Incredible Results: How to Recover From ME/CFS & Long Covid 

Yes, Calming down the nervous system was key for me to getting better. In my first year I was stuck in Fight or Flight. I was only getting 4 hours of not even propper sleep a day. I learned about the nervous system and did all the things to calm it down, meditation, natural remedies, meds, breathwork, HRV feedback. I was trying to take control over my nervous system, but it just would not calm down. Right when I hit the one year mark, I got reinfected and crashed to very severe ME. This was where I gave up. And THIS was a turning point for me. I gave up trying to control things. I let go. I let my body do its thing. And this was when my nervous system switched to recovery. All of the sudden I went from 4 hours of sleep to 20 hours of sleep per day. Good, restful sleep. And I started getting better. From Bell 5 to Bell 20 within 6 months, which felt insanly rapid.

currently dating someone with ME/CFS and i love and support them so much. One time while at school, (6th form) They crashed and were sat in the corner with headphones on. I say with them, told them how much i loved them, held their hand and cuddled with them. They managed to push through the day and crashed again at home, but, when i was cuddling with them and was Non- verbal. They leaned towards me and whimpered “Thank you” and when i got home, i burst into tears. Thank you for this ❤❤❤

3 Components - Work with the Nervous System (Autonomic Nervous System) - Meditation - Therapy - Dealing with past trauma - changing life cirumstances - Brain Training - Treating the condition like a phobia - You are scared of everything (foods, people, cirumstances) You become an expert in being sick. - Teaching the brain that the world is safe. - Gradual exposure therapy is pacing. - Looking at underlying infections - Adressing the gut, nutrition, heavy metals and molds in the body.Healing the gut is crucial

Raelan, what would have we done without you... You are so generous. Because of you, so many people are healing. Thank you so much for everything. 💕

I cant thank you enough Raelan. Your videos gave me hope on my recovery journey and I wouldn't have healed without your channel. Your channel is a lighthouse in this dark sea of dysautonmia.

I don't agree with the pacing exercise approach to Long Covid. I've had LC for almost a year now and my GP here in the UK told me to exercise no matter what and every time I do, I crash. Even if my session is light or it's a walk in the forrest, and before this I was an extremely fit rock climber. I eventually switched Drs in the practice and she told me not to exercise at all and that is also the advice from the leading LC researchers/Drs here in the UK. I know some people are claiming to have success with pacing, but I'm more convinced this is a media driven story that's pushing people further into trouble. My real progress kicked in once I really looked at my gut health and I've made huge leaps forward.

OMG Raelan, this is a GAME CHANGER. My LC started in January and it def has progressed to where it's obvious today it's turned into ME/CFS. I fought that for a bit there and kept pushing myself, stressing myself, only to relapse obviously, or get worse. For me it happened due to a big life change I made willingly, which taught me now in hindsight, that changes when possible need to be gradual, not sudden. It costed me my health, but the advice you are giving us here, is amazing. It says the hard truth, which is, it's us. It depends on us, and that's why no doctor or supplement is healing us. It's up to us. Lots of love, thank you for your work!

Raelen your channel was a huge part of helping me recover. Digging into childhood traumas, emotional suppression, pacing etc were what led me to recover. Thank you from the bottom of my heart 💙

This is exactly how I healed. This is the golden ticket 🎫 Thank you, Raelen!

Raelen, I think I have this from getting sick at the start of 2023, I'm 6-7 months in and it still remains. Sometimes I don't know if I can have a normal life again. Thank you for making these videos. I don't feel quite so alone knowing you and other people have been through this.

This Video is literally LIFE SAVING. Thank you so much for summarizing the most important healing techniques!

