lot of sense and helped me reach closure of this sad time in my life.
My husband died from Lewy Body Dementia. He had no other health problems. His deterioration was very rapid and died just under 2 years of being diagnosed with early onset. First scan showed moderate Alzhimers and vascular Dementia. 2 months later and the bomb dropped. All the symptoms of Lewy Body happened very rapidly. Hallucinations,, confusion, psychosis, paranoia, incontinence. He was amazing how he coped with all that was happening to him. I feel very blessed that I was able to care for him at home until he died. It was Lewy Body Dementia that was on his death certificate.
I’m so glad you have made this video! I had heard that funding is usually given to the top causes of death so if Dementia isn’t recorded on a death certificate then vital future funding is missed ... when your loved-one passes, please ensure their dementia is recorded on their death certificate!
Wish I knew this. They put pneumonia for my mom. She had a stroke after being told she was cancer free from lung cancer. Then her right leg was affected. She never ate a full meal again and passed 3 months later. She was incontinent hallucinating confused. Finally a week before her death her Dr. said she had vascular dementia but only after I asked him if she had dementia?😮😢 oh and UTI twice, in the nursing home and the last week of her life 😢dehydration too. 😢
My wonderful wife has been suffering with dementia for a number of years. Two months ago, she had a major massive stroke. Now she is in rehab for two months, not able to talk and explain her problems and concerns of UTI and feeding tube. Major concerns of accidentally getting, contaminants in her lungs because of poor ability to swallow. She has been in rehab for two months now and still not able to speak. What can I do?
My mom passed away recently, the day before Christmas Eve 2023, from dementia/Alzheimer's. She'd had COVID 2 weeks prior but had recovered well. I guess I was lucky in that she died from stopping breathing and not underlying illnesses.
I used to be a care-giver. No matter what the health issues of my various patients were, stroke, diabetes, Parkinson’s, cardiac care etc., dementia was always a part of the daily problems and care difficulties. Also I never received any help from the health professionals re: care ideas or medications. We were just supposed to‘deal with it’ I was struck with fists, urinated on had fecal matter rubbed on me,& spat on by patients that loved me. A particular tough night dealing with an elderly man who needed more pain medication than was being allowed
Hi Pamela, what a story. I'm very sorry for you. Dementia is a devastating disease, not only for the patients, but also for the caregivers. And like you say, most caregivers 'have to deal with it'. Unfortunately, many people still underestimate the true impact of a disease like dementia.
My patients & I were very close & trust was shared both ways. However nothing stopped him from shrieking lies filled with obscenities at me or to their families. Very destructive & very hurtful, leading to my leaving 2 patients with whom I had been very close with. After the 2nd one I simply refused to care for any dementia patient. It was painful and very sad because I truly felt that these were the very people who most needed my kind of care. As I stated in my first comment the health care people, doctors, nurses, therapists etc.would be supportive of me personally yet refused to offer anything to help. It was incredibly frustrating eventually resulting in my simply walking away. Thank y’all for allowing me to vent. I have been retired since 2015 & it’s still a sore spot.
Don't forget dehydration and malnourishment. I only did long-term nursing home care for a few months but at least one of the residents deteriorated quickly when she became afraid to drink or eat her paranoia with triggered by the dementia. And the medications didn't help. Either they would sedate her to the point of her being obtunded or she just be in constant panic mode. 😢 Edit she also lost the ability to drink up a straw or take sips from the cup even when she would try.
Bad News 😢 my dad of my brother is having a risk of stroke, He has Alzheimer's disease and he is now on second phase, The second phase that he has difficulty swallowing, respiratory weakness and bad immune system, Although he was having fever-like memory loss, I'll love him 😭😭😭😭😭
In last-stage Alzheimer's, the plaques and tangles hit the pituitary gland, which controls breathing and your heart. It always gets progressive and gets worse, and your heart will fail---or your lungs will permanently collapse as the gland gets overpowered by this bad stuff, causing permanent breathing paralysis, and this is one example how you can die from Alzheimer's - which is a form of dementia.
My Mum died of Lewy Body Dementia. Horrible to watch, same as most other long term diseases though. She lost the ability to walk, then her speech, then eating went and it was just a matter of time after that. Thank God for Morphine which hopefully reduced her suffering at the end.
Your video was very informative. That’s what my mum died of dementia but on the death certificate it was aspiration pneumonia. I didn’t know anything about that I’m adopted so I don’t love this is ready train my mumis line of the family or not, but I am at was very distressing last 3 -4 years of life
And sadly, Urinary Tract Infections in late-stage dementia patients can worsen to the ugliest disease you never want to speak about in public--Fournier's Gangrene, which can lead to sepsis, septic shock, and ultimately--death. That's why we need a cure for all dementia diseases.
