Steve has suffered from Long Covid (and another condition sadly common from these days) for over three years. He travelled all the way from the US to Bayreuth, Germany for cutting-edge blood-washing treatments - HELP apheresis (to remove microclots) and Immunoadsorption (to remove autoantibodies). In this interview, he talks about his symptoms, various treatments tried and his, at least initially positive, experience from his treatments in Germany. This video is also relevant for ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) and POTS patients.
List of blood-washing clinics (incl details for Bayreuth) can be found here:
lcacommunity.org/clinics-list
My HELP apheresis article on health rising (referred to in video) - www.healthrising.org/blog/202...
Test for autoantibodies - www.celltrend.de
Immunoadsorption study for ME/CFS - www.ncbi.nlm.nih.gov/pmc/arti...
About the channel:
My name is Patrick Ussher and I am an ME/CFS patient. I have written a book on POTS and also about thirst in ME/CFS, POTS and Long Covid.
Personal website (including details about consultations service): www.patrickussher.com
My (free) book on thirst in ME/CFS, POTS, LC: www.themythofprimarypolydipsia.com
NB: This video is for educational purposes only - please always consult a doctor about any health issues or changes.
Affiliate link:
Normalyte (most helpful supplement I've ever found for ME/CFS) - affiliate link: normalyte.com/?ref=ftveadx3
Timestamps:
1:15 Covid infection & v., POTS, fasciculations
05:40 treatments tried & results
07:45 fasciculations description
11:00 level of functionality
12:45 decision to travel to Germany
13.40 article mentioned
15:45 HELP apheresis description
18:33 effects of HELP
22:25 autoantibodies test and function (mention of celltrend)
26:40 immunabsorption experience
33:16 return of symptoms
36:00 improvements overall?
41:30 circulation issues in ME/CFS
12 апр 2024