You articulate the keys to recovery succinctly and brilliantly, Raelan! The way you've synthesized the common threads from close to 100 interviews is a massive contribution to this field and community. Thank you for all you do! I'm thrilled that the pivotal role of the brain and nervous system is being understood by a wider audience! It took me 13 painful years to discover this approach in 2018 and once I did, it skyrocketed my recovery. I am passionate to share this knowledge so people can avoid more suffering than necessary! Neuroscience is proving how stress impacts our brain and nervous system, and how to unwind those patterns by finding a felt sense of safety in our body. The symptoms are 100% real and it's not our fault. It's biology. But thankfully with new understandings and practices, we can recover! It can take dedication but it's empowering and life-giving work. Wishing everyone wellbeing and love on their journey! ❤

Thank you Raelan for summing up the things the recovered community has been trying to say for so long repeatedly. My biggest key to a full recovery was understanding that this issue was my autonomic nervous system and not some undiagnosed disease that was going to kill me. Especially after being cleared by my doctors. This was a brain-body illness for me and realizing that was huge. I don’t like the phrase mind-body because people think I’m saying the illness is “all in your head”. The issue needs resolving with brain rewiring. It just so happens that your brain is located in your head 😅 Doesn’t mean your symptoms aren’t real or made up. Very real symptoms. Very real condition. Very real approach to recovery as well. Recovery is also very real too. All these recovery stories aren’t made up. Keep doing what you do Raelan. The community loves ya and so do all of us over at Recovery Jumpstart!

Going to a therapist? Having a career? Trauma therapy? Having relationships? I’m glad to hear there are people with long Covid that can do these things. Many of us can hardly get out of bed.

Hi Raelan. Thank you for everything you provide on your channel :) I developed a 'mystery' illness about a year after chemo/radiation for cervical cancer. My theory is my immune system was still weak and I caught a virus that flicked the autonomic nervous system switch. The red herring was a high ANA reading and the endless hunt to find an autoimmune condition when nothing specific was showing up. My symptoms are more in line with fibro/cfs. I appreciate your take on how the brain can block our bodies natural ability to heal. I certainly experienced a huge threat to my survival and I really don't think my body understands that it's in the past now. Thank you :)

Yes! This is what it took me months of research-- and numerous medical tests--to understand on my own. Now ready to address it. I subscribed and look forward to learning more.

I’ve tried the brain training thing for two years, I’m not scared of anything but every time I exercise I’m bed ridden for days or weeks after trying it, I’ve attempted to push through it and makes it even worse. I think this goes quite a bit beyond being scared of exercise. I have viral feelings, sore throat and body aches everytime I try lifting weights. This is wu wu silly advice for most people with the CFS symptoms. I was a stellar athlete before this.

Your channel should be taken under consideration by the WHO and the scientific community. So thankful to you and your wonderful guests ❤

You’re an incredible gift to the world. This video alone can be a GREAT resource for people to share with their doctors. Of they can’t cure these conditions, but at least they will have an understanding of what their patients are going through- all because of your persistence and dedication to this channel, and a fantastic summary video. Sending you much gratitude and love!! 💕😊

Hi, I recently recovered from a long covid since I was positive with covid 19 in October 2022. I'm in my 30s, was moderately active (running and hiking) before covid, but afterwards I struggled with long covid. I had fatigue, couldn't walk before I had to sit down and rest, I was diagnosed with chronic obstructive pulmonary disease and was prescribed Symbicort. I couldn't work out for more than 15 minutes. I started eliminating food that causes inflammation such as red meat, deep fries and white sugar from my diet, and incorporating more strength training instead of primarily cardio, especially core training. I took multivitamins, ramped up my water intake and made sure I had enough vitamin D. Now's the third month I've been feeling my normal self again.

I just discovered this channel. This video was like a light bulb going on in my head - I have become afraid of literally everything and I didn’t even realize it. “I don’t want to…” because I won’t have the energy, it’ll hurt, I’ll be too tired after, it’ll make me worse, etc etc etc. Everything.

