I had an open belly for 7 months and fistula, stoma and stoma reversal as well. I did not have RU-vid then but i do thing if i filmed it it could help a lot pf people! The whole 7 months hospital experience and rehab after as well. I got to be an expert at wound care right now😅 And if you can help people🤘🏼
Totally agree with a wound care video Vanessa! It will be so helpful for thousands of people & caregivers. Congrats on your reversal!! I wonder if you might try a stoma shower cap (eBay or Amazon) or even the glad press & seal if you don’t want to get it wet or even cut down on how soaked it gets there but it’s good to know it’s ok, & to just make sure it’s dry. Hoping the home care nurse helped!! “NOBODY sleeps in the hospital” (quote from a previous physician…) 🤦🏻♀️ Rest & heal up sista!! 💜
@@queenofstitcheswarrior2668 same thing happened to me after my stomach reversal. I had the surgery June 30 2020 and I still have a fistula. It just won’t close. My team of doctors are trying everything.
You have a great attitude, which is half the battle. I’m 4 months post reversal and still learning what to eat without getting gas. My prayers are with you.🙏🙏🌹
Congratulations. On my reversal, I stayed 7 days. I had a tube through my nose, I was miserable. But I'm 8 months post reversal. Not quite on a routine yet. But doing much better. The wound care was a bit scary and really strange to watch the hole close up from bottom up. Good luck. It will be all good things from here on. You did great. WARRIOR!!!!. For sure.
Hey girl, you look so healthy after this procedure! Yes, my wound bled a lot first shower. I decided to put a water proof large bandaid over the wound for my own peace of mind. Use saline liquid after to rinse out the wound before repacking. The visiting nurse will show you how, it gets easier but never pleasant. You are doing great, keep rested. 🦋. Lots of internal healing takes sleep!
I'm happy you are doing well. I got my Ileostomy 8 years ago (permanent). And I've been binge watching your channel. You have done an amazing job with all the complications. I know all too well about those Continue. To be kind to yourself
Hi Vanessa. You are so adorable.💖 I love how honest you are and that you look at things as learning experiences. I'm so glad you got to go home. When I was in the hospital for four nights I only slept a total of 12 hours. When I got home I took a shower and I climbed into bed and I passed out. I feel so relieved that everything is over and you were right to just get it done and by Thanksgiving you will be feeling great. May God continue to bless you and watch over you and your family. Love, Carly 💗
So happy for your surgery to be over. You are a brave woman and have gone thru this all with such grace. Thank you for sharing it all with us. You are helping so many with your informative videos. I pray you are feeling stronger by now!🤗
Wow, so much different how they did it with my stoma wound! They only stitched the outside of the wound and the inside they left open. After surgery they put a bandage on and only after 10 days I had to go back to the hospital to let it remove by the surgeon and it was allready healed. I life in Belgium so very different procedure. Be prepared for many bathroom visits a day and use the creme after because it can get really painful! Try to avoid eating fibers and only 'white' food, like pasta, rice and bread. Surely no raw vegetables! I know it is agains healthy eating but to avoid too much problems you have to change your diet, no choice in food anymore. I wish you have very less problems with your bowel then I had, also because nobody told me what was best to eat after this LAR surgery and ileostomy reversal. If you have a problem with anything, Vanessa, you can ask me anything and I will give you more tips. All the best to you!💙
Give yourself some grace. You've gone through so much over the last year plus so please remember to be kind and patient with yourself. Let your mind, body, and soul heal and remember to always stop and smell the roses. So very happy for you and that beautiful blessed family of yours. Hugs from Long Beach.
Thank you Thank you for your courage and strength. We all could be in your shoes one day, seeing your courage is an inspiration to us all.God bless you ❤️😇
Hey brave girl! Looking good! Makes me happy 😁 Holy crap you have to eat all that as a first real meal?😱😅 I had a lot of wounds to take care of as well, open belly for 7 months, fistula’s and also stoma reversal. No RU-vid at that time but i think it could help a lot of people if i recorded the process. You’re such a rockstar, out of the hospital to full glam! 🤩 Take care and wish recovery at home goes well. Love you❣️🌻
Aww...Mija... I'm so glad you're on the mend. Sending love & gentle hugs. Just know you're loved ,prayed for & supported . Keep us all updated whenever you're up to it. We'll be thinking of you often !!!
Hi Vanessa! So glad you’re home now and getting some rest. The first week home is the hardest..trust me lol I recently had my takedown as well going to week 4 and my hole is finally closing! I didn’t have to pack mine when I was discharged doe.. I just had to clean it and put a band aid on it 🤷🏻♀️ it is weird at first when showering without anything over it. But it’ll be ok and it will heal in no time & bathroom trips will get better too.. 😊💙
Look at you!!! Super proud of you beautiful woman. I do remembering when I had to do the changing as well angels 😇 are sounding you. Yes thats right about the shower yes (packing) but please have someone there to help you Until you can do it by yourself. Get better with just plenty of rest and taking your time walking.
I seen another comment suggesting a bidet. I second that. I had my entire colon removed (total abdominal colectomy with ileorectal anastomosis) on Sept 14. I ended up with an ileus and extremely low potassium that increased my stay to 10 days. When I finally started having bowel movements on day 4 or 5, I had 40 within a 24hr period. I ordered a bidet the next day. I still deal with alot of rectal/anal pain and diarrhea-- the bidet has been a life/butt-saver!!!