Changing is not an option (not possible). But I know and understand what you mean. This is an older video and I didn't think about it when I made this video. Thanks for your feedback!
My mom had Alzheimer’s/ Dementia. The cause of death on my mom’s death certificate was dehydration. But another thing about the pneumonia…. Once a month for a year and a half she suffered from a UTI. Sadly this is common in nursing homes. So every month she would be put on antibiotics. As a result & after awhile, especially with old, old people, your body stops producing its own antibodies so they usually die from pneumonia because your body can’t fight it and the antibiotics stop working. UTIs are preventable. It’s not abuse but it is neglect. But it’s not neglect because these nursing homes staffing is so poor. It’s the toughest job.
Many old people don't want to drink water because it makes you pee. Peeing is good for stopping utis. But older people don't want to run to the bathroom all the time. This happened to my mom. She had motility issues so wouldn't drink water. Got UTI.
Severe Traumatic Brain Injury , 1984, myself. Australia. Male, heart valve replaced, so my wife (CARER) and myself are competing for widowhood. Who is getting dementia first! Good to now know that my forthcoming PEG surgery might prevent pneumonia, UTI and its complications. By design, our Australian federal government, similar to the European governments, will show disabled and elderly people like myself, to not die in the public streets.
Yes, my wife died of Alzheimer's disease, and it's on her death certificate as the cause of death. She when through all of the 7 stages of Alzheimer's as outlined by the Mayo Clinic.
If a person that has dementia talks about having to leave this world cause there legs and feet hurt and are in pain can that be a sign they know the are dying or is it just a sign they need better pain medication
Do you want to know the difference between sepsis and pneumonia? Or do you want to know how doctors know the (immediate) cause of death (e.g. pneumonia/sepsis/something else)?
@@dr.paulinemoyaert Thank you very much for the video. Yes I actually wanted to know how the doctors know that it is actually the immediate cause (pneumonia/sepsis/sth else) but not the primary cause (dementia) of death? While I understand that the immediate causes could lead to death, I still have trouble understanding how dementia itself could lead to death. Because I am still having the concept that it is the comorbidities arise from dementia that lead to death while the diagnosis of dementia is not fatal. So may I know when it's mentioned at the end that dementia can lead to death, is it mainly because of the immediate cause developed from dementia? That is, if someone is diagnosed with dementia without other comorbidities, it should not lead to death? Or you're saying that someone can die solely from the diagnosis of dementia?
@@leungcheukyin6732 I get your confusion. If someone is diagnosed with dementia without other comorbidities, it won't lead to death, that's correct. But the thing is, dementia will always create comorbidities in the end. You can be diagnosed with Alzheimer's when you're 65 years old and physically healthy, but it won't stay that way. Dementia will shorten your life expectancy and 'create' comorbidities. People don't die from diabetes (underlying cause), they die from acute renal failure (immediate cause). People don't die from cancer (underlying cause), they die because they cancer has spread to (for example) the liver, which causes liver failure (immediate cause) and in turn causes a life threatening condition in which the body 'poisons' itself. Technically, you don't die of COVID-19, you die because of an acute respiratory distress syndrome. If you want to oversimplify it, you could say that dementia itself can not lead to death. But I don't like saying that, because without dementia, you would probably survive the pneumonia or urinary tract infection. A doctor has to write down both the immediate and underlying cause of death, it's always related. Hope this makes it a bit clearer to you. If not, please let me know. Happy to help. Here's an example of how a death certificate looks like (link to google image): www.google.com/search?q=death+certificate+underlying+cause&tbm=isch&ved=2ahUKEwj_havMta_2AhVqqXIEHdcdDi4Q2-cCegQIABAA&oq=death+certificate+underlying+cause&gs_lcp=CgNpbWcQAzoECAAQQzoFCAAQgAQ6BggAEAgQHjoECAAQGFD-AliGJWDlJWgBcAB4AIABhAGIAdwNkgEEMTIuNpgBAKABAaoBC2d3cy13aXotaW1nwAEB&sclient=img&ei=gpMjYv-8AerSytMP17u48AI&bih=913&biw=1280#imgrc=mTqgHUViYK8d6M
@@dr.paulinemoyaert Thank you very much for the explanation and examples given Dr Moyaert. The fact that dementia can trigger comorbidities and add complexity to recovery makes it more reasonable why dementia can be concluded to result in a person's death. It's very clear, thank you.
Hi Julie, not that I know of, but it could be that people with dementia perceive pain/body aches different than we do, which could explain why they sometimes experience more (or less) pain than people without dementia. This is just my own opinion, I don't know if this is scientifically correct.