After about 3 years into it and slowly but steadily making progress: Raelan you are so right with everything! Atm I am 3 months practicing DNRS and now I understand what was wrong. I am really happy with the results but it is still a long way to go. Btw your videos are always calming my nervous system and I can not thank you enough for your work!

This is one of your best videos ever Raelan!

100% agree with this Raelan. Its definitely important to address co infections/gut health if needed but that is not going to make you recover alone. The calming of the nervous system and the brain retraining (including pacing in here) are the biggest pieces for sure 💖

Reading through the comment section i can at this point with confidence utter myself that the majority of the people seems like they had a mild case of long covid. MOST people get well on their own in 12-16 months. Paceing, meditation or not. The people in our medical group with long covid are extremely ill. They are strong minded people and fighters, but their problems are clinical like a damaged nerveus system making them unable to breath normaly or they lack the ability to perform normal gas exchange. Long covid needs to be categorized. Viral fatigue is well known and the majority gets well in 12-16 months.

Thanks Raelan, put together so well, your channel has helped me immensely 🙌🥰

Awesome Raelan! For me, the only thing I stumbled across was your channel (i was searching for answers) and from then on I was following a trail of advice of people who knew how to recover. Thankyou SO much for being a big part of my journey! It's exciting to be present for your steps of drawing patterns and conclusions from all your many interviews. I think it lines up pretty well with my recovery approach too. The only thing I'd add is that comorbidities might not only be infections, e.g. autoimmune conditions, genetic disorders, neurodiverse conditions, I believe are contributing factors for me. Some of these things could fit in the categories you listed - I appreciate that it's a broad brush summary. 🙌 Thanks again. Will be sharing.

You are a form a positivity and hope for me. Thank you. ❤ -Former nurse, former runner long hauler.

Thank you again for helping me calm my nervous system ❤

Yep. I went from completely bedridden to almost there in less than a year. If you can believe, accept and TREAT this as a (very) severe anxiety disorder, you will recover. It's undeniable. It's very physical and it's very real, but it all stems from your brain. Take responsibility and take action. This is the conversation we should all be having, all the time. Thank you Raelan for highlighting!

Nailed it!!! so spot on Raelan👏💚

Thank you Raelen. This is an excellent video, as are all your other ones. Hugely helpful, practical and reassuring. Thank you for all you do. 🙏❤

This does make totally sense I’ve been struggling for 15 month can’t work I need to re program my brain thank you for this video 🙏🏻

Wow, Raelan my favorite video of yours (of all the great videos)! You summed up all this complicated information in such an articulate, intelligent way :). After over 40 years of chronic fatigue I'm again inspired and motivated❣

Providing hope and comfort to someone who's really suffering with this. Thank you!

Thank you so much for your video ! I like when u do a synthesis ! Very powerful ! i am planning to do a brain training program and your video helps a lot ! 🙏

Thank you for your amazing videos, Raelan. I also recovered a few years ago, but have just come down with Covid. I'm feeling confident that I will fully recover! Knowledge is Power! ❤

Yes! Calming my nervous system is working for me, and I know that rewiring my brain has to be the next thing. Keep putting the message out there Raelan, such great charitable work.

You are a treasure Raelan!❤

Thank you Raelan, this summary was very useful for my wife. Thank you for this, a very timely reminder the key issues. We have both listened to this together, we are a year in this month with my wife’s illness. The three main points hit the target. The power of the mind and predictive reasoning or thinking ahead of events and training the mind to consider and invoke the positive outcomes (over a negative anticipated outcome), seems to be very important in the journey in my Teresa’s case. I’m convinced that the brain and heart have the capacity to influence our physical and emotional processes. We are using mindfulness, diet and using gut health, no sugar/alcohol, the latest is the Perrins technique starting next week. Onwards and upwards.