Wound care is a weird thing, but I’m glad you’re not hurting when you pack it! I had to have my stitches taken out of my wound after open abdominal surgery (bowel obstruction from scar tissue after radiation) due to an abscess and lemme tell ya, that was not a fun time or fun recovery at home. But change your wound as often as you need, use sterile saline, and don’t let that packing gauze get dry inside your wound, if at all possible. I hope you had the nurses load you up with medical supplies before you were discharged. Always ask for whatever they can give you! Best wishes and I’m so happy for you. Another step on the road to recovery 💕
Hi Vanessa i so happy for you. .i have a loop ileostomy because of my diverticulitis and now im doing the exams to do my reversal done. .im so happy that i will have it soon ...but at the same time im so scare when i watched videos saying that it hurt alot ..can you give me any advice please! I will appreciate it. Gracias Vanessa y de verdad me alegra mucho por usted porque es muy jovencita y tiene que luchar para seguir aldelante 👏👏👏
I know your experience was 2 years ago. I am getting a colostomy reversal next month. Theres a chance I may come out with a ileostomy. Thank you for sharing!
So happy for you. Please keep on updating us about going to the bathroom... I'm really warried about it and my reversal will be in about 6 months 😱. Also - when are you getting your port removed?
Try eating mainly bland foods and perhaps avoid dairy for a bit, its really hard on the digestive system and might be causing some of your frequency issues. I had to pack my belly button area with gauze/saline after a surgery long ago. There was an open hole in my abdomen and its amazing how the body closes up and heals. Good luck with your recovery!
Nobody gets a good sleep in the hospital, they're always coming in to bother you with diagnostics or medicine. My favorite part of the day was the 4 a.m. blood draw. I'm glad I found this video, because I'm hoping to have my ileostomy reversed, and I had no idea what to expect.
Hi Vanessa I hope you get better soon and my name is Dane and i will like your new video and I like you still and i live in England 🏴 👍😀😀😀🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂
You looked so beautiful for Halloween that red lipstick looked so good on you .You're still in my Prayer's take care and God bless you and your family ❤
You are doing great! I had a NG tube for about 3 days after my take down. I started to hemorrhage about 3 days after the bag take down and ended up on a ventilator I flatlined and spent a month in ICU. I am chronically anemic:. Surgeries are hard for me.
Try a shower band-aid. Buy a good one so no water hets in (I can't recommend you one as I am not in the US), read some reviews and use it exactly as it is recommended. I always used one after surgeries and it worked fine. I used to shower before changing my dressing so that if a little water gets in (which rarely happenes), I will not have to change twice in 10 minutes. Get well soon and take your time! I know you have children and it is difficult to rest, but you do not want to go back to the hospital! Listen to your body!
Why didn't they close it in surgery? Yes packing is rt term. I'm so happy your close to being done with that.. yes it would be educational to do wound care video. Try not to over do it activity wise u don't need a set back. Yay. The surgery is over! Prayers for healing 🙏❤
Closing the wound would risk a tiny piece of poo being there because that whole is where you’re ileostomy bag was and just cannot close it up and poo be inside. I had a ileostomy for a year and then take down..
Hello I just took care of my mother because she had a bedsore from the nursing home that was horrific. I had to clean the deep wound out that I could fit my fist in with some Saline solution and then touch it gently inside there and throw that out then I had to get gauze and put some Saline Solution on it just a little and cover up the whole area of the wound loosely and then I had to put one of those pads over it with a sticky stuff on it
Going through the same journey (stage 3 rectal cancer) had my DLI reversed in late October. I had very little pain, but I was instructed to stop packing the inside of the wound within 7 days of coming home. Interesting how wound care is not really standardized.
Honey omg im so happy uv been going potty n an accident is good love big hugs eat hun u need ur strength ur lookin beautiful n great glad u could walk keep it up hun 😇💙 hugs beauty
I would like to see your would care process please. I have ileostomy and awaiting a decision to reverse it and create a colostomy instead as I have alot of hernias around my ileostomy so worried about how the ileostomy site is after its reversed xx
My reversal was much easier than the placement. But everyone is different and it’s ok to not have an appetite cut definitely drink liquids so you won’t get dehydrated
congrats on a successful surgery 🩷. this video really helped me. had my ostomy for a year and some change now. starting my reversal process as we speak, kinda nervous.
Had my reversal on 7th June. Ended up with a temporary Ileostomy after having my sigmoid colon removed and half my bladder removed. started back at work 3 weeks ago. Was out of hospital on day 2 after reversal. Wound site is still painful……😞 bowel habits are best they have been in years.
Just got home from my reversal today (day 4). The pain is unreal. Doing anything hurts. Very minimal bm's at this point, but I'm passing gas. My surgeon said eat anything I want, but everything I've found on it, all says stick with a low residue diet. No red pasta sauces, no raw fruits or veggies. No nuts. No spicy or citrusy foods. No to most meats. Soft meats only (salmon, seafood, chicken). Anything white is allowed - White bread, rice, and low fiber pasta. This diet is supposed to be much easier on the bum. So, forgive me if I cringed a little on your last hospital meal. I'll have to do my first open wound packing change tomorrow. I badly need a shower, too. Too exhausted after climbing 3 stories to my apartment. I was told to cover everything, including the bandage with saran wrap, in a shower. So, I'll probably bathe first, then do the bandage change. They gave me those wooden q-tips, which actually hurt to me, so I'm using regular q-tips. Hopefully, it will feel better.
