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How the Latest Non-Hodgkin Lymphoma Treatments SAVED MY LIFE | What You NEED TO KNOW 

The Patient Story
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There are so many developments happening in the most common subtype of non-Hodgkin lymphoma: diffuse large B-cell lymphoma (DLBCL).
The Leukemia & Lymphoma Society (LLS) and The Patient Story bring you this discussion out the biggest blood cancer/disease conference every year where top doctors and researchers discuss the most important updates (American Society of Hematology, or ASH) which took place December 2022.
In this conversation, Robyn, a three-time DLBCL survivor, and two top lymphoma specialists, Dr. Tycel Phillips from the City of Hope and Dr. Joshua Brody from Mount Sinai, discuss the latest research and treatment options in DLBCL.
Thank you to Genmab and AbbVie for their support of our patient education program.
Full story & transcript → www.thepatientstory.com/medic...
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Contents of this Video:
00:00 - Intro
03:42 - What is diffuse large B-cell lymphoma?
07:39 - What is the treatment for a patient who relapses in the first 6-12 months?
11:44 - Bringing up different treatment options with your hematologist-oncologist
16:54 - What is CAR T-cell therapy?
19:24 - Benefits and challenges of CAR T-cell therapy
21:16 - CAR T-cell therapy for refractory patients
21:56 - Describe bispecific antibodies
25:59 - What is the comparison between epcoritamab and glofitamab?
28:56 - Side effects from bispecific antibodies
30:02 - CAR T or bispecifics for relapsed/refractory patients?
#cancersurvivor #cancerstories #cancer #thepatientstory #dlbcl #lymsm #nonhodgkinlymphoma #lymphoma #lymphomasurvivor #lymphomaawareness #cancertreatments #cancerresearch

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9 июл 2024

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Комментарии : 15   
@sandradalessandro2935
@sandradalessandro2935 Год назад
This decision is right n front of me 6 rounds r chop complete. All original lymph nodes with cancer disappeared. 8 weeks later pet scan reflects two small spots not original in location. Working now with cancer center of America n we will repeat pet my end of march this is the transplant team and CAR T. Is on the table. This video was so amazing can not thank you enough it’s like divine timing for me as I literally crave this info. Thank god for your channel!!! Info on bispecific therapy is just mind blowing. Praying one of these or both are my prayers finally answered 🌻🙏🏻🌻🙏🏻🔆🔆🙏🏻
@keishasemelfort811
@keishasemelfort811 Год назад
I am not a cancer patient but I work as a nurse. I like to watch these channels because they help me to understand what my patients are going through. Unfortunately doctors some times miss symptoms because they don't spend enough time listening to their patients. Not all, there are some very good doctors that I encounter at work. I always advocate for my patients even if the doctor gets annoyed. Patients are people and they deserve the best care. You never know when your health may deteriorate. Life is precious. Keep doing these interviews. They are informative and I hope physicians take the time to watch and improve their practice.
@tammyslaughter9587
@tammyslaughter9587 Год назад
As a cancer patient it’s comforting to know there are compassionate, caring nurses like you which shows how incredible you are as a person and professional, by the fact that you are here watching newer cutting edge cancer treatments and expanding your knowledge so that you may possibly help others along the way with this information. Thank you for what you do, you and your profession are much appreciated.
@davinawonderling9361
@davinawonderling9361 6 месяцев назад
Keisha, it's people like you who are such a GOD sent blessing to patients like us! Thank you for your compassion and your professional manner ❤❤❤❤. Keep up the great & loving work 😊
@polyrhythmia
@polyrhythmia 9 месяцев назад
I just finished my third round of chemotherapy for diffuse Large B-Cell lymphoma, and am awaiting a PET scan and an echocardiogram. Age 63 years. Hoping that I don't have to go beyond this.
@apwmojack
@apwmojack 9 месяцев назад
Hope it goes good .
@davinawonderling9361
@davinawonderling9361 6 месяцев назад
I sure hear you!! I go for a PET scan on Jan. 29th after 6 rounds of R-CHOP chemo, then I see my oncologist a week later to discuss the results and go from there! I 🙏🙏🙏🙏 for the best outcome for you!!!
@polyrhythmia
@polyrhythmia 6 месяцев назад
@@davinawonderling9361 I did all six rounds of chemo, and am now waiting for a PET scan to see if it worked. Should be in February.
@brozbro
@brozbro 8 месяцев назад
Taking nothing away from new DLBCL therapies, I would like to hear about advancements in treating symptoms of those therapies (e.g. CRS). For me, R-CHOP was devastating. Additionally, are there any advancements in neuropathy other than just waiting it out? Also, I would like to hear about the stages patients go through when all therapies fail.
@apwmojack
@apwmojack 9 месяцев назад
I was 3 weeks into rchop. Only had mouth soars one week other then that .i was feeling the same .but the scan before my 4th round showed it wasnt working apparently i was a refractory. So now im starting down the car t path . Have 15 appointments in the next 7 days finalizing with t cell collection .
@bayanya8724
@bayanya8724 Год назад
Great talk! Could you make similar video with Hodgkins lymphoma specialists about newer treatments, their side effects, and clinical trials for Hodgkin's lymphoma? Thanks.
@ThePatientStory
@ThePatientStory Год назад
Absolutely! We recently put together a video on "The Latest in Hodgkin Lymphoma" and spoke to a patient and a specialist. Here is the link: www.thepatientstory.com/medical-experts/latest-in-hodgkin-lymphoma/ I hope this helps. Thank you so much for watching!
@karennadeau8251
@karennadeau8251 Год назад
My son inlaw has been diagnosed and is going through chemo. How much would something like this treatment cost?
@apwmojack
@apwmojack 9 месяцев назад
I figured each chemo treatment ran close to 20+k plus the self injection device to boost my white blood cells another 6,500. I think it's compatible to a full 6 round chemo treatment. But I'm just making a guestimate
@jenniferbonilla4145
@jenniferbonilla4145 5 месяцев назад
For my husband, it was about $25k per treatment, but he had surgery, radiation, and was in ICU for 60 days due to a port infection - in all it was $1.3 million, but we only paid $3000 per year for 2 successive years due to excellent insurance w/ BCBS. He has now been a 9 -year survivor after fighting Stage IV Lymphoma at the Mayo Clinic, PHX. We are ever so grateful.
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