I remember just 6 months ago, I was pacing and it was working but similarly it wasn’t. I was convinced there were missing pieces to my journey of recovery and it took me hours of research to find your channel. I am so grateful that I did… because each video has given me more insight on recovery- from learning about brain retraining, compassion, self beliefs, reinventing yourself, healing and letting go of people pleasing etc…. I thank you so much for pushing yourself to create this channel and helping me and so many others - during my time of research I also came across some horrible long-covid practitioners who went as far as instilling more fear… (e.g you will never be able to have children as ur body hasn’t enough energy) etc etc … and getting people hooked on their expensive programmes! I am so so thankful that something in me felt it was a red flag and that I kept moving forward until I found you… ❤

Some people are still trying but not healed.Thank you for the videos.

Wow! Thank you! I am struggling a lot with my recovery.... Thanks for your work ❤

So true. Took me 2 years to finally get proper testing done with a neurologist and get my long Covid diagnosed as dysautonomia. The nervous system is so important! I think this may be related to CFS as well. Especially because people tend to develop dysautonomia after an infection like the flu or, now, covid. I recommend to everyone to see a neurologist and rule this out, because there is more and more evidence that long covid / long flu are a form of dysautonomiA with a few other issues as well

Blah blah blah 10 minutes to say absolutely nothing concrete.

An excellent summation and simplification of what it is to go through MECFS. It all boils down to the fact that our Autonomic Nervous System has gone out of whack. When that happens it produces the variety of symptoms that occur....and they're all different for everyone!!! That's why the typical American doctor, who is not trained to recognize MECFS, has no clue of what's going on!!! Since I have been going through my own process of healing, even my Raynaud's Syndrome has gone away!! Thanks again for your channel and all your insight. I especially liked your interview with Dr. Myhill. In the meantime, I have read some books about the brain. My favorite one was entitled Neuroscience and the Fruit of the Spirit by Bryan Spoon. Also, books by Dr Norman Doidge. With love and blessings for helping me, and many through MECFS, Miss Monique 🙂🌷🙏🎶🎉💕☺️

Two full years in- I was where you say until I fainted, again, (outside) and damaged my spleen. Still not recovered from that and I have now had a TIA. This is much more than fear even though I know that’s a large factor when attempting to regain regular life. I’ve also learned to note the medical field does the body first and when they can’t figure it out, they tell you it’s your brain. It’s a thing. I am very glad for your recovery and for others. I feel Covid needed to be addressed like a poison more than a virus. It was different. I would like to discuss more about the cycles that happen with LH. Most people feel so cruddy, they aren’t noticing there is a cycle for things like brain fog, erratic BP, tiredness and nausea, mouth sores etc. All of the work towards health is very interesting and how we use the brain is absolutely a part of what needs healing. Thank you for this information and for all the helpful comments added.

Great video Raelan! It took me 14-15 years of treating the symptoms I had in my body, before I learned that they were caused by me being stuck in a fight, flight, freeze state. I've been doing brain retraining and doing things to better manage my stress for the last few months. I'm seeing subtle but consistent improvements in my symptoms. This information is SO important to not just CFS but so many other conditions too!

2:43 Three components of recovery 3:04 NERVOUS SYSTEM 5:43 BRAIN TRAINING 9:12 UNDERLYING INFECTIONS, GUT ISSUES ETC

The best Video i never Heard ! You say what i feel deep inside. Now i'm Stoll very stock, but i Stoll have hope for myself. Never Heard at something like this

I can relate so much to what you are saying-thank you 🙏

Este es un video excelente, muy buen trabajo Raelan!! Saludos desde México!!

