I started getting these after having Covid. I would wake up from sleep with my heart going 170bpm. It felt like I was having a heart attack. I went to the cardiologist and my heart was completely healthy. For three years no one could tell me what was going on. My rheumatologist diagnosed me with hypermobile EDS and POTS. I wish doctors were more educated about dysautonomia.
Yes many I've worked with have shared similar experiences. The heart itself can be fine - it's the autonomic nervous system's regulation of it that is affected. As I mention, I also have EDS and POTS and it has taken years to figure out the interconnectedness of them and their affect on the nervous system. My hope is to shed light and give hope so others don't feel as lost as I did. Depending on the areas, it appears more doctors are becoming familiar with dysautonomia after viral infections
I was lucky. My dr’s wife had pots and he sent me to a cardiologist. The cardiologist knew about it as well and diagnosed me right away. Unfortunately there are other doctors I have come across and act as though it’s a mind condition not a physical one.
@@NicoleToner-k3d that's great you got diagnosed quickly for many it takes multiple years. nervous system dysregulation (being in a persistent sympathetic activated state or shifting into shutdown) is involved in POTS so the "mind" ie brain piece is an important part in managing symptoms but not necessarily all of it.
What do you do to prevent that? I feel ok during the day but get these surges at night. My heart goes tachycardia but not higher than 120. I go under cold water. It's so scary. Glad to hear your heart is healthy. I'm going to start eatting Greek yogurt at night. Maybe the protein will help
@@kristinshelton5958 often with clients feeling ok during the day they may not notice their body is stressed during the day - stress sticks to us and carries into the night. I work with clients to help them learn how to shift out of stressed state into regulation during the day and establish a bedtime routine that helps shift the nervous system into parasympathetic state before sleeping to help. I've seen having electrolytes before bed and adding a cold cap (if heart rate doesn't dip super low) helpful along with different breathing techniques. Reach out if you'd like to chat more! calendly.com/meghan_varner_guide2resilience/discovery-call?month=2024-09
Your research and tips are very precise. I'm also done a lot of research on the cardiovascular system electrolytes with pots I'm a SVT super ventricular tachycardia suffer also have pots and the heat intolerance really is tought to manage.
Thank you - I try my best to base suggestions on research as a physical therapist and coach in one! Figuring out the mix of electrolytes your body needs (it's not just sodium) can be very helpful for symptom management. Reach out if you'd ever like to chat. calendly.com/meghan_varner_guide2resilience/discovery-call
Guanfacine is a miracle medication for this, since it directly prevents adrenaline surges - and it's the most popular insomnia medication for pediatric patients. I have hypermobile type Ehlers Danlos syndrome, too.
Thanks for your comment. I've seen that helpful for some I've encountered. However some don't see much difference as not the primary cause - more nervous system dysregulation at night and during the day based.
@@Rssident I understand yes. I am just pointing out that thiamine deficiency is not the only cause of symptoms and for some even after a year plus of supplementation they continue to have challenges. There can be other contributing factors to nervous system dysfunction that typically need to be addressed. I do not talk about supplementation on this particular channel as focused more so on nervous system regulation.
Guanfacine or Clonidine are what doctors have been prescribing to treat this. They calm the sympathetic nervous system and fight or flight response, and also treat hyperadrenergic POTS by preventing adrenaline surges.
Thank you for speaking about this awful, scary thing. There’s not a lot of info out there on the subject. There’s comfort hearing you speak about it, with tools to help too. I am dealing with histamine intolerance and horrible adrenaline surges at night, on top of many of the other fun symptoms of dysautonomia. Just started an antihistamine diet, with the guidance of my nutritionist, to see if it helps…I’m currently doing an amazing brain retraining course right now and am considering someone like you for support through this difficult time. Thank you for what you’re doing and sharing ❤️🙏
You're welcome! I've found that figuring out the histamine component can pair with the adrenaline surges and help with getting better sleep quality. I talk a bit about histamines in this video (ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-jj7AF8UhODk.htmlsi=bwmJNS6Ot8X91DfL&t=616) - On my topic list to share more soon! If you're interested in reaching out to chat sometime feel free to reach out: calendly.com/meghan_varner_guide2resilience/discovery-call
Thank you! That’s definitely my hope and prayer. I know if I can sleep better, I’ll feel much better. You’re a wealth of knowledge and I’m super grateful ❤. I’m all about support right now and plan on reaching out soon 🙏
There are many brain retraining programs out there. Personally the nervous system rewiring approach I used involves HRV biofeedback and learning to recognize and shift your emotional and physical state through customized breathwork and improved self regulation with somatic practices. It's a blend of what's referred to as bottom up and top down approaches. If you'd like to learn more, you're welcome to book a time to chat calendly.com/meghan_varner_guide2resilience/discovery-call
I’m a month in to Primal Trust and it’s been hugely helpful. I tried re-origin before, with little to no improvement. Just my experience. Wishing you all the best on your journey of healing ❤️
Postural Orthostatic Tachycardia Syndrome. It's a condition of autonomic nervous system dysfunction in which heart rate increases by 30 BPM (40 BPM if under 18 yo) when changing from lying to sitting or to standing and stays sustained 5 minutes or more for majority of those diagnosed.
