UMM, if my child were that sick, and there was a drug that would help just a couple zip codes away, I would move YESTERDAY. Relationships can be built back up, but once he is gone, he is gone.
If there is the chance for treatment, he should so get it. I've been told about 2 cases some 10 to 20 years ago where it was not available, yet. Those children died before turning 15. So it's not fair if a therapy is to be had and the little boy doesn't receive it.
@pokemon1059 Did you not think to at least look it up on Google before you said something like that... it takes about 5 seconds The syndrome is named after Canadian physician Charles Hunter. Now you know. =)
Hmmm... A disorder that makes degrading of the human body faster.. Life is short enough as it is and yet...this happens but maybe the saying could hold truth "where theres a hope theres a way".
OH MY GOD!!!! Are you sure you are his real mother???? I would do anything for my son... You worry about silly things comparing to your son's life or death threatening situation...
This is sad. The people who deserve life saving procedures are dissallowed treatment, yet we give treatment to illegals. I hope the kid gets his treatment