As a new viewer, and now subscriber, who has he going through the cycle of having episodes where I have the same symptoms that leaves me tired and in bed for days on end, just want will enough to function for a few hours before being rest again, having had every test and scan under the sun that came back negative and just being told by my doctor that in the end I will just have to live with it I'm a little confused by this video. I completely agree with everything you say, and your right in what you say, it will help people who are afraid to go back to how they are living before, missing with people, doing exercise, eating more healthily, but I think you are confusing many different experiences into one and saying that everyone can be "fixed" when I don't believe this to be the case, some people like me who have to live with it. I'm not negative, I try to eat healthy most of the time, I go out with friends when I'm feeling up to it, I love to run, so when I can I get out into the wild and go for 15km runs, but I have to accept that what I have will never go away, and I'm not sad about this it's just how things are. Some people aren't like this and it may just be a lingering infection that these changes will see them back to normal and it's great that you are giving this advice based on your experiences, personal and with those you've spoken to, I'm sure it will help many, and resonate with those that have been through this and recovered, but I think Long COVID and ME, for example, are completely different, and whilst the first is fairly new and be completely different (whilst having similarities in terms of symptoms). Everyone is different and in the end I think the first think I say anyone suffering would be it's positive, because from my own experience if you aren't things can spiral and get worse and worse which brings in mental health issues along with the underlying medical ones. But in the end at some point you have to do the best you can, strive to be better, try new things and see if they improve things, and maybe in the end there will be a breakthrough, but I don't think there's a one size fits all solution, some people will just have to learn to live the condition they have, rest up, eat well and rinse and repeat if and when it again. I'll have to watch more of your videos as I can't judge on one interview, but thanks again for the advice, and even if something doesn't work for you it's great to know what certain things have worked for others, and to try things if there's something I haven't tried yet, it may help a lot.

This was such a wonderful video Raelan!!! I think the 3 findings were so on point, and putting them each into perspective. You're the best!!!!

Great video 10/10!

Raelynn I’ve learned so much from you and your interviews especially how to minute by minute battle to keep yourself relaxed at first. Thank you for everything

Thank You Raelan !!! Do you find age to be a factor in recovering. In my 50s and cant beat the Long Covid.

Fantastic explanation which puts into words what I've been struggling to say for years. You're an inspiration.

Thank you for yet another great video!

Excellent summary, Raelan. Superb. Obviously there are more layers folded in but these three dimensions are critical. Fantastic clarity x

brilliantly said, number one, check, number 2 check . both of these are really helping, i just need to focus before i do anything to calm myself and re-train. I often only think after but i’ll get there

After watching so many of your videos and then doing ANS REWIRE I got to 100 percent recovery after five years of CFS. I got covid in Feb and am starting again. But now I have all these amazing tools, including meditation and brain retraining. What I would emphasize is that in the acute stages of flare up, rest is key, and pacing, NOT doing anything to expand the energy envelope. Graded exercise therapy/expanding the envelope comes a bit after an acute flare up. If the body needs rest, it truly just does.

I was tested for auto immune diseases and after these were negative I was told, "you have chronic fatigue syndrom. This is new to me and really overwhelming. Stress has always been with me. As a teacher stress is part of the job. This will be my last year teaching. There are lots of reasons but often as teacher we do it to ourselves. I was the teacher who took work home every weekend and stayed late. Finally, in my 50' I stopped doing this. I don't stress about work anymore, I enjoy my last year with my students. I do have a functional doctor and get acupunture, take supplements; acupunture helps me a lot but can be expensive. Over winter break I am going to focus on my diet and beginning meditation. For me, though it's not the fear of going for a walk, it's literally the pain I will be in the next day. I love to be outside and have been depressed but it's counter intuitive to do something that you know will cause you pain. It's not fear that keeps me from doing things it's pain and the need to get myself to work. Hopefully this will change and I will get back to doing the things I love outside Thank you for sharing this video.

I have just found this channel and after being ill for 10 difficult months with LC. I was beginning to wonder if I was ever going to improve and I have to say that listening to a few of these videos (the short ones I can manage!) I feel a glimmer of hope being rekindled. Thank you Raelan. I have just bought your book!

I love you! If there's anything I can do to help your channel I would do it. i actually have quite an intersting story regardinfg long covid and the circumstances under which i caught it

Has the interview you mention that is coming up been released yet? I can’t find it on the channel?

I agree 100% !!! Thank you so much Realan!!

