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How Motor Neurone Disease patients’ voices are being digitally preserved - BBC News 

BBC News
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Technology is being used to bank the voices of people living with Motor Neurone Disease (MND), so it can be reproduced digitally if they lose it.
The degenerative condition, which gradually takes away movement, can take away someone’s use of their voice.
Interactive storybook I Will Always Be Me has been developed by Intel and Dell to convey the effects of MND, written in the first person.
Intel Human and AI Research lab director Lama Nachman said: “For someone who has been diagnosed with this every minute counts.”
This film is from Click - the BBC’s weekly technology show.
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2 июл 2024

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Комментарии : 48   
@roseenglish7923
@roseenglish7923 Год назад
My husband died of MND 18 years ago, there were little aids then, so I am delighted about this new speech technology. I see the gentleman has an advanced wheelchair too. His two girls are doing an excellent job. Good Luck and strength to the Family.
@ALT-vz3jn
@ALT-vz3jn Год назад
That’s just wonderful. A great example of tech being used for good. ❤
@A1Loveislife
@A1Loveislife Год назад
Hi
@kasturipillay6626
@kasturipillay6626 Год назад
Amazing, some consolation for those in this situation.. God bless you. 🙏
@davidgalbraith694
@davidgalbraith694 Год назад
Lost my dad to this 10 years ago and the saddest thing I often think of is I can't remember what he sounded like, like properly sounded like before he got ill and I can't get the voice he had at the end from my memory
@VietnamTravelGuide.
@VietnamTravelGuide. Год назад
This is amazing and very hopeful
@curryking1
@curryking1 Год назад
my best friend with centronuclear myopathy died early this year in april 2022, he was a very lovable and affable man and had the most friendly and unique voice, i could talk to him for days for both his humour and his kindness as well, thanks for this video, i still have video clips and audio clips of us playing videogames together where i can hear his voice among our other friends online, cheers to all and best wishes to all my family has been donating to food banks every year for many years, and last year and i will continue every year i have donated now also to funds for people with especially motor disabilities of all kinds, and it is in memory of my best friend always
@horsemanofwar86wawahwoowah36
Happy holidays everyone and hope you all have amazing health! It's great to see this happening.
@A1Loveislife
@A1Loveislife Год назад
ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-33NM4R1puAQ.html
@A1Loveislife
@A1Loveislife Год назад
Hi
@juniorroselynroselyn3277
@juniorroselynroselyn3277 Год назад
Not with Biden lies !
@valafitzpatrick899
@valafitzpatrick899 Год назад
Remarkable. We have a man in Australia who has this nasty M N D. He was a bit of a star on the Football field. Each year now there is a Prime match which raises Millions of Dollars literally on that day & raises awareness. He is fairly advances but struggles to go on each year. He is not mobile but is driven to go on for his family & for the thousands of fans that urge him on. Sadly I think it's coming to the time where he will be feeling terribly the constraints of M N D. I think that it is one of the most hideous & frightening thing. I'm praying 🙏🏼 for your guest today & all those that are suffering with this.
@A1Loveislife
@A1Loveislife Год назад
Hi
@wasongabeatrice
@wasongabeatrice 7 месяцев назад
Even here in Kenya. We have a football star who has it
@frangibb7026
@frangibb7026 Год назад
It's very important as that's your character, your personality, YOU! for your family xxx
@dreamwalker2267
@dreamwalker2267 Год назад
Really great confidence.......
@mikenixon2401
@mikenixon2401 Год назад
Thank you for reporting this in awareness.
@PlanetImo
@PlanetImo Год назад
Absolutely amazing. I'm so glad this has been developed. x
@kimberleypex
@kimberleypex Год назад
A L S . In the Netherlands 🇳🇱. I am ALWAYS thinking ; HOW does an illness begins , what are the triggers ?
@djackson006
@djackson006 Год назад
Toxins in the environment. Dr Paul alan cox and Guam. Toxic algae in the local waters, cycad trees roots sucking up toxins, flying foxes eating cycad fruit, ppl eating the foxes. Foxes died out, als/mnd etc stopped. L-serine therapy to slow. Last I heard.
@MF-ty2zn
@MF-ty2zn Год назад
They don't know what causes it. Coukd be an auroimmune disease. It begins with shaking in a limb. Stephen Hawking had it and unusually lived for decades. Most people die from it within 5 years.
@davidmacias3121
@davidmacias3121 Год назад
😢that’s sad 😔
@user-he2gl7gm7r
@user-he2gl7gm7r Год назад
Ευχαριστούμε!!!Ο Χριστός μαζί μας!!!+++🛐☦️🙋👏🇬🇷🤍🌹💒👍
@Pr.Vicente-MinistérioBatista
Hello friends, i wish the best for everyone! Have a great weekend
@kimberleypex
@kimberleypex Год назад
Thanks. You too 💥💥💥
@Pr.Vicente-MinistérioBatista
@@kimberleypex Thank you friend
@Jordan-pf9ws
@Jordan-pf9ws Год назад
What's the cost? Also is it a one time cost of on going? If the person can't pay they lose their voice again. People with these issues have a much higher tendency of being lower income or have of medical Bill's that drain their income ect.
@8eg
@8eg Год назад
Ok
@MDSamim-ny5ph
@MDSamim-ny5ph Год назад
Plz help fact medichin mnd treatment
@SorminaESar
@SorminaESar Год назад
It's so amazing. God had change disease to be blessing
@ayubaalim2201
@ayubaalim2201 Год назад
I Have My Uncle Who Have This.
@auro1986
@auro1986 Год назад
bbc, give them the cure
@corneliusmotronea23
@corneliusmotronea23 Год назад
that's because they didn't see others of their relatives in need some died some died in the cemetery from liver diseases or other stone diseases where or deposited the rest were from his cancer donation!
@Sharma-Bilaal
@Sharma-Bilaal Год назад
I will always be me that is what the VOA say
@asmith9140
@asmith9140 Год назад
Great wonderful news nice for the kids later maybe all parents should record their voice for the kids you just never do know
@saqibali45
@saqibali45 Год назад
Hmmm 💓
@chrisleon27
@chrisleon27 Год назад
Reserved pronunciation
@QwadLuzr
@QwadLuzr Год назад
STOP HIDING THE TWITTER FILES
@maje9448
@maje9448 Год назад
Forthermore
@U2Piligrim
@U2Piligrim Год назад
🤎
@RAMBOIT.
@RAMBOIT. Год назад
Don't care children are dying of strep a that needs to be delt with other then this
@sarahmaxwell3839
@sarahmaxwell3839 2 месяца назад
This came up as a memory for me. This is me, my dad and my sister in the video. The fact you’d write this comment is DISGUSTING. You are a vile human being.
@ninemoonplanet
@ninemoonplanet Год назад
Mom died from this disease a decade ago. Oh how I wish I had a way to hear her again. 🥲 There's still no effective treatment for it, but at least now families can still listen to the voices. It's a brutal way to die. Still haunts me.
@Andyhandz
@Andyhandz Год назад
This is what BBC news cover instead of the Elon musk twitter dump. LMAO
@dumbassloser
@dumbassloser Год назад
An hour of reading. That's awesome. I wonder how expensive the hardware is if one does lose their speech.
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