Thank you so much for making these positive videos. I have been diagnosed with vestibular migraines. Been dealing with daily symptoms for 14 months. Even though I am not 100% I am way better than I was to begin with. I am so happy to hear how well you are doing.
Really appreciating your videos right now mate. Been in a chronic phase at the age of 18 for time spans of 10 months, and now another chronic phase for 2 months
Feeling great, it’s month 6. For myself it’s been a monthly progress. Vitamins have helped tremendously. Started running again, feel great. Glad your feeling better.
Thank you for posting these videos. I’ve had VM for almost 4 years now and my symptoms have been up and down. I do feel that vitamins definitely help as well as doing my best to keep a clean diet. I too feel like vestibular rehab and exercises really can only help so much. They seem to help me for a little while, but then slowly loose their effect. It’s very encouraging to hear that you are doing better.
Yes, vitamins are never going to do any harm and can be really helpful. I hope you start to feel better too. I think I will do a video on Vestibular Physio.
Hiya just come across your page, I’m from London! Suffered with VM/PPPD for 7 years, did not want to go down the medication route so suffering 24/7 - it’s been a complete life changer! Glad you are feeling better and it’s great that you are also raising awareness
Hi your posts have been wonderful for me. I started dealing with this in September this year. At first it was constantly spinning. Inability to focus on anything. Now I’m on amitriptyline 40mg I don’t know if it’s that or simply time but I can do everything I normally do albeit it takes more effort. Now it’s like a rocking sensation in my head but it isn’t affecting my visuals. I still have ear fullness from time to time. I’m just praying to heal soon. I also take magnesium citrate.
Hi Shaquille - sorry you have been suffering too. Yes, I get the rocking too. But it sounds like you are starting to be able to do the things you like doing, just a little slower - good progress!
Glad to hear you're getting better Matthew. Keep us posted on the evolution of your symptoms. Can I ask if you have/had the rocky type of dizziness (where you feel you are in a rough sea or on a plane with turbulence)? That's the symptom I'm most struggling with, it's exhausting. Cheers!
I did recover from that horrible feeling 🙏🏻 im taking 15000 iu Vit D daily. I guess thats what helped me! Vit D its actually a powerful hormone that our body needs. But you need to make sure to cut off lactose from your diet and drink lots of water daily so you don’t get kidney stones. Take a look at COIMBRAs protocol, this amazing DR treats many autoimmune diseases with very high doses of vit D... lots of cases proven that he cured MS patients. Amazing!
Thank you for posting these videos. I'm just stumbling upon them I'm hoping that you've come a long way from then and things are improving. I'm just getting started with this journey. I've been down for a month now. My neurologist wants to try me on topomax. I was wondering if you have tried it. Thanks for the glasses reference. I was just looking at them and wondering if they were legit. I'm dealing with a lot of emotional issues and this very hard to deal with especially thinking about going back to work. I'm scared that things won't improve so your videos are comforting. Thanks 👍
Hello Alyxis. I am sorry you are struggling and at that early part on the road to recovery. I have never taken topomax but it was one of the meds recommended to me by my ENT, so I'd defo give it a try and see how you go. You will get better, I promise. Hmm, probably the stress from your emotional issues was enough to push you over the threshold into a VM phase. Work on bringing inflammation down in your body. They will imrpove! That was my worst fear too, but it is unfounded.
I’m in the early stages. I live in Kansas, I got diagnosed a few weeks ago. I feel like I’m on a boat 24 seven haven’t been able to drive for over a month. I was just wondering if you’re able to drive and they’re being on a boat feeling never goes away?. This video gives me hope I have quite a bit to figure out here but the first drug you mentioned I’m on that have a neurology appointment coming up. I guess the main thing is finding your triggers but yes it’s definitely life-changing go for now you can get your life back because I feel like or felt like there’s no hope. Thank you for your videos!
Hey - your videos are so relatable but also inspiring. I've just started on Amitriptyline. I was wondering how long you took it for and what % would you say you're operating at now? Have you reached the 95%-100% phase? I really hope so.
Ah thanks for such a complement. Yes, I am at the 95%-100% phase. It took my meds about two months to start to properly work. Amitriptyline is a good one, so I am very hopeful you will recover too! Just stick with it!
I did have trouble with computer screens. It's a mix of the light (photophobia) and the motion (motion sensitivity) at play in my opinion. FL-41 specs help with this though :)
I have many of the same symptoms people with vestibular disorders have... except for 2. I’m so sensitive to motion I can’t even lay down with my eyes closed without feeling somewhat motion sick/nauseated. I can also barely move without feeling very nauseas. Does this seem normal? Did you ever experience anything similar?
Hi I was diagnosed vestibular migraine back in November 2021 after having balance problems and dizziness for 2 years I was on propranolol but caused me chest pain so stopped it but found relief on it now I’m on nortriptyline similar to amitriptyline but still ain’t finding relief from it I was wondering if you think my doctor would allow me to take nortriptyline alongside propranolol again
Hi Saim. I take sertraline and propranolol (PP). I dont know if you can take Nort and PP, I would assume you can but Google it and of course ask your GP.
Hi Shaquille. It took me months to feel or see any kind of improvement. I was at the point where I thought I maybe wasnt going to see any improvement at all. However, I did see some. It just takes time.
Hi im wondering if you can help me i have vestibular migraine also and had depersonalization with it for 3 months now constant! Just started on propranolol but im so fed up of this depersonalization if the vestibular migraine doesn't go away will the depersonalization go away or not? Just the GP isn't giving me any answers i feel so lost so fed up! 😕😔 Would appreciate it if you could help me please, a really can't live like this
Hi Lauren. Yes, it will go away. I know, it is so draining and upsetting but hang on in there. Things do get better. Do you want to chat away from RU-vid?
@@thebluntyorkshireman5161 how is it gaurenteed that the depersonalization will go away if the migraine doesn't? Honestly i really don't want my life because of it