This is SO helpful! I am subscribed. I have LC - when I calm my nervous system I truly feel better overall. I have many systems neuro/GI but plan to follow the mindset/approach you mentioned in your video.

Yeeessss!!! on point! So, I think why it isn't "discovered" by medicine is that they are looking in the wrong place - this is kind of a neurological/psycosomatic illness. Thank you so much for everything you do! You bring light to us!

I agree with everything except leaving out emotional repression and limiting beliefs. Rebecca Tolin, who is mentioned, healed in the Dr. Sarno method and one key thing about his method is acknowledging and feeling emotions in the body that we have suppressed and repressed. Along with working on emotional repression is seeing where we are operating from "not good enough" etc. Why are people overachievers or people pleasers to the point they sacrifice their wellbeing? It is because during childhood that was their coping mechanism to get out of the feeling of not good enough. The best way to be is to know we are good enough and do things out of choice and not out of fear of not being good enough.

Thank you so much Raelan!

Thanks! One year after I got covid initially I am still dealing with symptoms and I do recognize much of what I have so far found to be effective in what you share here. Although the intensity of some of my symptoms (like dizziness, palpitations) has significantly decreased, I am generally feeling so much weaker, more tired and also more anxious about everything than I was a year ago. Dealing with this on top of another chronic health condition has really worn me out. I do try to work on the fears, and if I look at things objectively I can see that most of the time when I do go out I feel pretty ok, yet there are still experiences when I go for a cup of tea with a friend or something and I do start feeling unwell, dizzy, shortness of breath... and this then brings back the fear and sort of proves me that it is not just an irrational fear. Finding this very difficult to handle at the moment. I am curious also if anybody recognizes that entering into a building/cafe/other specific space somehow triggers the symptoms? As if there is something in the change of air that my body has difficulty adjusting to. There are specific locations that tend to trigger this especially strongly for me and I can't relate that to anxiety or anything like that. I'm glad there are success stories out there and thank you for sharing, I was starting to feel quite desperate at this point so this helps to find back my courage!

👍🏻 Total agreement. Thanks Raelan 💗

What’s frustrating is that everyone else is getting health care. When the gray matter is diminished, good luck ever recovering! That’s me😞

Love this! Thanks

People who recovered before there were recovery stories is truly amazing! Thank you so much for all the work you are doing and putting the stories out there for us to learn from!

VERY affirming!! Many thanks

Maybe the reason why all the tests come back negative is because they haven’t developed a test for ME/ CFS? You could test for a hundred different allergens only to find out you are allergic to one they didn’t test for. Just a thought. Going on my fourth year of being bedridden with this disease and no matter what I do makes it better; so discouraging. Blessed Be

Thank you Raelan! Again!

I AM getting better again....excellent video Raelyn

I so wished I know what I now know five years ago. I agree with you repairing the nervous system is central to recovery. And it is not that black and white. I see CFS/ME as a form of burn out. And for me there are/were underlying issues of lack of self care and stress management. the body calls us out for us to 're align' with ourselves. What's happening in the world is a mirror of how we treat ourselves. I also start to become more aware of my thoughts, how I can harness them positively without ignoring and dismissing my feelings, as brain training can also be a risk. As other people have said I too like all your interviews. They give me hope to get better myself, my experiences are becoming more a shared experience and they give me ideas. Thank you! and you look so healthy, that too is good to see.

A single session of EMDR has sorted my 14 monthd of long covid. This ties in with your nervous system/brain training theories. The session dealt with (false) core beliefs from childhood.

Very interesting, thank you!

Additionally, both Chronic Lymes & Long Covid have POTS in common. My cardiologist said Every one of his patients diagnosed with POTS have also been diagnosed with Chronic Lymes.

Spot on! Thank you :)

Hi Raelan thanks so much for this, I love love your videos. Have you conisdered interviewing Simon Pimenta from the site ME/CFS Explored? He recovered and now teaches brain retraining but also shares a lot of information through videos and seminars for free.

Your work is priceless, Raelan, thank you! What about energy management and pacing though? For me personally, my CF started with a severe burnout, and I feel part of why I never recovered (now 5,5 years later) is that I never built up a good reserve. As soon as I was somewhat recovered I started working as much as I could. Now, for people who don't have much energy reserves, overworking itself starts off a stress response, so it's dysregulating to the nervous system. But the required action is limiting one's energy exposure first, I would think.

Its not coming out more and more about some me/cfs also having cervical instability and spinal issues which can complicate things. I addressed all of the other things including lyme co-infections but took over 30 years to realise these other issues were a big player

Wow this describes what I'm going through to a TEE.

Thank you so much, I am SO appreciative of the simplicity because I am so overwhelmed! However, I have a question: Iv'e watched a lot of your videos and it seems like a lot of people talk about some form of trauma work or changing who they were before they got sick. I'm curious why this isn't one of the three? Or does that fit into the first category of "calming the nervous system?"

I love this channel so much ! It is very helpful! There is actually proof that people with CFS, POTS and long covid are experiencing neuroinflammation deep inside the brain..so future therapies and treatment will address the neuroinflammation aspect ..Vagal stimulation is also something that is being researched. I personally found LDN in low intermittent doses to be SUPER helpful for CFS and dysautonomia. Also florinef as I have low aldosterone and low blood volume.

I had chatgpt summarize your video in about

It was my seeing a naturopath that has made the difference for me. She recognized immediately that it was an out of balance nervous system. My primary care doctor just said I had generalized anxiety disorder and needed to be on medication.

Thankyou so much Raelan💯🥰

Im got severe long covid with microclotting . Horrible nausea ... anyone have any suggestions? Ive become infunctionable.. i need help really bad. My veins are blowing out. I have two in my legs that are like extension cords. And all the ones in my feet are breaking . Something is very wrong They just found inter cranial brain swelling as well .with eye problems ... somebody ... i need help . They ve been trying for a year and im just getting sicker .

The reason that lab results of long covid patients come back normal is because most patients can only do bloodwork which shows only a part of your health, if you really want to know whats going on inside the cells more specialized tests are required. The big labs are already seeing that there are a lot of weird biomarkers in long covid patients but cannot find the cause yet unfortunately, there ate a lot of hints that mitochondrial dysregulstion (which controls the nervous system) plays a big part.

So how do I train my brain and nervous system :/

there is not a lot to be done, we suffer from tissue scarring, extensive tissue scarring caused by inflammatory cytokines, which we know never fully recovers, and any activity involving areas where tissues have been scarred are weakened for life and could potentially sustain further injury further progressing the tissue damage and symptoms we present with, we must limit ourselves each and every day or face relapses, we feel better for a small amount of time and we start performing any sort of activity and either later that same day or the next its all over again.

Hi Raelan, an where you've been - plenty of tests done, and no physical issues. Nervous system reacts exactly as you describe, I'm almost bedbound, can barely leave the house. When you say brain training, what is really the essence? Everyone talks about it, but doing 2-3x a day some visualisation and affirmative suggestions 'everything is ok, it's just my nervous system', these things don't do the trick entirely, even though a positive pull factor can be observed. Really would appreciate bulletpoints of the brain exercises you were doing! Love from Berlin

I had covid in Feb 2022. March I got so sick w the worst cold ever! Fatigue set in and I didn’t start feeling 85-90% better until august. Well, middle of august I got COVID again for a 2nd time! Then October I got sick for a month with a virus. Then November I got a bad cold. January/Feb of this year I apparently got COVID again for a 3rd time because the dr told me I had a spike in my antibodies. I’m losing my mind!!!! The fatigue is debilitating!!! Some days I’ll feel 80% ok but then I’ll overdo it and crash. My body is shot from everything I got within 12 months.